All Access DNA

allaccessdna

Want to know more about your DNA? Curious about how your genes impact your health? All Access DNA honestly answers the questions you have about genetics, healthcare, and popular issues in genomic medicine. Host Kate Wilson utilizes her genetic expertise and experience to interview leaders and specialists in genomic health and research. Join us as we bring you understandable, scientific information about genetics!

  1. 5 days ago

    Are athletics in my DNA? Genetic testing & performance coaching

    Dr. Jeremy Koenig shares how he came to performance genomics through his own athletic background, and the conversation explores how genetic information can inform training, injury risk, and coaching- without being treated as a prediction of destiny. Key words:  Precision Health, Athletic Genomics, Genetics in Sports, Genetic Counseling, Injury Risk, Training Optimization, Personalized Coaching, DNA Testing   Key Insights The most impactful knowledge is context-driven Genetic information is a navigational tool, not fate Genes don’t guarantee Olympic success Athletic genetic profiles can include info on metabolism & injury protection   Guest bio: Jeremy Koenig is a PhD Biochemist, former professional athlete and the Founder of Iris Infinity. Jeremy built The DNA of Things podcast as a room where the brightest minds in genomics, longevity, and human performance can share their work directly with the people it matters to most. The guests are the story — he just makes sure they're heard.   As the founder of Iris Infinity — one of the world's leading DNA analysis platforms — he's spent two decades at the intersection of biology, technology, and athletics. That experience shapes the questions, but the answers belong to the experts.   Give your feedback and help shape All Access DNA! Take our listener survey here: https://forms.gle/x82MKLRftpKH987s7   Please subscribe to this podcast on Apple Podcasts, Spotify, YouTube or wherever you get your podcasts to stay updated on new episodes of All Access DNA. Listen to past episodes on your favorite podcast play by searching “All Access DNA” or by streaming from our website at allaccessdna.podbean.com   Any inquiries on the podcast can be sent to AllAccessDNA@gmail.com   Note that this podcast is for entertainment and education and is not intended to be a substitute for professional medical advice. Please consult your physician with any questions you may have regarding your health.   The All Access DNA team includes: host, producer and editor Kate Wilson. The logo is designed by Designs by NKJ. Our Social Media Lead is Aryanah Estinvil.

  2. 30 Jun

    #58-Could epilepsy & seizures be genetic?

    In this interview, we learn what epilepsy is, its causes, and the role of genetics in diagnosis and treatment. Beth Sheidley, a genetic counselor, explains the fundamentals of epilepsy, its genetic components, and the latest advancements in genetic testing.   Take our listener survey here: https://forms.gle/x82MKLRftpKH987s7   Keywords: epilepsy, genetic testing, genetic counseling, seizures, pediatric neurology, genetic causes, epilepsy treatment, genetic diagnosis, brain disorders, clinical trials   Key Topics: Clinical presentation of epilepsy and various known causes Differences between unprovoked and provoked seizures Genetic factors in epilepsy Role of genetic counseling in both diagnosis and management   Guest Bio: Ms. Sheidley is a licensed genetic counselor with over 30 years of experience in clinical genetic counseling, research, and teaching. Her areas of expertise include autism, epilepsy, psychiatric illness and both prenatal and pediatric genetic counseling. She received her BS degree from Cornell University in 1990 and her MS in genetic counseling from Brandeis University in 1994, where she served as Professor of the Practice/Co-Director of Research and Professional Development from 2005 to June 2014.   Ms. Sheidley is the Director of Genetic Counseling for the Department of Neurology at Boston Children’s Hospital where she co-founded the first Epilepsy Genetics Program in the United States. Ms. Sheidley also co-founded and chairs EpiGC, an international network of genetic counselors who specialize in epilepsy genetics.   Ms. Sheidley was the lead author of a systematic review of the epilepsy genetics literature on behalf of the National Society of Genetic Counselors (NSGC) and co-authored the resulting practice guideline adopted by NSGC and endorsed by the AES. She is a Co-Investigator for the Gene-STEPS study at Boston Children’s, which enrolls infants with recent seizure onset for rapid whole genome sequencing. https://www.linkedin.com/in/beth-rosen-sheidley-4994654/   Resources: Findageneticcounselor.org to search for a genetic counselor near you Rare Epilepsy Network (REN) Epilepsy Foundation   Please subscribe to this podcast on Apple Podcasts, Spotify, YouTube or wherever you get your podcasts to stay updated on new episodes of All Access DNA. Listen to past episodes on your favorite podcast play by searching “All Access DNA” or by streaming from our website at allaccessdna.podbean.com   Any inquiries on the podcast can be sent to AllAccessDNA@gmail.com   Note that this podcast is for entertainment and education and is not intended to be a substitute for professional medical advice. Please consult your physician with any questions you may have regarding your health.   The All Access DNA team includes: host, producer and editor Kate Wilson. The logo is designed by Designs by NKJ. Our Social Media Lead is Casey Lepley.

