Coffee and Turner Syndrome

Brooke
  • 4.6 (5)
  • Health & Fitness
  • Updated Biweekly

On Coffee and Turner Syndrome, we discuss all things Turner Syndrome, over our favorite cup of coffee. Hosted by Brooke and Andrea. Want to share your story on the podcast? Head here! https://forms.gle/4BbHrJyoWdnDVT7P8

  1. 3d ago

    I Can’t Reach That | When Turner Syndrome Makes People Underestimate You

    Like & Subscribe! ☕🦋 Welcome back to Coffee & Turner Syndrome. We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome. In this episode, we’re talking about the phrase “I can’t reach that”—both literally and figuratively. Being short with Turner syndrome can come with plenty of everyday challenges, but sometimes the things we’re told we can’t reach have less to do with our height and more to do with other people’s expectations of what we’re capable of. We talk about being underestimated, the assumptions people can make about Turner syndrome, and what it means to challenge the limitations others place on us. And we talk about why “I Can’t Reach That” is especially meaningful to Andrea, as it becomes the name of the new podcast she’s starting. Grab a cup of coffee and join the conversation. ☕🦋 Watch the film Like A Butterfly here: www.butterflyentertainment.online/likeabutterfly

  2. Aug 10

    Turner Syndrome & Diabetes: The Connection We Need To Talk About

    Like & Subscribe! ☕🦋 Welcome back to Coffee & Turner Syndrome. We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome. In this episode, we’re talking about the connection between Turner syndrome and diabetes. Andrea shares her personal experience living with diabetes, what that journey has looked like for her, and how it intersects with Turner syndrome. We also talk about why understanding the health risks associated with Turner syndrome matters—and why hearing real experiences can be just as important as knowing the statistics. Grab a cup of coffee and join the conversation. ☕🦋 Watch the film Like A Butterfly here: www.butterflyentertainment.online/likeabutterfly

  3. Jul 27

    Getting Diagnosed Later | Our Interview With Savannah

    Welcome to the Coffee and Turner Syndrome Podcast! We are Brooke and Andrea, and every week we will pour ourselves our favorite cup of coffee, and chat all things Turner Syndrome. In this episode, we chat with Savannah and hear her TS story.  Enjoy!

  4. Jul 20

    Turner Syndrome Global Healthcare Insights & Why Medical Clarity Is So Important | Coffee and Turner Syndrome

    Like & Subscribe! ☕🦋 Welcome back to Coffee & Turner Syndrome! We're Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome. In this episode, Andrea shares her experience attending the International Turner Syndrome Conference in Australia and what she learned about healthcare, and the global Turner syndrome community. We also discuss why medical accuracy and clear communication matter so much. A recent social media post from a Turner syndrome organization sparked an important conversation about how confusing messaging can unintentionally create misunderstandings. We share why we believe evidence-based communication is essential for patients, families, healthcare providers, and anyone learning about Turner syndrome. Our goal isn't to criticize for the sake of criticism—it's to encourage thoughtful, accurate conversations that help our community grow stronger together. Let us know your thoughts in the comments. How can we continue improving Turner syndrome awareness while keeping medical information clear, accurate, and helpful? watch Like A Butterfly: www.butterflyentertainment.online/likeabutterfly

  5. Mar 11

    Sharing For More Than Just Ourselves

    Like & Subscribe! ☕🦋Welcome back to Coffee & Turner Syndrome. We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome.In this episode, we talk about the film Like A Butterfly, why we've shared our stories so publicly, and how much work for Turner Syndrome is still needed.Sharing your story does more than you think. 🦋🎟️Tickets & dates: https://www.eventbrite.com/e/like-a-butterfly-winter-screening-series-tickets-1981460753453?aff=oddtdtcreator

