Winning at Fibromyalgia

Martina Ziegenbein MD Coaching

In this podcast series I share all things Fibromyalgia: Starting from what is the fibromyalgia pain all about, through where it comes from to how to treat it. You don't want to miss it!

  1. Sep 4

    Episode 50: Interview with Ken Lee, LPC, PRT-trained psychotherapist

    Minutes/topics 3:49 - how Ken realized he has to learn about PRT (spoiler alert - one of his clients could not focus on working on his trauma before his pain was addressed)   5:23 - Ken’s own pain story (it involved dropping down a cliff in his father’s truck)   7:30 - Ken points out that even structural changes don’t have to be accompanied by pain/pain can be neuroplastic (hint - if you only develop pain after you are told your Xrays look bad, it is highly suggestive neuroplasticity has something to do with it 🙂   10:14 - Ken reveals he was initially skeptical about PRT even as he started the training - and how he had a profound experience during his first somatic tracking and how it ended up changing his life   14:50 - He struggled with tinnitus even after learning PRT - and eventually overcame it - and even had a brief flash of it during the interview (15:08) and it went away as we spoke!   16:10 - how do I even start? …step 1: let’s talk about your story - get to know the patient’s story, make them feel heard, find out about everything - their upbringing, their background, how the pain story evolved, what they think about the pain, their health, their life   19:55 - let the patient know if they should have something evaluated (that could be structural)   21:04 - step 2 - psychoeducation about pain - explain the neuroscience of pain - we have the data about pain that allow us to say that fear plays an extremely important role in pain perception and processing   25:00 small injury can cause whole body reaction if the nervous system is sensitized   25:50: step 3 = hm, I wonder whether this is possible - let’s get curious, provocative testing, start gathering information about their pain - create “evidence sheet”   27:30 cynicism is ok! Let’s bring all the cynicism to the healing table!   29:04 Step 4: somatic tracking - purpose is NOT to get rid of pain in the moment (long term yes), the purpose is to get curious and observe the sensations in the body (including pain), like we watch/observe waves in the ocean…(Martina had immediate calming reaction to Ken’s explanation of what somatic tracking is) 🙂    31:30 CURIOUSITY IS MINDFULNESS, observing the sensation with curiosity (Ken even compared the fear of pain to fear of rattlesnakes= which is very appropriate btw) 🙂   33:30 don’t use somatic tracking with the expectation of reducing the pain - maintain outcome independence 36:48 What is the brain protecting us from, actually, when creating chronic pain ? and Why?   40:00 “Getting good at feeling good” is part of the healing process!   41:44 “what is the prescription/what do I do next?” - Ken’s response - start taking the pressure off of the need to be perfect. Basically there is no list of things to do…   45:00 Is it possible to change our personality features (that predispose us to central sensitization)? Reframe the concept: We have qualities that helped us in the past…and they are learned, protective behaviors. So we can PICK a different tool from our ammo box.   47:00 let’s talk about self-acceptance and self-forgiveness (loaded topics) - Ken normalizes self-criticism…and suggests getting curious about it, this is part of being human, moderation is the concept here. And sometimes therapy (in addition to PRT) is the answer to allow someone to forgive themselves.    51:20 How to deal with emotions: Explore emotions with curiosity the same way we explore pain with curiosity - as a response to painful emotions…ALLOW them to be there, make space for them   53:33 Full circle moment in the interview - PRT means Ken can turn TOWARD anything painful in his life, instead of turning AWAY from it. This curiosity leads to different response and eventually self-acceptance.   57:00 how do you know when someone became a believer/had a breakthrough (like Ken did when he had a profound experience during his first ST).    59:30 “unlearning the pain” is the work WE do, when we face the pain with curiosity   1:00:13 How about if the pain does not move, after years of practice? Find out how they are using the tools - maybe there is no outcome independence, use compassion and safety as tools   1:02:10 Permission to express ourselves fully - anger, frustration, no matter what it is - nervous system relaxes a little then   1:04:00 In the context of past trauma: how does he explain onset of symptoms during a joyful time? Answer: this is what trauma can do. In those situations Somatic tracking may not be the most appropriate tool, concept of resourcing. Importance of trauma therapist/specialist   1:09:00 invitation for people with chronic pain to reach out to a PRT-trained therapist   1:11:00 How you can connect with Ken and What does the PRT-badge verified mean :-)

  2. 01/01/2023

    Episode 45: What does the pain relief in fibromyalgia come down to?

