FTD - Navigating The Cr*p

Beth Jones
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As a 30-something year old living in Lancashire in the North West of England, Beth has been living with the impact of her mum's diagnosis of early onset FTD (Frontotemporal Dementia) at the age of 65. For the last year she's been sitting down with a friend and a microphone to go over everything that's happened along the way. Loving someone with FTD is a club nobody wants to be a part of but Beth hopes that talking about it and sharing experiences helps others to feel less alone. This isn’t meant to be a shiny podcast that gives you all the answers. For a lot of us, the answers don’t exist - we’re just getting on the best we can. Hosted on Acast. See acast.com/privacy for more information.

Episodes

  1. 3 DAYS AGO

    Supporting Children and Young People affected by Dementia with Admiral Nurse, Hannah Gardner

    This week, Beth is joined by Hannah Gardner, a Consultant Admiral Nurse for Children and Young People at Dementia UK. Hannah works directly with families affected by dementia, helping children and young carers understand the condition and find the support they need. Drawing from her own lived experience of having a mum with young-onset dementia, Hannah shares how her personal journey shaped her passion for supporting others. In this episode, she and Beth explore how dementia impacts the whole family, how to talk to children about it and why recognising and supporting young carers is so vital. If you’d like to connect with Dementia UK or access support, you can call the Dementia UK Admiral Nurse Helpline on 0800 888 6678. To learn more about dementia research and how you can get involved, email infoline@alzheimersresearchuk.org. Hosted on Acast. See acast.com/privacy for more information.

    30 min

  2. 7 OCT

    Navigating Dementia Care: Stacey’s story

    This week, Beth is joined by Stacey Markle, who shares her powerful and deeply personal story of navigating dementia as an only child after the sudden loss of her father. When her mum began showing signs of cognitive decline, Stacey became her primary caregiver, managing everything from diagnosis to daily care, and later navigating the complexities of long-term care in the US system. Over the past ten years, Stacey has gained invaluable knowledge about dementia care, legal planning and the realities of caregiving. Through her Instagram page, @navigatingdementiacare, she now shares practical advice, candid reflections and support for others going through the same journey, helping caregivers feel less alone. If you need support with anything discussed in this podcast, visit alzheimers.org.uk for the dementia support line. To learn more about dementia research and how you can get involved, email infoline@alzheimersresearchuk.org Hosted on Acast. See acast.com/privacy for more information.

    25 min
  3. Practical advice from Dr Sarah Straughan - The Dementia Psychologist

    30 SEPT

    Practical advice from Dr Sarah Straughan - The Dementia Psychologist

    This week, Beth is joined by Dr Sarah Straughan, a Consultant Clinical Psychologist and dementia specialist. Sarah works closely with families and carers, helping them to navigate the often overwhelming challenges that come with dementia.  If you’d like to connect with Sarah, you can follow her on Instagram @the_dementia_psychologist, where she shares practical advice, resources, and works to bust common dementia myths through her professional experience. If you need support with anything discussed in this podcast, visit alzheimers.org.uk for the dementia support line. To learn more about dementia research and how you can get involved, email infoline@alzheimersresearchuk.org. Hosted on Acast. See acast.com/privacy for more information.

    45 min
  4. Dementia isn’t reserved for the elderly: Lukas’s story

    23 SEPT

    Dementia isn’t reserved for the elderly: Lukas’s story

    Beth is back for Series 2 of the podcast and this time she’s been sitting down to talk to other people who’ve found their lives being affected by dementia, in whatever way, to chat about their experiences and to try to learn as much as possible about this illness…  This week she is joined by Lukas Olszewski whose ex-partner was diagnosed with Frontotemporal Dementia at just 36. Head over to remember-project.com to learn more about Lukas’s story, watch the trailer, and read the complete story behind the film. If you’d like to book Lukas for a screening event, you can get in touch directly by emailing mail@remember-project.com  If you need support with anything discussed in this podcast, visit alzheimers.org.uk for the dementia support line. If you’d like to learn more about dementia, the research happening right now, and how you can get involved, pop an email over to infoline@alzheimersresearchuk.org  Hosted on Acast. See acast.com/privacy for more information.

    33 min
  5. A Diagnosis

    1 APR

    A Diagnosis

    In this episode Beth discusses finally receiving an FTD diagnosis for her mum and all the emotions that came with it... If you're struggling with anything discussed in this podcast, there are a number of helplines available. Visit alzheimers.org.uk for the dementia support line.  Hosted on Acast. See acast.com/privacy for more information.

    14 min
  6. Self-care Matters

    25 MAR

    Self-care Matters

    One of the hardest things to acknowledge when you're looking after someone with FTD is that you need to look after yourself too - something that Beth has learnt over time. If you need support with anything discussed in this podcast, visit alzheimers.org.uk for the dementia support line.  Hosted on Acast. See acast.com/privacy for more information.

    9 min
  7. How do you get a diagnosis?

    18 MAR

    How do you get a diagnosis?

    When Beth first realised that something wasn’t right with her mum, she had no idea the long journey they were about to embark on for a diagnosis…  If you need support with anything discussed in this podcast, visit alzheimers.org.uk for the dementia support line.  Hosted on Acast. See acast.com/privacy for more information.

    20 min
  8. What is FTD?

    11 MAR

    What is FTD?

    What is FTD (Frontotemporal Dementia)? There are several different types of dementia and when you or someone you love is first faced with a diagnosis, the information can feel overwhelming. Beth explains a little more about what FTD is and introduces her and her mum's story. Hosted on Acast. See acast.com/privacy for more information.

    14 min
  9. Introducing FTD - Navigating The Cr*p

    7 MAR

    Introducing FTD - Navigating The Cr*p

    Coming Soon! Hosted on Acast. See acast.com/privacy for more information.

    1 min
  • 9 Episodes

About

As a 30-something year old living in Lancashire in the North West of England, Beth has been living with the impact of her mum's diagnosis of early onset FTD (Frontotemporal Dementia) at the age of 65. For the last year she's been sitting down with a friend and a microphone to go over everything that's happened along the way. Loving someone with FTD is a club nobody wants to be a part of but Beth hopes that talking about it and sharing experiences helps others to feel less alone. This isn’t meant to be a shiny podcast that gives you all the answers. For a lot of us, the answers don’t exist - we’re just getting on the best we can. Hosted on Acast. See acast.com/privacy for more information.

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