Coffee and Turner Syndrome

Brooke
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  • HEALTH & FITNESS
  • UPDATED BIWEEKLY

On Coffee and Turner Syndrome, we discuss all things Turner Syndrome, over our favorite cup of coffee. Hosted by Brooke and Andrea. Want to share your story on the podcast? Head here! https://forms.gle/4BbHrJyoWdnDVT7P8

  1. FEB 22

    Building Awareness Together: Why I Made Like A Butterfly

    Like & Subscribe! ☕🦋Welcome back to Coffee & Turner Syndrome. We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome.In this episode, Brooke shares how she's feeling at this point in awareness month - and how she hopes Like A Butterfly helps the Turner Syndrome Community and raises awareness. From Brooke: For over ten years, I’ve shared about life with Turner Syndrome — the medical anxiety, the infertility grief, the school struggles, the endless explaining, and also the strength and resilience that comes from walking this road. In this episode of Coffee & Syndrome, I’m sharing why I created the documentary Like A Butterfly, what it means to me personally, and what I hope it brings to the Turner Syndrome community. Turner Syndrome is life-changing — and still so unknown. My heart behind this film has always been simple: awareness and encouragement. I want people who have never heard the words “Turner Syndrome” to hear them alongside real stories. And I want the women living with it to feel seen, understood, and less alone. I’ll also share how you can be part of helping these stories reach further. Grab your coffee and let’s talk about storytelling, awareness, and why our voices matter. 💙🦋 💙🦋Like A Butterfly - Winter Screening Series https://www.eventbrite.com/.../like-a-butterfly-winter...

    10 min

  2. FEB 16

    Sharing Turner Syndrome with Care

    Like & Subscribe! ☕🦋 Welcome back to Coffee & Turner Syndrome. We’re Brooke and Andrea, and each week we pour a cup of coffee and have honest conversations about life with Turner syndrome. In this episode, we’re talking about sharing a Turner syndrome diagnosis publicly — why some families choose to share, why it can feel vulnerable, and how visibility can actually be protective. We discuss: The emotions behind sharing online Fear vs. lived experience How we can support each others choices when it comes to sharing Why we choose to share And how to navigate sharing with confidence and care Public sharing isn’t required. It isn’t for everyone. But it also isn’t something to be afraid, if we feel called to share and comfortable with it. This episode is an invitation — to share however you feel comfortable. ☕ Join the conversation in the comments: How do you feel about sharing diagnoses publicly? What has helped you feel supported? — Other ways to connect: 🎧 Listen on Spotify:https://open.spotify.com/show/7s0SS83kczV51hgMfr68SL 🦋 Watch Like A Butterfly:https://www.butterflyentertainment.online/likeabutterfly 🎟 Memberships:https://www.butterflyentertainment.online/pricing-plans/list 🌐 https://butterflyentertainment.online 📸 Instagram: @butterflyentertainmentgroup Subscribe for thoughtful conversations about Turner syndrome, lived experience, and building a stronger, more supportive community.

    1h 15m

  3. FEB 2

    Welcome to Turner Syndrome Awareness Month 2026

    Like & Subscribe! Welcome back to Coffee & Turner Syndrome. We are Brooke and Andrea, and every week we will pour ourselves our favorite cup of coffee, and chat all things Turner Syndrome.This is a solo episode with me, Brooke. This episode marks the beginning of Turner Syndrome Awareness Month 2026. While we are planning some fun awareness month episodes, I did not want to miss the first day of the month. Awareness Month can mean a lot of different things to different people. For some, it’s educational. For others, it’s emotional. And for many, it brings up feelings that are complicated, layered, or hard to name. In this episode, I’m sharing what Turner Syndrome Awareness Month means to me — not just as a podcast host, but as someone who grew up with Turner syndrome and not many others around me that share my experiences. We talk about what awareness is and what it isn’t, how we can approach this month with joy and confidence instead of pressure, and why stories and lived experience matter just as much as information. This epsiode is an invitation — to parents who are new to this journey, to women and girls living with Turner syndrome, to enjoy the month and feel confident in the strength you've already showed. ☕ Join the conversation:What does Awareness Month mean for you?How do you like to celebrate awareness month? Other ways to connect: ☕ Coffee & Turner Syndrome Podcasthttps://open.spotify.com/show/7s0SS83kczV51hgMfr68SL 🦋 Watch Like A Butterflyhttps://www.butterflyentertainment.online/likeabutterfly 🎟 Membership Subscriptionshttps://www.butterflyentertainment.online/pricing-plans/list 🦋 Merchhttps://www.butterflyentertainment.online/category/all-products 🌐 https://butterflyentertainment.online📸 Instagram: @butterflyentertainmentgroup Whether this is your first Awareness Month or your fifteenth, welcome and enjoy. 💛

    10 min

  4. JAN 26

    Why Sharing Still Matters: Reflections on a Mom’s Instagram Post | Coffee and Turner Syndrome Podcast