    Episode 45: What does the pain relief in fibromyalgia really come down to?   Hello friends! So Excited to be here, brining you episode #45.   The focus of today’s episode is zeroing in on what is the pain reduction really about. I had an epiphany very recently and realized that I have to share it with you because it just may help some of you to think of pain relief in fibromyalgia and other chronic pain conditions differently.   While I was still working on this episode, 2 days ago, I was in a car accident, I rear-ended a truck. I got distracted while in slow traffic, the line of cars stopped at a light and I did not realize this soon enough. The reason I am mentioning this is that I had yet another re-inforcement of the concept I am talking to you about!   So the question is: what does the pain relief in chronic pain and fibromyalgia really come down to? In a nutshell, the pain relief comes down to finding evidence for and focusing on all the ways our nervous system and brain ARE working FOR US as opposed to looking for evidence of how they do not. That’s it.   Let me explain.   If you listen to enough of my episodes or videos you know I view the process of recovery from chronic pain in 3 main steps or strategies: Understand and embrace the concept of neuroplasticity – meaning – accept that the brain/central nervous system generate the pain (and as result can take it away because the neuronal connections are born and severed /deleted every day based on our practices and habits) BELIEVE the pain relief is possible AND available to you Lastly, engage the relaxation response that makes our primitive brains feel SAFE.     I notice that often, even myself, being an experienced pain coach that I am, I tend to first think of the worst case scenario when I experience worsening of pain. Basically, my brain offers the following thought: “You see?? It is NOT working! Your pain cannot and will not get better!” And in the past I would succumb to that thought which would lead me down the spiral of doom and would not lead to anything good, seriously.   The good news is that this is normal, Our brains, our lovely brains that want to keep us safe and comfortable and love familiarity above all else, even it is not serving us, will offer us that thought. And our job is to say, well, dear brain, how about focusing on ways this DOES work?   The way to achieve this, is to sit down with a pen and paper, and think of all the times your body DID do something that may have delighted or surprised you, or may not have even registered in your attention, basically you took it for granted. I will give you some examples:   Think of one activity that you enjoy doing that you can actually forget a little or completely about your pain. Meaning, when you think about the pain then you may feel it but in the moment you are completely lost in the flow of things and you are blissfully unaware of any pain. This is a proof our nervous system is working as designed and intended. It takes away from the pain because it is focusing on something pleaseant and the pleasant and joy neurotransmitters temporarily win over the pain inducing ones.   Think of ANY time your pain was clearly worse when you were stressed out or under enormous pressure – whether in personal life or in a workplace. Your pain was worse, you did not sleep well, you were more tired. This is a proof that the system is working. The stress response is resulting in increased production of stress related chemicals that make us feel worse.   Have you ever felt excited about something, super excited, either an event you were going to go to, or a new movie, or a concert or a vacation you dreamt up and paid for, and transiently you could feel less burden of a pain? How about being excited about some project at home or at work where you were applying yourself creatively or in a leadership position – have you felt a jolt of energy, life force, energy to live and enjoy? The research has shown that when we feel good about ourselves, we feel better physically.   At the time of my accident this past week, within moments of hitting the truck ahead of me, I started experiencing almost immediate sharp pains in my neck and upper back. Then as I moved my head the pain was worse, and I could feel my upper back spasming. It was fascinating how fast that happened. After calling 911 and securing my car out of traffic, I started actively communicating with my tight muscles and brain. I was still shaking a little but I was safe. I slowed down my breathing and actively relaxed my muscles of my neck and shoulders. And I was telling myself the words: “stay calm, breath, stay calm. This will be ok. Stay calm, breathe, you are safe, this will be ok”. It was incredible that it helped in the moment. I engaged this technique multiple times in the next 48 hours as I was dealing with the fallout of the accident and taking care of all the things. My pain was gone within 24-36 houts in my neck. I kid you neck. I get chronic pain by my right shoulderplain that flares with stress and it was still there but it subsided too.   To me that’s a clear evidence of how our nervous system and pain generators in the brain LISTEN and RESPOND to what we feed them. The words we tell ourselves matter because our primitive brains, and the structures in the brain whose sole purpose is to look for danger are looking and listening. And we can direct them.     So I invite all of you to think of ways how the “system” meaning our central nervous system, IS working right, is working for us.   Above all, I wish you a very happy and prosperous and safe and HEALHTY new year of 2023.

