On the tip of my tongue - talking about Aphasia

Jonathan Hirons and Rob Edwards

Jonathan Hirons's journey following his stroke and diagnosis of aphasia is both inspiring and informative. Here’s a summary of his experience and insights about aphasia:   Jonathan's Experience with Aphasia  1. Initial Incident:  In January 2019, while in a business meeting, Jonathan began to feel strange and soon realized he could not communicate effectively. His colleagues quickly called for medical help.  2. Medical Emergency:  He was rushed to University College Hospital, where scans revealed he had suffered a stroke due to a bleed on the brain. He spent five nights in the hospital and was diagnosed with aphasia.   3. Impact on Daily Life:     - Jonathan struggled with basic tasks such as speaking, reading, and writing.    - He had memory issues, recalling only his postcode but not his full address or other personal information.    - He faced challenges in understanding spoken language but could still sign his name.  4. Support from Family:  His wife, Ann, played a crucial role in his recovery:    - She encouraged him to read aloud daily and used flashcards to aid in word recognition and writing.    - This early intervention was vital for his rehabilitation.   5. Progress Through Therapy:  With the help of speech therapy, Jonathan made significant improvements:    - He regained much of his ability to read and write, although he still experiences difficulties, especially when tired.   6. Advocacy and Awareness:     - Jonathan has turned his experiences into a creative outlet by producing films, including "On the Tip of My Tongue" and "What is Aphasia?" These films aim to educate others about aphasia and its challenges.    - He actively shares his story to raise awareness about aphasia as a hidden disability and the ongoing need for support beyond initial rehabilitation.   Understanding Aphasia  Aphasia is a language disorder that affects communication abilities, including: - Speaking: Difficulty in forming words or sentences. - Understanding: Challenges in comprehending spoken or written language. - Reading and Writing: Problems with reading text or writing coherently.   Key Takeaways  - Aphasia is often a result of brain damage, commonly from strokes, and can significantly impact daily life. - Early intervention and support are crucial for recovery. - Awareness and education about aphasia can help reduce stigma and improve support for those affected.  Jonathan's story highlights the resilience of individuals facing such challenges and the importance of community support in their recovery journey.  Copyright © 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved. This film/video/podcast is protected by copyright law. Unauthorized reproduction, distribution, or transmission of this material is prohibited.  For permissions or inquiries, please contact hello@buffalolounge.co.uk

  1. 2d ago

    Aphasia Awareness Month Q&A: Myths, Carer Support, Recovery, and the Future

    Send us Fan Mail Aphasia Awareness Month Q&A: Myths, Carer Support, Recovery, and the Future During Aphasia Awareness Month, the podcast hosts a Q&A on aphasia—an often overlooked language disorder affecting speaking, understanding, reading, and writing, commonly after stroke or brain injury—with more than 350,000 people living with it in the UK. Guest Ann Hirons shares a carer’s perspective, discussing how aphasia is treated as a secondary condition, its “quiet crisis” impact on identity and family life, and the need to avoid carer burnout by creating therapy-free zones. The episode debunks the myth that impaired speech means impaired intellect, offers practical tips for everyday interactions (patience, simple questions, don’t finish sentences, use writing/pointing), and explores living with slowed communication and fatigue. It addresses the post-NHS-therapy “cliff edge,” benefits of peer groups, realistic recovery through practice and small steps, and roles for AI tools and creative outlets like film, art, and music supported by neuroplasticity. 00:00 Aphasia Awareness Intro 01:49 Why Aphasia Is Overlooked 03:53 Carer Burnout Balance 06:11 Everyday Anxiety And Support 09:20 Myths About Intelligence 11:36 Simple Communication Tips 13:41 Invisible Prison Advice 16:16 Aphasia Fatigue Reality 17:47 After Therapy Ends 19:08 Recovery Expectations 21:45 AI And Future Tools 23:10 Creativity And Neuroplasticity 25:53 Closing And Resources https://www.sayaphasia.org Support the show Support the show:  Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film:  https://tipofmytonguefilm.com YouTube:    https://www.youtube.com/@tipofmytonguefilm Linkedin:    https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X:                http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org

