#ThroughTheGenes

#ThroughTheGenes
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#ThroughTheGenes is a patient-led podcast that explores the risks, benefits, and limitations of cell and gene-based therapies for sickle cell disease. Hosted by the sickle sisters - Wunmi Bakare and Christelle Salomon, with special guest, Dima Hendricks -the show offers firsthand accounts from patients, caregivers, and providers who have witnessed the effects of transformative therapies. Supported by Beam Therapeutics, Synthego,, Vertex Pharmaceuticals, and Kamau Therapeutics, Season 2 of the show dives deeper into ethical considerations, long-term impacts, and clinical insights—empowering patients and caregivers to make informed decisions about emerging treatment options.

  1. 2025/09/18

    S2EP6: The Impact of Race on Sickle Cell Disease

    In this episode of #ThroughTheGenes, hosts  Wunmi Bakare, Christelle Salomon, and Dima Hendricks, engage in a profound conversation with Dr. Sharl Azar, Medical Director at Massachusetts General Hospital, about the racial disparities in sickle cell disease treatment and advocacy. The discussion delves into the historical context of race in medicine, the challenges faced by sickle cell warriors, and the systemic barriers in healthcare. Dr. Azar shares insights on the importance of advocacy, the role of healthcare providers, and the future of gene therapy for sickle cell disease. We hope you enjoy this conversation, leave a comment below to share your thoughts and ask your questions about gene and cell based therapies and treatment for sickle cell disease. #sicklecelldisease #racialdisparities #healthcareadvocacy #genetherapy, #systemicbias #sicklecellawarenessmonth

    54分

  2. 2025/09/04

    S2EP5: The Role of Donors In Transplants

    In this episode of the Through the Genes podcast, hosts Wunmi Bakare and Christelle Solomon explore the complexities of sickle cell disease and the transformative role of stem cell donation. They engage with Dr. Akshay Sharma, a pediatric bone marrow transplant physician, who provides insights into the donor's perspective, the HLA screening process, and the various methods of stem cell collection. The conversation also touches on the emotional and physical challenges faced by donors, the importance of blood group compatibility, and the need for diverse donor registries. Personal reflections from Dapo Bakare, Wunmi's brother and donor, highlight the family bonds and support systems that play a crucial role in the transplant journey. The episode concludes with a call to action for listeners to consider joining donor registries and participating in clinical research to help advance treatments for sickle cell disease. #ThroughTheGenes #TTGS2 #TTGPodcast #GeneTherapy #TTGxBeam #TTGxSynthego #TTGxUCSF #TTGxSCP #SickleCellDisease #TransformativeTherapiesForSickleCell #SickleCellAwareness #SickleCellEducation

    58分

  3. 2025/08/21

    S2EP4: Support Systems in the Transformative Process With Maite Rodriguez

    In this episode of the #ThroughTheGenes podcast, hosts Wunmi Bakare and Christelle Salomon engage in a heartfelt conversation with Maite Rodriguez about her daughter Alessia's journey with sickle cell disease and the transformative therapies they pursued. The discussion covers the emotional and practical challenges of caregiving, the decision to have another child as a potential donor, and the complexities of preparing for a bone marrow transplant. Maite shares her family's experiences, the support they received, and their hopes for Alessia's future post-transplant, emphasizing the importance of community and open communication throughout their journey. Don't forget to subscribe and share with someone that needs to hear it.

    53分

  4. 2025/07/31

    What Happens To The Body In Gene Therapy? Part 2

    To conclude our discussion on the topic "What Happens To The Body In Gene Therapy", our hosts - Wunmi Bakare and Christelle Salomon - sat down with Dr. Elizabeth Krieger, who is a pediatric hematologist-oncologist specializing in bone marrow transplant and cellular therapies. Discover why chemotherapy is carried out for these therapies, the side effects of chemotherapy, and why some protocols require radiation and others do not. #ThroughTheGenes #TTGS2 #TTGPodcast #GeneTherapy #TTGxBeam #TTGxSynthego #TTGxUCSF #TTGxSCP #SickleCellDisease #TransformativeTherapiesForSickleCell #SickleCellAwareness #SickleCellEducation

