Cripademia Book Club Pod (with Long Covid Advocacy)

Long Covid Advocacy
  • 5.0 (1)
  • Medicine
  • Monthly

Welcome to the Cripademia Book Club Podcast. We are a chronic illness and disability reading collective. Quarterly and intersectional (with the occasional non-book episode), we explore in community: chronic illness, disability, medical history and crip culture. Hosted by Long Covid Advocacy. 📚 ⁠Cripademia Book Club on Fable⁠: https://bit.ly/crp-fable 📷 ⁠Cripademia Instagram⁠: https://www.instagram.com/cripademia/ 💙 ⁠Long Covid Advocacy: https://www.longcovidadvoc.com/⁠ 🎧 Subscribe Thank you for listening and supporting sick and disabled-led work

Episodes

  1. 29 May

    05 - On Medical Misogyny: Discussing Unwell Women with Dr Elinor Cleghorn | Cripademia Book Club

    Welcome to the Cripademia Book Club. In this episode, we speak with Dr Elinor Cleghorn, historian of medicine and author of Unwell Women: A Journey Through Medicine and Myth in a Man-Made World. Together, we explore the long history of women's health being misunderstood, dismissed, and mythologised, and discuss how these historical narratives continue to shape medicine and healthcare today. For many people living with chronic illness, particularly women and gender minorities, these histories are not confined to the past—they continue to influence diagnosis, treatment, and whose experiences are believed. This conversation examines the roots of medical bias and what it means to build a more equitable future. Chapters 00:00 Introduction & Elinor Cleghorn’s Story02:17 Lupus, Misdiagnosis & Medical Dismissal08:40 The History of “Hysteria” in Medicine15:30 Women’s Pain & Diagnostic Bias21:45 Autoimmune Disease & Gender30:55 Why Chronic Illness Is So Often Disbelieved34:42 Medicine’s Problem With Complexity35:31 Falling Through the Cracks of Specialisms37:52 Medical Education & “It’s Anxiety”39:46 What Medical Misogyny Actually Means41:49 Endometriosis & Systemic Failure43:01 The NHS, Chronic Illness & Structural Problems44:38 Why Doctors Need Time to Sit With Uncertainty46:04 ME/CFS, Incline Village & “Yuppie Flu”49:54 Psychologising ME & “Myalgic Nervosa”51:05 Long Covid, ME & Chronic Illness Stigma53:15 Why Medicine Must Change for Chronic Disease55:14 Exploitation, Blame & “Fairy Tale Diagnoses”56:18 Reimagining Healthcare Around Patients58:10 Elinor’s New Book: A Woman’s Work58:29 Reclaiming the Radical History of Mothering 🪶Author Website 📚 Cripademia Book Club on Fable 📷 Cripademia Instagram 💙 Long Covid Advocacy 🎧 Subscribe Thank you for listening and supporting sick and disabled-led work

    05 - On Medical Misogyny: Discussing Unwell Women with Dr Elinor Cleghorn | Cripademia Book Club

  2. 15 Mar

    04 - On Medical Education: A Special for Long Covid Awareness Day with Dr David Putrino | Cripademia

    In this special episode for Long Covid Awareness Day, Dr Rupert Higham, lecturer in Learning and Leadership from the Institute of Education at UCL speaks with Professor David Putrino, neuroscientist and rehabilitation specialist at the Icahn School of Medicine at Mount Sinai - and general legend! Professor Putrino is also the Nash Family Director of the Cohen Center for Recovery from Complex Chronic Illnesses (CoRE), where his team researches and treats infection-associated chronic illnesses (IACI) including Long Covid, ME, and chronic Lyme disease. Since the start of the COVID-19 pandemic, Professor Putrino has become a leading voice in both the clinical care and research of Long Covid. He is also helping to develop medical education programmes for clinicians on infection-associated chronic illness as part of the Long Covid Open Medical Education Program with Polybio and at the Icahn School of Medicine at Mount Sinai. 0:00 Introduction 1:32 What drew David Putrino to Long Covid 4:53 How medical education has failed Long Covid and ME patients 14:19 Medical textbooks and patient experience in books 21:52 The problem with ‘medically unexplained symptoms’ 27:09 Why we see optional educational programs 33:10 How to embed Long Covid in under/post-grad training 33:30 Putrino's top three changes for medical education 41:01 How to reduce infection risk 44:27 How patients can navigate difficult doctor visits 55:16 How Long Covid education is spreading internationally 1:00:21 Q&A PEM vs Fatigue 1:02:51 Q&A Relationship between Long Covid and ME 1:05:32 Q&A Dysautonomia, Gut Problems and Nutrition 1:09:12 Q&A Help for diagnosis for MCAS Cohen Centre Living Clinical Guidelines for Infection-Associated Chronic Conditions and Illnesses on the HSS Website Download Infection-Associated Chronic Illnesses Provider Manual 🪶⁠Speaker Website⁠ 📚 ⁠Cripademia Book Club on Fable⁠ 📷 ⁠Cripademia Instagram⁠ 💙 ⁠Long Covid Advocacy⁠ 🎧 Subscribe Thank you for listening and supporting sick and disabled-led work

