Dementia Caregiver’s Corner

Juliah Ratladi

The journey of caring for a loved one with dementia can be deeply challenging. Juliah Ratladi, an MSc Dementia Care Specialist and experienced dementia care professional, is uniquely positioned to share her observations, experiences, knowledge, and insights on various aspects of dementia care. Together with other dementia experts and caregivers, she raises awareness, offers encouragement, and provides hope. Through meaningful discussions, they shed light on key dementia-related issues, helping to educate and support those affected by the condition. Dementia care: How deep is your love?

  1. Sep 23

    When the Coffee Stops Smelling: The Overlooked Link Between Smell and Dementia

    Episode Title: When the Coffee Stops Smelling: The Overlooked Link Between Smell and Dementia  Repost: In this episode of the Dementia Caregivers’ Corner Podcast, I’m joined by Duncan Boak, co-founder and CEO of SmellTaste, to explore the often-overlooked impact of changes to smell and taste. Duncan shares his personal experience of losing his sense of smell following a severe head injury and how this led him into advocacy and support for people living with smell and taste disorders. We discuss the relationship between smell, memory and dementia, and why changes in smell and taste can affect much more than enjoyment of food. They can influence appetite, emotional wellbeing, quality of life and everyday safety — including the ability to detect smoke, gas or spoiled food. We also explore sensory experiences such as smell hallucinations and why caregivers and healthcare professionals need greater awareness of olfactory impairment in dementia care. Duncan also discusses his contribution to A New Approach to Dementia: Examining Sensory and Perceptual Impairment, edited by Professor Andrea Tales, Professor Jan Kremláček and Dr Emma Richards.   In this episode: • Duncan’s personal journey with smell loss • The connection between smell, taste, memory and dementia • How sensory changes can affect eating and everyday life • Safety risks associated with loss of smell • Smell hallucinations and other overlooked sensory experiences • Support and advocacy for people affected by smell and taste disorders • Why sensory impairment deserves greater attention in dementia care An important conversation reminding us that dementia is about much more than memory loss. #DementiaCare #DementiaAwareness #OlfactoryImpairment #SensoryPerception #SmellAndTaste

  2. Jul 29

    Can Technology Close the Dementia Care Gap? A Conversation with Allyson Schrier, Co-founder of Zinnia TV

    Episode Title: Can Technology Close the Dementia Care Gap? A Conversation with Allyson Schrier, Co-founder of Zinnia TV Can technology make everyday life easier for people living with dementia and those who care for them? In this episode of the Dementia Caregivers' Corner Podcast, I speak with Allyson Schrier, caregiver, dementia advocate, and co-founder of Zinnia TV—a pioneering AgeTech platform designed to enrich the lives of people living with dementia through engaging, dementia-friendly video content. After caring for her husband, Allyson transformed her personal experience into an innovative solution that is helping families, caregivers, and care providers around the world create more meaningful moments while reducing stress. In this episode, we discuss: How Allyson's caregiving journey inspired the creation of Zinnia TV. The role of technology in supporting people living with dementia. Simple ways to make digital tools accessible for older adults. Why compassionate, person-centred care should always come before technology. The importance of culturally inclusive dementia care for diverse communities, including immigrant and African families. The exciting future of AgeTech and how innovation is shaping dementia care. Key Takeaways ✅ Great innovations often begin with lived experience. ✅ Technology should enhance human connection—not replace it. ✅ Compassion remains the most powerful tool in dementia care. ✅ Inclusive technology ensures every family can benefit, regardless of culture or language. Whether you're a family caregiver, healthcare professional, dementia advocate, or simply interested in how innovation is transforming dementia care, this conversation is packed with practical insights and inspiration. If you enjoyed this episode, please follow, rate, and review the Dementia Caregivers' Corner Podcast on your favourite podcast platform. Your support helps us reach more families and raise dementia awareness around the world. Please share this episode with someone who could benefit from learning how technology and compassion can work together to improve the lives of people living with dementia and those who care for them.

    Can Technology Close the Dementia Care Gap? A Conversation with Allyson Schrier, Co-founder of Zinnia TV
  3. Jul 15

    The Dementia and Death Conversation: Why Waiting Can Cost Families | Lisa Pahl

    Episode Title: The Dementia and Death Conversation: Why Waiting Can Cost Families Death is one of the few certainties in life, yet it remains one of the conversations many of us avoid. In this thought-provoking episode of the Dementia Caregivers Corner Podcast, Juliah Ratladi is joined by hospice social worker Lisa Pahl, who has spent nearly two decades supporting individuals and families through some of life's most challenging moments. Drawing on her experience in hospice care and emergency medicine, Lisa shares why talking about death isn't about giving up hope—it's about giving people a voice while they still have one. The conversation explores the importance of advance care planning, particularly for people living with dementia, where the opportunity to express wishes can gradually be lost. Lisa also discusses the inspiration behind the Death Deck, the End-of-Life (EOL) Deck, and the Dementia Deck—innovative conversation tools designed to help families navigate topics that are often difficult to begin. Together, Juliah and Lisa discuss cultural attitudes toward death, why many families avoid these conversations, how to introduce advance care planning compassionately, and why meaningful conversations today can prevent uncertainty and distress tomorrow. Whether you're a family caregiver, healthcare professional, or simply someone who wants to prepare for the future with confidence, this episode offers practical guidance and gentle encouragement to start the conversations that matter most. Because peace at the end often begins with conversations held long before the end.   5 Key Takeaways Dementia makes timing important. Dementia gradually affects a person's ability to communicate their wishes. Having conversations early allows individuals to express what matters most while they still can. Avoiding the conversation doesn't avoid the reality. Many families postpone talking about death because of fear, culture, or discomfort, but delaying these discussions often leaves loved ones facing difficult decisions without knowing what the person would have wanted. The right tools make difficult conversations easier. Resources such as the Death Deck, End-of-Life Deck, and Dementia Deck provide gentle prompts that help families begin meaningful conversations without feeling overwhelmed. Culture should shape the conversation—not prevent it. Every family and community approaches death differently. Respecting cultural beliefs while encouraging open dialogue helps ensure care planning remains personal, meaningful, and respectful. Advance care planning is a gift to those you love. Planning ahead isn't about preparing for death; it's about reducing uncertainty, protecting your wishes, and giving your family confidence and peace when difficult decisions arise. To learn more about Lisa's End-of-Life Deck and Dementia Deck, or to purchase a copy, visit thedeathdeck.com.

