Diabetics Doing Things Podcast

Diabetics Doing Things
  • 4.6 (57)
  • Health & Fitness
  • Weekly

Hosted by T1D Rob Howe, Diabetics Doing Things tells amazing stories of people with diabetes from across the globe, digging deep into everything it takes to Live Well with Diabetes and sharing exciting adventures along the way.

  1. 3d ago

    Episode 369 - Finding Community, Identity & Building The Chronically Illest with Rachael Stickles

    Rachael Stickles started The Chronically Illest because, as Rob puts it, diabetes had absolutely no swag. People with diabetes get beige meter cases and T-shirts that don’t inspire daily wear. Rachael wanted to change that. So she and her partner turned their studio apartment into a workshop and taught themselves how to make stickers, screen printing, and web design, all while working full-time jobs. Her partner asked "So what have you done on the business this week?" every single Sunday until it became a reality. Now, this year it's Rachael's full-time work. Getting there wasn't the glossy quit-your-job story. Diagnosed with type 1 at twelve, Rachael spent her teens and college years sneaking food, skipping doses, and taking just enough insulin to get by. She thought she was the only one, until she posted about it and hundreds of people replied: me too. As an adult she always held at least one job just for the insurance, and in this episode she's honest about what finally let her leave her corporate role. Rob and Rachael also push back on the "you can do anything with diabetes" message. You can, Rachael says, but often with extra steps, and being honest about those steps matters. They get into finding community when you don't see yourself in the room. Rachael started posting online because she wanted to find people that looked like her and had similar experiences. Rachael is half-asian, half-white, and queer. She wanted to find the other T1D’s that were bolusing for rice! In this episode, we are redefining success away from A1Cs and follower counts, and explaining why a meetup with two people is still a meetup. If you've ever felt like the diabetes community was a room you couldn't quite fit into, this one's for you. Chapters 00:00 Rob introduces Rachael and The Chronically Illest 02:01 Twenty years with T1D, diagnosed at twelve 04:35 Skipped doses, DKA, and a secret shame 07:12 Why the teenage years hit hardest 09:40 Finding community online before the DOC existed 12:55 Why one connection is worth it 17:25 The Chronically Illest starts with zero swag 19:44 A studio apartment becomes a sticker workshop 21:44 Learning to say no as an entrepreneur 22:28 The myth of "diabetes can't stop you" 23:31 Insurance, partnership, and quitting the nine-to-five 31:34 How to keep your heart open in hell 34:46 Redefining success: A1C, followers, and money 39:15 Giving back through copay giveaways and picnics 42:08 Advice for anyone who doesn't fit the mold Resources: The Chronically Illest shop Instagram: @thechronicallyillest Instagram: @thechronicallyrachael

  2. Oct 23

    Episode 368 - CTO Peter Simpson on the Future of Dexcom CGMs

    Peter Simpson has been at Dexcom for over 24 years, back when it was a small startup, and he says he's more excited about the technology now than at any point in that run. In this bonus tech episode, Dexcom's CTO walks us through the upcoming G8 sensor: about 50% smaller, plus a new in-use calibration system that checks itself every five minutes to account for the fact that every body is a little different. The goal isn't just a better average accuracy number. It's fewer of those nights where your sensor and your fingerstick seem to be describing two different people. We also dig into the landmark CONNECT study, just published in The New England Journal of Medicine, which found CGM use lowered A1C by 0.9% more than routine care for people with type 2 diabetes not on insulin. Peter shares a surprising finding about people already on GLP-1s, and what Dexcom's new State of Type 2 report says is really standing between people and better care: awareness, education, and access. Near the end, I ask Peter about the recent G7 app terms and conditions update that briefly kept some users from seeing their glucose data. He shares how future updates will roll out and answers questions about metadata and AI. There's more I wish I'd had time to ask, and if I get another conversation with Dexcom, you'll hear it here first. Chapters 01:22 Meet Dexcom CTO Peter Simpson 02:01 Why innovation is speeding up after 24 years 03:21 G8 preview: 50% smaller, more accurate 04:15 How factory calibration actually works 05:05 Real-time calibration that adapts to your body 06:03 MARD explained: fewer bad sensor outliers 07:15 Type 2 barriers: health and tech literacy 07:48 Inside Dexcom's State of Type 2 report 09:08 CONNECT study: CGM results without insulin 10:25 GLP-1s plus CGM: the biggest impact 11:38 Addressing the G7 terms and conditions 12:12 "We made an error": what changes now 13:15 Metadata, pump partners, and AI explained* 15:07 What's next for type 1 and type 2 Resources: The CONNECT Study published in The New England Journal of Medicine Dexcom