  3. 16 Jun

    #57-What is Fragile X syndrome & why is it underdiagnosed?

    Dr. Emily Allen, a genetics researcher, explains the complexities of Fragile X syndrome, its genetic basis, and the importance of advocacy and ongoing research. Discover how genetics influence development, the challenges in diagnosis, and the promising future of personalized treatments.   Key words: Fragile X, genetics, genetic counseling, developmental delays, autism, pre-mutation, research, advocacy, genetic testing, neurogenetics   Key Topics: Genetics of Fragile X syndrome Pre-mutation, carrier and full mutation distinctions Diagnosis challenges and clinical presentations Current research and future therapies   Guest bio: Dr. Emily Allen’s research centers around studies of fragile X syndrome and Down syndrome. She values interdisciplinary engagement and actively collaborates with community organizations, government bodies, and academic institutions to enhance the breadth and impact of her research. She has combined quantitative and qualitative techniques, often beginning with broad data collection and analysis to identify patterns and trends, followed by in-depth qualitative exploration to better understand the underlying dynamics. She values the engagement of stakeholders throughout the research process, ensuring that those closest to the issues are heard and that their perspectives inform both the framing of research questions and the interpretation of results. By utilizing mixed methods, she can capture both statistical trends and individual experiences, providing a comprehensive perspective that supports better decision-making.   Resources related to today’s topic: People article National Fragile X Foundation Emory page?   Give your feedback and help shape All Access DNA! Take our listener survey here: https://forms.gle/x82MKLRftpKH987s7   Please subscribe to this podcast on Apple Podcasts, Spotify, YouTube or wherever you get your podcasts to stay updated on new episodes of All Access DNA. Listen to past episodes on your favorite podcast play by searching “All Access DNA” or by streaming from our website at allaccessdna.podbean.com   Any inquiries on the podcast can be sent to AllAccessDNA@gmail.com   Note that this podcast is for entertainment and education and is not intended to be a substitute for professional medical advice. Please consult your physician with any questions you may have regarding your health.   The All Access DNA team includes: host, producer and editor Kate Wilson. The logo is designed by Designs by NKJ. Our Social Media Lead is Casey Lepley.

  4. 2 Jun

    #56-Why is communication important in genetic care?

    Dr. Marleah Dean Kruzel explores the critical role of communication in healthcare, emphasizing how effective dialogue between clinicians and patients can improve health outcomes, reduce errors, and foster trust. She shares personal stories, research findings, and practical tips for enhancing health communication, especially around uncertainty and complex medical information.   Key Words: healthcare communication, patient-provider interaction, medical uncertainty, storytelling in science, health literacy, genetic counseling, medical errors, patient engagement, science communication, healthcare research   Topics Covered: Importance of communication in healthcare Impact of uncertainty on patient decisions Role of storytelling in science and medicine Barriers to effective patient-provider communication Strategies for improving health literacy and trust   Guest Bio: Marleah Dean Kruzel (PhD, Texas A&M University) is a professor, researcher, and speaker in healthcare communication. Her research focuses on communication of genetic risk information, has been published in numerous peer-reviewed journals, and funded by the National Cancer Institute, American Cancer Society, the Centers for Disease Control and Prevention, and the Patient-Centered Outcomes Research Institute. The daughter of a 28-year-old breast cancer survivor and BRCA2 previvor herself, she is committed to patient engagement and science communication. For example, she participated in the CDC’s “Bring Your Brave” campaign designed to educate and inspire young women regarding breast cancer risk, frequently gives community presentations and is featured on podcasts to disseminate her about research results. Dr. Dean Kruzel is also a Scientific Advisory Board member for the non-profits FORCE and My Faulty Gene.   LinkedIn Profile: https://www.linkedin.com/in/marleah-dean-kruzel-ph-d-02062128/   Here are more resources related to today’s topic: Marleah's story on CDC's Bring Your Brave campaign: https://www.youtube.com/watch?v=BbDIUIXPsqM Marleah's TEDx talk: https://www.youtube.com/watch?v=6RVpgP_0XTs Marleah’s website Marleah’s YouTube channel Society of Behavioral Medicine website University of South Florida Genetic Counseling Program   Please subscribe to this podcast on Apple Podcasts, Spotify, YouTube or wherever you get your podcasts to stay updated on new episodes of All Access DNA. Listen to past episodes on your favorite podcast play by searching “All Access DNA” or by streaming from our website at allaccessdna.podbean.com   Any inquiries on the podcast can be sent to AllAccessDNA@gmail.com   Note that this podcast is for entertainment and education and is not intended to be a substitute for professional medical advice. Please consult your physician with any questions you may have regarding your health.   The All Access DNA team includes: host, producer and editor Kate Wilson. The logo is designed by Designs by NKJ. Our Social Media Lead is Casey Lepley.

