Coffee and Turner Syndrome

Brooke
  • 4.6 (5)
  • Health & Fitness
  • Updated Biweekly

On Coffee and Turner Syndrome, we discuss all things Turner Syndrome, over our favorite cup of coffee. Hosted by Brooke and Andrea. Want to share your story on the podcast? Head here! https://forms.gle/4BbHrJyoWdnDVT7P8

  1. Sep 28

    REPLAY: Our Stories | HRT Episode 1

    ☕🦋 Like & Subscribe!Welcome back to Coffee & Turner Syndrome!We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome.In this episode, we’re revisiting the first episode of our Our Stories series, where we talk openly about our experiences with hormone replacement therapy (HRT). HRT can be a significant part of the Turner Syndrome journey, but everyone’s experience can look a little different. In this conversation, we share our own stories, experiences, questions, and perspectives surrounding HRT. Whether you’re newly diagnosed with Turner Syndrome, have been on HRT for years, are considering your options, or simply want to hear another woman’s experience, we hope this conversation helps you feel a little less alone. ☕ Grab your coffee and join us for the conversation! Please remember: This episode shares our personal experiences and is not medical advice. Talk with your own healthcare provider about what may be appropriate for you. #TurnerSyndrome #CoffeeAndTurnerSyndrome #HormoneReplacementTherapy #HRT #TurnerSyndromeAwareness #TurnerSyndromeSupport #WomensHealth #OurStories #TurnerSyndromeCommunity #ChronicIllness #RareDisease #RareDiseaseAwareness

  2. Sep 21

    Aortic Dissection & Turner Syndrome

    ☕🦋 Like & Subscribe! Welcome back to Coffee & Turner Syndrome! We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome. In this episode of Coffee & Turner Syndrome, we’re talking about an important—and sometimes scary—topic in Turner Syndrome: aortic dissection. We’ll start with the basics: What exactly is an aortic dissection? Why is it a concern for some people with Turner Syndrome? We’ll also talk about the connection between Turner Syndrome and cardiovascular health, including why regular monitoring and conversations with your medical team are so important. For this episode, we’re referencing research looking at aortic dissection in Turner Syndrome, including the history of what has been documented and what researchers have learned about the relationship between the two. 📖 Article referenced in this episode: https://pmc.ncbi.nlm.nih.gov/articles/PMC2692924/ As always, this episode is intended for education and conversation, not medical advice. If you have Turner Syndrome or concerns about your cardiovascular health, talk with your healthcare provider about your individual risk factors and recommended screening. ☕ Grab your coffee and join us for the conversation!

  3. Sep 14

    REPLAY: Going Through The IVF Process | Our Chat with Nicole

    ☕🦋 Like & Subscribe! Welcome back to Coffee & Turner Syndrome! We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome. This week, we are throwing it back in a replay episode, to our conversation with Nicole about her experience going through the IVF process. ☕ Grab your coffee and join us

  4. Sep 7

    The Things People Don't See: An NVLD Deep Dive

    ☕🦋 Like & Subscribe! Welcome back to Coffee & Turner Syndrome! We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome.What exactly is Nonverbal Learning Disability (NVLD), and what does it actually look like in everyday life? In this deeper conversation, we take a closer look at NVLD — going beyond the definition to talk about the things that often aren't obvious from the outside. From learning and school to social communication, organization, spatial awareness, relationships, we explore the many ways NVLD can affect a person's life. We share our personal experiences with the different aspects of NVLD. ☕ Grab your coffee and join us for this NVLD deep dive on Coffee & Turner Syndrome. #CoffeeAndTurnerSyndrome #TurnerSyndrome #NVLD #NonverbalLearningDisability #LearningDisability #LearningDifferences #Neurodiversity #TurnerSyndromeAwareness #InvisibleDisability #DisabilityAwareness #LearningSupport #SpecialEducation

  5. Aug 31

    They Thought Their Baby Had Turner Syndrome. The Truth Was Very Different.