  3. Oct 21

    Episode 367 - Diabetes Is Political: The Insulin Act, Public Pharma & Your Vote with T1 International

    A lot of people think the $35 copay cap fixed insulin. For most of us, it didn't. In 2024, 36% of people responding to T1 International's out-of-pocket survey said they were rationing insulin, twice the rate in 2016. With midterms weeks away and the Insulin Act up in both the House and Senate, we brought in two people who have been in the room for this fight for years. Shaina Kasper, Executive Director of T1 International, returns to the show alongside first-time guest Kristen Whitney Daniels, who co-leads T1I's federal working group with Shaina. Both live with type 1, and both have rationed insulin themselves. Kristen walks through the Insulin Act in plain language: the difference between a copay cap and a true price cap, why the IRA only covered part of the Medicare market, and how the House and Senate versions differ. One of the biggest differences is only the Senate bill includes a pilot program for people without insurance, which is why T1 International endorsed the bill for the first time. From there, Kristen and Shaina explain exactly what to say when you call or email your representatives They explain why your personal story matters more than any statistic, and why 2026 is T1I's Year of Public Pharma: California's CalRx glargine at $55 for five pens, Connecticut's ArrayRx discount card, and a tribal nation studying generic manufacturing. We close on patent reform, maybe the least flashy but It's what gives public manufacturers and biosimilar makers the legal room to compete and bring prices down for the long haul. Diabetes is political, which means your story matters. Email your representatives about the Insulin Act, because your story could be the one that moves the right person. Chapters 00:00 Why the Insulin Act matters before midterms 04:20 How T1 International became a global movement 08:15 Copay cap vs. price cap, explained simply 11:47 Why people think insulin is already fixed 13:13 Who the Insulin Act helps and misses 14:33 Insulin rationing has doubled since 2016 16:12 Senate vs. House: the uninsured pilot program 18:29 Insurance gaps and the 2027 coverage squeeze 22:38 What lawmakers don't know about diabetes 25:53 Storytelling lessons from Magic Johnson 27:47 How to call or email Congress 31:54 Why 2026 is the Year of Public Pharma 34:08 Discount cards, GoodRx, and pharmacy closures 36:34 ArrayRx and a tribal-nation manufacturing study 39:07 Patent reform and the December 11 deadline Resources: T1 International: Take Action: Email your House rep and both senators about the Insulin Act 2025 Impact Report Start a Fundraiser CalRx Biosimilar Insulin Initiative ArrayRx discount card Donate to T1 International T1 International Access Survey: over 30% of people rationed insulin due to cost in 2024 ADA 2026 National Access and Affordability Survey: 41% rationed due to cost last year, and 2 in 3 reported higher out-of-pocket insulin costs in 2026 than in 2025 Health Affairs research: a quarter of adults with type 1 have experienced a lapse in insurance coverage KFF: Key Facts About the Uninsured Population

  4. Oct 14

    Episode 366 - Living With Type 1 Diabetes as a Touring Acrobat with Leah Orleans, Tiny Girl Big Show

