Life's a Polyp Foundation

Jenny Jones
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  • Non-Profit

Life's a Polyp Foundation is a 501(c)(3) nonprofit organization with a mission to empower individuals living with Familial Adenomatous Polyposis through education, mental health advocacy, and community building, ensuring every patient has the tools to navigate their health with confidence and pushes research for new treatments and a vision to create a world where a rare disease diagnosis is met with immediate support and specialized resources, ultimately funding the research necessary to improve the quality of life for future generations.

  1. Jun 15

    Advocates Panel Talking Familial Adenomatous Polyposis Advocacy

    Jenny talks with 5 other FAP advocates about their advocacy efforts for FAP range from ages 9 to 60s, what led them into advocacy, and how it's impacted their lives. Advocates featured with Jenny: Kevin Myers, Michael Caprio, Rebecca and Ryan Baker, Ann Lamphere Michael Caprio's FAP Experience Book A Bump in the Road: My Medical Journey over Potholes, Detours and the Bridge to Gratitudehttps://a.co/d/0aAgefYI Ann Lamphere's Rare Disease Children's Book: Pebbles' Golden Stripes: A Story of Uniqueness, Friendship, and Rare Disease Dayhttps://a.co/d/0677lJ3c Jenny's FAP Children's Book Life's a Polyp: with Zeke and Katie https://a.co/d/02eetaHy Life's a Polyp Foundation is a nonprofit 501(c)3 that works to empower individuals living with Familial Adenomatous Polyposis through education, advocacy, and community building, ensuring every patient has the tools to navigate their health with confidence and support research for new treatment options. Through this we aim to create a world where a rare disease diagnosis is met with immediate support and specialized resources, ultimately funding the research necessary to improve the quality of life for future generations. A Daughter's Love Podcast is housed under Life's a Polyp Foundation. In it, Jenny and Amy heal grief through storytelling and exploring cancer, caregiving, and more. Find more at www.LifesaPolyp.org and @LifesaPolyp across Social Media Platforms #LifesaPolyp #FamilialAdenomatousPolyposis #RareDisease #ShortBowelSyndrome #FamilialPolyposis #Coloncancer #ColorectalCancer #HereditaryCancer #AttenuatedFAP #FAP #AFAP #Nonprofit #Podcast #Chronicillness #Cancer #Panel #Advocacy

  2. 06/01/2025

    Cognitive Behavioral Therapy for Chronic Pain

    Jenny shares what she learned in a CBT-CP Seminar for improving quality of life with chronic pain.

    Cognitive Behavioral Therapy for Chronic Pain

  3. 04/10/2025

    Caregiving for Mom - The Last Years

    Jenny shares how her understanding of her mom changes when she became a caregiver to her mother and what the last years were like.

    Caregiving for Mom - The Last Years

  4. 03/28/2024

    Post Concussion Syndrome

    Jenny shares about her experience developing and living with Post Concussion Syndrome

    Post Concussion Syndrome

  5. 12/07/2023

    How We Can Use Hardship to Build Our Resiliency

    Jenny shares an in-depth view of how we can use our hardships to build our resiliency from our own inner strength.

    How We Can Use Hardship to Build Our Resiliency

  6. 11/30/2023

    Comfytemp Weighted Heated Vest: AD - A Sponsored Review

    Jenny shares her sponsored review and her family's reviews of the Comyftemp Weighted Heated Vest. Disclaimer: I have been given Comfytemp Heating Pad for Neck and Shoulder Pain Relief as part of a product review. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.

    Comfytemp Weighted Heated Vest: AD - A Sponsored Review

  7. 11/28/2023

    3 Self-Care Habits That Can Be Started Today

    Jenny shares 3 self-care habits that one can start today to for beginning a self-care routine for the betterment of physical and mental well-being.

    3 Self-Care Habits That Can Be Started Today

  8. 11/17/2023

    Changing Our Perspectives to Better Our Well-Being

    Jenny discusses ways of changing perspective for well-being betterment.

    Changing Our Perspectives to Better Our Well-Being
See All (14)

About

Life's a Polyp Foundation is a 501(c)(3) nonprofit organization with a mission to empower individuals living with Familial Adenomatous Polyposis through education, mental health advocacy, and community building, ensuring every patient has the tools to navigate their health with confidence and pushes research for new treatments and a vision to create a world where a rare disease diagnosis is met with immediate support and specialized resources, ultimately funding the research necessary to improve the quality of life for future generations.

Information

  • Creator
    Jenny Jones
  • Years Active
    2023 - 2026
  • Episodes
    14
  • Rating
    Explicit
  • Copyright
    © Jenny Jones
  • Show Website
    Life's a Polyp Foundation