77 episodes
I AM MADELINE I AM MADELINE
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- Society & Culture
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5.0 • 7 Ratings
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A performer (actress, singer), leader, mentor, and community volunteer with her hands on a number of projects, Madeline is a joy to know. She loves gardening and The Sound of Music. Her friends describe her as "effervescent."
She's one of more than 600,000 Canadians living with family of diseases twice as common as Multiple Sclerosis that many doctors don't even believe in, despite a strong correlation to viral infections. She and others face painful deterioration without more government supports, with still untold numbers of COVID-19 survivors joining them.
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Welcome Amazon music listeners
Here are links to some articles that have been done but have some overview of what's happening to me with obviously journalistic vetting plus I'll link the GoFundMe as that's where I've been doing written updates
RICHOCHET article
https://ricochet.media/en/3991/Canada-MAID-policy-death-by-poverty
Also the journalist did a tweet thread with highlights from the article if that's something that you're interested on sharing Facebook and Instagram won't let you share a news links from Canada https://twitter.com/SpichakSimon/status/1707785829433618864?t=RowAITYe-W17QLiZRGTNMQ&s=19
Citr ep April 6 2023
https://www.citr.ca/radio/all-access-pass/episode/20230406/
Petition
https://www.meaction.net/2022/03/01/you-can-still-help-madeline/
https://dir.gov.bc.ca/gtds.cgi?show=Branch&organizationCode=HLTH&organizationalUnitCode=MH
Dabc Nov 2022
Blog
https://disabilityalliancebc.org/article-im-fighting-to-live-but/
Pdf mag
https://disabilityalliancebc.org/transitionfallwinter22/
Tyee November 14 2022
https://thetyee.ca/News/2022/11/14/Chronically-Ill-Dying-Poverty/
Chatelaine
https://www.chatelaine.com/health/maid-assisted-death-poverty/
Gfm
https://gofund.me/cff39173
Tyee article
https://thetyee.ca/News/2021/07/05/I-Should-Not-Have-To-Beg-For-My-Life/
Canada land podcast
https://www.canadaland.com/madeline-medical-assistance-in-dying-priced-out-of-life/
https://www.canadaland.com/podcast/723-the-high-cost-of-living/
Update
https://www.canadaland.com/podcast/741-updates-on-pretendians-porn-and-being-priced-out-of-life/
Millions missing simulcast
https://twitter.com/millionspod/status/1450838974864445440?t=tiE3pZtRLB9LiRVXIg4u8g&s=19
My Op-ed
https://quoimedia.com/canadians-with-disabilities-like-me-are-choosing-to-die-because-we-dont-have-the-financial-resources-to-live/
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Infection Red Alert + my eyes are full of blossoms
Quickie update about the very dangerous cellulitis infection that's making my bad situation worse. Doing my best to keep my head up and keep my sense of humor afloat. Not sure if I should post a picture of it cuz it's really yucky so I don't know... Blech. Instead I'll post a picture of the blossoms that are helping me navigate the panic that's curling around the edges of my thoughts. I know exactly how bad infections can get in my broken immune system
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Mission Possible from Impossible???
Mission impossible theme song in my head as I attempt to navigate all the layers of difficulty and complexity going on with more layers of difficulty and complexity getting added recently. So I thought it would do me good to talk about it and that you guys are probably wondering what's the what so here is an update.
Here's the tweet thread of the ricochet article I mentioned in this episode
https://twitter.com/SpichakSimon/status/1707785829433618864?t=QR1t1np3BwUNEKaARKpWvQ&s=19
Also, doing my best to keep my head in as good a place as I can, and I adore spring so here's some spring especially for people who aren't experiencing it yet
#canpoli #bcpoli #pwme #meaction #MECFS
#myalgicE #disability #HumanRights #genderbias #pwd #healthcare #Canada #britishcolumbia
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Barbie-Heimer Rant, Disability Edition
The title pretty much sums it up... It's My Disability Barbie-Heimer Rant!
RICHOCHET article
https://ricochet.media/en/3991/Canada-MAID-policy-death-by-poverty
Also the journalist did a tweet thread with highlights from the article if that's something that you're interested on sharing Facebook and Instagram won't let you share a news links from Canada https://twitter.com/SpichakSimon/status/1707785829433618864?t=RowAITYe-W17QLiZRGTNMQ&s=19
Gfm
https://gofund.me/cff39173
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Send in a voice message: https://podcasters.spotify.com/pod/show/i-am-madeline/message -
New Year; Renewed Battle!
In which I talk about how I navigated the holiday season and the advocacy and healthcare battles I'm facing in the next couple of months. I do also finally talk about the nightmare suite inspection and of course that they are coming back in March even though I did everything they asked me to do. Let's just say I have thoughts and feelings about that🤨🫤. I also talk about how that inspection has participated mass hair loss to the tune of half of my hair and counting. That's got my nurse practitioner worried, and me too! It's an indicator that my body is struggling so much that it's deprioritized energy to hair all over my body. This happened once before and precipitated my avalanche deterioration so I'm scared
For anyone looking for the link to share here once again is the GoFundMe https://gofund.me/cff39173
and the ricochet article https://ricochet.media/en/3991/Canada-MAID-policy-death-by-poverty along with the tweet thread that the journalist did so you can share it on Canadian social media https://twitter.com/SpichakSimon/status/1707785829433618864?t=RowAITYe-W17QLiZRGTNMQ&s=19 plus the YouTube channel https://youtube.com/@IamMadelinePod?feature=shared as I do now have some episodes recently created
The photo is of a Christmas present, a 3D printed miniature of the Moon that lights up. It makes me nerd girl happy🤓👩🏫. It was hard to take a picture of so I cradled it in my lap that's why it looks like a new moon
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From YT Holiday Magic & Melancholy
Turned out to be surprisingly easy to convert the YouTube video to audio only so you could have it on both YouTube and the podcast platforms. I tried to play with the audio a little bit cuz my video recording app doesn't have quite as nice and audio as my usual audio recording app so I hope it's okay
Once again the photos that I talk about I put up on the latest GoFundMe update if you want to see them https://gofund.me/cff39173 but one of them I was able to put here
In case you'd rather view it on YouTube here's that link once again: Holiday magic and Melancholy (on YouTube)
https://youtu.be/sm0pgHfXrjY?feature=shared
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Send in a voice message: https://podcasters.spotify.com/pod/show/i-am-madeline/message