5 episodes

Well I Know Now with Pippa Kelly is a podcast in which she and her guests discuss what their dementia experiences have taught them. From profound life lessons to the importance of professionals who truly understand and the joy to be found in the smallest things.
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Well I Know Now Pippa Kelly

    • Health & Fitness
    • 4.8, 22 Ratings

Well I Know Now with Pippa Kelly is a podcast in which she and her guests discuss what their dementia experiences have taught them. From profound life lessons to the importance of professionals who truly understand and the joy to be found in the smallest things.
See acast.com/privacy for privacy and opt-out information.

    5. Tony Husband

    5. Tony Husband

    Creative from the tip of his head to his northern roots – he was born in Blackpool – cartoonist Tony Husband shows no sign of letting up as he approaches his seventies. His spare, witty drawings have appeared in virtually all of our national newspapers and magazines, and following the death of his dad Ron in 2011 Tony has turned his considerable wit and skill to raising awareness of dementia.  
    Ron lived with vascular dementia for his last few years and in this podcast Tony tells me what his dad’s experience has taught him about the power of creativity, humour and music to connect with others. Most of all, he says, it’s shown him that no matter what dementia stole from his dad, he always remained just that, his dad.
    Tony mentions his work with the Exeter branch of Dementia Action Alliance. The alliance has just moved from dementiaaction.org.uk (the website I gave) to nationaldementiaaction.org.uk, though all relevant information can still be found on the old website.  You can buy Tony’s cartoon book Take Care, Son: The Story of my Dad and his Dementia from Amazon.  And, as ever, for more help and support for anyone affected by dementia you can visit dementiauk.org and alzheimers.org.uk

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    • 46 min
    4. Suzy Webster

    4. Suzy Webster

    Young mum Suzy Webster is quietly very strong. She has a softness about her that belies her courage and determination. Not many of us possess the generosity of spirit or wells of emotional, physical and mental strength to invite our elderly parents come and live with us, particularly when one of them has dementia. This young mum from Chepstow, ably and wisely supported by her husband Andrew, does. She never shouts about it, or judges others against the way she lives her life, she simply gets on with it with steely, dignified grace. She will kill me for writing this, but she humbles me.
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    • 39 min
    3. Sally Knocker

    3. Sally Knocker

    Sally Knocker works tirelessly to enhance the lives of older people and those with dementia. I doubt she even sees it as work because she is so naturally compassionate and empathetic. 
    For her – as with other guests to whom I’ve spoken for this podcast – there is no them (those we are caring for or those with dementia) and us. There is just us. This ethos lies at the heart of all that Sally does. She is generous of both her time and her emotions and she is genuinely interested in other people. All other people. 
    This wonderfully engaging woman is perfectly suited to her work which, at the moment, is on behalf of an agency that partners with other care organisations to support those with dementia to live meaningful lives. They can be found at meaningfulcarematters.com. 
     

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    • 40 min
    2. Chris & Jayne Roberts

    2. Chris & Jayne Roberts

    Chris Roberts has the most fantastic attitude to life. “Take it by the danglies,” he cajoles us all. “And run with it!”  This enviably positive approach might be because of – or despite of – his dementia, which he began to develop a decade ago when he was just 50 years old.  It’s a view that is undoubtedly strengthened by the deep love and support of Jayne, his wife of 26 years.
    It was a joy to talk to the couple down the line from their home in Rhuddlan, North Wales during Covid lockdown. I’ve long admired them for their wit and wisdom, their courage and powerful insights into living with Chris’s mixture of Alzheimer’s disease and vascular dementia – with a dollop of the lung condition emphysema thrown in for good measure. “I’m just greedy,” laughs Chris. And my conversation with them didn’t disappoint.
    Theirs is, in fact, a love story that opens with the flighty giddiness of youth, develops into the multi-layered complexities of family life and, after taking a seismic hit in the form of early onset dementia, subsequently adapts to the devastating fall out as the pair of them mine new depths of mental and emotional strength in adversity.
    “Chris has always been the man I’ve loved,” Jayne told me. “But it has only been since his dementia diagnosis that I’ve seen what he is capable of”. 
    The podcast is a must-listen for anyone interested, not only in this incurable condition, but in life, love and relationships, in honesty and trust.
    Useful websites: www.youngdementiauk.org; www.alzheimers.org.uk and www.dementiauk.org

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    • 39 min
    1. Nula Suchet

    1. Nula Suchet

    In my first podcast I meet the acclaimed interior designer Nula Suchet whose late husband began to develop Pick’s disease, a rare form of dementia, when he was just 57. This warm, passionate Irish woman tells me that she didn’t even know what dementia was when James first started to show symptoms. She describes how isolating it was as she struggled to look after him and her shock at the lack of support. We hear how her extraordinary love for James remained undiminished even as dementia stole him away and how she found new happiness with broadcaster and journalist John Suchet, whose late wife Bonnie also developed the condition. Nula and James’ story is told in her book The Longest Farewell and, though one of sadness and pain, it is also – wonderfully and surprisingly – one of hope.
    Nula’s book, The Longest Farewell, is available from www.amazon.co.uk and other useful websites are www.raredementiasupport.org, www.alzheimers.org.uk and www.dementiauk.org

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    • 42 min

Customer Reviews

4.8 out of 5
22 Ratings

22 Ratings

Ken Lantello ,

Crushing the myths

When my late mother was diagnosed with dementia 11 years ago, awareness of the disease was at a premium. Podcasts like this are invaluable and show how far we’ve come, thanks to people like Pippa, Chris Roberts and Jayne Gooderick. There’s still a long way to go and podcasts like this should be prescribed for everyone whose life is touched by dementia.

SalCunningham ,

Honest and inspiring

I don’t often listen to longer podcasts but these totally held my attention! Pippa creates a create sense of safety as well as genuine curiosity to know more, so the conversations flow. Both these podcasts are dementia love stories with hard truths, but core message of hope, resilience and humanity.

john n Nula ,

Review

Beyond moving - such a wonderful sharing by Chris and Jayne into their world of accepting and dealing with dementia - I loved their honesty. In tears - thank you thank you - sending you both massive hugs and tons of love 💚💚💚

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