    Leah Orleans shoots a bow and arrow with her toes, juggles fire, puts knives on her face, and performs around 300 shows a year as Tiny Girl Big Show. In her late twenties, in the middle of a tour, she landed in the ER with an A1C of 14. A few months later, a well-meaning doctor asked what other skills she had, and suggested she start looking for a desk job. She didn't. Instead, she got loud about it. Leah started writing comedy about diabetes (it turns out it's a genuinely funny word), performed a song called "Diabuddies" using a giant cardboard pancreas, and now when she asks "Who's diabetic?" from the stage, hands go up all over the crowd. We talk about the $2,000-a-month reality of living with type 1, how the logistics skills of a touring performer turned out to be life-saving, and why she has convinced food vendors near her stages to keep an insulin pen in their fridge for her. (They've never said no.) We also get into the Big Nonprofit Insulin Party happening in Brooklyn on Friday, October 23, benefiting Project Insulin, the nonprofit working to sell insulin at cost. And we land on a question I keep coming back to: what are you optimizing for? If you've ever been told to trade the life you want for the one that feels safe, this conversation is for you. Chapters 00:00 Welcome and meet Tiny Girl Big Show 03:01 From touring acrobat to an A1C of 14 05:26 Following your passion versus healthcare security 06:13 Turning a $2,000 monthly bill into logistics 07:31 Diabetics are everywhere, even at Ren Faires 08:57 Why "diabetes" is a hilarious word 10:25 Diabuddies and a giant cardboard pancreas 11:22 Health content doesn't have to be sterile 13:13 The Big Nonprofit Insulin Party in Brooklyn 14:24 Why Project Insulin's mission hits home 17:02 The doctor who said find a desk job 20:10 Advice: pick the problems you want to solve 22:43 Systems, habits, and insulin in strangers' fridges 24:12 What are you optimizing for? 28:25 Where to find Leah and her diabetes content Resources: Tiny Girl Big Show Website & Schedule Tiny Girl Big Show Instagram The Big (Non-Profit) Insulin Party Tickets Youtube Channel

  5. Oct 7

    Episode 365 - How His Wife's T1D Diagnosis Led Aurelian Briner to Build Snaq

    When Aurelian Briner's wife was diagnosed with type 1 diabetes about twelve years ago, the hardest questions kept coming back to the plate: how many carbs are in this or how big is this portion? Aurelian, a product manager with a business background and an entrepreneurial itch, decided that was a problem worth solving. In 2017 he co-founded Snaq, and today the app has more than 300,000 registered users and around 20,000 monthly active users around the world. In this episode, Rob and Aurelian trace Snaq's evolution from a photo-based carb counter, to a platform that connects meals with CGM, pump and activity data, to the AI Nutritionist, a 24/7 companion built to help people reach their nutrition goals. They also dig into what it takes to bring AI into healthcare responsibly: fast product iteration on one side, slow and careful clinical validation on the other, and why both matter. Rob makes his case: he doesn't want your vibe-coded diabetes app. Not because building your own tools isn't exciting (it is), but because there's a huge gap between a weekend prototype and a product that's used, trusted and clinically backed. Aurelian breaks down Snaq's moat (users, data and clinical validation), shares an MIT finding that app releases roughly tripled while engagement stayed flat, and explains why building got easier for everyone while marketing got harder. Snaq's published RCT showing a 6.6% time-in-range improvement on top of AID systems, upcoming research on the AI Nutritionist versus standard of care, a US study on T1D pregnancy (one Aurelian's family lived firsthand), the shift from reactive apps to proactive AI agents, and the founder lesson Aurelian would give his younger self: it always takes longer than you think, so make sure you care enough to stay. Chapters: 00:00 Meet Aurelian Briner, CEO of Snaq 01:10 Why AI health tech changed in 2026 02:20 A wife's T1D diagnosis sparks Snaq 03:42 From carb counter to AI companion 05:10 Late-night questions and clinically safe AI 06:20 Build fast, iterate, then prove it clinically 08:09 Why insulin pumps lagged behind iPhones 09:26 Rob's case against vibe-coded diabetes apps 11:40 Snaq's moat: users, data, clinical validation 14:05 Triple the apps, flat engagement: MIT study 17:13 What users say about the AI Nutritionist 19:49 New research: 6.6% more time in range 21:05 Studying T1D pregnancy while living it 22:14 From reactive tools to proactive companions 24:50 Ten years in: lessons for founders Resources: Snaq.ai