  5. 19 May

    #55-Heart health & Connective Tissue: What is Marfan syndrome?

    Maya Brown-Zimmerman shares her personal journey with Marfan syndrome, the importance of early diagnosis, and navigating life with a connective tissue disorder. She discusses medical management, genetic testing, community support, and her work in genetic counseling.   Key words: Marfan syndrome, genetic counseling, connective tissue disorder, medical management, genetic testing, patient advocacy, community support, rare diseases   Key Topics: Diagnosis and clinical signs of Marfan syndrome Genetic testing and its role in diagnosis Managing health and lifestyle with Marfan syndrome   Guest bio: Maya Brown-Zimmerman is a cardio genetic counselor living with Marfan syndrome, and the mother of four kids. She is passionate about making genetic information accessible. She's volunteered with the Marfan Foundation since she was a teenager and is currently an advisor to both their Professional Advisory Board and Board of Directors.    Resources related to today’s topic: Findageneticcounselor.org to search for a genetic counselor near you Marfan Foundation Facebook Marfan syndrome The VEDs Movement Loeys-Dietz Syndrome Foundation   Take our listener survey here: https://forms.gle/x82MKLRftpKH987s7   Please subscribe to this podcast on Apple Podcasts, Spotify, YouTube or wherever you get your podcasts to stay updated on new episodes of All Access DNA. Listen to past episodes on your favorite podcast play by searching “All Access DNA” or by streaming from our website at allaccessdna.com   Any inquiries on the podcast can be sent to AllAccessDNA@gmail.com   Note that this podcast is for entertainment and education and is not intended to be a substitute for professional medical advice. Please consult your physician with any questions you may have regarding your health.   The All Access DNA team includes: host, producer and editor Kate Wilson. The logo is designed by Designs by NKJ. Our Social Media Lead is Casey Lepley.

  6. 5 May

    #54-Genetic News Updates with DNA Dispatch

    We are talking about current events in genetics, including Olympic sex testing, genetic privacy in insurance, and legal challenges faced by genetic testing companies. It highlights how genetic information is used, misused, and the ongoing debates around privacy and ethics Key words: Genetics, Olympic sex testing, Genetic privacy, Insurance discrimination, Genetic data lawsuits   Key Topics: The Olympics will start using SRY testing which is a scientifically flawed method of testing for biological sex Australia passes a country-wide law protecting against using genetic data in life insurance underwriting Recent lawsuit allegations bring up questions on how private your genetic data really is   Related Episodes: What are sex trait variations and how do we support intersex individuals? With Kaitlyn Brown Does genetics influence sex and gender? With Kim Zayhowski  When is rare disease not so rare? With Susanna Smith The DNA Dialogues Podcast episode #27: Protecting genetic information: Life insurance and GINA Should I delete my 23andMe data? With Anya Prince What should I know about buying a DNA test? With Andrew McCarty   Sources: Andrew Sinclair: World's Athletics' mandatory genetic test for women athletes is misguided. I should know- I discovered the relevant gene in 1990 Essay: Gender verification of female athletes A sex test for Olympic contenders harms all women by Chris Mosier and Erika Lorshbough Circulating Testosterone as the Hormonal Basis of Sex Differences in Athletic Performance Genetic Discrimination is Coming for Us All by Kristen V. Brown How your health (and genetic results) affects your life, travel and health insurance Future implications of polygenic risk scores for life insurance underwriting Time to End the Use of Genetic Test Results in Life Insurance Underwriting U of Iowa Genetic Privacy in the US: Insurance and Law Enforcement Use Healthcare AI Firm Sued Over Alleged Unlawful Disclosures of Genetic Data Tempus AI Sued for Breach of Genetic Information Privacy Act Genetic data are not always personal- disaggregating the identifiability and sensitivity of genetic data Policy brief: can genomic data be anonymised? Global Alliance for Genomics and Health   Give your feedback and help shape All Access DNA! Take our listener survey here: https://forms.gle/x82MKLRftpKH987s7   Please subscribe to this podcast on Apple Podcasts, Spotify, YouTube or wherever you get your podcasts to stay updated on new episodes of All Access DNA. Listen to past episodes on your favorite podcast play by searching “All Access DNA” or by streaming from our website at allaccessdna.podbean.com   Any inquiries on the podcast can be sent to AllAccessDNA@gmail.com   Note that this podcast is for entertainment and education and is not intended to be a substitute for professional medical advice. Please consult your physician with any questions you may have regarding your health.   The All Access DNA team includes: host, producer and editor Kate Wilson. The logo is designed by Designs by NKJ. Our Social Media Lead is Casey Lepley.

