Alopecia Life

Host: Deeann Graham

Alopecia Life is here to provide you with support, accurate information, inspiring stories and life hacks to help you navigate the world of hair loss.You'll hear interviews with specialists in their field and parents who are helping their child move through life while living with alopecia areata, along with conversations with alopecia rockstars who are making a difference. Whether you’ve just been diagnosed or have had it for ages, Alopecia Life has been created to share all the information you may want or need to do alopecia your way.

  1. Oct 22

    S8E3 The Brave Crown Foundation with Sage and Nicky

    Welcome to this episode of Alopecia Life. What happens when a new diagnosis turns into a global mission for change? When Sage was diagnosed with alopecia early in 2026, she and her mom, Nicky, found themselves facing a complete lack of local awareness in South Africa. But instead of letting isolation take over, Sage looked at the global alopecia community and decided to build that same support at home. Together, they founded the Brave Crown Foundation - an initiative born out of a desire to celebrate alopecia, share stories, and bring that iconic Christie Valdiserri wig-snatch energy to South Africa! It’s rare to meet someone so young who steps up so quickly to make a difference. In our conversation today, Nicky and Sage join me to talk about honoring those initial moments of not being heard, and immediately pivoting to the practical 'now what?' of an alopecia areata diagnosis. Here is my conversation with Nicky and Sage. A huge thank you to Nicky and Sage for sharing their story today. What stands out most about their journey is how they took inspiration from the global alopecia community and used it to ignite something meaningful at home. Where silence and lack of awareness once existed in South Africa, they created a vibrant space - inviting voices and stories to finally be heard and celebrated. They remind us that advocacy isn't just about finding your own path; it's about opening the door so others don't have to walk theirs alone. Be sure to check out the show notes to learn more about the Brave Crown Foundation and follow all the great work Nicky and Sage are doing. Thank you so much for listening, and we'll catch you next time.  https://thebravecrown.co.za/ Brave Crown Foundation Facebook Brave Crown Foundation Instagram Support the show Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

    S8E3 The Brave Crown Foundation with Sage and Nicky
  2. Sep 17

    S8E2 My Wig Coach, with Sherry Schaefer

    My guest today is Sherry Schaefer, a wig specialist and educator with more than two decades of experience supporting hair loss clients. Sherry was running a busy salon when she developed alopecia areata at age 39. That personal shift inspired her to open her own wig salon and launch My Wig Coach. Today, through her training programs - Wig Essentials for the Hairstylist and The Ultimate Wig Stylist Bootcamp, she teaches stylists how to integrate wig services into their practice and build their own wig businesses.    Thank you for sharing your time with us today. In our conversation, Sherry mentioned Michele Cushatt’s words, 'If you can lose it, it's not who you are'. For anyone in the alopecia community navigating hair loss, that reminder hits close to home. It challenges us to separate our self-worth from what's in the mirror and grounds us in the truth that our true identity remains intact, no matter what changes externally. I've included the link for Michele's book here in the show notes. If today’s conversation resonated with you, whether you're a hairstylist curious about bringing wig services into your practice or you just want to learn more about Sherry's story, head over to the show notes. We’ve included all the ways you can reach out and get connected with her there. Instagram: https://www.instagram.com/the.wig.coach/ Facebook: https://www.facebook.com/mywigcoach/ Website: https://www.mywigcoach.com Courses: https://www.mywigcoach.com/wig-classes-online Email: sherry@mywigcoach.com Michele Cushatt's Book Support the show Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