  3. 11/20/2022

    Episode 43: Winning at fibromyalgia online course available for the first time

    WAF Episode 44: The first of its kind, Winning at Fibromyalgia online course is born! https://www.martinaziegenbeinmdcoaching.com/course-pre-sale-landing-page https://www.martinaziegenbeinmdcoaching.com/offers/mgeMgobJ/checkout Hello friends!   Today is a special day. First of all, I am recording this from my “studio” in England and when it airs, I will still be in England!  Of course, I don’t have a studio in England, I am visiting my sister and she lives in England, about 30 minutes southwest from London and so temporarily my recording studio is here   Second, today is day 3 of my new Winning at Fibromyalgia online course going live, meaning being available for purchase. This course is basically the labor of my study and research and seeing patients over the past 12 months and my desire to let the knowledge know the large swaths of people with fibromyalgia and other forms of similar chronic pains.  What triggered me to get myself into high gear action was the culmination of events. I mentioned to you in one of the prior episodes I am working on a tedx talk about this new way of handling and reducing pain in fibromyalgia. I have continued seeing many women in my office with fibromyalgia and one of them literally told me she has felt crazy in medical offices when she would talk to physicians and other health care providers about her pain. Because she looks well, she did not feel believed, even dismissed. She felt she was viewed as a drug seeker when all she wanted was feeling better, feeling NORMAL.   If health care makes people feel crazy, something is very wrong. We can do better. I can do better.  So I have put together an online format of material that I normally teach my patients in person, over the course of several sessions. It is an online program that teaches you everything about fibromyalgia and how to help yourself. It includes scientific information that I dissect into small digestible pieces. You learn at your own pace. From the comfort of your home.  I am offering it for a super discounted price of 249 USD to a small number of participants who are eager to take advantage of this opportunity and realize this is a rare opportunity. This small group of learners we ask for your feedback on the course.  t will only be available for purchase at this price tag until this coming Thursday. We will then close the cart and reopen in December at probably doubled price.8  So why is it such a big deal? It is first and only course of its kind at the moment in this space. You will not find another course geared toward humans suffering from fibromyalgia, not of this quality and not at this price. When you purchase my course, you will have the advantage of learning from the Comfort of your home, even your PJs! Price tag of 249 USD – I do not exaggerate when I say the courses of this kind, containing the type of information I cover are worth THOUSANDs of dollars. Thousands. I am making it available at this price so that it can become available to as many people with fibromyalgia of you as many are willing to learn and find out. I have a unique combination of skills that were crucial for putting this course together – I am a rheumatologist so I have been seeing patients with fibromyalgia for over 15 years, I have the condition myself, and last but not the least I took special interest in understanding and trialing the tools to help – and proofed them on myself. The information included in the course is the magic sauce: Scientific information I gathered over the course of many years as a rheumatologist and put it in small easy to digest bites. Examples of such information is how we know the pain in real in Fibromyalgia and what kind of factors affect it. I also summarize prior research done in the area of how our thoughts and beliefs affect our experiences of pain. I review, step by step, the WAF method to reduce the pain. It includes somatic experiencing of the pain, being able to be present in the moment and being able to be compassionate with and loving to ourselves.   I am obviously biased and I believe this is a great deal.   I say you jump in and see for yourself.   And until next time 

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In this podcast series I share all things Fibromyalgia: Starting from what is the fibromyalgia pain all about, through where it comes from to how to treat it. You don't want to miss it!

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