The HDSA Podcast

Huntington's Disease Society of America
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The HDSA Podcast gives listeners an opportunity to meet members of the Huntington's disease community and get a behind-the-scenes look at the Huntington's Disease Society of America. A new episode will be released every month and please visit www.HDSA.org to learn more about HD and how to get involved. 

  1. vor 3 Tagen

    S4:E4 - Tell Allison What She Missed at the HDSA Annual Convention

    Send us Fan Mail Allison couldn’t make it to Convention, so Tam and Maryann are filling her in on everything she missed! From powerful sessions and community moments to key updates, inspiring stories, and behind-the-scenes highlights, this episode recaps the energy, connection, and hope that made this year’s HDSA Annual Convention so meaningful.  Don't forget to follow us on social media!

    47 Min.

  2. 29. Mai

    S4:E3 - Let's Talk About HD Awareness Month Part 2

    Send us Fan Mail In this episode of Let’s Talk About HD, hosts Tam Maiuri and MaryAnn Emerick are joined by Paul, Hannah, Rachel, Emily, Jenna, and Mariana for a meaningful conversation about Huntington’s disease, community, connection, and the experiences that shape the HD journey. Together, they share personal perspectives, reflect on the importance of support, and highlight the power of open conversation in helping families feel seen, heard, and less alone. This episode reminds us that every HD story matters—and that by talking about HD, we continue to build awareness, understanding, and hope. Don't forget to follow us on social media!

    35 Min.

  3. 18. Mai

    S4:E2 - Let's Talk About HD Awareness Month with Tam, Allison & MaryAnn

    Send us Fan Mail Let’s Talk About HD Awareness Month with Tam, Allison & MaryAnn In this episode of Let’s Talk About HD, we recognize Huntington’s Disease Awareness Month with a meaningful conversation featuring Tam, Allison, and MaryAnn. Together, they reflect on the importance of raising awareness, and discuss how storytelling, advocacy, and community support help shine a light on the experiences of HD families. Throughout the conversation, Tam, Allison, and MaryAnn highlight why awareness matters, not only in May, but all year long, as HDSA continues working to provide help for today and hope for tomorrow for everyone impacted by Huntington’s disease. Don't forget to follow us on social media!

    28 Min.

  4. 23. Apr.

    S4:E1 - Let's Talk About HD with Tam, Allison & MaryAnn

    Send us Fan Mail Meet the new hosts of the HDSA Podcast: Tamara Maiuri, PhD, Associate Director of Research and Patient Engagement; Allison Bartlett, Esq., Senior Manager of Disability Programs; and MaryAnn Emerick, LMSW, Senior Manager of Youth & Community Services. Together, they bring expertise, insight, and a deep commitment to the Huntington’s disease community.  Don't forget to follow us on social media!

    28 Min.

  5. 12.02.2025

    S3:E1- Let's Talk About Volunteering with HDSA

    Send us Fan Mail In this insightful episode, Neekia Davis, Teresa Srajer, Beth Hoffman, and Dom Thomas dive into the importance of volunteering and how you can get involved in supporting the Huntington’s Disease Society of America (HDSA). They share personal experiences, tips for making an impact, and why volunteers are the heart of the organization. Whether you're looking for ways to give back or just curious about HDSA’s mission, this conversation is packed with inspiration and practical advice. Don't forget to follow us on social media!

    22 Min.

  6. 02.12.2024

    S2:E5 Let's Talk about the HD ELPFDD Meeting

    Send us Fan Mail In this insightful episode, Neekia Davis and Phyllis Foxworth dive deep into the highlights and critical discussions from the ELPFDD Meeting on November 13th. They break down the key takeaways, and provide an inside look at the collaborative efforts shaping the next steps. Join us as they outline action plans, share community feedback, and discuss strategies for addressing the pressing challenges and opportunities identified during the meeting. Whether you attended the ELPFDD or are catching up on what you missed, this episode is packed with valuable insights to keep you informed and engaged in the journey ahead. Tune in to stay in the know and discover how you can contribute to the path forward! Don't forget to follow us on social media!

    24 Min.

  7. 18.10.2024

    S2:E4 - Let's Talk About POWERHD

    Send us Fan Mail In today's episode, we're thrilled to take a deep dive into POWERHD with special guests Erika Boulavsky, MSW, LCSW, Community Outreach Specialist at HDReach, and MaryAnn Emerick, LMSW, Manager of Youth & Community Services at HDSA. Tune in for an insightful conversation! Don't forget to follow us on social media!

    23 Min.

  8. 11.06.2024

    S2E3: Phyllis Foxworth & Dr. Victor Sung

    Send us Fan Mail  In this episode, HDSA's President & CEO Louise Vetter is joined by Phyllis Foxworth and Dr. Victor Sung to chat about the changing landscape of research.  Phyllis is the Senior Manager, Advocacy at HDSA Dr. Sung is the Director of the HDSA Center of Excellence at The University of Birmingham, Alabama, and the former chair of the HDSA Board of Directors.  To learn more about Huntington's disease, please visit HDSA.org.    Don't forget to follow us on social media!  Don't forget to follow us on social media!

    38 Min.
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Info

The HDSA Podcast gives listeners an opportunity to meet members of the Huntington's disease community and get a behind-the-scenes look at the Huntington's Disease Society of America. A new episode will be released every month and please visit www.HDSA.org to learn more about HD and how to get involved. 

Informationen

  • Erstellt von
    Huntington's Disease Society of America
  • Jahre aktiv
    2023 - 2026
  • Folgen
    13
  • Bewertung
    Unbedenklich
  • Copyright
    © 2026 The HDSA Podcast
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    The HDSA Podcast