The Ride by Vasculitis Journey

The Ride - by Vasculitis Journey
  • 4.8 (9)
  • MEDICINE

The Ride provides a unique view of what it’s like to be a patient of a rare disease. It explores patient experiences with medication, the psychology of coping with a rare disease, and finding the humor in it all.

  1. 05/08/2020

    Special Edition: Still Staying At-Home and Maintaining Control

    In this special edition episode, Dr. Sara Baird Amodio draws upon her background in psychology and clinical social work to offer tips on going the distance and maintaining a sense of control for stay-at-homing for at-risk folks while others start returning to “normal”. You can do this.

    15 min

  2. 05/06/2020

    Early Diagnosis: We Can Get There. No, Really.

    Happy Vasculitis Awareness Month, y’all! In this episode, we are talking about how important it is to receive an early diagnosis and how this is a big push for the Vasculitis Foundation. We’re chatting with Art about his early dx and his work with NORD and RAN (you’ll learn these acronyms!).

    27 min

  3. 04/22/2020

    It’s Not A Sprint: Living With The Long Haul.

    In this episode of The Ride, we’re drawing upon our experiences of “living with the long haul” and the chronic nature of Vasculitis. We will be talking with Brandon and his work with the Victory Over Vasculitis initiative and getting his insights into how distance running is a lot like living with a chronic rare disease.

    48 min

  4. 04/01/2020

    Dispatch From Across The Pond: Living With Vasculitis In The UK

    In this episode of The Ride, we talk with Jane Edwards from the UK about life there as a Vasculitis warrior and recently published author. We chat about COVID19, coming to grips with the emotional toll Vasculitis takes, and share what we all have in common.

    34 min

  5. 03/21/2020

    The Isolationist: Practical Tips for Isolating and Keeping Your Cool.

    In this special episode of The Ride, we’re talking about isolation. Folks with rare chronic diseases know a thing or two about being isolated. Yay! We finally feel useful! We get to offer others some suggestions during these trying times.

    14 min

  6. 03/17/2020

    Coronavirus Special Edition.

    Sara takes a risk here. She discusses the impact that the Coronavirus is having on Vasculitis folks who are worried, nervous, and scared.

    12 min

  7. 03/11/2020

    One Tough Cookie: Perseverance, Resilience & Vasculitis.

    In this episode of The Ride, we are talking about resilience and perseverance. Vasculitis patients don’t give themselves enough credit for being some pretty mentally tough cookies. Our special guest is Kathy, an ANCA Vasculitis patient and martial arts master with an awesome story.

    30 min

  8. 02/26/2020

    I’ve Got Friends In High Places: Altitude, Supportive Friends, and Traveling-While-Vasculiting

    In this episode, we’re going on a weekend trip with friends to the Rocky Mountains. For whatever reason, altitude seems to affect Sara’s Vasculitis. But she will be hanging with some of her supportive friends - and chatting with them about how friends can support someone with a rare disease.

    29 min
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Ratings & Reviews

4.8
out of 5
9 Ratings

About

The Ride provides a unique view of what it’s like to be a patient of a rare disease. It explores patient experiences with medication, the psychology of coping with a rare disease, and finding the humor in it all.

Information

  • Creator
    The Ride - by Vasculitis Journey
  • Years Active
    2019 - 2020
  • Episodes
    16
  • Rating
    Clean
  • Copyright
    © The Ride - by Vasculitis Journey