10 episodes

A mental health podcast where nothing is off the table. Join self advocate and hosts, Victor Pereira and Daniel Share-Strom as they explore topics and how they relate to individuals with intellectual and developmental disabilities.

IDD: Get to know me Azrieli Adult Neurodevelopmental Centre

    • Society & Culture
    • 5.0 • 7 Ratings

A mental health podcast where nothing is off the table. Join self advocate and hosts, Victor Pereira and Daniel Share-Strom as they explore topics and how they relate to individuals with intellectual and developmental disabilities.

    Dating and Relationships with Dr. Alan S. Martino

    Dating and Relationships with Dr. Alan S. Martino

    This week we have a special guest, Dr. Alan Santinele Martino. Alan is an instructor in community rehabilitation and disability studies at the University of Calgary. He researched the romantic and sexual lives of adults with intellectual and developmental disabilities in Ontario for his PhD at McMaster University. We have Dr. Martino on this episode to discuss his research and the experiences of people with intellectual and developmental disabilities in intimate relationships. Dr. Martino highlights stories from people with disabilities who have advocated for themselves or others and shares why this work is so important to him. He also shares what the barriers are to his research and sex education for people with intellectual and developmental disabilities.
    Dr. Martino’s website: https://alanmartino.com/ (https://alanmartino.com/)
    Dr. Martino’s Twitter: https://twitter.com/AlanSMartino?s=20andt=DiV4e_kzatEjIgxrD2UqSw (https://twitter.com/AlanSMartino?s=20andt=DiV4e_kzatEjIgxrD2UqSw)
    Dr. Martino's Recent Publications:
    Santinele Martino, A. (2022). Ethically important moments: Researching the intimate lives of adults labeled/with intellectual disabilities. Qualitative Research.
    Santinele Martino, A. and Kinitz, D. J. (2022). “It’s Just More Complicated”: The Experiences of Adults with Intellectual Disabilities When Navigating Digital Sexual Fields. Cyberpsychology: Journal of Psychosocial Research on Cyberspace. https://urldefense.com/v3/__https:/cyberpsychology.eu/article/view/15180/16710__;!!FxkXuJIC!ZWMz3htBbvnABmOywf5UyAzBvXNjcpPGzTkm4Dj2uZMp8UC5o6I4-vWLOlHvQ2ck8vRnXyCfv3cUW7bK1dLtPOvx2gRL93k$ (https://cyberpsychology.eu/article/view/15180/16710)
    Brennand, E. and Santinele Martino, A. (2022). Disability is Associated with Sexually Transmitted Infection: Female Sex, Severity and Disability Domain are Important Risk Factors. Canadian Journal of Human Sexuality. https://urldefense.com/v3/__https:/doi.org/10.3138/cjhs.2021-0053__;!!FxkXuJIC!ZWMz3htBbvnABmOywf5UyAzBvXNjcpPGzTkm4Dj2uZMp8UC5o6I4-vWLOlHvQ2ck8vRnXyCfv3cUW7bK1dLtPOvxHAWhY8s$ (https://doi.org/10.3138/cjhs.2021-0053)

    • 30 min
    Inclusive Research with Dr. Yona Lunsky

    Inclusive Research with Dr. Yona Lunsky

    Welcome back for another season of IDD: Get to know me! In the first episode of our second season, podcast hosts Daniel and Victor interview Dr. Yona Lunsky, the director of the Azrieli Adult Neurodevelopmental Centre. Together they talk about why inclusion is so important and different ways they are making the Azrieli Adult Neurodevelopmental Centre, and research at CAMH more inclusive of people with intellectual and developmental disabilities.
    Yona shares what motivated her to get involved and continue working in this field for over 20 years. She also discusses the importance of including self-advocates in her work. Yona shares some tips on how she makes positions accessible to self-advocates and what we can do to create accessible and inclusive work environments.
    Want to get involved with projects at the Azrieli Adult Neurodevelopmental Centre? Email us at hcardd@camh.ca

    • 29 min
    Parent Perspective with Lee Steel and Amy Baskin

    Parent Perspective with Lee Steel and Amy Baskin

    Parents and caregivers play an essential role in the lives of their children with IDD, helping to ensure their overall health and wellbeing, and supporting their social and emotional needs.  The complex role of caring for a family member with IDD can be both a challenging and rewarding experience for caregivers and their families. In this episode, we delve into the parent’s perspective of caring for a child with an intellectual or developmental disability, talking to CAMH's own Lee Steel and Amy Baskin. Join us and find out the highs and the not-so-highs of being a parent to an adult child with IDD, and the life lessons learned along the way.


    Lee Steel is a Family Advisor at the Azrieli Adult Neurodevelopmental Centre, where she brings the parent perspective to all of our research endeavours. Lee has been involved in the development and facilitation of the Azrieli Mindfulness and Acceptance and Commitment Training (ACT) Groups for Caregivers. Amy Baskin is a freelance writer and educator who has supported the creation of the Azrieli Centre’s mindfulness workbook and facilitated our most recent COVID-19 virtual course for family caregivers Course targeted at improving the mental health of caregivers during the pandemic.


    To view the video recordings from our course, Mental health for adults with developmental disabilities during COVID: A virtual course for family caregivers visit the course webpage and our YouTube channel.


