Myelopathy Matters is the official podcast of Myelopathy.org, the charity for degenerative cervical myelopathy. It aims to bring the latest on living with, managing and understanding the condition, through expert guests from around the world. The show is hosted by Ben Davies (Neurosurgeon, Scientist and Founder of Myelopathy.org) and Iwan Sadler (Person with Myelopathy and Founder of Myelopathy.org). The show is produced byCarl Homer from Cambridge TV with logo designs by Iwan Sadler.
S3E2 - To fuse or not to fuse?
Should surgery from the back of the neck include metalwork (‘instrumented fusion’)?
Today there is widespread variation in practice: if you are treated in North America you are almost guaranteed to have fusion, whereas in Europe it’s about 50/50. Ben and Iwan are joined by Dr Anna MacDowall, a Spine Surgeon from Sweden, to discuss why. Anna outlines her new trial ‘MyRanC’ and Ben the UK trial NIHR POLYFIX-DCM, both hoping to provide definitive answers to this question through randomised controlled trials.
S3E1 - Coffee anyone?
Iwan and Ben meet Esther Martin Moore, a person living with degenerative cervical myelopathy who was inspired by virtual family get togethers during the pandemic, to create an equivalent for people living with DCM. These 'virtual coffee breaks' have been very well received, and are now taking place across the globe. Esther explains how the positivity and understsanding shared by those attending, has been so effective - and can extend the support Myelopathy.org offers.
S2E9 - CSF Pressure Monitoring with Carl Zipser
How can we tell during surgery whether the spinal cord is adequately decompressed? Iwan and Ben are joined by Dr Carl Zipser, a Consultant Neurologist and Scientist at Balgrist University Hospital, Switzerland to discuss his study looking at a role for CSF pressure monitoring. It represents a return to concepts that have been dormant for over 40 years, but now a timely one, as we look for techniques to overcome the limitations of MRI.
Research Top Tips 5 - Toto Gronlund and Mark Kotter – Public and Patient Involvement
Dr Mark Kotter, surgeon scientist at the University of Cambridge, shares the journey of his personal recognition of the importance of involving patients in research design and conduct; and Toto Gronlund, from the James Lind Alliance, reinforces the value of bringing the different stakeholders together in Priority-Setting Partnerships. This is part of a special 'Research Top Tips' series, from Myelopathy Matters (Myelopathy.org) and AO Spine RECODE-DCM, as they work together to accelerate knowledge discovery that can change outcomes in DCM.
Research Top Tips 4 - Shekar Kurpad – Combining Academic and Clinical Practice
Dr Shekar Kurpad, Professor of Neurological Surgery at the Medical College of Wisconsin, talks to Ben Davies about time-management, humility and mentorship - his recipe for success in a dual clinical and academic practice. This is part of a special 'Research Top Tips' series, from Myelopathy Matters (Myelopathy.org) and AO Spine RECODE-DCM, as they work together to accelerate knowledge discovery that can change outcomes in DCM.
Research Top Tips 3 - Jamie Wilson – Transitions in Career Pathways
In today’s episode we hear from spine surgeon Dr Jamie Wilson on his transition from clinical neurosurgical resident in the UK to Assistant Professor at the University of Nebraska Medical Centre, USA: what motivated the change and how he went about it. This is part of a special 'Research Top Tips' series, from Myelopathy Matters (Myelopathy.org) and AO Spine RECODE-DCM, as they work together to accelerate knowledge discovery that can change outcomes in DCM.
Great presenters Michelle and Ben really helps well in this podcast, any one who wants a better understanding of myelopathy should check out this podcast