Safe Harbor: A Podcast for Parents of Children with Disabilities Theresa Bartolotta

In this episode your host, Theresa Bartolotta, is excited to announce that she is resuming the podcast! She shares an update on life and the reasons behind the long gap between episodes. Theresa reviews podcast statistics and how successful the previous episodes have been with over 2500 listens in 34 countries! The core principles behind the podcast remain the same:  to share experiences about parenting children with disabilities, sharing our stories (not comparing), and valuing every life. This podcast is for parents who are walking this challenging path. We parents did not choose to have our children be born with disabilities, but we are embracing this life in all its forms, and we celebrate the beauty and wonder we experience.  In future episodes you'll hear stories that will challenge and inspire you. We'll talk about tips for all phases of life as well as strategies for self-care and healing.
Come share your thoughts in the Safe Harbor Facebook group. And find me on:

Instagram: @theresabartolotta
Facebook: Safe Harbor: A Podcast for Parents of Children with Special Needs
Website: https://www.theresabartolotta.com/

Please rate and review - it helps others find us. And thank you for listening! I know your time is precious and I send my gratitude to you.

In this solo episode I talk about stages of parenting a child with a disability. First there's the initial stage, when we deal with a diagnosis and setting up a treatment program and a community of care.  Then there's the middle stage, when we are busy with educational programs, managing a medical team, IEPs, therapy, and advocacy. That's a really busy time. Then there's the third stage, as we and our children age. In this third stage we are faced with managing details around guardianship, wills, trusts, and future planning for our children. There's also the feelings that occur during this stage as we face our mortality and the reality that our children may outlive us.  Many of us put off dealing with these tasks as they feel overwhelming and bring us concern and sadness. Procrastination actually is harmful to us, both to our bodies and to our minds. I talk about strategies to use to move past procrastination, and how freeing it feels to have these decisions made. You can always make adjustments as life changes.

Here's a link to a great resource on future planning: https://thearc.org/our-initiatives/future-planning/
I will take some time off towards the end of the year so there may only be a could more episodes for 2022.  Be sure to subscribe so you don't miss an episode! Happy Thanksgiving to everyone celebrating. 



Come share your thoughts in the Safe Harbor Facebook group. And find me on:

Instagram: @theresabartolotta
Facebook: Safe Harbor: A Podcast for Parents of Children with Special Needs
Website: https://www.theresabartolotta.com/

Please rate and review - it helps others find us. And thank you for listening! I know your time is precious and I send my gratitude to you.

In this episode I speak with Abby Burle, founder of Love Your Story, an organization dedicated  to create places of belonging for families impacted by disabilities.  This project started after Abby and her husband Ryan traveled around the country seeking medical care for their triplets. They realized the financial impact of disability on family, and that many families spend more than 22% of their annual income on expenses related to the disability.  In the episode, Abby talks about her journey as a mom to children with disabilities, and how she advocated to start Love Your Story. She shares the story of their first project, which was to purchase a home in Gainesville, Georgia to provide physical and financial rest for families traveling to the area for medical treatment or intensive therapies. 
Abby is passionate about inclusion and changing the way we talk about disability and understanding those who live with disability in their families. You will be inspired by her drive and how she creates community.  Enjoy!!

You can follow Abby at:
Instagram @loveyourstory.us
Website: https://loveyourstory.us
Come share your thoughts in the Safe Harbor Facebook group. And find me on:

Instagram: @theresabartolotta
Facebook: Safe Harbor: A Podcast for Parents of Children with Special Needs
Website: https://www.theresabartolotta.com/

Please rate and review - it helps others find us. And thank you for listening! I know your time is precious and I send my gratitude to you.

In this episode I interview the fun and inspiring Laura Hernandez of Mama Systems. Laura is mom to a large family and several of her children have disabilities.  Listen to Laura explain how she turned her challenging life into one of peace and organization using systems. Laura is an example of someone who is using their talents and their gifts to turn the world right - to make something positive. This is such an important part of our mission here at Safe Harbor - to turn challenges into opportunities and make the world better. Laura's goal is to "help mamas have more peace in their homes."
I am sure you'll find her story inspirational. Check out her website mamasystems.net where you can download a free self-care guide. And we all need more self-care don't we!
Follow Laura on Instagram @mamasystems





Come share your thoughts in the Safe Harbor Facebook group. And find me on:

Instagram: @theresabartolotta
Facebook: Safe Harbor: A Podcast for Parents of Children with Special Needs
Website: https://www.theresabartolotta.com/

Please rate and review - it helps others find us. And thank you for listening! I know your time is precious and I send my gratitude to you.

I really enjoyed interviewing Sam and Sarah Ahlstrom, parents to a young girl with Rett syndrome, and co-hosts of the pRETTy happy podcast, a show dedicated to "Bringing families and friends together from the Rett syndrome community to discuss life, research, and just have fun."  I am excited to post this interview during Rett Syndrome Awareness Month, but the episode is not just for people who love someone with Rett syndrome. Sarah and Sam are an example of folks who are taking a challenging experience and working to make things better in this world. Their story will inspire others to make a difference and share positivity.

In addition to sharing information on their podcast, they have a website where they share information on adapting toys for children with disabilities. They sell some affordable adapted toys, as well as switches they make, along with information on how to adapt toys on your own. This is a gamechanger for children who have difficulty accessing toys in the traditional way.

You can find the pRETTy happy podcast wherever you listen to podcasts. Here's a link to their site on Anchor: https://anchor.fm/prettyhappypod
You can find adapted toy information on their website: pRETTy happy. | A Rett Syndrome Community


Come share your thoughts in the Safe Harbor Facebook group. And find me on:

Instagram: @theresabartolotta
Facebook: Safe Harbor: A Podcast for Parents of Children with Special Needs
Website: https://www.theresabartolotta.com/

Please rate and review - it helps others find us. And thank you for listening! I know your time is precious and I send my gratitude to you.

In this solo episode, I talk about Awareness Months, or Days, when a particular disorder is acknowledged. October is Rett Syndrome Awareness Month, and as a mom of a young woman with Rett syndrome I support many activities this month to raise awareness about Rett.  Many other disorders are acknowledged in a similar way, with specially designated months of days. There can be two sides to how parents of children with disabilities handle these months/days. First, with pride and enthusiasm, sharing stories and facts to educate others. Many parents host fundraisers to support research efforts. In contrast, there can be a deep feeling of what has been lost due to the disorder. I find myself feeling Bittersweet about this - holding two contrasting feelings simultaneously.  We all feel heartache at times and it's important to share the stories of loss and longing to help lift us all collectively.  In this episode I talk about the need to share openly and not apologize for our sadness.

I reference a terrific book, "Bittersweet" by Susan Cain. Here's an Amazon affiliate link if you'd like to learn more about this topic: https://amzn.to/3T9y3ER



Come share your thoughts in the Safe Harbor Facebook group. And find me on:

Instagram: @theresabartolotta
Facebook: Safe Harbor: A Podcast for Parents of Children with Special Needs
Website: https://www.theresabartolotta.com/

Please rate and review - it helps others find us. And thank you for listening! I know your time is precious and I send my gratitude to you.