Haemcast

Haemnet

Welcome to the Haemcast, where we talk about all things haemophilia and bleeding disorders. Join us as we speak with leading experts in the field to tackle and address the latest news, hot topics and research.

  1. Ports, pressure and panic — Coping with haemophilia treatment challenges

    4 dage siden

    Ports, pressure and panic — Coping with haemophilia treatment challenges

    In this episode of Haemcast’s special series in collaboration with Local families with bleeding disorders, we look at some of the challenges that can arise when treating a child with haemophilia. Getting used to administering treatment can be challenging, particularly in the early days. Until recently, most haemophilia treatments have been given intravenously, which is a challenge in itself, but other issues can arise too.  In ‘Ports, pressure and panic’, we speak with three parents of children with haemophilia about treatment-related challenges they’ve experienced. They discuss how they’ve managed and overcome these challenges, and the impact on them as parents. If you would like to find out more about Local families with bleeding disorders, visit www.bleeding-disorders.co.uk   CREDITS Participants: Sam Keeley, Nicola East, Andrew East Interviewer: Kathryn Jenner Music: Once Again Royalty Free Music by Benjamin Tissot via ⁠⁠⁠⁠⁠⁠⁠⁠bensound.com⁠

    32 min.
  2. "I'm the worrier in our relationship" — Being the partner of a person with a bleeding disorder

    27. maj

    "I'm the worrier in our relationship" — Being the partner of a person with a bleeding disorder

    The next in our special collaboration between Haemcast and Local families with bleeding disorders focuses on the partners of people who live with haemophilia and von Willebrand disease.   Anya, Emma and Tom agree that while bleeding disorders are significant in their lives, they don’t define their partners’ identities or their relationships.    They talk about teamwork and living in the moment, and they share a pride in their partners’ resilience and advocacy. But they also note a lack of support and awareness for partners themselves, particularly when it comes to medical issues.   For more information about Local families with bleeding disorders, visit www.bleeding-disorders.co.uk.   CREDITS Participants: Anya Gorman, Emma Drake, Tom Charles Interviewer: Kathryn Jenner   Music: Once Again Royalty Free Music by Benjamin Tissot via ⁠⁠⁠⁠⁠⁠⁠⁠bensound.com⁠

    30 min.
  3. "Everything's new with haemophilia" — Treatment choices and changes

    30. apr.

    "Everything's new with haemophilia" — Treatment choices and changes

    When making choices about treatment for a bleeding disorder, for a child or for yourself, what matters most?  In this episode of Haemcast’s special series in collaboration with Local families with bleeding disorders, we speak with parents about the considerations that come into play when making decisions about haemophilia treatments. They share their treatment stories, expectations and anxieties around treatment changes, and how easy it is to access new or different treatments. For more information about Local families with bleeding disorders, visit www.bleeding-disorders.co.uk   CREDITS Participants: Gemma Gardner, Nicola Green, Bonnie Charles Interviewer: Kathryn Jenner   Music: Once Again Royalty Free Music by Benjamin Tissot via ⁠⁠⁠⁠⁠⁠⁠⁠bensound.com⁠

    30 min.
  4. Sticky blood, teddies and teens — Talking to children about their bleeding disorder

    31. mar.

    Sticky blood, teddies and teens — Talking to children about their bleeding disorder

    When it comes to managing family life with a child who has a bleeding disorder, parents aren’t just caregivers – they’re organisers, advocates and educators. Alongside managing their child’s condition, they have to help them understand it too. In this episode of Haemcast’s special series in collaboration with Local families with bleeding disorders, parents discuss how they go about talking to their child about their bleeding disorder – helping them understand where it comes from, what it means for their day-to-day lives, and why their treatment is important. For more information about Local families with bleeding disorders, visit ⁠www.bleeding-disorders.co.uk   CREDITS Participants: Hannah Brunning, Mark Salmen, Jackie Perkins Interviewer: Kathryn Jenner Music: Once Again Royalty Free Music by Benjamin Tissot via ⁠⁠⁠⁠⁠⁠⁠⁠bensound.com⁠

    34 min.
  5. Veins, verse and voices: How poetry helped Local families with bleeding disorders be heard

    5. mar.