  6. Feb 22

    Building Awareness Together: Why I Made Like A Butterfly

    Like & Subscribe! ☕🦋Welcome back to Coffee & Turner Syndrome. We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome.In this episode, Brooke shares how she's feeling at this point in awareness month - and how she hopes Like A Butterfly helps the Turner Syndrome Community and raises awareness. From Brooke: For over ten years, I’ve shared about life with Turner Syndrome — the medical anxiety, the infertility grief, the school struggles, the endless explaining, and also the strength and resilience that comes from walking this road. In this episode of Coffee & Syndrome, I’m sharing why I created the documentary Like A Butterfly, what it means to me personally, and what I hope it brings to the Turner Syndrome community. Turner Syndrome is life-changing — and still so unknown. My heart behind this film has always been simple: awareness and encouragement. I want people who have never heard the words “Turner Syndrome” to hear them alongside real stories. And I want the women living with it to feel seen, understood, and less alone. I’ll also share how you can be part of helping these stories reach further. Grab your coffee and let’s talk about storytelling, awareness, and why our voices matter. 💙🦋 💙🦋Like A Butterfly - Winter Screening Series https://www.eventbrite.com/.../like-a-butterfly-winter...

  7. Feb 16

    Sharing Turner Syndrome with Care

    Like & Subscribe! ☕🦋 Welcome back to Coffee & Turner Syndrome. We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome. In this episode, we’re talking about sharing a Turner syndrome diagnosis publicly — why some families choose to share, why it can feel vulnerable, and how visibility can actually be protective. We discuss: The emotions behind sharing online Fear vs. lived experience How we can support each others choices when it comes to sharing Why we choose to share And how to navigate sharing with confidence and care Public sharing isn’t required. It isn’t for everyone. But it also isn’t something to be afraid, if we feel called to share and comfortable with it. This episode is an invitation — to share however you feel comfortable. ☕ Join the conversation in the comments: How do you feel about sharing diagnoses publicly? What has helped you feel supported? — Other ways to connect: 🎧 Listen on Spotify:https://open.spotify.com/show/7s0SS83kczV51hgMfr68SL 🦋 Watch Like A Butterfly:https://www.butterflyentertainment.online/likeabutterfly 🎟 Memberships:https://www.butterflyentertainment.online/pricing-plans/list 🌐 https://butterflyentertainment.online 📸 Instagram: @butterflyentertainmentgroup Subscribe for thoughtful conversations about Turner syndrome, lived experience, and building a stronger, more supportive community.

  8. Feb 2

    Welcome to Turner Syndrome Awareness Month 2026

    Like & Subscribe! Welcome back to Coffee & Turner Syndrome. We are Brooke and Andrea, and every week we will pour ourselves our favorite cup of coffee, and chat all things Turner Syndrome.This is a solo episode with me, Brooke. This episode marks the beginning of Turner Syndrome Awareness Month 2026. While we are planning some fun awareness month episodes, I did not want to miss the first day of the month. Awareness Month can mean a lot of different things to different people. For some, it’s educational. For others, it’s emotional. And for many, it brings up feelings that are complicated, layered, or hard to name. In this episode, I’m sharing what Turner Syndrome Awareness Month means to me — not just as a podcast host, but as someone who grew up with Turner syndrome and not many others around me that share my experiences. We talk about what awareness is and what it isn’t, how we can approach this month with joy and confidence instead of pressure, and why stories and lived experience matter just as much as information. This epsiode is an invitation — to parents who are new to this journey, to women and girls living with Turner syndrome, to enjoy the month and feel confident in the strength you've already showed. ☕ Join the conversation:What does Awareness Month mean for you?How do you like to celebrate awareness month? Other ways to connect: ☕ Coffee & Turner Syndrome Podcasthttps://open.spotify.com/show/7s0SS83kczV51hgMfr68SL 🦋 Watch Like A Butterflyhttps://www.butterflyentertainment.online/likeabutterfly 🎟 Membership Subscriptionshttps://www.butterflyentertainment.online/pricing-plans/list 🦋 Merchhttps://www.butterflyentertainment.online/category/all-products 🌐 https://butterflyentertainment.online📸 Instagram: @butterflyentertainmentgroup Whether this is your first Awareness Month or your fifteenth, welcome and enjoy. 💛

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On Coffee and Turner Syndrome, we discuss all things Turner Syndrome, over our favorite cup of coffee. Hosted by Brooke and Andrea. Want to share your story on the podcast? Head here! https://forms.gle/4BbHrJyoWdnDVT7P8

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