22 episodes

The charity SMA UK invites different hosts from across the SMA Community together to discuss different topics. This is great place to find useful tips, recommendations, and hear personal stories.

Living With SMA Spinal Muscular Atrophy UK (SMA UK)

    • Business

The charity SMA UK invites different hosts from across the SMA Community together to discuss different topics. This is great place to find useful tips, recommendations, and hear personal stories.

    18 - Part 1: You've Got a Friend in Me

    18 - Part 1: You've Got a Friend in Me

    Welcome to the Living With SMA Podcast. 

    In this latest 3 part episode, Ross Lannon, Luis Canto E Castro, Connor Thompson and Lauren Townsend have a very intimate conversation, talking about the positive side of care and the benefits that both the carer and the disabled individual can get from this relationship.

    Watch this episode on our YouTube channel here.

    Each of our guests today shares their own personal views and individual stories.

    You can contact SMA UK on the following social media platforms ⬇️⬇️

    twitter.com/SMA_UK_
    facebook.com/SpinalMuscularAtrophyUK/
    instagram.com/sma_uk

    If you do have any questions for Ross, Luis, Connor, Lauren and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.uk

    Living With SMA - 'You've Got a Friend in Me' disclaimer:
    The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

    • 18 min
    18 - Part 3: You've Got a Friend in Me

    18 - Part 3: You've Got a Friend in Me

    Welcome to the Living With SMA Podcast. 

    In our final part of episode 18, Ross Lannon, Luis Canto E Castro, Connor Thompson and Lauren Townsend talk about:
    The rewards and benefits of being a PAThe media representation of PA’s and Care in General‘The Fundamentals of Caring’ film starring Paul Rudd, Craig Roberts and Selena Gomez What would you say to someone potentially thinking about becoming a carer?Watch this episode on our YouTube channel here.

    Each of our guests today shares their own personal views and individual stories.

    You can contact SMA UK on the following social media platforms ⬇️⬇️

    twitter.com/SMA_UK_
    facebook.com/SpinalMuscularAtrophyUK/
    instagram.com/sma_uk

    If you do have any questions for  Ross, Luis, Connor, Lauren and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.uk

    Living With SMA - 'You've Got a Friend in Me' disclaimer:
    The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

    • 9 min
    18 - Part 2: You've Got a Friend in Me

    18 - Part 2: You've Got a Friend in Me

    Welcome to the Living With SMA Podcast. 

    Today in part 2 of this episode, Ross Lannon, Luis Canto E Castro, Connor Thompson and Lauren Townsend talk about setting boundaries with your PA, the relationship process, the skills needed to become a PA and the importance of empathy and compassion.

    Watch this episode on our YouTube channel here.

    Each of our guests today shares their own personal views and individual stories.

    You can contact SMA UK on the following social media platforms ⬇️⬇️

    twitter.com/SMA_UK_
    facebook.com/SpinalMuscularAtrophyUK/
    instagram.com/sma_uk

    If you do have any questions for  Ross, Luis, Connor, Lauren and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.uk

    Living With SMA - 'You've Got a Friend in Me' disclaimer:
    The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

    • 16 min
    17-Part 3: About Toilets

    17-Part 3: About Toilets

    Welcome to the Living With SMA Podcast. 

    In the final part of this 'About Toilets' episode, Luis Canto E Castro, Ross Hovey and Jasmine West discuss shared space bathrooms, queue jumping and ignorance and feeling like a burden.

    Watch this episode on our YouTube channel here.

    Each of our guests today shares their own personal views and individual stories on accessible toilets.

    You can contact SMA UK on the following social media platforms ⬇️⬇️

    Twitter:         twitter.com/SMA_UK_
    Facebook:    facebook.com/SpinalMuscularAtrophyUK/ 
    Instagram:    instagram.com/sma_uk

    If you do have any questions for Luis, Jasmine, Ross and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.uk

    Living With SMA - 'About Toilets' disclaimer:
    The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

    • 19 min
    17-Part 2: About Toilets

    17-Part 2: About Toilets

    Welcome to the Living With SMA Podcast. 

    In part 2 of this 3 part episode 'About Toilets' episode, Luis Canto E Castro, Ross Hovey and Jasmine West  discuss gender neutral bathrooms, policy standards and lack of awareness.

    Watch this episode on our YouTube channel here.

    Each of our guests today shares their own  personal views and individual stories on accessible toilets.

    You can contact SMA UK on the following social media platforms ⬇️⬇️

    Twitter:         twitter.com/SMA_UK_
    Facebook:    facebook.com/SpinalMuscularAtrophyUK/
    Instagram:    instagram.com/sma_uk

    If you do have any questions for  Luis, Jasmine, Ross and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.uk

    Additional Links:
    Changing Places £30 million Investment:
    https://www.changing-places.org/local-authority-funding/ps30-million-investment-to-provide-changing-places-toilets

    References to Changing Places toilets in 'Amendments to the Approved Documents' The Building Regulations 2010 (July 2020):
    https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/901882/200717_AD_M_July2020_amend.pdf

    Living With SMA - 'About Toilets' disclaimer:
    The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

    • 15 min
    17-Part 1: About Toilets

    17-Part 1: About Toilets

    Welcome to the Living With SMA Podcast. 

    This is not just a standard episode on toilets.  In this latest 3 part episode, Luis Canto E Castro, Ross Hovey and Jasmine West discuss and share their own personal views and individual stories on using accessible toilets in the UK. 

    Watch this episode on our YouTube channel here.

    Luis, Jasmine and Ross are talking about the challenges they face on a regular basis and share some ideas on what they think toilets should look like in the future and where they believe people are going wrong.  

    Twitter:         twitter.com/SMA_UK_
    Facebook:    facebook.com/SpinalMuscularAtrophyUK/ 
    Instagram:    instagram.com/sma_uk

    If you do have any questions for  Luis, Jasmine, Ross and the team or would like to participate in any of our podcasts please email luis.castro@smauk.org.uk

    • 17 min

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