    48分

  5. 2025/07/18

    What Happens To The Body In Gene Therapy? Part 1

    In this episode of #ThroughTheGenes, we delve into the transformative role of fetal hemoglobin in treating sickle cell disease. Join hosts - Wunmi Bakare and Christelle Salomon - as they explore groundbreaking gene therapy advancements with Dr. Matt Porteous, Co-founder of Kamau Therapeutics. Discover how genome editing techniques are being used to reactivate fetal hemoglobin, offering new hope for patients by reducing the severity of sickle cell symptoms. We explore the FDA-approved therapies, Lyfgenia and Casgevy, and discuss the transformative potential these treatments hold. Discover the science behind these therapies, the journey from concept to approval, and the impact on patients' lives. Tune in to learn how gene therapy is reshaping the future for those living with sickle cell disease. #throughthegenes #sicklecell #genetherapy #patientadvocacy #sicklecellwarriors #patientexperience #healthpodcast #transformativetherapy #healthcare #experimentaltherapies #geneticdisorder

    38分
  6. The Journey To Transformative Therapy - Maintaining Eligibility

    2025/07/03

    The Journey To Transformative Therapy - Maintaining Eligibility

    In this episode of Through the Genes, we had Pediatric Hematologist-Oncologist, Dr. Mark Walters with us. The hosts discussed the topic, The Journey to Transformative Therapy - Maintaining Eligibility.This is an episode for anyone who is interested in how a sickle cell patient maintain their health so they are a perfect candidate for cell and gene based therapies, so, if this is you, then this is the episode for you.If you enjoyed this episode, go ahead to like and share with someone and if you haven't subscribed, you should do that now. #GeneTherapy #TTGxBeam #TTGxSynthego #TTGxUCSF #TTGxSCP #SickleCellDisease #TransformativeTherapiesForSickleCell #SickleCellAwareness #SickleCellEducation

    42分
  7. Patient Experiences with Experimental Treatments - The Triumphs & Trials

    2025/06/19

    Patient Experiences with Experimental Treatments - The Triumphs & Trials

    In this episode of Through the Genes, hosts Wunmi Bakare, Dima Hendricks, and Christelle Salomon engage in a heartfelt discussion about their personal journeys with sickle cell disease and the transformative therapies they have explored. They share their motivations for seeking experimental treatments, the emotional and physical challenges they faced, and the importance of mental health and self-care. The conversation highlights the resilience of sickle cell warriors and the impact of their experiences on their identities. The episode concludes with a light-hearted quick-fire round, reinforcing the bond among the speakers and their commitment to patient advocacy.

    49分
  8. Bonus Episode: Visible & Invisible Disabilities and How They Impact Us

    2025/06/09 ·  ボーナス

    Bonus Episode: Visible & Invisible Disabilities and How They Impact Us

    In this episode of Through the Genes, host Wunmi Bakare engages with guests Seonni and Vanesha from the Mind the Gap podcast to discuss the complexities of visible and invisible disabilities, personal health journeys, and the importance of advocacy within the South Asian community. The conversation explores their experiences with health diagnoses, the impact of caregiving, and the cultural stigma surrounding health issues, particularly sickle cell disease. The guests share insights on the need for greater awareness and education, emphasizing the power of storytelling and personal narratives in fostering understanding and support. Keywords Keywords: disabilities, health, identity, podcast, advocacy, South Asian community, sickle cell disease, mental health, personal growth, caregiving

    1時間9分
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予告編

番組について

#ThroughTheGenes is a patient-led podcast that explores the risks, benefits, and limitations of cell and gene-based therapies for sickle cell disease. Hosted by the sickle sisters - Wunmi Bakare and Christelle Salomon, with special guest, Dima Hendricks -the show offers firsthand accounts from patients, caregivers, and providers who have witnessed the effects of transformative therapies. Supported by Beam Therapeutics, Synthego,, Vertex Pharmaceuticals, and Kamau Therapeutics, Season 2 of the show dives deeper into ethical considerations, long-term impacts, and clinical insights—empowering patients and caregivers to make informed decisions about emerging treatment options.

情報

  • クリエイター
    #ThroughTheGenes
  • 配信期間
    24年 - 25年
  • エピソード
    19
  • 制限指定
    不適切な内容を含まない
  • Copyright
    © Copyright 2025 All rights reserved.
  • 番組のWebサイト
    #ThroughTheGenes