We Are Still Here

Let's Talk PCS

Post Concussive Syndrome is often misunderstood, minimized, or dismissed. This solo podcast exists to shift that narrative. It explores the lived experience of PCS and chronic pain — from physical symptoms and emotional weight to invisible struggles and quiet resilience. There’s no medical advice here, just honest reflection, encouragement, and real-life perspective from someone navigating it firsthand. This space is for those living with PCS, recovering from it, or seeking to better understand it. Healing isn’t linear — it’s about learning how to rebuild your life around what remains.

Episodes

  1. 26 Jul

    Episode 6 : They Looked Fine. Their Brains Were Not. | Invisible Traumatic Brain Injury

    They looked completely fine.No casts. No scars. No dramatic crashes. One woman hit her head on a car boot. The other was struck by a tree branch while running. Neither accident seemed serious - yet both led to life-changing traumatic brain injury and post-concussion syndrome. In this episode of We Are Still Here, host Umme shares two powerful true stories of invisible brain injury. You’ll hear about the guilt, the loneliness of looking “okay,” the non-linear recovery, and the quiet hope that returns one small step at a time. A reminder that invisible traumatic brain injuries are real, recovery isn’t linear, and you don’t have to prove your pain for it to matter. One breath. One step. One day at a time. We are still here. Contact: letstalkpcs@gmail.com

  2. 16 Jul

    Episode 5 : Just Keep Swimming - Kyle Hamilton’s Journey of Resilience for Decades After Brain Injury

    In this episode of We Are Still Here, I share the inspiring story of Kyle Hamilton, who has lived with the effects of a traumatic brain injury for almost 20 years. After a devastating accident left him in a coma and facing an uncertain future, Kyle had to relearn basic abilities and rebuild his life. Through determination and resilience, he returned to school, graduated with a 4.0 GPA, and gained attention from some of the biggest names in technology - Google flew him out for an interview, and companies like Microsoft, Facebook, and Amazon showed interest in his skills. Kyle’s story is also an honest reminder that recovery is not always a straight line. He shares his experiences with setbacks, pushing beyond his limits, addiction recovery, and finding a new sense of purpose. This episode explores: Life with long-term effects of TBI and invisible symptomsRebuilding identity after a life-changing injuryLearning to pace yourself and understand your limitsTurning challenges into purpose and helping othersKyle’s journey reminds us that brain injury does not erase a person’s intelligence, potential, or value. Sometimes recovery isn’t about returning to who we were - it’s about discovering who we can become. Your story isn’t over. Sometimes we just have to keep swimming. 💙 This episode is not medical advice. It is one person’s lived experience, and every brain injury journey is different. We Are Still Here. Contact: ⁠letstalkpcs@gmail.com

  3. 24 Jun

    Episode 4 : When The Future You Planned No Longer Fits After Traumatic Brain Injury(TBI), Post-Concussion/Concussive Syndrome(PCS) & Chronic Pain

    In this episode of We Are Still Here, host Umme explores how Traumatic Brain Injury (TBI), Post-Concussion Syndrome (PCS), and chronic pain can change the future we thought we were building. Most people think of concussion recovery in terms of symptoms like headaches, dizziness, fatigue, or brain fog. But what often goes unseen is how these conditions can affect work, school, finances, independence, and identity. In this episode, we discuss: • Why returning to work after TBI or PCS can be so difficult • How brain injury and chronic pain affect daily functioning • The emotional impact of losing routine, purpose, and financial independence • What it means to rebuild when life no longer looks the way you planned For many survivors, the hardest loss is not just a job or title — it is the future they imagined for themselves. Whether you are living with a brain injury, supporting someone who is, or simply trying to understand the invisible side of recovery, this episode offers reflection, validation, and hope. Sometimes healing is not about going back. Sometimes it is about building forward. Your grief is valid. Your challenges are real. And you are not alone. One breath. One step. One day at a time. We Are Still Here. Contact: letstalkpcs@gmail.com

  4. 19 May

    Episode 3 : Invisible Pain: How Traumatic Brain Injury(TBI), Post-Concussion/Concussive Syndrome(PCS) & Chronic Pain Impact Everyday Relationships

