Invisible Not Broken - Chronic Illness Podcast Network

Hosts: Monica and Eva

The podcast network that speaks to people with chronic illness, invisible illness, disability, and chronic pain. "Explicitly Sick Podcast" with Monica Michelle + "[Human]care Podcast" with Eva Minkoff Be Kind. Be Gentle. Be A Bad Ass. Hosted on Acast. See acast.com/privacy for more information.

  1. Faye: Patient Advocacy, Disability Magazine, Safe Spaces, and Art Vs Generative AI

    1D AGO

    Faye: Patient Advocacy, Disability Magazine, Safe Spaces, and Art Vs Generative AI

    Faye: Patient Advocacy, Disability Magazine, Safe Spaces, and Art Vs Generative AIPatient Power & Joy: Affordable Advocacy, Safe Spaces & Why Community Beats AI Art | Faye YouTube Description (Long-Form SEO & Social Media Ready)Are you tired of navigating the broken healthcare system alone? 💔 In this uplifting and essential episode, we reconnect with the incredible Faye to dive deep into Independent Patient Advocacy. This conversation is your guide to feeling heard and supported in your health journey, combining practical advocacy tips with empowering discussions on community and creativity. What We Cover & Why You Need to Listen: 02:49 - Patient Power: Understanding the crucial Role of Independent Patient Advocacy and how it can literally change your health outcomes.05:57 - Healthcare Hacks: Practical strategies for Navigating the Healthcare System and avoiding medical gaslighting.11:46 - Affordable Support: Learn about The Butterfly Guild and how they are providing vital, affordable advocacy services for chronic illness patients.14:34 - Positive Vibes: Discover The Good News Gazette—a source of light and hope in the often-dark world of chronic illness. ✨22:26 - Art vs. AI: A fascinating discussion on the Importance of Real Art Over AI and the unique value of human creativity in the disability space. 🎨27:42 - Find Your Tribe: The undeniable Value of Community in the chronic illness journey and how we can build Supportive Community for All.This episode is a must-listen for chronic illness patients, caregivers, advocates, and anyone interested in healthcare reform and the powerful impact of human connection. LISTEN NOW! 👇 independent patient advocacy, affordable advocacy services, butterfly guild, navigating the healthcare system, patient safe spaces, medical gaslighting, chronic illness community, chronic illness support, disability advocacy, healthcare reform, joy and community, art vs ai, human creativity, aging and authenticity, universal income for artists, chronic illness podcast, patient empowerment, good news gazette, Faye, health advocacy tips, systemic healthcare issues. #PatientAdvocacy #ChronicIllnessWarrior #SpoonieLife #AffordableAdvocacy #HealthcareHacks #MedicalGaslighting #CommunitySupport #ArtVsAI #DisabilityCommunity #HealthPodcast #FindYourTribe #SupportSmallBusiness #ChronicLife #JoyThroughArt #HealthTech #ButterflyGuild #PatientPower 💪🦋🧠💻 Hosted on Acast. See acast.com/privacy for more information.

    37 min
  2. Uncovering the Radical Legacy of Disability Activist Ed Roberts with Biographer Scot Danforth

    JAN 7

    Uncovering the Radical Legacy of Disability Activist Ed Roberts with Biographer Scot Danforth

    Uncovering the Radical Legacy of Disability Activist Ed Roberts with Biographer Scott Danforth Keywords Ed Roberts, disability rights, activism, biography, independence, community, technology, publishing, women in activism, accessibility Takeaways Ed Roberts was a pivotal figure in the disability rights movement. His activism began at UC Berkeley with the Rolling Quads. The fight for disability rights is ongoing and requires constant vigilance. Family dynamics play a crucial role in fostering independence for disabled individuals. Community building is essential for effective activism. Technology can greatly enhance accessibility for disabled individuals. The Center for Independent Living was a groundbreaking initiative for disability rights. Women played a significant but often overlooked role in the disability rights movement. Writing a biography involves difficult choices about what to include or exclude. The publishing process can be challenging, especially for underrepresented stories. Summary This conversation explores the life and legacy of Ed Roberts, a pivotal figure in the disability rights movement. Scott Danforth, the author of a biography on Roberts, discusses the challenges and triumphs of advocating for disability rights, the importance of community and independence, and the role of technology in enhancing accessibility. The conversation also touches on the often-overlooked contributions of women in the movement and the complexities of writing a biography. Danforth shares insights from his research and the publishing process, emphasizing the need for continued advocacy and the importance of storytelling in the fight for disability rights. Titles Unveiling Ed Roberts: A Disability Rights Pioneer The Legacy of Ed Roberts and Disability Activism Sound bites "This is not a very well-known man." "He had polio as a teenager." "He loved the technology." Chapters 00:00 Introduction to Ed Roberts and His Legacy 02:13 The Fight for Disability Rights 09:07 Independence and Family Dynamics 14:53 Building Community and Activism 21:28 Technological Advancements and Accessibility 26:57 Revitalizing the Center for Independent Living 27:24 The Legacy of Ed Roberts and Disability Activism 28:23 Unveiling the Myths of Disability Leadership 30:49 The Unsung Heroes of the Disability Rights Movement 31:54 Chronic Illness and the Overlooked Voices 33:30 The Joys and Challenges of Writing a Biography 35:21 The Process of Research and Writing 36:17 Editing and Storytelling in Biography 38:44 Navigating the Publishing Landscape 41:25 The Journey into Disability Studies 43:58 Dreams vs. Reality in Disability Advocacy 46:46 The Importance of Community and Creativity 48:23 Joy as Resistance in Activism Hosted on Acast. See acast.com/privacy for more information.