    ☕🦋 Like & Subscribe! Welcome back to Coffee & Turner Syndrome! We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome. In this episode, we’re reacting to a recent Live Action News article about a couple who received an NIPT result suggesting their baby girl might have Turner syndrome. The mother was considering abortion based on the result, but after the father turned to Reddit for advice, commenters encouraged them to seek further testing rather than make a decision based on a screening test alone. And then came the twist… We’re talking about our reactions to the story, what stood out to us, the difference between an NIPT screening and a diagnostic test, and what this story made us think about as women living with Turner syndrome. We’re also talking about the bigger questions this story raises about prenatal testing, how Turner syndrome is portrayed, and what happens when a diagnosis or possible diagnosis is viewed only through the lens of fear. 📖 Read the Live Action News article: [READ THE ARTICLE HERE] What are your thoughts on this story? Let us know in the comments! As always, this episode reflects our personal experiences and perspectives living with Turner syndrome and is not medical advice. #CoffeeAndTurnerSyndrome #TurnerSyndrome #TurnerSyndromeAwareness #NIPT #PrenatalTesting #MosaicTurnerSyndrome #TurnerSyndromeAwarenessMonth #GeneticTesting #Pregnancy #RareDisease #XChromosome #TurnerSyndromeCommunity

  6. Aug 30

    Butterfly Kisses & Hard Conversations | Our Chat with Clare

    Like & Subscribe! ☕🦋 Welcome back to Coffee & Turner Syndrome. We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome. In this episode, we’re talking about love, dating, marriage, and the hard conversations that can come with a Turner syndrome diagnosis. We’re joined by the author of Butterfly Kisses, a couples workbook created to help couples navigate meaningful conversations and grow together. What does it look like to tell someone you’re dating that you have Turner syndrome? When do you have the conversation about infertility? And how can a diagnosis that affects so many parts of your life become something you navigate together rather than something you carry alone? We talk honestly about the complexities of sharing your diagnosis with a partner, the fears and expectations surrounding infertility, marriage, communication, and what it means to build a relationship where both people feel seen, heard, and supported. Because Turner syndrome can affect so much of our lives—but it doesn't have to define our capacity to love and be loved. 🦋❤️ ☕ Grab your coffee and join us for a conversation about the hard things, the hopeful things, and everything in between. You can find all of Clare's books and links here: https://linktr.ee/TheNvldConnection You can watch Brooke's film Like A Butterfly here: www.butterflyentertainment.online/likeabutterfly #CoffeeAndTurnerSyndrome #TurnerSyndrome #TurnerSyndromeAwareness #ButterflyKisses #TurnerSyndromeAndRelationships #DatingWithTurnerSyndrome #MarriageAndTurnerSyndrome #Infertility #InfertilityAwareness #Relationships #CouplesCommunication #LoveAndInfertility #RareDisease #RareDiseaseAwareness

  7. Aug 17

    I Can’t Reach That | When Turner Syndrome Makes People Underestimate You

    Like & Subscribe! ☕🦋 Welcome back to Coffee & Turner Syndrome. We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome. In this episode, we’re talking about the phrase “I can’t reach that”—both literally and figuratively. Being short with Turner syndrome can come with plenty of everyday challenges, but sometimes the things we’re told we can’t reach have less to do with our height and more to do with other people’s expectations of what we’re capable of. We talk about being underestimated, the assumptions people can make about Turner syndrome, and what it means to challenge the limitations others place on us. And we talk about why “I Can’t Reach That” is especially meaningful to Andrea, as it becomes the name of the new podcast she’s starting. Grab a cup of coffee and join the conversation. ☕🦋 Watch the film Like A Butterfly here: www.butterflyentertainment.online/likeabutterfly

  8. Aug 10

    Turner Syndrome & Diabetes: The Connection We Need To Talk About

    Like & Subscribe! ☕🦋 Welcome back to Coffee & Turner Syndrome. We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome. In this episode, we’re talking about the connection between Turner syndrome and diabetes. Andrea shares her personal experience living with diabetes, what that journey has looked like for her, and how it intersects with Turner syndrome. We also talk about why understanding the health risks associated with Turner syndrome matters—and why hearing real experiences can be just as important as knowing the statistics. Grab a cup of coffee and join the conversation. ☕🦋 Watch the film Like A Butterfly here: www.butterflyentertainment.online/likeabutterfly

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On Coffee and Turner Syndrome, we discuss all things Turner Syndrome, over our favorite cup of coffee. Hosted by Brooke and Andrea. Want to share your story on the podcast? Head here! https://forms.gle/4BbHrJyoWdnDVT7P8

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