56 episodes

The Sunflower Conversations deliver a deeper understanding of the Sunflower's role in supporting people with hidden disabilities. The topics are often personal and explore hidden disabilities through the prism of the Sunflower with guests hosted by members of the HIdden Disabilities Sunflower team. Making the invisible, visible.

The Sunflower Conversations Hidden Disabilities Sunflower

    • Health & Fitness

The Sunflower Conversations deliver a deeper understanding of the Sunflower's role in supporting people with hidden disabilities. The topics are often personal and explore hidden disabilities through the prism of the Sunflower with guests hosted by members of the HIdden Disabilities Sunflower team. Making the invisible, visible.

    FASD with Jacob Casson-Rennie

    FASD with Jacob Casson-Rennie

    FASD with Jacob Casson-Rennie
    Jacob is 16 years old and lives with his parents in Ireland, who head up FASD Ireland and Hidden Disabilities Sunflower Ireland. 
    Jacob talks to us about living with Foetal Alcohol Spectrum Disorder, FASD.  For Jacob auditory processing and memory is an issue and he explains how important it is that his peers and school are educated on the condition so that his additional needs can be understood and met. At school he has learning support staff who are crucial to his educational needs. And at his rugby club his coach has adapted his methods so that Jacob is better able to cope with the fast-paced game and make a real contribution to team.
    As well as supporting his parents with their vital work in raising awareness of FASD and invisible disabilities, Jacob also expresses how he uses his determination as a positive force and talks about his aspirations.
    When planning to have a baby, both parents should stop drinking to avoid any chance of the baby having FASD.

    If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.
    For support
    FASD Ireland
    National FASD UK
    FASD Hub Scotland 
    Dr Raja Mukherjee
     
    Hosted by Chantal Boyle, Hidden Disabilities Sunflower.
    Want to share your story? email conversations@hiddendisabilitiesstore.com 

    • 25 min
    Autism and ADHD with Jen Hankin

    Autism and ADHD with Jen Hankin

    Jen Hankin is a musician who composes, teaches and performs. Her creative skills extend to fine arts (digital and watercolour), photography, videography, fashion design and writing. Jen is also autistic and has ADHD.

    Jen has created a new piece of music called 'The End of Torpor' which is about coming out of a period of burn out which relates to her neurodiversity.

    This conversation focuses on Jen's education and how she uses her experiences to teach music to young neurodiverse students.

    To follow Emerald Ruby and find out more use the links below:
    The Emerald Ruby Tiktok Emerald Ruby Bandcamp Emerald Ruby Spotify YoutubeFacebookEmerald Ruby InstagramThe End of Torpor for Flute and Cello Live Video

    Hosted by Chantal Boyle and Sandee Facy Hidden Disabilities Sunflower.
    Want to share your story? email conversations@hiddendisabilitiesstore.com
    Visit Hidden Disabilities Sunflower UK or Hidden Disabilities Sunflower Australia 

    • 38 min
    Ableism and Cystic Fibrosis with Izzie Jani-Friend

    Ableism and Cystic Fibrosis with Izzie Jani-Friend

    Izzie is a journalist and is using her lived experience as a young woman with cystic fibrosis to combat ableism through her writing. 

    In this conversation we discuss how her chronic health condition, cystic fibrosis affects her daily life and how she manages her healthcare routine with work.

    Then we move on to what ableism is,  the subtleties of it as well as the directness and where it can occur, such as on public transport and in the workplace.  Izzie shares with us her ideas around how to eradicate it from society.
    For support
    If you are experiencing issues discussed in this podcast contact your GP or healthcare practitioner.
     Cystic Fibrosis TrustHosted by Chantal Boyle, Hidden Disabilities Sunflower.
    Want to share your story? email conversations@hiddendisabilitiesstore.com
     Visit Hidden Disabilities Sunflower
     

    • 34 min
    Obsessive Compulsive Disorder and mental health with Chloe Francis

    Obsessive Compulsive Disorder and mental health with Chloe Francis

    Chloe Francis has a range of health conditions including Obsessive Compulsive Disorder and Tourettes syndrome/Tic disorder, Sensory processing disorder, Vestibular processing disorder and Hypermobility, Anxiety disorder and Sleep disorder.
    In this conversation we discuss what OCD really is and what it feels like to have compulsions, we also discuss panic attacks and the affect that they have on a person. Chloe talks us through her early education and the support that she received from her classmates, through to her current job at the BBC.

    Chloe has some great advice on how to support a friend, family, or colleague who is experiencing challenges with their mental health.

    For support
    If you are experiencing issues discussed in this podcast contact your GP or healthcare practitioner.
    OCD UKOCD ActionHosted by Chantal Boyle, Hidden Disabilities Sunflower.
    Want to share your story? email conversations@hiddendisabilitiesstore.com
    Visit Hidden Disabilities Sunflower

    • 32 min
    Bowel and lung cancer, stoma and dialysis with Gemma Savory

    Bowel and lung cancer, stoma and dialysis with Gemma Savory

    Gemma had a missed early diagnosis of bowel cancer because the doctor believed her to be too young to have cancer at the age of 30.
     
     In the past 8 years she has undergone many operations and treatments and is now stage 4 NED. Gemma is very open about the procedures she has had and wants to use her platform to raise awareness of bowel cancer in young people and also provide a support network to people who are living with cancer.
     
     In this conversation we cover how important it is to fight for yourself when you believe that something isn't right with your body. Also discussed are the affects of surgery and chemotherapy, and the symptoms of bowel cancer to look out for - it is very important to seek a diagnosis as early as you can.
     
     This was recorded 2 weeks prior to Deborah James, BowelBabe, sadly passing away.

    For support
    If you are experiencing issues discussed in this podcast contact your GP or healthcare practitioner.
    Bladder & BowelBowel Cancer UKHosted by Chantal Boyle, Hidden Disabilities Sunflower.
    Want to share your story? email conversations@hiddendisabilitiesstore.com
    Visit Hidden Disabilities Sunflower
     

    • 28 min
    Tourette Syndrome and Brazilian Jui Jitsu with Khovan Hussein

    Tourette Syndrome and Brazilian Jui Jitsu with Khovan Hussein

    Tourette Syndrome and Brazilian Jui Jitsu with Khovan Hussein
    “With my Tourette's, sometimes my verbal tics can be stuff like swearing, or I might say something that's offensive, but obviously I can't help it. So when I wear the badge outside, it makes me comfortable knowing that... It just shows everyone that I can't help it.”
    Khovan and his mum Shireen join us to celebrate Khovan’s achievement in being awarded with The Rotary Young Citizen Sporting Hero Award. Khovan is autistic, has Tourette Syndrome as well as ADHD.
    As a child he struggled with communication and social interaction, but since joining a Brazilian Jui Jitsu club it has been the key to his communication skills and participation, providing him with a sense of community, development and growth.
    Khovan explains how the martial art answers his sensory needs and how he is committed to raising money for charities, and supporting other young people and their parents through his Tik Tok account @KhovanH where he posts videos and answers questions.
     For support
    If you are experiencing issues discussed in this podcast contact your GP or healthcare practitioner.
    Tourettes Action
    Khovan’s TikTok  @KhovanH 
    Khovan’s Instagram @Khovanhn
    Khovan and his sisters Just Giving page for Tourette’s Action - Move for Tourette’s (ends 15th June) 
     
    Hosted by Chantal Boyle, Hidden Disabilities Sunflower.
    Want to share your story? email conversations@hiddendisabilitiesstore.com
    Visit Hidden Disabilities Sunflower
     

    • 22 min