The Bridge: Your Health Your Voice

The PATIENTS Program
  • 5.0 (2)
  • Science
  • Updated Bimonthly

Welcome to the Bridge! The official podcast for the University of Maryland Baltimore School of Pharmacy PATIENTS Program. The PATIENTS Program is the bridge between the Community and Researchers. The PATIENTS Program created this partnership to help researchers listen to the community’s voice in order to build a bridge to an effective learning healthcare community.

  1. Aug 25

    A Seat at the Table: How Patients Are Transforming Parkinson's Research

    What does it mean to ensure that patient voices shape research, healthcare, and the future of Parkinson's care?In this episode of The Bridge: Bring Your Health, Your Voice, Esther Labib-Kiyarash, a healthcare administrator, Parkinson's advocate, social media creator, Patients Professor, and person living with young-onset Parkinson's disease, sits down with us to talk about her journey. After her diagnosis in 2023, Esther transformed her experience into a mission to help others by raising awareness, connecting with the Parkinson's community, and advocating for greater patient involvement in research. Together, Esther discusses the importance of the patient-centered movement, the powerful message of "Nothing About Us Without Us," and why people with lived experience must have a seat at the table when healthcare decisions and research priorities are being shaped. Whether you're living with Parkinson's, supporting a loved one, or interested in patient-centered research, this conversation offers valuable insights into the power of advocacy, community, and partnership.This video is part of the PEACE-PD (Palliative Care To Improve Quality of Life for People With Parkinson's Disease) initiative, which seeks to increase awareness and use of PCORI-funded research on palliative care for Parkinson's disease. Through patient and care partner stories, PEACE-PD helps people with Parkinson's, care partners, and clinicians better understand the many dimensions of quality of life, including emotional, social, and spiritual well-being. To learn more about Esther Labib-Kirarash follow her on Instagram @shakingingmyboots1, Facebook @Shakinginmyboots Esther, LinkedIn @Esther Labib-Kirarash, and on YouTube ⁨ @estherlabib-kiyarash3999  Spotify currently does not support transcript uploads for this podcast; to view an ADA‑compliant version of this episode and access the full transcript, please visit our YouTube channel viathe link in the description. https://youtu.be/OcaCNipt7_w  Visithttps://podcasters.spotify.com/pod/show/the-patients-program to stay updated on both past and upcoming episodes. To watch this episode and more, visit our YouTube channel ⁠https://www.youtube.com/playlist?list=PLf5TFMW2PWhKdIEaP2F9xN213vrkTrv9_⁠ Subscribe to our YouTube Channel https://bit.ly/SubscribetoourYouTubeChannelhttps://linktr.ee/thepatientsprogram

  2. Aug 11

    The Power of Lived Experience: Conversations on Reproductive Health

    In this episode of The Bridge, host Paris Barnes sits down with Dr. Jasmine K. Cooper, Director of Qualitative Research for the PATIENTS Program, to discuss REPRO-HEAL (Reproductive Health Across the Lifespan). Through personal experience and research, Dr. Cooper explores the importance of centering lived experiences in conversations about menstruation, maternal health, perimenopause, and menopause. Learn how REPRO-HEAL is partnering with patients, caregivers, clinicians, and community organizations to improve awareness, access, and symptom management while ensuring community voices guide the research process. Spotify currently does not support transcript uploads for this podcast; to view an ADA‑compliant version of this episode and access the full transcript, please visit our YouTube channel via the link in the description. https://youtu.be/wYNZyizoDm0 Visithttps://podcasters.spotify.com/pod/show/the-patients-program to stay updated on both past and upcoming episodes. To watch this episode and more, visit ourYouTube channel ⁠https://www.youtube.com/playlist?list=PLf5TFMW2PWhKdIEaP2F9xN213vrkTrv9_⁠ Subscribe to ourYouTube Channel https://bit.ly/SubscribetoourYouTubeChannelhttps://linktr.ee/thepatientsprogram

