The Lucky Few

The Lucky Few Podcast
  • 4.9 (334)
  • KIDS & FAMILY
  • UPDATED WEEKLY

Hey friends! Welcome to the Lucky Few Podcast where we are shifting the narrative by shouting the worth of people with Down syndrome. With your hosts, Heather Avis, Micha Boyett, and Mercedes Lara.

  1. DEC 9

    320. Diving Deeper: Communication, Self-Talk, & Down Syndrome

    Today we’re diving deep into the way our children communicate! We’re asking some difficult but important questions about how we support their speech and language. How do our kids feel when people cannot understand their speech? How do they feel when we, as their parents, cannot understand their speech? How are we supposed to implement all the speech therapy tools? When is it time to just focus on one area of growth for our kids? How do our kids use “self-talk” to share stories and self-soothe? And that’s a wrap on this season focused on brain health and Down syndrome! We hope you learned as much as we did from these last 10 episodes. We’ll see you again in the new year! SHOW NOTES Visit our Therapist Directory to find mental health support for your loved one with a disability. Fill out THIS FORM to be added to our therapist directory. SPONSOR Sign up for Enable SNP HERE.

    54 min

  2. DEC 2

    319. Brain Health & DS: Communication w/Jennifer Gray, SLP

    Jennifer Gray is a certified speech-language pathologist with over 20 years of experience working with the Down syndrome community. Today we’re asking her all the questions we’ve forgotten to ask our children’s own speech therapists. When should speech therapy start for individuals with Down syndrome? (Hint: Jennifer says research shows it can be helpful before age 1) What makes speech more challenging for individuals with Down syndrome? Can individuals with Down syndrome experience speech regression? What is self-talk? We hope you learn something from this important conversation about communication for people with Down syndrome! -- SHOW NOTES Visit grayspeaktherapy.com Instagram: @downsyndromespeech and @grayspeaktherapy SPONSOR Sign up for Enable SNP HERE.

    37 min

  3. NOV 25

    318. Diving Deeper: Trauma and Intellectual Disability

    Last week we sat down for an interview with trauma expert Dr. Karyn Harvey and today the three of us are unpacking all of our feelings about it. We’re asking ourselves some pretty heavy questions about trauma and intellectual disability. Do our kids really encounter trauma every time they step out the front door? Are we holding our children to unrealistic standards and expectations for behavior? Do the benefits of an inclusive education outweigh the trauma that comes with it? Why have our kids never been offered mental health support at any of their regular screenings? Here’s what we know for certain: our children with intellectual disabilities understand when they are being excluded. And it’s our job to remind them just how incredibly lucky this world is to have them in it. Friends, we hope your children receive the mental health support they need so they can become exactly who they are meant to be. SHOW NOTES Learn more from Dr. Karyn Harvey and read her publications here. SPONSOR Sign up for Enable SNP HERE.

    41 min

  4. NOV 18

    317. Brain Health & DS: Trauma and Intellectual Disability w/Dr. Karyn Harvey

    Dr. Karyn Harvey is a psychologist, author, trainer, speaker, and EXPERT in the field of psychology, intellectual disability, and trauma. Have you ever thought of the trauma that individuals with intellectual disabilities face each day? The examples are endless.. a negative diagnosis experience, being excluded, or even being placed in an institution. Today Dr. Karyn Harvey is on the show to teach us: How does trauma influence behavior? What do symptoms of trauma look like in people with intellectual disabilities? Can we assume that all individuals with intellectual disabilities face trauma? What does therapy look like for an individual with an intellectual disability? We’re also breaking down a few real-life examples of incidents in our child’s lives. This episode is full of wisdom for all of us who wish to support individuals with disabilities and their mental health. --- SHOW NOTES Learn more from Dr. Karyn Harvey and read her publications here. SPONSOR Sign up for Enable SNP HERE. JOIN THE LUCKY CREW Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!

