MND Matters by the MND Association

Motor Neurone Disease Association
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The MND Matters podcast offers people living with and affected by motor neurone disease access to information, informal advice and expertise. Created by the MND Association, the podcast will explore a wide range of subjects alongside people affected by MND. As well as being an extra information source for the MND community, MND Matters will also be  a new tool for the Association to use to raise awareness among the wider community. Find out more on our website www.mndassociation.org.

  1. 4 FEB

    MND Matters: Episode 38 – Shaped by you: our five-year research goals

    Meet Rick and Ali – our hosts for this special episode of MND Matters.  Rick is a biologist, educator, advocate and artist living with PLS - a slow progressing form of MND.  Ali is a licensing officer for local government. Her mum, Sheila, died in March 2025 soon after being diagnosed with MND.   Together, Rick and Ali put MND research under the microscope with Mike Rogers, the Association’s Director of Research and Innovation. The trio discuss the development of the Association’s new five-year research strategy, how it resulted in four key aims: understand, detect, discover and innovate, and how the MND community shaped the strategy from the very beginning.

    35 min

  2. 28/08/2025

    Episode 37 - Eating and drinking

    In this powerful episode, host Domonique is joined by Lorraine Redmond, who lives with MND, Emma Wood, a clinical lead dietitian, and Jonathan Phang, a cook and MND Association ambassador. Together, they explore the emotional and practical challenges of eating and drinking with motor neurone disease.  The conversation is rich with practical tips - from modifying food textures and using feeding tubes flexibly, to managing social anxiety around eating in public. It’s also a reminder that food is more than fuel - it’s love, culture and togetherness.  For more information about eating, drinking and swallowing with MND, see our guide, Eating and drinking with motor neurone disease (MND). You can request a free printed copy from our helpline MND Connect.

    40 min

  3. 07/07/2025

    MND Matters Episode 36: Driving change for the MND community

    In this episode of MND Matters, Chief Executive Tanya Curry and Director of Engagement Richard Evans reflect on a transformative year for the MND Association. From record-breaking fundraising and expanded grants to bold advocacy and the launch of a research nurse network, Tanya and Richard share how the Association is stepping up with urgency and ambition to focus on delivering more impact, including faster access to emerging treatments, targeted support, and a louder voice for the MND community.

    29 min

  4. 26/06/2025

    MND Matters Episode 35 - Transforming MND research with AI: Longitude Prize on ALS

    In this episode of MND Matters, Helen is joined by Tris Dyson from Challenge Works, and the MND Association’s Dr Mike Rogers and Dr Brian Dickie, to explore the groundbreaking £7.5 million Longitude Prize on ALS. This global challenge aims to revolutionise drug discovery for ALS, the most common form of motor neurone disease, by harnessing the power of artificial intelligence. Tris, Mike and Brian discuss how AI-based approaches can transform drug discovery for the treatment of ALS, and accelerate progress towards effective therapies.   Find out more about the prize, or how to enter, by visiting https://als.longitudeprize.org/.

    34 min

  5. 10/10/2024

    MND Matters Episode 34: Behind the curtain with Michael Patrick and Oisín Kearney

    Eighteen months after announcing his diagnosis of MND, actor and writer Michael Patrick gives us an insight into his starring role in a special adaptation of Shakespeare’s Richard III – in which Richard receives a diagnosis of MND. Alongside friend and creative partner Oisín Kearney, Michael talks about how moments of the play hold up a mirror to his own MND experiences, and the pair give host Domonique a trip down memory lane to relive their past successes, including the award-winning play and BBC3 series, My Left Nut.

    33 min

  6. 12/09/2024

    MND Matters Episode 33: Q&A with Coronation Street’s Dan Brocklebank and Peter Ash

    Coronation Street actors Dan and Peter answer your questions in this special episode of MND Matters. Go behind the scenes of Peter’s award-winning portrayal of Corrie character Paul, who was diagnosed with MND in 2023, and hear more about how Dan’s personal connection to the disease influenced playing the role of Paul’s husband and carer, Billy.

    23 min

  7. 13/06/2024

    MND Matters Episode 32: Caring for someone with MND

    "One of the things we’ve said is - as long as we laugh more times than we cry, we're winning.” Carers of people with motor neurone disease (MND) often face significant emotional and financial challenges. In this episode, released during Carers Week 2024, Martyn shares his personal experience as an unpaid carer for his wife Anna, who was diagnosed with MND in May 2023. As part of our MND Guarantee campaign, we are calling on the next government to do a full review of the support currently available to unpaid carers. Unpaid carers are the backbone of support for people with MND, and the financial support they receive does not reflect the contribution they make. We want this to change. You can urge your MP candidates to sign the MND Guarantee by taking part in our e-action – it will only take a few minutes.

    23 min

  8. 29/02/2024

    MND Matters Episode 31: Tanya Arnold sits down with Tanya Curry

    Sports journalist and West Yorkshire branch patron Tanya Arnold sits down with Chief Executive Tanya Curry, who recently marked one year in post at the MND Association. I In this episode, Tanya discusses her tenure so far, her passion for supporting people affected by MND and her ambitions for the Association in 2024 and beyond.

    25 min
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Trailer

About

The MND Matters podcast offers people living with and affected by motor neurone disease access to information, informal advice and expertise. Created by the MND Association, the podcast will explore a wide range of subjects alongside people affected by MND. As well as being an extra information source for the MND community, MND Matters will also be  a new tool for the Association to use to raise awareness among the wider community. Find out more on our website www.mndassociation.org.

Information

  • Creator
    Motor Neurone Disease Association
  • Years Active
    2021 - 2026
  • Episodes
    42
  • Rating
    Clean
  • Copyright
    © Motor Neurone Disease Association
  • Show Website
    MND Matters by the MND Association