116本のエピソード
WeHaveAVoice WeHaveAVoice
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WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the community to speak out...speak up! We must openly share what all of us in the Huntington's community experience on a daily basis! Removing the stigmas and broadening social awareness and acceptance is paramount!
Visit: www.WeHaveAFace.org/Radio for more information.
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Rare Disease Day
Host, Kevin Jess, talks about Rare Disease Day which is just around the corner
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New Guidelines to Revolutionize Care for Huntington's Disease Patients
Kevin Jess talks about recent papers published and about to be published concerning changing the diagnostic criteria for HD
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Bunny Clark and the 10th Annual Huntington's Heroes Walk
Bunny Clark talks about The Walk for Huntington's Disease May 28th
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WeHaveAFace! What's next?
Kevin Jess announces charity closings and discusses what's next for WeHaveAFace.
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Worthlessness
Kevin Jess talks about the feeling of worthlessness and how the media may drive this feeling.