    You can also visit our H-CARDD COVID page for up-to-date vaccine information and other resources.


    The Family Matters Toolkit includes tools and resources specifically for family caregivers, to help you and your loved one prepare and participate in health care visits:

    • 27 min
    The AM HeLP Guide with Courtney Weaver and Alex Echakowitz

    The AM HeLP Guide with Courtney Weaver and Alex Echakowitz

    On this week’s episode of IDD: Get to Know Me we speak to Courtney Weaver and Alex Echakowitz about the just-released Mental Health Literacy Guide for Autism, created by the Autism Mental Health Literacy Project (AM-HeLP). The guide is designed to “increase awareness and share knowledge around issues related to Autistic mental health. This guide is meant to be read by everyone, but most importantly by Autistic adults, family members, professionals, policy-makers and leaders.”


    Alex and Courtney share their experience of working over the past two years with over 20 Autistic Advisors from across the country and researchers to help develop this guide.


    Tune in to hear directly from Alex and Courtney why this guide is so important and how they hope it will be used. You will also hear a fun fact you may not know about Alex, Courtney and our hosts!


    The Mental Health Literacy Guide for Autism was created by York University’s Dr. Jonathon Weiss and CAMH’s Dr. Yona Lunsky, as well as research staff and Autistic advisors.


    For more information and to download a copy of the guide, visit https://www.yorku.ca/health/lab/ddmh/am-help/

    • 27 min
    The Sibling Collaborative with Helen Ries

    The Sibling Collaborative with Helen Ries

    Siblings of people with disabilities often encounter unique challenges throughout their lifespan but their concerns are not always heard or acknowledged. In this week’s episode of IDD: Get to Know Me, Helen Ries, the founder of The Sibling Collaborative, joins us to share her journey as a sibling to someone with IDD and what drove her to develop The Sibling Collaborative.


    The Sibling Collaborative is a national organization that supports people who are siblings to someone with a disability, engaging with over 500 siblings from across Canada. The idea for the Collaborative emerged from Helen’s experience of becoming a caregiver for her sibling and the lack of support and information available to her. The Sibling Collaborative strives to support siblings who are going through similar experiences by providing connection, resources and research. Most recently, it has started to host virtual meetups to support siblings during the COVID pandemic.


    The Sibling Collaborative has worked with the Azrieli Adult Neurodevelopmental Centre at CAMH to study these special relationships. Recently the Azrieli Centre published a report The Experiences of Siblings of People with IDD during the COVID-19 Pandemic with support from The Sibling Collaborative.


    In this episode you will hear whether Helen would rather be the smartest or funniest person in the room (spoiler alert: she says neither!), her experiences as a sibling to someone with a disability, and what led her to start The Sibling Collaborative.


    To learn more about The Sibling Collaborative and how to get involved, visit their website or join their mailing list. You can also follow The Sibling Collaborative on Twitter and Facebook @SibCollab!


    Like what you heard this week? Don’t forget to subscribe and review our podcast wherever you are listening; this will help us grow our audience.


    Have topic ideas or feedback you’d like us to hear? Send us an email at Katie.Cardiff@camh.ca.

    • 31 min
    Sibling Stories with Nicole Bobbette and Victoria Cusumano

    Sibling Stories with Nicole Bobbette and Victoria Cusumano

    Sibling relationships are some of the most important in our lives-doubly so when autism or IDD are involved.  In this episode, Victor and Daniel chat with Victoria Cusumano and Nicole Bobbette on what it is like growing up with a differently abled sibling and how it can be different from typical sibling relationships. Victoria and Nicole reveal what their siblings have taught them, and how they have enriched their lives. We also hear their answer to this week’s ice breaker “If you could, what age would you stop aging at and why?”.


    Victoria is a fourth year psychology student at the University of Toronto. She has worked at the Azrieli Adult Neurodevelopmental Centre at CAMH in various roles over the past two years, supporting self-advocates involved in research. Victoria has also been a basketball coach with Special Olympics Ontario for five years. Most importantly, Victoria is a sister to Vanessa, who has Down syndrome. Victoria and Vanessa live together along with their brother and parents at their family home in Toronto, Ontario.


    Nicole Bobbette is an occupational therapist who has been working with people with IDD for the past 13 years. Nicole just completed a postdoctoral fellowship at the Azrieli Adult Neurodevelopmental Centre and is now an assistant professor at Queen's University where she teaches in the occupational therapy program. Nicole is passionate about collaborating with people with IDD in research to promote health and improve health services. Nicole’s primary and most important role is being an older sister to Allison, who has an IDD and lives semi-independently in Barrie, Ontario.


    Tune in next time when we speak with Helen Reise from the Sibling Collaborative. 


    You can follow Nicole on Twitter (https://twitter.com/nicole_bobbette).


    Like what you hear, don't forget to rate and review us wherever you get your podcasts! 

    • 27 min

Customer Reviews

5.0 out of 5
7 Ratings

7 Ratings

Benson1997! ,

Amazing podcast!

Very eye-opening podcast. Love hearing from Victor and Daniel!

indiebindy12345 ,

Amazing!

Amazing to hear victor and Daniels voices. More please!

ssabrinaa11 ,

Great series

I’m looking forward to future episodes. I am certain that this podcast series will teach me plenty valuable information.

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