    51 min
  3. Relationship Goals, Chronic Illness Edition: Dating, Love, and Literally Writing the Book with Therapist Lisa Gray

    12/17/2025

    Relationship Goals, Chronic Illness Edition: Dating, Love, and Literally Writing the Book with Therapist Lisa Gray

    Keywords chronic illness, relationships, conflict resolution, empathy, writing process, power imbalance, emotional management, self-help, therapy, communication Summary In this conversation, Lisa Gray, a marriage and family therapist, discusses the complexities of relationships when chronic illness is involved. She shares insights on conflict resolution, the importance of empathy, and how to navigate power imbalances in relationships. Lisa also delves into her writing process, the significance of finding meaning in chronic illness, and practical tools for writing and publishing. The discussion emphasizes the need for understanding, communication, and the ability to adapt in relationships affected by chronic illness. Takeaways Conflict increases intimacy if done right. Healthy conflict means knowing your partner better. Stop fighting when you're already mad. Impulse control is key in managing conflict. Power imbalances can affect relationships with chronic illness. Empathy must go both ways in relationships. Finding meaning is crucial in the grieving process. Values can guide actions despite chronic illness. Writing can be a therapeutic process. Use tools that work for your energy levels. Titles Navigating Relationships with Chronic Illness The Art of Healthy Conflict Sound bites "Empathy needs to go both ways." "Intimacy is very broad." "Weighted blankets are so comforting." Chapters 00:00 Introduction to Chronic Illness and Relationships 02:55 Navigating Conflict in Relationships 06:02 Impulse Control and Managing Emotions 09:07 Power Imbalances in Relationships 11:54 Empathy in Chronic Illness Relationships 14:57 Core Skills for Managing Chronic Illness 17:42 Finding Meaning and Values in Relationships 20:55 Personal Discoveries Through Writing 23:55 Building Empathy Through Curiosity 24:15 Exploring Virtual Reality and Empathy 25:39 Relationships and Support in Chronic Illness 28:05 Intimacy and Chronic Illness 30:30 The Writing Process and Tools for Writers 38:58 Publishing Insights and Resources Transcript Hosted on Acast. See acast.com/privacy for more information.

    44 min
  4. The Untold Risks of TMS: Jordan Hanson's Journey

    11/19/2025

    The Untold Risks of TMS: Jordan Hanson's Journey

    Keywords TMS, transcranial magnetic stimulation, brain injury, mental health, medical gaslighting, patient advocacy, chronic illness, technology in healthcare, self-care, mindfulness Summary In this conversation, Jordan Hanson shares her personal journey with transcranial magnetic stimulation (TMS), a procedure intended to treat mental health issues. She discusses the initial excitement about the treatment, the subsequent negative effects she experienced, and the challenges of navigating the medical system. The conversation highlights the importance of patient advocacy, community support, and the role of technology in managing health. Jordan emphasizes the need for awareness and understanding of the risks associated with TMS and the importance of self-care and mindfulness in coping with chronic illness. Takeaways TMS is a procedure that uses magnetic fields to stimulate brain activity. Jordan experienced significant negative effects from TMS, including brain injury symptoms. Medical gaslighting is a common issue faced by patients seeking help. Community support is crucial for those dealing with chronic illness. Technology, including AI, can assist in managing health and communication. Self-care and mindfulness are essential for coping with chronic illness. Advocacy is important to raise awareness about the risks of TMS. Family planning can be complicated by health issues and uncertainties. Understanding the impact of chronic illness on daily life is vital. The journey of healing is ongoing and requires patience and support. Titles The Hidden Risks of TMS: A Personal Journey Navigating the Medical Maze: Jordan's TMS Experience Sound bites "I was called headache girl for a year." "I want to share my story to help others." "I have to protect myself and my energy." Chapters 00:00 Introduction to TMS and Jordan's Journey 01:13 Understanding the Impact of TMS on Life 01:28 Introduction and Background on TMS 04:20 Understanding Trans-Cranial Magnetic Stimulation (TMS) 07:23 The Experience of TMS Treatment 10:20 The Impact of TMS on Daily Life 13:09 Medical Gaslighting and Patient Advocacy 16:13 The Journey to Recovery and Diagnosis 19:14 Community Support and Sharing Stories 22:18 The Decision to Create a Documentary 25:13 Advocacy and Future Goals 36:11 The Need for Scientific Understanding in TMS 40:42 Coping with Chronic Illness and Disability 44:52 Navigating Family Planning Amidst Uncertainty 52:54 Leveraging Technology for Brain Injury Support 59:42 Personal Growth Through Adversity Hosted on Acast. See acast.com/privacy for more information.