  4. Jul 1

    Designing for Dementia: How Smart Technology and Environments Support Sensory Changes | Professor Andrea Tales

    Episode Summary Designing for Dementia: How Smart Technology and Environments Support Sensory Changes | Professor Andrea Tales Repost: In this episode, I am honoured to be joined by Professor Andrea Tales, Professor of Neuropsychology and Dementia Research at Swansea University, Fellow of the British Psychological Society, and Fellow of the Learned Society of Wales. Together, we explore why dementia should be understood as more than a memory disorder. Drawing on research from her co-authored book, A New Approach to Dementia: Examining Sensory and Perceptual Impairment, Professor Tales explains how changes in vision, perception, and sensory processing can profoundly affect the daily lives of people living with dementia. Using real-life caregiving experiences, we discuss how visual perception changes may explain behaviours that are often misunderstood, why thoughtful environmental design matters, and how SMART technologies such as Alexa and digital clocks can support independence, reduce distress, and improve quality of life when tailored to the individual. Whether you are a family caregiver, healthcare professional, or simply interested in understanding dementia more deeply, this episode offers practical, evidence-based insights that could transform the way you think about dementia care.   Five Key Takeaways Dementia is more than memory loss. Changes in vision, perception, balance, and sensory processing can have a significant impact on behaviour, independence, and quality of life. What looks like challenging behaviour may actually be a sensory or perceptual difficulty. Understanding how the person experiences their environment helps caregivers respond with greater empathy and compassion. Thoughtful environmental design matters. Simple changes to lighting, colour contrast, flooring, and familiar surroundings can reduce confusion, distress, and the risk of falls. SMART technology works best when it is personalised. Devices such as Alexa, digital clocks, and other assistive technologies should be introduced based on the person's individual needs, abilities, and stage of dementia—not because they worked for someone else. Technology should enhance, not replace, human care. The greatest benefits are seen when technology supports meaningful relationships, person-centred care, and everyday independence. Throughout the conversation, I also share real-life experiences from my own dementia care journey, highlighting how understanding sensory changes transformed the way I supported people living with dementia.

    Designing for Dementia: How Smart Technology and Environments Support Sensory Changes | Professor Andrea Tales
  5. Jun 10

    When Reality Changes: Understanding Lewy Body Dementia Through a Caregiver's Eyes | Kathy Teyler Jarrett

    Episode Title: When Reality Changes: Understanding Lewy Body Dementia Through a Caregiver's Eyes | Kathy Teyler Jarrett In this episode of the Dementia Caregivers Corner Podcast, I am joined by Kathy Teyler Jarrett, author of You Are Not Alone: Dealing with Lewy Body Dementia and a passionate advocate for Lewy Body Dementia (LBD) awareness. Kathy shares her deeply personal journey as the primary caregiver for her husband, offering invaluable insight into a form of dementia that is often misunderstood and overlooked. We discuss the early warning signs, the challenges of obtaining a diagnosis, and the complex symptoms that make Lewy Body Dementia unique, including hallucinations, sleep disturbances, and changes in movement. Kathy recounts the frightening incident that became a turning point in recognising that something was seriously wrong, and she reflects on the realities of navigating daily life as a caregiver. We also explore the overwhelming amount of information available to caregivers and how to identify practical support that truly makes a difference. Finally, Kathy speaks candidly about life after caregiving, sharing how she rebuilt a sense of purpose following her husband's death and why she felt compelled to write her book to support others walking a similar path. This is a powerful conversation about resilience, education, and the importance of ensuring that no caregiver feels alone. Three Main Takeaways 1. Lewy Body Dementia is often misunderstood and difficult to recognise. Many people, including caregivers, have never heard of LBD before it affects their family. Understanding its unique symptoms—such as hallucinations, fluctuating cognition, movement difficulties, and sleep disturbances—can help families seek support earlier. 2. Caregivers need practical guidance, not just information. The dementia journey can be overwhelming. Kathy highlights the importance of finding trusted resources, learning from lived experience, and focusing on strategies that are realistic and helpful for individual caregiving situations. 3. Life after caregiving requires healing and rediscovery. When caregiving becomes someone's identity, its end can leave a profound void. Kathy's story demonstrates that it is possible to find purpose again while honouring the person and journey that shaped your life.

4.9
out of 5
7 Ratings

About

The journey of caring for a loved one with dementia can be deeply challenging. Juliah Ratladi, an MSc Dementia Care Specialist and experienced dementia care professional, is uniquely positioned to share her observations, experiences, knowledge, and insights on various aspects of dementia care. Together with other dementia experts and caregivers, she raises awareness, offers encouragement, and provides hope. Through meaningful discussions, they shed light on key dementia-related issues, helping to educate and support those affected by the condition. Dementia care: How deep is your love?