Your Story Our Fight by Lupus LA

LupusLA
  • 4.8 (14)
  • SELF-IMPROVEMENT
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Lupus LA enters the fastest growing media market with the new Your Story Our Fight® podcast which will give a voice to lupus patients while continuing Lupus LA’s mission to raise lupus awareness worldwide. Hosted by the Chairman of Lupus LA and lupus patient himself, Adam Selkowitz, patients from all walks of life will share stories about their unique lupus journeys. With a focus on inspiration and hope, Lupus LA’s podcast will provide support and optimism to a patient community looking for assurance that they are not alone.

  1. 4H AGO

    Season 5 | Episode #11 with Physician Assistant Student and Lupus Patient, Rene Santos

    Season FIVE Episode ELEVEN of the Your Story Our Fight® podcast welcomes Rene Santos. Rene is from Pasadena, California, and was diagnosed with lupus at 13 years old. This experience  shaped his resilience and perspective on healthcare early in life. Growing up, Rene played basketball through high school and into college. Today Rene stays committed to fitness and overall wellness. Living with lupus has fueled his passion to advocate for others facing similar challenges and to raise awareness within the community. Rene is currently working toward becoming a Physician Assistant and will be attending Charles Drew University starting in August 2026. Through his journey and future career, Rene hopes to make a meaningful impact by serving underserved communities and providing compassionate, patient-centered care.

    30 min

  2. MAR 24

    Season 5 | Episode #10 with Board-Certified Rheumatologist, Integrative Medicine, and Environmental Health Expert, Dr. Aly Cohen

    Season FIVE Episode TEN of the Your Story Our Fight® podcast welcomes Dr. Aly Cohen. Dr. Aly Cohen is a board-certified rheumatologist, integrative medicine, and environmental health expert in Princeton, New Jersey, and she educates the public about the harmful toxins in our lives and their impacts on health. She delivers speaker engagements, appears as a guest expert on news outlets and podcasts, and authored the best-selling book, “Detoxify: The Everyday Toxins Harming Your Immune System and How to Defend Against Them” (Simon & Schuster, 2025). She is a published medical author and editor, legal medical expert, and also creates environmental health curricula for schools and physician training programs, such as the Academy of Integrative Health & Medicine, Southern California University of Health Sciences, Andrew Weil Center for Integrative Medicine, and the Susan Samueli Integrative Health Institute at the University of California, Irvine. Dr. Cohen earned her undergraduate degree in medical anthropology and human evolution from the University of Pennsylvania. She completed her medical training at Hahnemann University Hospital School of Medicine in Philadelphia and interned and residency in internal medicine at Beth Israel Medical Center in New York City. She further specialized in rheumatology and autoimmune diseases at Montefiore Hospital/Albert Einstein University Hospital in the Bronx, New York.

    42 min

  3. MAR 10

    Season 5 | Episode #9 with Immunology & Microbiology Laboratory Leader and Lupus Patient, Ruth Wilson

    Season FIVE Episode NINE of the Your Story Our Fight® podcast welcomes Ruth Wilson. Ruth Wilson is a scientist and laboratory leader with a background in immunology and microbiology, as well as data science. Diagnosed with lupus as a young adult, she became a passionate advocate and transformed her personal challenges into a mission to amplify the patient voice and drive more compassionate, patient-centered research. Through her advocacy, mentorship, and community leadership, Ruth works to ensure that science never loses sight of the human stories behind the data. She is deeply committed to advancing awareness, improving outcomes, and bringing hope to others navigating life with lupus.

    35 min

  4. FEB 24

    Season 5 | Episode #8 with Pediatric Rheumatologist, Dr. Nya Oglesby

    Season FIVE Episode EIGHT of the Your Story Our Fight® podcast welcomes Dr. Nya Oglesby. Dr. Nya Oglesby is a lupus survivor who turned her diagnosis into purpose-driven advocacy. Diagnosed as a teenager, she uses her lived experience to educate, empower, and uplift others impacted by lupus. She is pursuing a career in pediatric rheumatology and is committed to closing gaps in care for underserved communities. Her work centers on storytelling, faith, and fighting for patients who deserve to be seen and believed.

