Ataxia, Did You Know?

Dana Mauro
Ataxia, Did You Know?

Curious, knowledgeable wife of an Ataxian. My mission is to share reputable Ataxia information in short, simple, digestible servings. I want the world to become acquainted with Ataxia and the way it robs someone of their balance, coordination, ability to walk, talk, swallow, and see.

  1. Maximize your Doctor Visits

    12/31/2020

    Maximize your Doctor Visits

    Maximize your Doctor Visits Strategies to include before your next doctor visit to maximize your appointment time.   An average appointment is 30 - 60 minutes. That’s not a lot of time. In this session you will learn strategies to make the most out of those minutes. #kNOwATAXIA #Ataxia iTunes: podcast/k...https://itunes.apple.com/us/ Simple Podcast https://ataxia.simplecast.com/ Facebook https://www.facebook.com/ataxihttp:// Website https://ataxia.simplecast.com/episodes Instagram https://www.instagram.com/ataxian_/ Twitter https://twitter.com/AtaxiaFacts

    13 min

  2. 05/05/2020

    Dr. Jeremy Schmahmann explains Ataxia patients how important to exercise

    #ThoughtfulTuesday Exercise , Take a step, Stay tune to the end! Dr. Jeremy Schmahmann explains Ataxia patients how important to exercise #kNOwATAXIA MGH Neurology

    5 min

  3. 04/10/2020

    Dr Jeremy Schmahmann Ataxia patients prevent infection COVID-19

    Dr Jeremy Schmahmann.. is head of the Ataxia Unit at Massachusetts General Hospital in Boston, Massachusetts MINDlink Foundation Ataxia patients: steps to take care of yourself to prevent infection COVID-19 https://youtu.be/c-ic6Wn9m0Q

    1h 5m
  4. Be a part of the Joint Mission Bataan

    02/26/2020

    Be a part of the Joint Mission Bataan

    Listen in to my conversation with Mike De Rosa and Mark Minkin. Find out how they and other representatives from across the country are raising funds and awareness about Ataxia on March 15th https://ataxia.org/jointmissionbataan/ The Joint Mission Bataan is an exciting opportunity to support the Ataxia community, and veterans, at the same time. The National Ataxia Foundation and many individuals from around the country have committed to hiking 26.2 miles in the New Mexico desert as part of the Bataan Memorial Death March. Be a part of the Joint Mission Bataan- an operation to increase awareness of Ataxia, raise funds, and find a cure. Contributions will go towards fulfilling NAF’s mission of improving the lives of persons affected by Ataxia through support, education, and research. #kNOwATAXIA Nation #thoughtfultuesday

    18 min
  5. SCAR Scale

    02/12/2020

    SCAR Scale

    Ataxia, Did You Know?

    24 min

  6. 12/18/2019

    Feeling alone in your Ataxia diagnosis – finding the right support system is key.

    Ataxia, Did You Know?

    6 min

  7. 11/14/2019

    Making the most out of the first appointment with your neurologist.

    Making the most out of the first appointment with your neurologist.By Dana Mauro

    6 min

  8. 11/05/2019

    Ataxia neurologists how to prepare

    Taking an active role and advocating for patient needs is important when seeking an Ataxia diagnosis. Begin with a discussion with a primary care physician. However, some physicians may not be familiar with Ataxia because it is a rare disease. If Ataxia is suspected, the primary care physician will likely make a referral to a neurologist. Neurologists will have the expertise needed to confirm a diagnosis and determine the type of Ataxia.

    5 min
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About

Curious, knowledgeable wife of an Ataxian. My mission is to share reputable Ataxia information in short, simple, digestible servings. I want the world to become acquainted with Ataxia and the way it robs someone of their balance, coordination, ability to walk, talk, swallow, and see.

Information

  • Creator
    Dana Mauro
  • Years Active
    2017 - 2020
  • Episodes
    55
  • Rating
    Clean
  • Copyright
    © Dana Mauro
  • Show Website
    Ataxia, Did You Know?

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