GAG | eating life with head & neck cancer Ep 60 - 120

Yvonne McClaren

A podcast empowering global communities affected by head and neck cancer & dedicated to reducing social isolation through curated resources. Inspire and educate fellow patients, clinicians, and caregivers alike, paving the way to embrace an optimal food life journey during and after treatment. Lived practical advice on achieving better patient care with food, eating & PEG transitioning. Ideas & online resources to create best food life outcomes for head & neck cancer patients. Providing patient insight for interprofessional collaboration regarding commensality, food and communication. yvonnemcclaren.substack.com

  1. 10/13/2025

    Excerpt Chapter 2: GULP.

    An excerpt from my upcoming book GULP. Taking A Seat Back At The Table After Head And Neck Cancer. I will be presenting at the IDDSI Conference - Monday 20th October 2025. Details here Chapter 2 The Rosetta Stone: IDDSI We Need to Talk About IDDSI: International Dysphagia Diet Standardisation Initiative Transitioning from a PEG tube back to oral eating is confusing, scary, and fraught with stress and uncertainty. It’s not just about swallowing safely; it’s about rebuilding your entire relationship with food. For many patients, eating more by mouth while maintaining weight and hitting nutritional targets is anything but straightforward. I discovered it involves your mind, your food, and your body - three elements that intertwine and rely on one another for success. I came to realise this firsthand as I stumbled my way through the chaos, trying to make sense of what was happening to me. The Missing Conversation in Dysphagia Care Caring for your thoughts, understanding your options for medical and allied health support, and getting your kitchen, shopping lists, and recipes aligned all matter. Add in the methods required to chew and swallow safely, and you’ve got a full-time job before you even sit down to eat. I documented exactly how I transitioned from 15 months of no oral food - relying solely on my PEG tube - to eventually eating orally again (despite ongoing dysphagia) and completing an 800km hike across Spain, eating whatever I could find on the road. That journey revealed something critical: Dysphagia is one thing, transitioning from PEG to oral food is another beast entirely, and for patients without a love of food, nutrition, or cooking, the hill is even steeper. GULP will be available on Amazon and on my site - ensure you are signed up here when its live. Eat Well. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit yvonnemcclaren.substack.com/subscribe

    2 min
  2. 11/20/2023

    An eating Christmas.

    The air changes in the lead up to Christmas. That smell, just before Christmas arrives, Christmas morning, something special in Australia it’s dry heat, the dark dawn brings soft strains of black bird call & magpie warble. GAG.| Eating life. is a reader-supported publication. To receive new posts and support my work, consider becoming a free or paid subscriber. Perhaps for you it’s burning cold, padded snow & food dread. Christmas lunch a task to be completed like a dental check up, getting through it and a sigh of relief when it’s all done for another year. That’s the reality for many, it’s not about tension within family units, or who did or said what last year, it’s about the focus of the day, the focus of food and drink and the importance placed on this simple activity that is lost to so many of us. Christmas lunch with its matching napkins and placed bon bons. Bowls of snacks for visitors and family you can never mindlessly eat. Inspecting food to establish what, if anything, you might be able to manage discreetly, without having to gag, spit, or conduct major mouth maintenance. Thick cut meat off roasted bone, alcohol ladened sauce that hides a burn or coughing fit. Skin on poultry a choking hazard, flutes of celebratory bubbles that lie flat, dormant not to be raised. Perhaps a soft roast vegetable swimming in sauce or gravy, maybe fruit pudding drowning in custard. Touches that make it Christmas like brandy, dried or glace fruit, spice, are lost - sometimes forever. Chatter, eating, breathing, strains of Christmas carols made hard with incessant Cisplatin ringing. Breathing simultaneous eating, spontaneity, socialising skills brought to the fore. Silver dragees our personal game of thrones, those dastardly silver balls, cracked teeth, jaw bone, choking hazard - adorned on cookies, biscuits, cakes and gingerbread houses, a game of Russian roulette for head and neck cancer sufferers. Nuts, candy, lollies, licorice, spice, nutmeg, cinnamon, bread, rolls, cake, alcohol, icing, ham, pork, chicken, beef, potatoes, pudding, chocolate, coconut - shall I go on? Christmas. Then there’s Marjorie’s husband Ray and thousands like him, who feed through a PEG. Not having to worry about Christmas eating, it’s not happening for them. Spiced mead, eggnog, cold beer, beading French Champagne, it doesn’t matter. You can’t taste it through a PEG, is it even Christmas? It’s a solitary life and experience and one that’s very hard to explain, and equally hard to endure. But endure we do, year after year and the “eating Christmas” becomes an annual chapter in the life after - literally. We just do our best. Wherever you are in the world, you might be eating curry, coconut, fish, chicken, turkey, salad, prawns on a barbecue, salami, weber food, cold sandwiches - it doesn’t much matter, if you are lucky, you are sharing that time with family, friends and people who understand your situation. Head and neck cancer treatment whether we eat orally or not affects everyone, the care givers, the PEG users, friends, strangers, the patients themselves. It is often a time of dread, a time that simply amplifies the lack of the ability to eat, swallow, to participate in something that is a simple life pleasure. It never gets easier, it never lets up, it simply becomes another thing to manage in the after math of head and neck cancer treatment. Christmas, in all it’s celebration and meaning, a large part of it is eating with family, friends and loved ones. Take a moment to reflect on your eating ability and what it means, and for people like Marjorie’s husband, perhaps the Christmas spirit is more about love, about the human spirit, about being kind and knowing that everyone is going through something you know absolutely nothing about. Perhaps it is less about the food and more about the grievances in the world and our hope for world peace. Wherever you are reading this, I wish for you a Merry, safe, and loving Christmas, oh and Ray a special Merry Christmas to you. 🎄 Eat Well. GAG.| Eating life. is a reader-supported publication. To receive new posts and support my work, consider becoming a free or paid subscriber. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit yvonnemcclaren.substack.com/subscribe

    5 min

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About

A podcast empowering global communities affected by head and neck cancer & dedicated to reducing social isolation through curated resources. Inspire and educate fellow patients, clinicians, and caregivers alike, paving the way to embrace an optimal food life journey during and after treatment. Lived practical advice on achieving better patient care with food, eating & PEG transitioning. Ideas & online resources to create best food life outcomes for head & neck cancer patients. Providing patient insight for interprofessional collaboration regarding commensality, food and communication. yvonnemcclaren.substack.com