KPFA - Pushing Limits

KPFA

A half-hour radio show providing critical coverage of disability issues and bringing insight into the grassroots disability movement to the general public.

  1. 5 SEPT

    SOAR: Advocating for SMA – Pushing Limits – September 5, 2025

    What if the only thing standing between you and a life-saving treatment was a price tag? For many living with Spinal Muscular Atrophy, that’s the reality—Spinraza, one of three FDA approved treatments for SMA costs about $425,000 per injection. Beyond the medical challenges, families face crushing financial barriers and questions of accessibility that differ drastically from country to country. This week, we hear from brothers Derek and Justin. Justin lives with SMA type 1, and Derek—his brother and caregiver—has transformed their experience into a mission. He founded SOAR, a nonprofit dedicated to supporting the SMA community by providing community outreach and support. Under SOAR, Derek created the SMA Support Mates Program, which connects kids and young adults with older mentors who know exactly what it’s like to live with SMA. Together, we talk about the urgent fight for affordable treatments, the stark contrast in accessibility between the U.S. and Vietnam, and how community can light the path forward. This interview has been edited from an episode of The Disability Myth. If you would like to hear the longer program, check out the podcast episode on YouTube, Spotify, Apple Podcasts, and Amazon Music. This program is hosted and produced by Dominick Trevethan. Useful links: SOAR’s official website: https://www.sma-awareness.com/ SMA Support Mate Program: https://forms.gle/tdDS1iVPa27tbooq5 SOAR Instagram: https://www.instagram.com/soar.sma_awareness?igsh=MWt4dTBmeW5uYzByYw== SMA Support Mates Program The post SOAR: Advocating for SMA – Pushing Limits – September 5, 2025 appeared first on KPFA.

    30 min
  2. Service Without The Feds – Pushing Limits – August 22, 2025

    22 AUG

    Service Without The Feds – Pushing Limits – August 22, 2025

    Will our national system of Independent Living Centers be sabotaged or even destroyed during the Trump Administration? The Trump people have already made extreme cuts to community services, and most of our 403 local centers are heavily funded by the Federal Government. Will we end up funding our service centers with bake sales and lemonade stands? Ami Hyten and Reyma McCoy Hyten, the co-directors of the Lois Curtis Center in Topeka, Kansas, have a better idea! Their organization is a physical and virtual hub for services, supports, and guidance that centers individuals with disabilities who experience marginalization within the disability community. They particularly include people of color, people who are homeless, and people who are system-involved. And, they don’t take any government funding. The Lois Curtis Center doesn’t have restrictions on who they can serve or the type of advocacy they engage in. Listen in as we talk to these two dynamic women about the benefits and downsides of working without Federal funding. Speaking of providing information without government influence, we will also feature poets Jennifer Chassman-Brown and Marsha Cutting, who will speak honestly about living with a disability in 2025. This episode is hosted by Dominick Trevethan. It was scripted and produced by Jacob Lesner-Buxton with editing assistance by Denny Daughters and Dominick Trevethan. Also, here’s an excellent article about Federal cuts already in process! The post Service Without The Feds – Pushing Limits – August 22, 2025 appeared first on KPFA.

    30 min
  3. 15 AUG

    Disabled In ICE Detention Center – Pushing Limits – August 15, 2025

    A second investigation by Disability Rights California (DRC) has once again revealed inhumane conditions at a southern California ICE detention center imprisoning immigrants. The facility is called Adelanto Detention Center and is owned and operated by a private company: The GEO Group. DRC investigators found the following conditions: Inadequate Access to Medical and Mental Health Care and Disability Accommodations Inadequate Access to Food, Water, and Clothes Limited Connections with Family and Natural Supports This investigation comes at a time when ICE faces mounting accusations of mismanaging detention facilities, contracting with private operators that cut corners, and wrongfully detaining many immigrants — including some U.S. citizens. Joining us to shed light on the investigation is DRC attorney Adeyinka Glover, formerly a Clients’ Rights Advocate for people with intellectual and developmental disabilities. Adeyinka has also fought for housing rights, protection from domestic violence, guardianships, and environmental justice in the Central Valley. Her career is fueled by the belief that high-quality legal advocacy can help underserved populations including individuals, families, and communities not just survive, but thrive. Adeyinka holds a J.D. from Thomas Jefferson School of Law and a B.A. in Political Science with a minor in Africana Studies from San Diego State University. When she’s not in the fight for justice, she enjoys traveling and exploring art in all its forms. This program is produced and hosted by Eddie Ytuarte. Adeyinka Glover The post Disabled In ICE Detention Center – Pushing Limits – August 15, 2025 appeared first on KPFA.

    30 min

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A half-hour radio show providing critical coverage of disability issues and bringing insight into the grassroots disability movement to the general public.

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