This new podcast from the Pulmonary Hypertension Association (PHA UK) is the ideal listen for anyone living with the rare disease PH.
It builds on the chatty style of our member magazine, EmPHAsis, to bring listeners news, conversations, advice, analysis and more.
Our podcast isn’t just for patients; it’s for everyone in the PH community - friends, family, carers, and medical professionals too. You’re all welcome here :-)
Listen to EmPHAsis On Air when you’re driving, walking, resting, or if you’re struggling to sleep at night. While we can’t promise our dulcet tones will lull you into slumber, we can promise you friendly and honest chat - about things that matter to you, and with people who understand.
Self-help for PH, anxiety & depression
PH can often go hand-in-hand with anxiety, but there are strategies and tools available to help. For this episode, we are joined by clinical psychologist Dr Gregg Rawlings to talk about the PHA UK resources that are currently available, and an important new study into coping as a carer.
You can order 'Overcoming Worry & Anxiety', the self-help programme developed with Dr Rawlings, for free here.
Find out more or volunteer for the caring study here.
Celebrating your support
We've seen some amazing fundraising activity recently, and we're so grateful for the support that our community gives us to help us continue our work. We've dedicated this special episode to the kindness of our supporters, and we hope you enjoy hearing about some of the challenges, events, and donations that are making such a difference to our charity.
You can find out more about fundraising for the PHA UK here.
Healthcare in a war: The situation in Ukraine
For people with serious health conditions caught up in the conflict in Ukraine, the situation is desperate.
On 18th March, we caught up with Dr Joanna Pepke-Zaba, a pulmonary hypertension expert with links to European efforts to get help to people affected by this disease.
Dr Pepke-Zaba, who is based in Cambridge, joined us from a conference in Switzerland for this special episode that aims to shed some light on this aspect of the humanitarian crisis.
Clinical Trials: Why your opinions matter
Important research into new treatments for pulmonary hypertension is happening all the time, and people living with the condition play a vital role in these studies.
In this episode, we are joined by Cambridge researchers Joe Newman and Dr Mark Toshner, to talk about a promising new drug trial and how you can help shape its design by completing this collaborative survey.
Read more about this important project here.
HRT & pulmonary hypertension
In this special episode dedicated to a very important subject, we are joined by special guest Dr Neil Hamilton to talk about Hormone Replacement Therapy (HRT) and what women with PH need to consider when accessing it to reduce symptoms of the menopause.
Neil also discusses the current proposal to make some types of HRT available without prescription from pharmacies.
If you have any thoughts around this topic, or you would like to give some feedback on this episode, please email email@example.com.
Navigating the benefits system
We understand that applying for benefits can be frustrating (to say the least!), and this episode explores the range of support that's available from the PHA UK.
Our biggest piece of advice is don't give up! Our own research shows that 52% of applicants with PH were turned down the first time they applied for benefits, but 78% of those who applied for benefits were eventually awarded them in the end.
Visit our dedicated financial support web area here
Order your free copies of our financial support publications here
Friendly but informative
I‘ve really enjoyed the first few episodes. It’s nice to listen to some friendly and now familiar voices talking about a lot of issues that affect people with PH.
Good work guys!