159 episodes

Interviews with scholars of disability about their new books

New Books in Disability Studies New Books Network

    • Arts
    • 5.0 • 6 Ratings

Interviews with scholars of disability about their new books

    Margaret Price, "Crip Spacetime: Access, Failure, and Accountability in Academic Life" (Duke UP, 2024)

    Margaret Price, "Crip Spacetime: Access, Failure, and Accountability in Academic Life" (Duke UP, 2024)

    In Crip Spacetime: Access, Failure, and Accountability in Academic Life (Duke University Press, 2024), Margaret Price intervenes in the competitive, productivity-focused realm of academia by sharing the everyday experiences of disabled academics. Drawing on more than three hundred interviews and survey responses, Price demonstrates that individual accommodations--the primary way universities address accessibility--actually impede access rather than enhance it. She argues that the pains and injustices encountered by academia's disabled workers result in their living and working in realities different from nondisabled colleagues: a unique experience of space, time, and being that Price theorizes as "crip spacetime." She explores how disability factors into the exclusionary practices found in universities, with multiply marginalized academics facing the greatest harms. Highlighting the knowledge that disabled academics already possess about how to achieve sustainable forms of access, Price boldly calls for the university to move away from individualized models of accommodation and toward a new system of collective accountability and care.
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    • 1 hr 9 min
    Mimi Khúc, "dear elia: Letters from the Asian American Abyss" (Duke UP, 2023)

    Mimi Khúc, "dear elia: Letters from the Asian American Abyss" (Duke UP, 2023)

    Mimi Khúc is a PhD, writer, scholar, and teacher of things unwell. She is currently the Co-Editor of The Asian American Literary Review and an adjunct lecturer in Disability Studies at Georgetown University. Her work includes Open in Emergency, a hybrid book-arts project decolonizing Asian American mental health; the Asian American Tarot, a reimagined deck of tarot cards; and the Open in Emergency Initiative, an ongoing national project developing mental health arts programming with universities and community spaces. 
    Her new creative-critical, genre-bending book on mental health and a pedagogy of unwellness, dear elia: Letters from the Asian American Abyss (Duke University Press, 2024), is a journey into the depths of Asian American unwellness at the intersections of ableism, model minoritization, and the university, and an exploration of new approaches to building collective care.
    Julia H. Lee is professor of Asian American Studies at the University of California, Irvine. She is the author of three books: Interracial Encounters: Reciprocal Representations in African and Asian American Literatures, 1896-1937 (New York University Press, 2011), Understanding Maxine Hong Kingston (University of South Carolina Press, 2018), and The Racial Railroad (New York University Press, 2022). With Professor Josephine Lee, she is co-editor of Asian American Literature in Transition, 1850-1930 (Cambridge University Press, 2021), a Choice Outstanding Academic Title for 2022. You can find her on Instagram @julia.x.lee.
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    • 1 hr 1 min
    Marchella Ward, "Blindness and Spectatorship in Ancient and Modern Theatres: Towards New Ways of Looking and Looking Back" (Cambridge UP, 2023)

    Marchella Ward, "Blindness and Spectatorship in Ancient and Modern Theatres: Towards New Ways of Looking and Looking Back" (Cambridge UP, 2023)

    The use of disability as a metaphor is ubiquitous in popular culture – nowhere more so than in the myths, stereotypes and tropes around blindness. To be 'blind' has never referred solely to the inability to see. Instead blindness has been used as shorthand for, among other things, a lack of understanding, immorality, closeness to death, special insight or second sight. Although these 'meanings' attached to blindness were established as early as antiquity, readers, receivers and spectators into the present have been implicated in the stereotypes, which persist because audiences can be relied on to perpetuate them. 
    Marchella Ward's book Blindness and Spectatorship in Ancient and Modern Theatres: Towards New Ways of Looking and Looking Back (Cambridge UP, 2023) argues for a new way of seeing – and of understanding classical reception - by offering assemblage-thinking as an alternative to the presumed passivity of classical influence. And the theatre, which has been (incorrectly) assumed to be principally a visual medium, is the ideal space in which to investigate new ways of seeing.
    Corinne Doria is a historian specializing in the social history of medicine. She is a lecturer at the Chinese University of Hong Kong in Shenzhen and teaches Disability Studies at Sciences-Po (Paris). Her work focuses on the history of ophthalmology and visual impairment in the West.
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    • 1 hr 29 min
    Aaron J. Jackson, "Worlds of Care: The Emotional Lives of Fathers Caring for Children with Disabilities" (U California Press, 2021)