  7. 21 Apr

    What should I know about buying a DNA test?

    In this insightful interview, genetic counselor Andy McCarty discusses the rise of private practice in genetics, the nuances of direct-to-consumer genetic testing, and how to interpret results responsibly. Learn about access, misconceptions, and the importance of professional guidance in genetic testing.    Key Takeaways: Not all genetic testing is the same Verify results with clinical-grade testing Consult a genetic counselor for interpretation of results Misleading results can impact your health decisions   Guest Bio: Andrew McCarty is a genetic counselor focused on bringing accessible, evidence-based genetic services to patients and healthcare teams. As founder of Clover Genetics, he works across specialties to interpret genetic test results, design patient-centered counseling pathways, and advise clinicians on appropriate test selection and follow-up. Andrew has a pragmatic approach: he prioritizes clear communication, action-oriented recommendations, and realistic expectations for what genetic information can  and cannot tell us.    Resources: Findageneticcounselor.org to search for a genetic counselor near you Clover Genetics, Andrew McCarty’s practice   Keywords: genetic counseling, direct-to-consumer testing, private practice, genetic results interpretation, healthcare access, genetic variants, clinical vs consumer testing   Please subscribe to this podcast on Apple Podcasts, Spotify, YouTube or wherever you get your podcasts to stay updated on new episodes of All Access DNA. Listen to past episodes on your favorite podcast play by searching “All Access DNA” or by streaming from our website at allaccessdna.podbean.com   Any inquiries on the podcast can be sent to AllAccessDNA@gmail.com   Note that this podcast is for entertainment and education and is not intended to be a substitute for professional medical advice. Please consult your physician with any questions you may have regarding your health.   The All Access DNA team includes: host, producer and editor Kate Wilson. The logo is designed by Designs by NKJ. Our Social Media Lead is Casey Lepley.

  8. 7 Apr

    Tortured Hope: What is it like growing up at risk for Huntington’s Disease?

    Lori Jones shares her personal journey with Huntington's disease, exploring its symptoms, family impact, and the importance of community and research. Lori shares with us insights into living with risk, making decisions about testing, and advocating for better understanding and treatment.   Keywords: Huntington's disease, genetics, neurodegenerative, family impact, genetic testing, community support, research, memoir, advocacy   Key Topics: Genetic inheritance and risk of Huntington's disease Family impact and personal stories of living with HD The importance of community, support, and advocacy in HD Current research, clinical trials, and future hope for HD treatments   Guest Bio: Lori Jones has personally experienced the effects of Huntington’s Disease (HD) in her family and was instrumental in starting a Team Hope annual event in her area to raise awareness and support for research and community programs. She has been published in the Wisconsin HDSA Update Newsletter, and spoken in the public schools about HD, genetics, and presymptomatic testing. She has contributed short stories for Women in High Def by Diane Markins. A storyteller at heart, she regularly writes and speaks about her experiences with HD and many other topics to groups of all ages. Lori has three adult children and lives with her husband Chris in Wisconsin, when they aren’t escaping north to the Upper Peninsula of Michigan. “Spared: A Memoir of Risk and Resolve” is her first book.   Resources: Lori Jones’ Website Spared: A Memoir of Risk and Resolve Help 4 HD International International Huntington Association Huntington’s Disease Society of America Information on uniQure Take Our Listener Survey and Direct Future Episodes! https://tinyurl.com/mr3kcm6b Please subscribe to this podcast on Apple Podcasts, Spotify, YouTube or wherever you get your podcasts to stay updated on new episodes of All Access DNA. Listen to past episodes on your favorite podcast play by searching “All Access DNA” or by streaming from our website at allaccessdna.podbean.com Any inquiries on the podcast can be sent to AllAccessDNA@gmail.com   Note that this podcast is for entertainment and education and is not intended to be a substitute for professional medical advice. Please consult your physician with any questions you may have regarding your health.   The All Access DNA team includes: host, producer and editor Kate Wilson. The logo is designed by Designs by NKJ. Our Social Media Lead is Casey Lepley.

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Want to know more about your DNA? Curious about how your genes impact your health? All Access DNA honestly answers the questions you have about genetics, healthcare, and popular issues in genomic medicine. Host Kate Wilson utilizes her genetic expertise and experience to interview leaders and specialists in genomic health and research. Join us as we bring you understandable, scientific information about genetics!

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