Invisible

Angelic Denhof-Bokor
  • 5.0 (4)
  • Mental Health

Living and parenting with chronic illness and neurodivergence. #asd #adhd #gad #mdd #ocd #dysautonomia #vasospasms #arthritis

Episodes

  1. 02/20/2023

    Season 1 Episode 3-Workplace Accommodations/Listening to Patient Stories/Dysautonomia

    In this episode, Angelic and Margaret continue the conversation from episode 2. We discuss workplace accommodations, the challenge of not feeling or being heard by medical providers, being a person with multi-morbidities, and dysautonomia.  Resource Links Workplace Accommodations in the United States https://www.dol.gov/general/topic/disability/jobaccommodations#:~:text=A%20job%20accommodation%20is%20an,to%20work%20schedules%20or%20responsibilities. Dysautonomia https://dysautonomiainternational.org/page.php?ID=34 POTS https://my.clevelandclinic.org/health/diseases/16560-postural-orthostatic-tachycardia-syndrome-pots POTS & Inappropriate Sinus Tachycardia https://my.clevelandclinic.org/podcasts/love-your-heart/pots-and-inappropriate-sinus-tachycardia

  2. 02/07/2023

    Episode 2-The Forgotten Things

    #hearingloss #auditoryprocessingdisorder #audiogram #tympanogram #socialisolation #lipreading #hearingaids Welcome back to Invisible-the podcast about living and/or parenting while managing chronic illness and neurodivergence. In this episode, we discuss two major disabilities that we forgot in our first episode. Angelic is both hearing impaired and has auditory processing disorder, things that have strongly informed her life from the age of three. We discuss what her experiences using hearing aids were like, the social impacts of feeling shame due to her disability, the social isolation she experienced due to her disability, and related topics. Resource Links: Audiogram: https://www.asha.org/public/hearing/audiogram/ Tympanogram: https://my.clevelandclinic.org/health/diagnostics/24222-tympanometry Auditory Processing Disorder: https://www.audiology.org/consumers-and-patients/hearing-and-balance/auditory-processing-disorders/ Hearing Loss and Social Isolation: https://www.npr.org/sections/health-shots/2019/09/12/760231279/untreated-hearing-loss-linked-to-loneliness-and-isolation-for-seniors https://nsu.com.au/medical-news/hearing-loss-loneliness-and-social-isolation/#.Y-G22HbMIok

  3. 01/16/2023

    Episode 1-Meet the Hosts

    #invisibleillness #chronicillnessawareness #coronaryvasospasm #inappropriatesinustachycardia #asthma #ankylosingspondylitis Invisible is a podcast that focuses on creating community for those living and parenting within the context of being neurodivergent and navigating living with chronic illnesses. Our goal is to share stories in order to foster connection, curiosity, and empathy. In this episode, Angelic and Margaret, best friends and two of the podcast hosts, share their stories. We look forward to hearing from our listeners to continue to build a bridge toward understanding, acceptance, and visibility for those who share similar lived experiences. Resource Links: Coronary Vasospasm: https://www.internationalheartspasmsalliance.org/conditions/coronary-vasospasm/  Dysautonomia: https://dysautonomiainternational.org/ Inappropriate Sinus Tachycardia: https://www.gosh.nhs.uk/conditions-and-treatments/conditions-we-treat/inappropriate-sinus-tachycardia/ Ankylosing Spondylitis: https://www.mayoclinic.org/diseases-conditions/ankylosing-spondylitis/symptoms-causes/syc-20354808 Asthma: https://www.mayoclinic.org/diseases-conditions/asthma/symptoms-causes/syc-20369653 Ehlers Danlos Syndrome: https://www.ehlers-danlos.com/what-is-eds/ IBS: https://www.hopkinsmedicine.org/health/conditions-and-diseases/irritable-bowel-syndrome-ibs

  • 3 Episodes

Ratings & Reviews

5
out of 5
4 Ratings

About

Living and parenting with chronic illness and neurodivergence. #asd #adhd #gad #mdd #ocd #dysautonomia #vasospasms #arthritis

Information

  • Creator
    Angelic Denhof-Bokor
  • Years Active
    2023
  • Episodes
    3
  • Rating
    Clean
  • Copyright
    © Angelic Denhof-Bokor
  • Show Website
    Invisible