    Aaron J. Jackson, "Worlds of Care: The Emotional Lives of Fathers Caring for Children with Disabilities" (U California Press, 2021)

    Vulnerable narratives of fatherhood are few and far between; rarer still is an ethnography that delves into the practical and emotional realities of intensive caregiving. Grounded in the intimate everyday lives of men caring for children with major physical and intellectual disabilities, Worlds of Care: The Emotional Lives of Fathers Caring for Children with Disabilities (U California Press, 2021) undertakes an exploration of how men shape their identities in the context of caregiving. Anthropologist Aaron J. Jackson fuses ethnographic research and creative nonfiction to offer an evocative account of what is required for men to create habitable worlds and find some kind of “normal” when their circumstances are anything but. Combining stories from his fieldwork in North America with reflections on his own experience caring for his severely disabled son, Jackson argues that care has the potential to transform our understanding of who we are and how we relate to others.
    Aaron J. Jackson is a Lecturer in Anthropology at Victoria University. His research focuses on fatherhood, care, and disability.
    Alize Arıcan is a Postdoctoral Associate at Rutgers University's Center for Cultural Analysis. She is an anthropologist whose research focuses on urban renewal, futurity, care, and migration in Istanbul, Turkey. Her work has been featured in Current Anthropology, City & Society, Radical Housing Journal, and entanglements: experiments in multimodal ethnography.
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    • 31 min
    Matthew Rubery, "Reader's Block: A History of Reading Differences" (Stanford UP, 2022)

    Matthew Rubery, "Reader's Block: A History of Reading Differences" (Stanford UP, 2022)

    Matthew Rubery's book Reader’s Block: A History of Reading Differences (Stanford UP, 2022) explores the influence neurodivergence has on the ways individuals read. This alternative history of reading is one of the few books which tells the stories of "atypical" readers and the impact had on their lives by neurological conditions affecting their ability to make sense of the printed word: from dyslexia, hyperlexia, and alexia to synesthesia, hallucinations, and dementia. Rubery's focus on neurodiversity aims to transform our understanding of the very concept of reading. Drawing on personal testimonies gathered from literature, film, life writing, social media, medical case studies, and other sources to express how cognitive differences have shaped people's experiences both on and off the page, Rubery contends that there is no single activity known as reading. Instead, there are multiple ways of reading (and, for that matter, not reading) despite the ease with which we use the term. Pushing us to rethink what it means to read; Reader's Block moves toward an understanding of reading as a spectrum that is capacious enough to accommodate the full range of activities documented in this fascinating and highly original book.
    Matthew Rubery is Professor of Modern Literature at Queen Mary University of London. His earlier books include The Novelty of Newspapers: Victorian Fiction after the Invention of the News (Oxford, 2009) and The Untold Story of the Talking Book (Harvard University Press, 2016). He has also edited or co-edited Audiobooks, Literature, and Sound Studies (Routledge, 2011), Secret Commissions: An Anthology of Victorian Investigative Journalism (Broadview, 2012), and Further Reading (Oxford, 2020). Currently, he is working on a history of “projected reading”, a form of assisted reading that involves projecting books on ceilings which a patient can read while lying in bed. This was first used to help World War 2 soldiers injured on duty who could not read conventionally. Matthew also likes to collaborate with charities and other organisations to think about ways of reading more suited to people with disabilities or neurodivergent readers.
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    • 1 hr 3 min
    Kate Annett-Hitchcock, "The Intersection of Fashion and Disability: A Historical Analysis" (Bloomsbury Visual Arts, 2023)

    Kate Annett-Hitchcock, "The Intersection of Fashion and Disability: A Historical Analysis" (Bloomsbury Visual Arts, 2023)

    The history of the fashion industry has been well written as it relates to people who conform to certain physical norms and cultural stereotypes, whereas the inequality in access to the world of fashion has been largely ignored. Despite this lack of coverage, much work has taken place over the centuries to enable people who live with disability to participate in fashionable culture. This book tells that story via perspectives of notable historical figures, events and movements, and continues the discourse with a look at some of the contemporary developments in clothing and fashion.
    The Intersection of Fashion and Disability: A Historical Analysis (Bloomsbury, 2023) by Dr. Kate Annett-Hitchcock takes the long view, from early attempts to conceal 'unsightly' bodies of royalty and nobility via creative innovation through growing contemporary awareness of inclusive fashion and how future work can be driven by technology and cultural acceptance.
    This interview was conducted by Dr. Miranda Melcher whose forthcoming book focuses on post-conflict military integration, understanding treaty negotiation and implementation in civil war contexts, with qualitative analysis of the Angolan and Mozambican civil wars.
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    • 57 min

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