  3. Jul 28

    Every Voice Deserves to Be Heard

    Bobby Wiseman is a lifelong learner, a Class of 2025 graduate of the PATIENTS Professors Academy, and a dedicated advocate for communities seeking a stronger voice in their health and in health research. In this episode, we catch up with Bobby to explore his advocacy journey and the impactful work he’s doing to uplift and empower his community—one voice at a time. Spotify currently does not support transcript uploads for this podcast; to view an ADA‑compliant version of this episode and access the full transcript, please visit our YouTube channel via the link in the description. https://youtu.be/s3iakSWrEJkThe Bridge is the official podcast for the University of Maryland, Baltimore, School of Pharmacy PATIENTS Program. The PATIENTS Program is the bridge between the community and researchers. The PATIENTS Program created this partnership to help researchers listen to the community’s voice to build a bridge to an effective learning healthcare community. Subscribe to our YouTube Channel https://bit.ly/SubscribetoourYouTubeChannelTo learn more about the PATIENTS Program, check out this link https://linktr.ee/thepatientsprogr

  4. Jul 14

    Walking with Purpose: Ernestine Shepherd and Chauncey Whitehead

    In this special episode of The Bridge, Paris Barnes is joined by Baltimore legends Ernestine Shepherd and Chauncey Whitehead for a powerful conversation about fitness, faith, community, and purpose. As Ernestine approaches her 90th birthday, she shares the habits, mindset, and life lessons that have fueled her remarkable journey, while Chauncey reflectson how their shared commitment to walking and community wellness has inspired generations. Together, they remind us that health is more than exercise—it's about connection, consistency, and uplifting others. A conversation filled with wisdom, inspiration, and heart. Spotify currently does not support transcript uploads for this podcast; to view an ADA‑compliant version of this episode and access the full transcript, please visit our YouTube channel via the link in the description. https://youtu.be/tiLiwFji9JU Visit https://podcasters.spotify.com/pod/show/the-patients-program to stay updated on both past and upcoming episodes. To watch this episode and more, visit our YouTube channel ⁠https://www.youtube.com/playlist?list=PLf5TFMW2PWhKdIEaP2F9xN213vrkTrv9_⁠ Subscribe to our YouTube Channel https://bit.ly/SubscribetoourYouTubeChannelhttps://linktr.ee/thepatientsprogram

  5. Jun 23

    The Heartbeat of the PATIENTS Program: The Ten-Step Framework

    How do we engage patients, community partners, clinicians, policy makers, researchers, and government agencies?\ In this episode of The Bridge, we dive into the PATIENTS Program’s 10-Step Framework for Continuous Engagement — a model designed to ensure patients, caregivers, and community members have a meaningful voice in health care research. PATIENTS Programs Executive Director Daniel Mullins and Director of Methodological Research and Evaluation Hillary Edwards discuss how the framework guides projects from planning and trust-building to data collection,interpretation, dissemination, and reflection, all while centering lived experience at every stage. The conversation explores why community-engaged research creates stronger, more impactful outcomes and how the framework has evolved into a flexible, continuous cycle of partnership and collaboration. Tune in to hear how meaningful engagement is reshaping the future of research and strengthening the connection between communities and health care innovation. Spotify currently does not support transcript uploads for this podcast; to view an ADA‑compliant version of this episode and access the full transcript, please visit our YouTube channel viathe link in the description. https://youtu.be/xwXSkireQZ4 Visithttps://podcasters.spotify.com/pod/show/the-patients-program to stay updated onboth past and upcoming episodes. To watch this episode and more, visit ourYouTube channel ⁠https://www.youtube.com/playlist?list=PLf5TFMW2PWhKdIEaP2F9xN213vrkTrv9_⁠ Subscribe to ourYouTube Channel https://bit.ly/SubscribetoourYouTubeChannelhttps://linktr.ee/thepatientsprogram