    S8E2 My Wig Coach, with Sherry Schaefer
  3. Aug 20

    S7E9 Alopecia Inspiration Spotlight with Ella Kedilerli

    Today, we’re doing something a little different. We’re kicking off our very first Inspiration Spotlight -a series of shorter episodes designed to give you a moment of connection and perspective. Whether you're driving to work, running errands, or just need a gentle reminder that you’re not alone in this, these mini-episodes are here to give you that extra lift. And I’m so glad to have Ella Kedilerli joining me as our very first spotlight guest. Ella is actively using her stage to change the conversation around representation, confidence, and what it really means to show up as yourself with hair loss. *A Little more about Ella: Ella Kedilerli is the author of Presley the Peacock’s Adventure to Find Her Feathers, a children’s book inspired by her personal journey with alopecia areata. After experiencing hair loss as a child, she wanted to create a story that helps young readers build confidence, embrace their uniqueness, and know they are never alone. Ella is also the founder of Teens Pursuit of Excellence, a nonprofit organization dedicated to empowering teens through leadership, volunteerism, mentorship, and educational opportunities. She is currently pursuing a degree in nursing and is passionate about using her experiences to inspire and uplift others.  Thank you so much for joining us today. No matter where you're at on your path, hearing Ella's take is such a good reminder that we get to decide how we show up in the world. To connect with Ella, and to check out her new book, Presley the Peacock's Adventure to Find Her Feathers, check out the show notes for those links.  https://www.instagram.com/ella.ked/ https://www.facebook.com/profile.php?id=61560840361100 Presley the Peacock's Adventure to Find Her Feathers Support the show Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

    S7E9 Alopecia Inspiration Spotlight with Ella Kedilerli
  4. Jul 30

    S7E7 The Alopecia Dating App, with Göran Persson

    Have you ever wondered what it would be like to scroll through a dating app where alopecia was simultaneously not a big deal... and yet the main thing everyone already understood? Our guest today is Göran Persson, and he wondered the exact same thing. Instead of just thinking about it, he decided to do something more. Today, we’re diving into love, connection, dating with hair loss, and the inspiration behind creating a space designed specifically with our community in mind. More about Göran: I live in a small town in northern Sweden with my two daughters. I work as a creative copywriter at a communications agency, but I’ve also spent many years building my own businesses and digital projects. "My journey with alopecia universalis began in the fall of 2016 during a very stressful period in my life, filled with major changes and uncertainty. First, I started losing the hair on my head, and eventually I lost my beard and the rest of my body hair as well. Mentally, it was a difficult experience. Losing my hair also meant losing a big part of my visual identity. Over time, though, it became easier to accept my new appearance. I began to realize that alopecia didn’t just change the way I looked. It also changed the way I viewed myself and life in general. What first felt overwhelming eventually became a natural part of who I am today. After a separation in 2024, I slowly started thinking about dating again. That’s when the thought hit me: how comforting would it be to meet someone who truly understands what it’s like to live with alopecia? Someone who has been through the same journey. I quickly realized I probably wasn’t alone in feeling that way. Since I’ve been building websites and digital projects for more than 20 years, I decided to create alopeciadating.com — a dating platform for people with alopecia from all over the world. The site launched in March, and my goal is to create a safe and welcoming space where people don’t have to worry about when or how to explain their alopecia. Here, it’s already understood from the very beginning. The project is still new and growing slowly, but the response so far has been incredibly positive. For me, this is about much more than dating — it’s about connection, understanding, and helping people feel a little less alone." If this resonated with you and you want to give it a try, head on over to to be one of the first 100 members!  Since Göran and I originally recorded this conversation, the number of members has already doubled - so the momentum is definitely building!   This platform is built as an accessible web app. No need to hunt through the App Store or Google Play. Just open your browser and head straight to https://alopeciadating.com/ to learn more. All of the links are located here in the show notes. Instagram: https://www.instagram.com/alopeciadating/ Facebook: AlopeciaDatingFacebook Website: https://alopeciadating.com/ Support the show Alopecia Life provides free resources for school and home education, including a growing list of alopecia books, education videos on YouTube, links to support groups within the US, UK, Canada and more. You will also find access to Head-On, Stories of Alopecia, the Alopecia 101 free course, paid Alopecia Roadmap course for parents of children living with alopecia, and personalized coaching. Together, we can make a difference. To find out more, https://www.alopecialife.com/

    S7E7 The Alopecia Dating App, with Göran Persson
4.9
out of 5
40 Ratings

About

Alopecia Life is here to provide you with support, accurate information, inspiring stories and life hacks to help you navigate the world of hair loss.You'll hear interviews with specialists in their field and parents who are helping their child move through life while living with alopecia areata, along with conversations with alopecia rockstars who are making a difference. Whether you’ve just been diagnosed or have had it for ages, Alopecia Life has been created to share all the information you may want or need to do alopecia your way.

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