    In this episode of We Are Still Here, host Umme explores how Traumatic Brain Injury (TBI), Post Concussion Syndrome (PCS), post-concussion symptoms, and chronic pain deeply impact relationships — with family, friends, romantic partners, and at work. While most conversations about TBI recovery and concussion focus on brain fog, headaches, fatigue, and physical pain, the hidden emotional and relational toll is rarely discussed. This episode shines a light on how invisible symptoms reshape connections and daily life. Living with TBI, PCS, or chronic pain doesn’t just change how you feel — it changes how you relate to others. Communication becomes harder, energy is unpredictable, and simple plans can feel overwhelming. This can create distance, misunderstandings, guilt, and grief — even when the injury is invisible to everyone else. In this gentle, validating conversation, we cover: How TBI and post-concussion syndrome affect communication, emotional availability, and intimacy in romantic relationshipsWhy chronic pain and neurological fatigue lead to tension and misunderstandings with family membersThe strain on friendships when you frequently cancel plans or struggle with social energyChallenges of dating and building new relationships while managing an invisible illnessWorkplace dynamics, productivity pressure, and explaining fluctuating symptoms to colleagues and bossesThe loneliness, guilt, and isolation that often follow brain injuryHow some relationships grow stronger through adaptation, patience, and deeper understandingThis episode is not medical advice. It is a safe space for lived experience, emotional validation, and real stories from people navigating TBI, post-concussion syndrome, chronic pain, and invisible disability. If you have TBI, post-concussive symptoms, or love someone who does, this conversation is for you. You’ll feel seen, understood, and reminded that your experience is valid — even when others can’t see it. Many people with traumatic brain injury describe a painful disconnect: their inner reality no longer matches how they appear on the outside. This mismatch can lead to isolation and lost connections, but it can also open the door to stronger boundaries, more authentic relationships, and greater self-compassion. You are not alone. Your symptoms are real. Your relationships can evolve with you. Take this episode at your own pace. Pause when you need to. Return whenever you need support. One breath. One step. One day at a time.We Are Still Here. Contact: letstalkpcs@gmail.com

  5. 9 Apr

    Episode 2 : TBI, Post Concussive Syndrome, & Chronic Pain : The Invisible Side of Healing from Brain Injury

    In this episode of We Are Still Here, host Umme opens up about the invisible side of post-concussive syndrome (PCS) and traumatic brain injury recovery — the symptoms that don’t show up on the outside, yet demand the most energy to carry. From brain fog that feels heavier than the word suggests, to sudden neurological fatigue, shifting energy patterns, waves of grief, emotional changes, and the extra mental effort required for everyday tasks and social situations, Umme shares what life really feels like when your brain is quietly working overtime to heal. She explores why rest and pacing are essential (even when society tells us to push through), how to listen to your brain’s signals, and why resilience in brain injury recovery often looks quiet — like choosing gentleness over force. Whether you’re navigating PCS yourself, supporting someone who is, or simply want to understand experiences that often go unseen, this episode offers validation, insight, and a powerful reminder: your symptoms are real, your efforts matter, and even on the slow, uncertain days of healing… we are still here. Contact: letstalkpcs@gmail.com

  6. 1 Mar

    Episode 1 : We Are Still Here: Words of Wisdom for Concussion, TBI & Chronic Pain Survivors

    This is the very first episode of We Are Still Here - a space created by host Umme, who is recovering from Post Concussive Syndrome after a 2022 accident. After a recent setback just weeks ago, this episode comes as the result of years of quiet contemplation and weeks of intentional preparation. In this opening chapter, Umme introduces the heart behind the podcast: honest conversations about living with Post Concussive Syndrome, Traumatic Brain Injury, and chronic pain - conditions that are often misunderstood, minimized, or dismissed. You’ll hear powerful words of wisdom from fellow survivors - reminders to:• Be kind to yourself when healing feels invisible• Remember that recovery is a marathon• Rest without guilt• Choose gentleness alongside persistence• Advocate for your needs• Recalibrate instead of “fix”• Use small, practical tools to get through hard days No medical advice here.Just lived experience. Reflection. Encouragement. If you’re living with PCS, TBI, chronic pain - or trying to understand someone who is - you are in the right place. Take one breath.This is where we begin.And we are still here. Contact: letstalkpcs@gmail.com

  • 6 Episodes

About

Post Concussive Syndrome is often misunderstood, minimized, or dismissed. This solo podcast exists to shift that narrative. It explores the lived experience of PCS and chronic pain — from physical symptoms and emotional weight to invisible struggles and quiet resilience. There’s no medical advice here, just honest reflection, encouragement, and real-life perspective from someone navigating it firsthand. This space is for those living with PCS, recovering from it, or seeking to better understand it. Healing isn’t linear — it’s about learning how to rebuild your life around what remains.

Information

  • Creator
    Let's Talk PCS
  • Years Active
    2026
  • Episodes
    6
  • Rating
    Clean
  • Copyright
    © Let's Talk PCS
  • Show Website
    We Are Still Here