IFOPA Podcast Series

IFOPA
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The International Fibrodysplasia Ossificans Progressiva (FOP) Association (IFOPA) serves families living with the ultra-rare genetic disease fibrodysplasia ossificans progressiva, as well as researchers and health care providers studying and treating this disease. The IFOPA is a US-based nonprofit organization whose mission is to fund research to find a cure for FOP while supporting, connecting and advocating for individuals with FOP and their families, and raising awareness worldwide. You can find us online at ifopa.org.

  1. 2d ago

    Training for Life: A Conversation with Daniel and Joel

    In this episode of the Advocacy Series podcast, IFOPA Family and Provider Support Coordinator Melissa Davis sits down with FOP community member Daniel Licht and his personal trainer, Joel Beasley. Together, they discuss the impact of exercise and regular gym attendance on Daniel's life with FOP, and explore what recreation and staying active mean to him. In their conversation we hear how Daniel's focus on this particular hobby has helped create a sense of community, purpose and joy.   Joel Beasley is a strength and performance expert with over 10 years of experience in the fitness industry. The owner of Life Athletics in Orange, CA, Joel, is an NASM-certified Personal Trainer and a specialist in both Corrective Exercise and Performance Enhancement. He specializes in bridging the gap between rehabilitation and peak performance, ensuring his clients move efficiently and effectively in every stage of life.Daniel Licht has lived with FOP since being diagnosed at age three. After a life defined by extreme physical caution, which included minimal formal exercise and a decade of occupational and physical therapy, he has spent the last decade undergoing a personal transformation. Guided by his personal trainer, he has gained a new lease on life, evolving from a world of restriction to one of newfound empowerment and resilience. Please note that this podcast is intended as an example of hobbies and recreation. It is not medical advice and is not intended to be used as a resource for developing an exercise regimen.  We hope to showcase Daniel's personal decision to explore his physical fitness with the support of a trained professional and hope you will be inspired by his story of finding joy, strength, and community in his chosen hobby. This information is provided for informational purposes only and does not constitute providing medical advice, training, or professional services. The information provided should not be used for diagnosing or treating a health problem or disease, and those seeking personal medical advice should consult with a licensed physician. Always seek the advice of your doctor or other qualified healthcare provider regarding your medical condition.

    36 min

  2. 07/18/2025

    Navigating Life with FOP – A Sibling Story

    Siblings Laura and Mark Rossano join IFOPA Family Services Manager Hope Newport for an open and insightful discussion on navigating sibling relationships when one sibling is living with FOP.

    1h 4m

  3. 05/29/2025

    Rare Disease Advocacy and Rare Bone Community Connections

    In this special episode, Hope from the International FOP Association (IFOPA) and Neena from the Jansen's Foundation come together to spotlight the power of connection within the rare disease and rare bone disease communities. They discuss how collaboration across organizations like the Rare Bone Disease Alliance and international partners has amplified advocacy, storytelling, and support for families around the world. From celebrating global efforts, to sharing impactful grassroots stories from community advocates, Hope and Neena reflect on the importance of raising awareness, building a louder patient voice, and taking action year-round. They also highlight ways families can get involved through storytelling, legislative advocacy, and digital tools.  Whether you're newly diagnosed, a seasoned advocate, or somewhere in between, this episode offers encouragement, inspiration, and practical steps to help you raise awareness and create change in the rare disease space. Explore the IFOPA Advocacy Series resources. Sign up for the Every Life Foundation action alert system. Special thanks to our Rare Disease Day Platinum Sponsor, Regeneron Pharmaceuticals.

    39 min

  4. 04/02/2025

    FOP and Preparing for a Medical Emergency

    In this podcast episode for the 2025 Advocacy Series, IFOPA Family Services Coordinator, Melissa Davis, speaks with FOP Community Member Kathy Ford and Rare Disease advocate Kerri Engbrecht on the importance of connecting with local first responders and preparing for an emergency.  Kathy Ford is a 39-year-old resident of South Jersey who has been employed as a local emergency dispatcher. As a person living with a rare disease called Fibrodysplasia Ossificans Progressiva, she understands the importance of being prepared as best as possible for emergencies.  Kerri Engebrecht is Executive Director of Adrenal Insufficiency United and Tennessee's Community Engagement Ambassador for NORD's Rare Action Network. She is mom to a son with Addison's Disease, her father has Frontotemporal Dementia and she advocates for all with rare disease and their caregivers.

    52 min

  5. 11/26/2024

    Now I Have Found My Voice

    IFOPA Executive Director Michelle Davis recently chatted with FOP Community Member Erin Danzer. Erin is a member of the EveryLife Foundation's YARR (Young Adult Rare Representatives) Program and in February, Erin & Michelle attended the EveryLife Foundation's Rare Disease Week on Capitol Hill. While that experience and the YARR program have taught Erin about legislative advocacy, you'll hear in this podcast how Erin has found her voice as an advocate for both her and the FOP community. They discuss advocacy at school, the doctor's office, home, online, in Washington DC, and more.

    35 min

  6. 08/27/2024

    Creating Wraparound Support for Your Child with FOP

    In this episode of the 2024 Advocacy Series, IFOPA Family Services Manager, Hope Newport speaks with 12-year-old Maria and her mom Felicia Wray about navigating support systems in school, social and the healthcare setting. Maria shares specific experiences of her journey growing as an advocate while Felicia provides incredible insight into the thought-process and factors that guided their decisions in creating a supportive environment as parents.

    44 min

  7. 10/12/2023

    Insights on Access from the Rare Disease Community

    IFOPA Podcast Series

    31 min

  8. 09/28/2023

    Vocational Rehab as a Funding Source

    As part of the 2022-2023 Advocacy Series, we have been learning about various types of accessible transportation, both public and personal. One of the biggest obstacles to personal transportation is usually cost. In this IFOPA podcast, listen to FOP community member Steve Eichner explain the process of accessing financial assistance from Vocational Rehabilitation programs (available in the US) to help pay for certain vehicle modifications for employed individuals with a disability who need transportation to and from their jobs.

    32 min
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About

The International Fibrodysplasia Ossificans Progressiva (FOP) Association (IFOPA) serves families living with the ultra-rare genetic disease fibrodysplasia ossificans progressiva, as well as researchers and health care providers studying and treating this disease. The IFOPA is a US-based nonprofit organization whose mission is to fund research to find a cure for FOP while supporting, connecting and advocating for individuals with FOP and their families, and raising awareness worldwide. You can find us online at ifopa.org.

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