    1 hr
  5. Epilepsy, UK Health System VS US, and How We Can Do Better: Conversation With Célestine Laurin

    11/03/2025

    Epilepsy, UK Health System VS US, and How We Can Do Better: Conversation With Célestine Laurin

    Epilepsy, UK Health System VS US, and How We Can Do Better: Conversation With Célestine Laurin Summary In this conversation, the speakers delve into the complexities of living with epilepsy and chronic illness, particularly focusing on the experiences of children and young adults. They discuss the challenges of diagnosis, the importance of support from family and friends, and the role of therapy in managing mental health. The conversation also touches on the stigma surrounding chronic illness, the impact of bullying, and practical advice for managing seizures and advocating for oneself in educational and social settings. Additionally, they explore how epilepsy is represented in the media and the need for better understanding and communication around the condition. This conversation delves into the complexities of living with epilepsy, particularly focusing on the challenges faced by women regarding medication and pregnancy. The speakers share personal experiences with the impact of epilepsy on their lives, careers, and the healthcare system. They discuss the stigma surrounding chronic illness, the importance of open communication with clients in business, and the differences in healthcare systems across countries. The conversation highlights the need for greater awareness and understanding of disability and chronic illness. In this conversation, the speakers discuss the challenges faced by individuals with disabilities, the impact of overprotection on children, and the need for inclusive spaces and universal design. They explore the healthcare systems in different countries, highlighting the disparities in access and affordability. The conversation emphasizes the importance of disability advocacy in health policy and the need for a more inclusive approach to legislation that considers the needs of all individuals, particularly those with chronic illnesses. Keywords epilepsy, chronic illness, mental health, therapy, support, bullying, childhood illness, accommodations, media representation, epilepsy, medication, women’s health, chronic illness, disability, healthcare, personal stories, photography, career choices, mental health, disability, healthcare, universal design, overprotection, advocacy, inclusivity, chronic illness, education, mental health, accessibility Hosted on Acast. See acast.com/privacy for more information.

    1h 21m
  6. Raven: Paranormal Romance Writer, Sirens, Disability in the Media, and Training Service Dogs

    10/29/2025

    Raven: Paranormal Romance Writer, Sirens, Disability in the Media, and Training Service Dogs

    Chapters 00:00 Introduction to Romance Writing and Disability 05:49 Life Changes During the Pandemic 11:53 Writing Romance with Chronic Illness 17:55 Representation of Disability in Romance 24:35 The Viral Success of a Romance Novel 31:07 Writing as a Form of Self-Discovery 36:06 Navigating Writing with Disabilities 49:59 The Journey of Training a Service Dog Summary In this conversation, the speakers delve into the intersection of romance writing and disability representation, particularly focusing on the experiences of chronically ill individuals. They discuss the impact of the pandemic on their lives, the process of writing romance novels that feature disabled characters, and the importance of authentic representation in literature. The conversation also touches on the viral success of one speaker's romance novel, the emotional journey of writing, and the practical challenges of writing with disabilities. Additionally, they explore the journey of training a service dog and how it has positively influenced their lives. Takeaways The pandemic led to significant life changes and new diagnoses. Writing romance novels became a creative outlet during difficult times. There is a need for authentic representation of disabled characters in romance. Readers appreciate seeing themselves reflected in literature. The success of a romance novel can be validating for writers. Writing can be a form of self-discovery and healing. Navigating the writing process with disabilities requires adaptation and support. Service dogs can provide emotional and physical support for their owners. Community and connection are vital for those with chronic illnesses. The journey of self-publishing can be empowering despite challenges. Hosted on Acast. See acast.com/privacy for more information.

    53 min

Trailers

4.5
out of 5
91 Ratings

About

The podcast network that speaks to people with chronic illness, invisible illness, disability, and chronic pain. "Explicitly Sick Podcast" with Monica Michelle + "[Human]care Podcast" with Eva Minkoff Be Kind. Be Gentle. Be A Bad Ass. Hosted on Acast. See acast.com/privacy for more information.

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