    04 - On Medical Education: A Special for Long Covid Awareness Day with Dr David Putrino | Cripademia

  3. 13 Mar

    03 - On ME Representation: Discussing Awakened with Laura Elliott | Cripademia Book Club

    Welcome to the Cripademia Book Club. In this episode, we speak with Laura Elliott, writer, researcher, and author of Awakened, a powerful exploration of the science, history, and lived experience of myalgic encephalomyelitis (ME). Together, we discuss Awakened and the realities of living with a misunderstood illness, tracing the history of ME, the impact of medical and societal neglect, and the growing movement towards scientific recognition and change. For people living with ME and Long COVID, these stories are deeply personal. This conversation explores what it means to be heard, believed, and represented, while examining how medicine can move beyond decades of misunderstanding towards a more compassionate and evidence-based future. 🪶⁠Author Website⁠ 📚 ⁠Cripademia Book Club on Fable⁠ 📷 ⁠Cripademia Instagram⁠ 💙 ⁠Long Covid Advocacy⁠ 🎧 Subscribe Thank you for listening and supporting sick and disabled-led work

    03 - On ME Representation: Discussing Awakened with Laura Elliott | Cripademia Book Club

  4. 06/06/2025

    02 - On Medical Silencing: Discussing Unheard with Dr Rageshri Dhairyawan | Cripademia Book Club

    Welcome to the Cripademia Book Club. In this episode, we speak with Dr Rageshri Dhairyawan, NHS Consultant in Sexual Health and HIV Medicine, researcher, and science communicator. We discuss her book Unheard: The Medical Practice of Silencing, which explores how medicine has historically failed to listen to patients and the consequences this has for healthcare, knowledge, and health equity. For people living with chronic illness, feeling unheard is often a defining part of navigating healthcare. This conversation explores why medical silencing persists, how it shapes patient experiences, and what it would take to build a healthcare system where listening is recognised as an essential part of good medicine. 🪶⁠Author Website⁠ 📚 ⁠Cripademia Book Club on Fable⁠ 📷 ⁠Cripademia Instagram⁠ 💙 ⁠Long Covid Advocacy⁠ 🎧 Subscribe Thank you for listening and supporting sick and disabled-led work

    02 - On Medical Silencing: Discussing Unheard with Dr Rageshri Dhairyawan | Cripademia Book Club

  5. 08/03/2025

    01 - On Pseudoscience: Discussing Mind the Science with Dr Jonathan Stea | Cripademia Book Club

    Welcome to the first Cripademia Book Club episode. In this episode, we speak with Dr Jonathan Stea, psychologist and Adjunct Professor in the Department of Psychology at the University of Calgary.We discuss his book Mind the Science: Saving Your Mental Health from the Wellness Industry, and explore the rise of pseudoscience in mental health and wellness culture. For many people living with chronic illness, pseudoscience is not abstract — it is something they encounter directly in care, advice, and public discourse. This conversation looks at how and why that happens, and what a more evidence-based approach could look like. 🪶⁠Author Website⁠ 📚 ⁠Cripademia Book Club on Fable⁠ 📷 ⁠Cripademia Instagram⁠ 💙 ⁠Long Covid Advocacy⁠ 🎧 Subscribe Thank you for listening and supporting sick and disabled-led work

    01 - On Pseudoscience: Discussing Mind the Science with Dr Jonathan Stea | Cripademia Book Club
  • 5 Episodes

About

Welcome to the Cripademia Book Club Podcast. We are a chronic illness and disability reading collective. Quarterly and intersectional (with the occasional non-book episode), we explore in community: chronic illness, disability, medical history and crip culture. Hosted by Long Covid Advocacy. 📚 ⁠Cripademia Book Club on Fable⁠: https://bit.ly/crp-fable 📷 ⁠Cripademia Instagram⁠: https://www.instagram.com/cripademia/ 💙 ⁠Long Covid Advocacy: https://www.longcovidadvoc.com/⁠ 🎧 Subscribe Thank you for listening and supporting sick and disabled-led work

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