    Welcome back to Coffee & Turner Syndrome. We are Brooke and Andrea, and every week we will pour ourselves our favorite cup of coffee, and chat all things Turner Syndrome. This is a solo episode with me, Brooke. In this episode, I’m responding to a moment that caught my attention on Instagram — a mom openly sharing her daughter’s Turner syndrome diagnosis, and the backlash she received for doing so. The mom's instagram: https://www.instagram.com/keri.rooney/ The video: https://www.instagram.com/reel/DTBFxi8D_uM/?utm_source=ig_web_button_share_sheet&igsh=MzRlODBiNWFlZA== Watching her video stirred up a lot for me. Because truthfully? I would have loved to see someone talking about Turner syndrome when I was growing up. I would have loved to know I wasn’t the only one. I would have loved language, faces, and stories that made this diagnosis feel less isolating and less scary. So in this episode, I share my perspective — as a fellow butterfly, as someone who grew up with Turner syndrome, navigating it quietly, often without anyone else with Turner Syndrome around, or anywhere to be seen. ☕ Join the conversation:Would it have mattered to you to see people talk openly about Turner syndrome? What do you wish had been said — or not said — when you were younger? Other ways to connect: ☕ Coffee & Turner Syndrome Podcasthttps://open.spotify.com/show/7s0SS83kczV51hgMfr68SL 🦋 Watch Like A Butterflyhttps://www.butterflyentertainment.online/likeabutterfly 🎟 Membership Subscriptionshttps://www.butterflyentertainment.online/pricing-plans/list 🦋 Merchhttps://www.butterflyentertainment.online/category/all-products 🌐 https://butterflyentertainment.online 📸 Instagram: @butterflyentertainmentgroup If you’re listening as a parent, a woman with Turner syndrome, or someone trying to understand it better: I hope this helps. 💛

    10 min

  5. 12/01/2025

    Letters To Our Younger Selves

    Welcome to the Coffee and Turner Syndrome Podcast! We are Brooke and Andrea, and every week we will pour ourselves our favorite cup of coffee, and chat all things Turner Syndrome. In this episode, we write letters to our younger selves. What would we have wanted us to know when first getting diagnosed? Butterfly Entertainment website: https://butterflyentgroup.wixsite.com/butterfly-entertainm/?fbclid=IwAR1s0mwa80e1NEX-huPj4HKPD96ZjLjbKP2DZp0kQu0g21g3MVRCcSEzh2M Butterfly Entertainment Instagram: https://www.instagram.com/butterflyentertainmentgroup/ Coffee and Turner Syndrome Podcast on Instagram: https://www.instagram.com/coffeeandturnersyndromepodcast/ Enjoy!

    1h 2m

  6. 11/23/2025

    The Check-In: What’s New With Our Health 2025

    Welcome to the Coffee and Turner Syndrome Podcast! We are Brooke and Andrea, and every week we will pour ourselves our favorite cup of coffee, and chat all things Turner Syndrome. In this episode, we each give an update our health and share some recent experiences. Butterfly Entertainment website: https://butterflyentgroup.wixsite.com/butterfly-entertainm/?fbclid=IwAR1s0mwa80e1NEX-huPj4HKPD96ZjLjbKP2DZp0kQu0g21g3MVRCcSEzh2M Butterfly Entertainment Instagram: https://www.instagram.com/butterflyentertainmentgroup/ Coffee and Turner Syndrome Podcast on Instagram:  https://www.instagram.com/coffeeandturnersyndromepodcast/ Enjoy!

    1h 10m

  7. 06/15/2025

    Dealing with Lymphedema

    Welcome to the Coffee and Turner Syndrome Podcast! We are Brooke and Andrea, and every week we will pour ourselves our favorite cup of coffee, and chat all things Turner Syndrome. In this episode, we discuss our experiences with Lymphedema, and how we deal with it. Butterfly Entertainment website: https://butterflyentgroup.wixsite.com/butterfly-entertainm/?fbclid=IwAR1s0mwa80e1NEX-huPj4HKPD96ZjLjbKP2DZp0kQu0g21g3MVRCcSEzh2M Butterfly Entertainment Instagram: https://www.instagram.com/butterflyentertainmentgroup/ Coffee and Turner Syndrome Podcast on Instagram:  https://www.instagram.com/coffeeandturnersyndromepodcast/ Enjoy!

    38 min

  8. 06/04/2025

    Diagnosed at 17 | our interview with Bridget

    Welcome to the Coffee and Turner Syndrome Podcast! We are Brooke and Andrea, and every week we will pour ourselves our favorite cup of coffee, and chat all things Turner Syndrome. In this episode, we hear Bridget's story. Butterfly Entertainment website: https://butterflyentgroup.wixsite.com/butterfly-entertainm/?fbclid=IwAR1s0mwa80e1NEX-huPj4HKPD96ZjLjbKP2DZp0kQu0g21g3MVRCcSEzh2M Butterfly Entertainment Instagram: https://www.instagram.com/butterflyentertainmentgroup/ Coffee and Turner Syndrome Podcast on Instagram:  https://www.instagram.com/coffeeandturnersyndromepodcast/ Enjoy!

    1h 40m
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On Coffee and Turner Syndrome, we discuss all things Turner Syndrome, over our favorite cup of coffee. Hosted by Brooke and Andrea. Want to share your story on the podcast? Head here! https://forms.gle/4BbHrJyoWdnDVT7P8

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