    29 min

  5. FEB 10

    Season 5 | Episode #7 with Chief of Rheumatology & Executive Vice Chair of Medicine at UCI, Dr. Sheetal Desai, MD, MSED

    Season FIVE Episode SEVEN of the Your Story Our Fight® podcast welcomes Dr. Sheetal Desai, MD, MSED. Sheetal Desai completed medical school at the University of Southern California (USC) followed by Internal Medicine residency and Rheumatology fellowship at UCLA.  She pursued a Master of Science in Medical Education from the USC Rossier School of Education.  She joined the University of California, Irvine (UCI) as rheumatology faculty in 2007.  She was program director of the UCI Rheumatology Fellowship for 10 years, Chief of Rheumatology for 7 years and is currently Executive Vice Chair of Medicine.  Her clinical interests are Systemic Lupus Erythematosus, collaboration across specialties to create Multidisciplinary clinics, and gender equity in medicine.

    44 min

  6. JAN 27

    Season 5 | Episode #6 with Actress, Producer and Lupus Patient, Linda Park

    Season SIX Episode FIVE of the Your Story Our Fight® podcast welcomes Linda Park. In this episode, we sit down with the multi-talented Linda Park. Known for her iconic roles in Star Trek: Enterprise and Bosch, and most recently seen in Peacock’s The Paper and Netflix’s A Man on the Inside, Linda has spent her career acting alongside industry greats.  But behind the scenes, Linda has navigated a different journey: a lupus diagnosis at age eighteen. As an actress, dancer, and award-winning screenwriter, Linda shares the inspiration behind her new project, Edie (a story developed at the Sundance Collab) and her journey writing about her experiences with lupus.  For Linda, storytelling became a vital way to process the complex reality of being a woman whose body is her art, her work, and her battleground. We are so proud to support Linda’s mission to promote lupus awareness through evocative, authentic narrative storytelling.

    43 min

  7. JAN 13

    Season 5 | Episode #5 with Podcast Host, Creator of Chronically Planned and Lupus Advocate, Shedrica Holmes

    Season FIVE Episode FIVE of the Your Story Our Fight® podcast welcomes Shedrica Holmes.  Shedrica is a lupus advocate, podcast host, and creator of the Chronically Planned platform. Diagnosed with lupus in 2008, she shares honest conversations around chronic illness, identity, faith, and rebuilding life through intentional planning. Through storytelling and guidance, Shedrica creates space for women living with lupus to feel seen, supported, and empowered to move forward at their own pace.

    26 min

  8. 11/11/2025

    Season 5 | Episode #4 with Teacher and Lupus Advocates Vania and Alfredo Losoya

    Season FIVE Episode FOUR of the Your Story Our Fight® podcast welcomes Vania and Alfredo Losoya.  Vania Dzib is a dedicated educator, lupus warrior, and a passionate member of Lupus LA’s Patient Advocacy Panel. In the midst of the 2020 pandemic (a time defined by distance and uncertainty) she met her now-husband, Alfredo, through an online match. What started as a digital connection blossomed into a partnership built on mutual empathy, deep understanding, and shared resilience. Together, they’ve navigated the emotional and physical challenges of chronic illness, and join us to share how love can thrive - even in tough seasons.

    29 min
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Ratings & Reviews

4.8
out of 5
14 Ratings

About

Lupus LA enters the fastest growing media market with the new Your Story Our Fight® podcast which will give a voice to lupus patients while continuing Lupus LA’s mission to raise lupus awareness worldwide. Hosted by the Chairman of Lupus LA and lupus patient himself, Adam Selkowitz, patients from all walks of life will share stories about their unique lupus journeys. With a focus on inspiration and hope, Lupus LA’s podcast will provide support and optimism to a patient community looking for assurance that they are not alone.

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