theMSguide podcast

theMSguide

This is a podcast where an expert MS patient of 31y (and counting) with the disease talks all things Multiple Sclerosis from a patient perspective. Keeping other patients informed and up to date on the topics that affect them and their care. is the aim of the podcast. theMSguide.com is beholden to no one so we are happy to tackle the hard topics and apply the patient lens to them. theMSguide.com started life as a YouTube channel . Many people, including me, listen to more and more podcasts these days. Building on the success of the channel is what brings us together here. Hosted on Acast. See acast.com/privacy for more information.

  1. 05/26/2024

    Another New AI Tool That Will Transform Your MS Care

    All the promised trial details are here: Boston, US Brigham and Women's Hospital Principal Investigator: Tanuja Chitnis, MD tchitnis@bwh.harvard.edu Ottawa, Canada The Ottawa Hospital Principal Investigator: Gauruv Bose, MD gabose@toh.ca London, UK The Royal London Hospital Principal Investigator: Sharmilee Gnanapavan, Dr. s.gnanapavan@qmul.ac.uk Inclusion criteria: Participants must have a diagnosis of Multiple Sclerosis (MS) within an age range of 18 to 60. The participant must have an Extended Disability Status Scale (EDSS) score at screening less than or equal to 6.5, inclusive. As background, the main study is 6 months in duration, with an option for the participant to continue for an additional 6 months. For reference, here is a public link where we publish info on the MS study, including site contact info: https://clinicaltrials.gov/study/NCT05781113?term=NCT05781113&city=&rank=1 Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you. https://www.patreon.com/theMSguide theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you. After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you. Email: dominic@theMSguide.com Twitter: @theMSguide LinkedIn: https://www.linkedin.com/company/themsguide/ Instagram: @theMSguide Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!) Hosted on Acast. See acast.com/privacy for more information.

    Another New AI Tool That Will Transform Your MS Care
  2. 05/05/2024

    Sex in MS : the things you need to know from Dr Brown

    ex is a fundamental human desire and pleasure but MS can really spoil things for us. In this first of this two-part episode we discuss the top 3 issues identified in research then in the second episode Dr Brown discusses ways to manage and overcome these difficulties. Here are the promised resources we discussed. https://mstrust.org.uk/a-z/sexual-problems-women-ms https://mstrust.org.uk/a-z/sexual-problems-men-ms https://www.mssociety.org.uk/about-ms/signs-and-symptoms/sex-and-relationships https://www.smsna.org/patients/did-you-know/what-is-sensate-focus-and-how-does-it-work https://cogbtherapy.com/cbt-blog/cognitive-defusion-techniques-and-exercises https://www.thecouplesummit.org/blog/relationship-check-ins https://www.gottman.com/blog/category/column/the-four-horsemen/ https://www.gottman.com/blog/category/love-relationships/ Dr Brown has also given me several guides that I can share with you. These cover questions for discussion, sensate focus therapy, and thought defusion (the correct spelling apparently!) strategies. Just email me at dominic@theMSguide.com Dr Ashley Brown, PhD, C. Psychol., FHEA - Teaching Fellow; Post-Doctoral Researcher - Health Psychology Section (IoPPN) - King’s College London Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you. https://www.patreon.com/theMSguide theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you. After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you. Email: dominic@theMSguide.com Twitter: @theMSguide LinkedIn: https://www.linkedin.com/company/themsguide/ Instagram: @theMSguide Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!) Hosted on Acast. See acast.com/privacy for more information.

    Sex in MS : the things you need to know from Dr Brown
  3. 04/28/2024

    Sex in MS : the things you need to know from Dr Brown

    Sex is a fundamental human desire and pleasure but MS can really spoil things for us. In this first of this two-part episode we discuss the top 3 issues identified in research then in the second episode Dr Brown discusses ways to manage and overcome these difficulties. Here are the promised resources we discussed. https://mstrust.org.uk/a-z/sexual-problems-women-ms https://mstrust.org.uk/a-z/sexual-problems-men-ms https://www.mssociety.org.uk/about-ms/signs-and-symptoms/sex-and-relationships https://www.smsna.org/patients/did-you-know/what-is-sensate-focus-and-how-does-it-work https://cogbtherapy.com/cbt-blog/cognitive-defusion-techniques-and-exercises https://www.thecouplesummit.org/blog/relationship-check-ins https://www.gottman.com/blog/category/column/the-four-horsemen/ https://www.gottman.com/blog/category/love-relationships/ Dr Brown has also given me several guides that I can share with you. These cover questions for discussion, sensate focus therapy, and thought defusion (the correct spelling apparently!) strategies. Just email me at dominic@theMSguide.com Dr Ashley Brown, PhD, C. Psychol., FHEA - Teaching Fellow; Post-Doctoral Researcher - Health Psychology Section (IoPPN) - King’s College London Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you. https://www.patreon.com/theMSguide theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you. After 31y of #MS I have accumulated a wide network of contacts, so I am sure we can work together to answer any questions you have about MS. I look forward to hearing from you. Email: dominic@theMSguide.com Twitter: @theMSguide LinkedIn: https://www.linkedin.com/company/themsguide/ Instagram: @theMSguide Facebook: facebook.com/MultipleSclerosisGuide (I am really bad at Facebook - please email me!) Hosted on Acast. See acast.com/privacy for more information.

    Sex in MS : the things you need to know from Dr Brown

About

This is a podcast where an expert MS patient of 31y (and counting) with the disease talks all things Multiple Sclerosis from a patient perspective. Keeping other patients informed and up to date on the topics that affect them and their care. is the aim of the podcast. theMSguide.com is beholden to no one so we are happy to tackle the hard topics and apply the patient lens to them. theMSguide.com started life as a YouTube channel . Many people, including me, listen to more and more podcasts these days. Building on the success of the channel is what brings us together here. Hosted on Acast. See acast.com/privacy for more information.