    49 min

  5. NOV 11

    316. Diving Deeper: Alzheimer's Disease Prevalence and Treatment, w/Kandi Pickard

    Last week we had an important conversation with Dr. Michael Rafii all about the link between DS and Alzheimer’s disease. If you’re still processing everything you learned from that interview, that’s okay. Sit down with the three of us + our good friend Kandi Pickard (CEO of the National DS Society) and we’ll talk through it together! How do we confront medical discrimination? Where can we get involved in research? What does it mean that the NDSS has merged with LuMind? (hint: its a great thing for Alzheimer’s research!) We know this isn’t an easy topic but this episode is full of hope. Remember, there are medical experts (like Dr. Rafii) and organizations (like NDSS) doing all that they can to improve the future for your loved one with Down syndrome. -- SHOW NOTES Learn more more about Alzheimer’s disease from the National DS Society Learn more about LuMind merging with the NDSS Find resources on The Alzheimer Biomarkers Consortium-Down Syndrome (ABC-DS) Get involved in research with DS-Connect SPONSOR Sign up for Enable SNP HERE.

    47 min

  6. NOV 4

    315. Brain Health & DS: Alzheimer's Disease Prevalence and Treatment (w/Dr. Michael Rafii)

    As we continue this season on brain health, its time to dive deep into the link between Alzheimer’s disease and Down syndrome. It’s not an easy topic.. and that’s why we are so grateful to have Dr. Michael Rafii with us. He’s a physician-scientist whose research focuses on developing treatments for Alzheimer’s disease, including a genetic form that occurs in people with Down syndrome. Dr. Rafii is breaking down these topics today: Alzheimer’s 101: How does it progress over time? How many people with and without DS are likely to develop Alzheimer’s disease? The science: What gene is responsible for causing Alzheimer’s? Current breakthroughs: More people with DS are involved in the research and Dr. Rafii is focused on developing research methods that work for individuals with intellectual disabilities. Take some notes, friends. This is an important one. SPONSOR Sign up for Enable SNP Today HERE.

    44 min

  7. OCT 28

    314. Diving Deeper: Motor Planning, Apraxia, & More

    Last week, we heard from motor planning expert, Brooke Poston, so today the three of us are diving deep into our experiences of apraxia with our own children! Here’s what we’re chatting about: When are children aren’t cooperating, is it actually a behavior problem or an apraxia challenge? Do they need ABA therapy or motor coaching? How can we implement these motor planning techniques all day every day? Knowing what we know now, how can we offer more grace to our children when they appear dysregulated and/or uncooperative? Make sure you listen to last week’s episode with Brooke first so you understand the basics of motor planning and apraxia before we dive into our personal examples! --- SHOW NOTES Listen to last week’s episode with Brooke Poston for more information on motor planning. Follow Spellers & Brooke on Instagram! Visit spellers.com for more information. JOIN THE LUCKY CREW Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!

    44 min

  8. OCT 21

    313. Brain Health & DS: Motor Planning, Apraxia, & More w/Brooke Poston

    Have you ever found yourself asking your child to do the same thing over and over again? Why won’t they just stand up and put their shoes on? Why do they hit so often for what seems like no reason? Today is your crash course in motor planning and apraxia, where we’re diving deep into how the brain + body connection impacts behavior. We have Brooke Poston (Clinic Director and Spellers Method Practitioner) on the show to answer all of our questions: What is the difference between apraxia, incompetence, and defiance? How can a parent implement motor coaching techniques for children with DS? (hint: Start with the eyes! Use the motor coaching formula) What should we do when our kids “flop and drop?” How do we respond to injurious and out of control behaviors? Get ready to take notes and pass this one along! -- SHOW NOTES Follow Spellers & Brooke on Instagram! Visit spellers.com for more information. Learn more about motor planning from Elizabeth Torres and Dana Johnson JOIN THE LUCKY CREW Join us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!

    43 min
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Hosts & Guests

4.9
out of 5
334 Ratings

About

Hey friends! Welcome to the Lucky Few Podcast where we are shifting the narrative by shouting the worth of people with Down syndrome. With your hosts, Heather Avis, Micha Boyett, and Mercedes Lara.

Information

  • Creator
    The Lucky Few Podcast
  • Years Active
    2018 - 2025
  • Episodes
    356
  • Rating
    Clean
  • Copyright
    © The Lucky Few Podcast
  • Show Website
    The Lucky Few

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