The Bridge: Your Health Your Voice

The PATIENTS Program

Welcome to the Bridge! The official podcast for the University of Maryland Baltimore School of Pharmacy PATIENTS Program. The PATIENTS Program is the bridge between the Community and Researchers. The PATIENTS Program created this partnership to help researchers listen to the community’s voice in order to build a bridge to an effective learning healthcare community.

  1. Aug 25

    A Seat at the Table: How Patients Are Transforming Parkinson's Research

    What does it mean to ensure that patient voices shape research, healthcare, and the future of Parkinson's care?In this episode of The Bridge: Bring Your Health, Your Voice, Esther Labib-Kiyarash, a healthcare administrator, Parkinson's advocate, social media creator, Patients Professor, and person living with young-onset Parkinson's disease, sits down with us to talk about her journey. After her diagnosis in 2023, Esther transformed her experience into a mission to help others by raising awareness, connecting with the Parkinson's community, and advocating for greater patient involvement in research. Together, Esther discusses the importance of the patient-centered movement, the powerful message of "Nothing About Us Without Us," and why people with lived experience must have a seat at the table when healthcare decisions and research priorities are being shaped. Whether you're living with Parkinson's, supporting a loved one, or interested in patient-centered research, this conversation offers valuable insights into the power of advocacy, community, and partnership.This video is part of the PEACE-PD (Palliative Care To Improve Quality of Life for People With Parkinson's Disease) initiative, which seeks to increase awareness and use of PCORI-funded research on palliative care for Parkinson's disease. Through patient and care partner stories, PEACE-PD helps people with Parkinson's, care partners, and clinicians better understand the many dimensions of quality of life, including emotional, social, and spiritual well-being. To learn more about Esther Labib-Kirarash follow her on Instagram @shakingingmyboots1, Facebook @Shakinginmyboots Esther, LinkedIn @Esther Labib-Kirarash, and on YouTube ⁨ @estherlabib-kiyarash3999  Spotify currently does not support transcript uploads for this podcast; to view an ADA‑compliant version of this episode and access the full transcript, please visit our YouTube channel viathe link in the description. https://youtu.be/OcaCNipt7_w  Visithttps://podcasters.spotify.com/pod/show/the-patients-program to stay updated on both past and upcoming episodes. To watch this episode and more, visit our YouTube channel ⁠https://www.youtube.com/playlist?list=PLf5TFMW2PWhKdIEaP2F9xN213vrkTrv9_⁠ Subscribe to our YouTube Channel https://bit.ly/SubscribetoourYouTubeChannelhttps://linktr.ee/thepatientsprogram

  2. Jun 23

    The Heartbeat of the PATIENTS Program: The Ten-Step Framework

    How do we engage patients, community partners, clinicians, policy makers, researchers, and government agencies?\ In this episode of The Bridge, we dive into the PATIENTS Program’s 10-Step Framework for Continuous Engagement — a model designed to ensure patients, caregivers, and community members have a meaningful voice in health care research. PATIENTS Programs Executive Director Daniel Mullins and Director of Methodological Research and Evaluation Hillary Edwards discuss how the framework guides projects from planning and trust-building to data collection,interpretation, dissemination, and reflection, all while centering lived experience at every stage. The conversation explores why community-engaged research creates stronger, more impactful outcomes and how the framework has evolved into a flexible, continuous cycle of partnership and collaboration. Tune in to hear how meaningful engagement is reshaping the future of research and strengthening the connection between communities and health care innovation. Spotify currently does not support transcript uploads for this podcast; to view an ADA‑compliant version of this episode and access the full transcript, please visit our YouTube channel viathe link in the description. https://youtu.be/xwXSkireQZ4 Visithttps://podcasters.spotify.com/pod/show/the-patients-program to stay updated onboth past and upcoming episodes. To watch this episode and more, visit ourYouTube channel ⁠https://www.youtube.com/playlist?list=PLf5TFMW2PWhKdIEaP2F9xN213vrkTrv9_⁠ Subscribe to ourYouTube Channel https://bit.ly/SubscribetoourYouTubeChannelhttps://linktr.ee/thepatientsprogram

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About

Welcome to the Bridge! The official podcast for the University of Maryland Baltimore School of Pharmacy PATIENTS Program. The PATIENTS Program is the bridge between the Community and Researchers. The PATIENTS Program created this partnership to help researchers listen to the community’s voice in order to build a bridge to an effective learning healthcare community.