25 episodes

Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, Pulmonary Fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through Pulmonary Fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. Join us as we travel through their journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.

Journeys through pulmonary fibrosis Boehringer Ingelheim International GmbH

    • Health & Fitness
    • 4.8 • 5 Ratings

Being diagnosed with a rare disease can often leave people with more questions than answers. This is especially true for those living with the rare lung condition, Pulmonary Fibrosis. In an effort to build and give a voice to this courageous community, we bring you ‘Journeys through Pulmonary Fibrosis’ – a podcast series aimed at bringing together the inspirational people living with this condition, their carers, and the researchers and doctors working tirelessly to support them. Join us as we travel through their journeys, we hear heart-warming stories of determination, resilience and the importance of using these experiences to truly live life to the full.

    Reality of living with RA-ILD

    Reality of living with RA-ILD

    In this special episode Liz tells us about her experience of living with RA-ILD, which is short for rheumatoid arthritis-associated interstitial lung disease. We explore the profound impact of this life-changing diagnosis on Liz and her loved ones as well as the need for increased awareness of the condition. Throughout Liz provides advice and strategies for maintaining a positive outlook despite the challenges RA-ILD presents.

    • 22 min
    Innovating today for patients of tomorrow

    Innovating today for patients of tomorrow

    In this episode, we explore how innovating today could have a positive impact on those diagnosed with pulmonary fibrosis. We are joined by extraordinary guests, including researchers, healthcare providers, innovators, and a patient impacted by this rare disease. Keeping patients’ lived experiences front and center can help lead to new ideas and progress, all while inspiring us to remain hopeful for the future.

    • 14 min
    Relationships

    Relationships

    In the fifth and final episode of season 3, we learn about the impact that pulmonary fibrosis can have on relationships with family and friends, and even on the more intimate aspects of partner relationships. Our contributors also take time to emphasize the value that they derive from healthy and supportive relationships when living with this challenging condition.

    • 20 min
    Shared decision making

    Shared decision making

    In our fourth episode, we examine the importance of shared decision making, which helps empower patients to make choices about their disease management in collaboration with their medical teams. We hear from people who are living with pulmonary fibrosis, a wife and care partner and from medical specialists, each underlining the value of shared decision making and providing some examples of this best practice in action.

    • 21 min
    Multidisciplinary teams and the importance of communication

    Multidisciplinary teams and the importance of communication

    In the third episode of Season 3 of our ‘Journeys Through Pulmonary Fibrosis’ podcast series, we explore the role multidisciplinary teams (MDTs) play in providing care for people living with pulmonary fibrosis. Our guests first help us to understand what an MDT is, who participates and how the team functions. We then examine the benefits and improvements in care that the approach can deliver for people with pulmonary fibrosis. We also hear about some of the challenges that an MDT approach can bring and discuss how their role may evolve in the future.

    • 19 min
    Diet and nutrition

    Diet and nutrition

    In the second episode of Season 3 of our Journey Through Pulmonary Fibrosis podcast, we are once again joined by several people who live with the condition, including a wife and care partner, and by a group of specialists. Hear about some of the challenges that people with pulmonary fibrosis face in terms of meeting their dietary and nutritional needs and learn about how these challenges are best managed through tools and techniques like keeping a food diary and managing portion sizes.

    • 18 min

Customer Reviews

4.8 out of 5
5 Ratings

5 Ratings

Top Podcasts In Health & Fitness

Huberman Lab
Scicomm Media
On Purpose with Jay Shetty
iHeartPodcasts
The Peter Attia Drive
Peter Attia, MD
Passion Struck with John R. Miles
John R. Miles
Ten Percent Happier with Dan Harris
Ten Percent Happier
The Doctor's Farmacy with Mark Hyman, M.D.
Dr. Mark Hyman