  6. Jun 9

    CO-POD: Bridging Chronic Pain and Patient Centered Research

    In this episode of The Bridge, the conversation highlights the CO POD project, a PCORI funded initiative designed to make patient-centered research more accessible and meaningful for everyday people. Focused on individuals living with chronic pain, CO POD connects patients, caregivers, and community members with research in a way that’s practical, easy to understand, and actionable. The episode features advisory board members Trevor and Seantae Jackson, who share their connection to the project through their family’s lived experience with chronic pain following a devastating car accident. Their perspective brings a deeply personal lens to the importance of accessible research and patient partnership. By translating complex findings into real world insights, CO POD empowers individuals to better manage their pain while engaging them as active partners in shaping future research. This Bridge podcast episode was funded through the Patient Centered Outcomes Research Institute(PCORI) Eugene Washington PCORI Engagement Award (EADI-45018). The views, statements, and opinionspresented in this podcast episode are solely the responsibility of the author and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute® (PCORI®), its Board. Visithttps://podcasters.spotify.com/pod/show/the-patients-program to stay updated on both past and upcoming episodes. To watch this episode and more, visit ourYouTube channel ⁠https://www.youtube.com/playlist?list=PLf5TFMW2PWhKdIEaP2F9xN213vrkTrv9_⁠ Subscribe to our YouTube Channel https://bit.ly/SubscribetoourYouTubeChannelhttps://linktr.ee/thepatientsprogram Spotify currently does not support transcript uploads for this podcast; to view an ADA‑compliant version of this episode and access the full transcript, please visit our YouTube channel via the link in the description. https://youtu.be/0Z0RlBNiWb0

  7. May 12

    The Vision and Impact of the PATIENTS Professors Academy

    We’re excited to celebrate Year Five of the PATIENTS Professors Academy! In this episode of The Bridge, host ParisBarnes sits down with Joe Howarth, Lead Training Specialist and architect of the PATIENTS Professors Academy, to discuss the evolution of the program and the impact it continues to make. The conversation also features Melinda Aldridge, a PATIENTS Professors Academy Class of 2025 graduate and incoming 2026 Seminar Leader. Melissa shares how PPA has shaped her journey in health research and prepared her to step into leadership and partnershiproles within patient‑centered research. ·  Learn more about the PATIENTS Professors Academy by visiting: https://www.pharmacy.umaryland.edu/programs/the-patients-program/patients-academy/ ·  Connect with Melissa Aldridge on LinkedIn to learn more about her work and journey:https://www.linkedin.com/in/melinda-aldridge-126019b/ Spotify currently does not support transcript uploads for this podcast; to view an ADA‑compliant version of this episode and access the full transcript, please visit our YouTube channel via the link in the description. https://youtu.be/4PEaZv8zxQI   Visithttps://podcasters.spotify.com/pod/show/the-patients-program to stay updated onboth past and upcoming episodes. To watch this episode and more, visit our YouTube channel ⁠https://www.youtube.com/playlistlist=PLf5TFMW2PWhKdIEaP2F9xN213vrkTrv9_⁠ Subscribe to our YouTube Channel https://bit.ly/SubscribetoourYouTubeChannelhttps://linktr.ee/thepatientsprogram

  8. Apr 28

    Building Learning Spaces Where Students Thrive

    In this episode of The Bridge, host Paris Barnes is joined by John Medeiros, his mother, and advocate Michelle Medeiros, and Steve Buettner of the Baltimore Lab School for a powerfulconversation about inclusive excellence, disability justice, and belonging in education. This episode is a moving reminder that inclusive excellence is not one‑size‑fits‑all, and that when students are truly seen, supported, and respected, they thrive. Visithttps://podcasters.spotify.com/pod/show/the-patients-program to stay updated on both past and upcoming episodes. To watch this episode and more, visit ourYouTube channel ⁠https://www.youtube.com/playlist?list=PLf5TFMW2PWhKdIEaP2F9xN213vrkTrv9_⁠ Subscribe to ourYouTube Channel https://bit.ly/SubscribetoourYouTubeChannelhttps://linktr.ee/thepatientsprogram Spotify currently does not support transcript uploads for this podcast; to view an ADA‑compliant version of this episode and access the full transcript, please visit our YouTube channel via the link in the description. https://youtu.be/81_fZMwESnU

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About

Welcome to the Bridge! The official podcast for the University of Maryland Baltimore School of Pharmacy PATIENTS Program. The PATIENTS Program is the bridge between the Community and Researchers. The PATIENTS Program created this partnership to help researchers listen to the community’s voice in order to build a bridge to an effective learning healthcare community.

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