    Veins, verse and voices: How poetry helped Local families with bleeding disorders be heard

    The first in a special Haemcast series in collaboration with Local families with bleeding disorders, exploring aspects of family life. In this episode, members of Local families with bleeding disorders discuss the online workshops that helped them explore their experiences and express their hopes, expectations and worries about the bleeding disorders that impact their families. They are joined by community advocate Rich Gorman, and poet and arts practitioner Dawn Gorman (no relation). The poetry collection resulting from the workshops, Bleeding and Belonging, is available online as an eBook. For more information about Local families with bleeding disorders, visit www.bleeding-disorders.co.uk CREDITS: Participants: Dr Rich Gorman, Dawn Gorman, Lisa Steadman, Hannah Brunning, Marie Dolton, Alex Akrimi, Claire Brown Interviewers: Kathryn Jenner, Dr Kate Khair Music: Once Again Royalty Free Music by Benjamin Tissot via ⁠⁠⁠⁠⁠⁠⁠bensound.com⁠

    35 min.
  6. Banana sap, mangos and factor IX — a Ugandan haemophilia B journey

    09.10.2025

    Banana sap, mangos and factor IX — a Ugandan haemophilia B journey

    Morris Okello lives in Northern Uganda. In this episode of Haemcast, he tells Dr Kate about the childhood experiences that eventually led to him being diagnosed with haemophilia B. As well as describing his own journey towards becoming an advocate for people with haemophilia in Uganda, Morris highlights the work of the Ugandan Haemophilia Society in raising awareness, improving rates of diagnosis, and providing access to treatment and care. CREDITS: Speaker: Morris Okello Griffin Interviewer: Dr Kate Khair Music: Once Again Royalty Free Music by Benjamin Tissot via ⁠⁠⁠⁠⁠⁠bensound.com⁠

    25 min.
  7. Quality of life in the balance: Helen Tate on living with Factor V deficiency

    21.08.2025

    Quality of life in the balance: Helen Tate on living with Factor V deficiency

    Dance teacher and Haemophilia Society trustee Helen Tate talks with Haemnet's Dr Kate Khair about living with Factor V deficiency, a rare bleeding disorder that affects around one in a million people. Helen leads an active life despite her condition and is a passionate advocate for the rare bleeding disorders community. She discusses diagnosis, coping with bleeds when treatment options are limited, and what she thinks needs to change to improve life for everyone who lives with a rare bleeding disorder. CREDITS: Speaker: Helen Tate Interviewer: Dr Kate Khair Music: Once Again Royalty Free Music by Benjamin Tissot via ⁠⁠⁠⁠⁠bensound.com⁠

    22 min.
  8. Looking back on Terence's life: Haemophilia then and now, with Kate Khair

    30.07.2025

    Looking back on Terence's life: Haemophilia then and now, with Kate Khair

    Following our six-part mini-series 'Reflections on a life with severe haemophilia', with Terence O'Rourke, Haemnet's Dr Kate Khair considers some of the things that have changed in haemophilia care during Terence's lifetime – and some of the  things that perhaps haven't. Kate discusses the importance of remembering times when haemophilia treatment wasn't so readily available, getting a diagnosis, treatment decisions, feeling isolated, and the importance of support and understanding. CREDITS: Speaker: Dr Kate Khair Interviewer: Kathryn Jenner Music: Once Again Royalty Free Music by Benjamin Tissot via ⁠⁠⁠⁠bensound.com⁠

    18 min.
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Om

Welcome to the Haemcast, where we talk about all things haemophilia and bleeding disorders. Join us as we speak with leading experts in the field to tackle and address the latest news, hot topics and research.

Oplysninger

  • Skaber
    Haemnet
  • Aktive år
    2021 - 2026
  • Episoder
    42
  • Vurdering
    Ikke anstødeligt
  • Copyright
    © Haemnet
  • Websted for serie
    Haemcast