  6. Sep 23

    Episode 364 - Resilience & Building a Big Life with Liz Van Voorhis

    At 15, Liz Van Voorhis landed in the ER on spring break with a blood sugar of 1,200. She weighed 78 pounds. She had two questions for the doctor. First, when could she get back to cheer conditioning? Second, did this mean she couldn't finish her Halloween candy? It was April. That mix of grit and humor is Liz Van Voorhis. Liz is an executive coach and founder of The Fit Collective. She has built wellness programs for brands like Equinox, Peloton, and Lululemon. She tells Rob about the 15-year corporate career she walked away from after losing her mom to brain cancer. She also talks about her "brain sabbatical" year teaching 15 spin classes a week, where her class quietly became a safe space for people with Type 1 all over New York. She explains the values exercise from 2004 that she still revisits every New Year's Eve (her birthday) to decide what gets her commitment. They also go back to the January 2025 LA fires. Liz used her retail-operations background to help organize more than 400 volunteers and get diabetes supplies to around 50 displaced families, which earned her the self-appointed title "diabetes drug dealer of Southern California." Along the way, Rob and Liz dig into several other topics: * Rob's thesis that diabetes doesn't get easier, but you get better at it * A million-dollar business loss * A prayer for financial abundance that was answered by a stolen car * Why "we are meaning-making beings" beats "everything happens for a reason" * Why Liz put off switching to Omnipod for years for purely vain reasons, and how much she regrets it If you've ever wondered whether you can build a big, beautiful life with or without type 1, this one's for you. Chapters: 00:00 Meet Liz and the Thailand retreat 01:38 How the 2015 diabetes Instagram connected us 03:13 Diagnosed at 15 with a 1,200 blood sugar 08:11 From church-basement aerobics to corporate career 11:41 Losing her mom and blowing up her life 13:00 Teaching spin and finding her T1D community 14:13 Alignment and the courage to walk away 15:45 The values exercise that changed everything 18:51 Organizing diabetes supplies during the LA fires 26:04 It doesn't get easier, you get better 30:09 Breakthroughs, a $1M loss, and a stolen car 35:19 Meaning-making vs. "everything happens for a reason" 36:44 Identity, basketball camps, and embracing who you are 38:42 Tuning out the noise and never drinking 43:29 Omnipod, Dexcom, and getting over vanity Resources: 1. The Fit Collective 2. Liz Van Voorhis Instagram

  7. Sep 9

    Episode 363 - Danica Doble and Lucas SilvaA T1D Couple's Story

    Rob sits down with a rare three-person interview: Danica Doble (@type1deeabetes) and her partner Lucas, who both live with type 1 diabetes. Their story starts with a genuinely wild diagnosis arc. Lucas was told he had type 2 diabetes, put on metformin, and left to figure it out on his own for over a year. It wasn't a doctor who caught the mistake. It was Danica, watching his Dexcom numbers from the outside and refusing to let it go until he got a GAD antibody test. She was right. The conversation moves from that misdiagnosis story into what it's actually like to build a life and a relationship around two people managing the same disease. They talk about pre-bolusing habits rubbing off on each other, supply emergencies solved by sharing pods, and the strange comfort of dating someone who doesn't need diabetes explained to them. Danica also opens up about a year of debilitating fear around low blood sugar that came out of nowhere in 2022, how it shaped what she couldn't do, and how she worked her way back out of it. There's also a real look at Danica's path as a creator from a fitness account that hit 300K on TikTok to launching as its own page, growing to 60,000 Instagram followers in under a year, and running a six-week fitness challenge built specifically for the T1D community. She talks candidly about online hate, why she doesn't shy away from clapping back, and how she's learned to hold onto the good instead of fixating on the one negative comment. It's a funny, honest episode complete with the story of a PowerPoint presentation Danica made to teach Lucas about type 1 diabetes, a jiu jitsu sensor casualty count, and a love story that started at a casino. Press play for the full conversation. Chapters: 00:00 Cold open and guest introduction 01:20 Welcome and introductions from Danica and Lucas 02:18 Lucas's symptoms begin and the misdiagnosis story starts 04:36 ER visit ends with a type 2 diabetes diagnosis 06:37 Danica suspects type 1 and pushes for testing 08:47 GAD antibody test confirms type 1 diabetes 10:00 Onboarding to insulin and Danica's PowerPoint presentation 12:52 Danica's content creation origin story begins 16:48 Danica's year-long fear of low blood sugar 20:04 How diabetes shows up in their relationship 23:05 Inside Danica's six-week fitness challenge 25:31 Handling online hate and diabetes stigma 28:23 How they actually met: the casino night origin story 33:03 Closing reflections and advice for listeners 34:53 Jiu jitsu, sensor casualties, and daily management tips Resources: 1. Danica Doble Instagram 2. Danica Doble TikTok

  8. Aug 12

    Episode 362- Living a Creative Life with Dave Holmes (MTV, Esquire)

    Dave Holmes spent the late '90s and early 2000s as one of the faces of MTV, and these days he's a sharp, funny voice at Esquire — but before any of that, he spent six years being told he had type 2 diabetes when he actually had type 1. This week, Rob sits down with Dave to talk about that misdiagnosis, the strange cluster of friends who were diagnosed around the same time, and a diabetes-age chart Rob saw at a conference that will change how you think about who gets T1D. From there, the conversation turns into a real, unpolished look at what it takes to live a creative life. Dave and Rob are both working through Julia Cameron's The Artist's Way right now — morning pages, artist dates, and all — and they get honest about guilt, perfectionism, and the fear of putting out work that isn't ready. Dave, a professional writer with a book and a byline at one of the biggest magazines in the country, admits he still feels like a fraud turning in a rough draft. It's a good reminder that "getting easier" was never really the goal — getting better at the hard parts is. Along the way, Dave and Rob swap stories about the universe nudging you toward where you're supposed to be — a DJ gig that came out of nowhere, a stranger at a DVD store, a maintenance worker who turned out to also be living with diabetes. It's the kind of episode that starts as a diabetes story, turns into a conversation about creativity, and ends up being about paying attention to your life. And because no DDT episode is complete without some fun, Dave and Rob close it out with a segment they're calling the Bad Advice Song Draft — three rounds each of picking the most beloved songs with the absolute worst advice buried in the lyrics. Stalking anthems, teenage recklessness, and one song so ethically questionable that Kidz Bop wouldn't touch it. Tune in for all of it. Chapters: 00:00 Meet Dave Holmes: MTV VJ turned Esquire writer 02:52 Dave's six-year road to the right diagnosis 05:54 The surprising truth about T1D and age 07:13 How The Artist's Way found them both 08:37 Why Dave restarted the 12-week program now 12:48 Comparing morning page routines and habits 15:39 Getting unstuck: movement, walks, dumb writing 17:30 An artist date leads to an unplanned DJ gig 20:10 Beginner's mind and the fear of being filmed 21:09 Dave on perfectionism and feeling like a fraud 25:18 Resilience: "it doesn't get easier, you get better" 27:36 A screenwriter's ultimatum sparks Dave's fiction project 30:41 Meditation, synchronicity, and a DVD store coincidence 33:28 The ball-spinning experiment: "you can just do stuff" 38:05 Signs from Rob's dad, and a Disney parking-lot miracle 42:19 The Bad Advice Song Draft begins Resources: 1. The Artist's Way by Julia Cameron 2. Dave Holmes on Instagram 3. Dave Holmes at Esquire — his latest writing and pop culture commentary.

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4.6
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57 Ratings

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Hosted by T1D Rob Howe, Diabetics Doing Things tells amazing stories of people with diabetes from across the globe, digging deep into everything it takes to Live Well with Diabetes and sharing exciting adventures along the way.

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