    26 min
  2. Speak Up for Aphasia: A Global Awareness Campaign Update

    May 22

    Speak Up for Aphasia: A Global Awareness Campaign Update

    Send us Fan Mail Speak Up for Aphasia: A Global Awareness Campaign Update Guest Claire Bennington updates on fundraising for an international aphasia awareness campaign creating a suite of animated videos in multiple languages, launched worldwide with one consistent message. The Tavistock Trust for Aphasia has pledged £35,429 if matched; the campaign is at 57% (about £22,304/42,000 AUD) and aims to raise the remainder by end of June 2026, with a global launch targeted for Aphasia Awareness Month in June 2027. Partners include the Collaboration of Aphasia Trialists for native-speaker translations, champion networks, and free hosting of assets. The message emphasizes “recognize, respond and respect” and that aphasia does not affect intelligence; listeners are asked to donate, fundraise, provide support letters, and follow “Speak Up for Aphasia” on Facebook. 00:00 Welcome and Hosts 00:18 What Is Aphasia 01:24 Campaign Mission and Funding Goal 05:16 Global Partners and Translations 06:42 Public Message Recognize Respond Respect 09:03 Timeline to June 2027 Launch 11:09 How You Can Support 13:02 Wrap Up and Resources Facebook:  https://www.facebook.com/profile.php?id=61572140991752 Donate to the International Aphasia Awareness campaign: https://justgiving.com/campaign/qarc-uq-aphasia-awareness Support the show Support the show:  Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film:  https://tipofmytonguefilm.com YouTube:    https://www.youtube.com/@tipofmytonguefilm Linkedin:    https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X:                http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org

    14 min
  3. Life Beyond Aphasia: Supporting Care Partners and Building a Movement

    Mar 26

    Life Beyond Aphasia: Supporting Care Partners and Building a Movement

    Send us Fan Mail Hosts Rob Edwards and Jonathan Hirons introduce guest, Genevieve Richardson, a US speech-language pathologist, focuses on supporting “care partners,” arguing recovery improves when caregivers receive training and support to prevent burnout. They compare UK and US support systems, discussing variability in access, the role of insurance and advocacy, and the importance of in-person and online groups to combat isolation. Genevieve describes her telepractice, 12-month care partner roadmap with weekly training and live support, plus a bootcamp and membership, addressing communication strategies and practical life needs like legal and emergency planning. They discuss collaboration via new websites and resources, and share links to the film and Genevieve’s podcast and sites. 00:00 Aphasia Needs Action 00:12 Podcast Welcome and Aphasia Basics 01:09 Care Partners Matter 02:05 US vs UK Support Systems 04:20 Groups and Ongoing Resources 06:46 Genevieve Care Partner Roadmap 10:24 How the 12 Month Program Works 11:42 Community Fights Isolation 13:05 Scaling Up and The Numbers 14:16 Life Logistics and Caregiver Tools 17:50 Building a Global Movement 19:07 Aphasia Energy and The Gas Tank 20:28 New Website and Collaboration 21:52 Genevieve Podcast and Bootcamp 23:13 Wrap Up Links and Resources 24:44 Final Credits and Sign Off Genevieve's websites: https://www.dolifespeechpathology.com https://www.lifeaphasiaacademy.co Support the show Support the show:  Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film:  https://tipofmytonguefilm.com YouTube:    https://www.youtube.com/@tipofmytonguefilm Linkedin:    https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X:                http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org

    28 min
  4. Hanka Mayhew: The Multilingual Advocate for Aphasia Awareness"

    Mar 6

    Hanka Mayhew: The Multilingual Advocate for Aphasia Awareness"

    Send us Fan Mail Hanka Mayhew: A Polyglot’s Journey Through Aphasia and Advocacy Hanka Mayhew lived in Spain for 11 years with her husband and three children, speaking five languages and working as an English teacher and translator until a massive brain bleed left her with aphasia and unable to speak. After three months in hospital in Spain and three in England, she spent a year in a wheelchair relearning how to live. On the Tip of My Tongue podcast, she explains that English and German are easiest, Spanish is slowly returning with little practice, and she can understand some French and Russian but cannot speak them; she retained reading ability but reads more slowly. In February 2024 she joined the Aphasia International Association and became a Say Aphasia ambassador, traveling to assemblies and conferences across Europe and giving talks with therapist support to raise awareness and build an international aphasia community. 00:00 Life in Spain 00:22 Stroke and Aphasia 00:58 Recovery Journey 01:11 Languages After Stroke 03:09 Reading and Fatigue 03:57 Joining AIA and Speaking 05:20 Aphasia Day in Italy 05:53 Future Plans and Travel 07:36 AIA Community and Outreach 11:05 Final Reflections Support the show Support the show:  Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film:  https://tipofmytonguefilm.com YouTube:    https://www.youtube.com/@tipofmytonguefilm Linkedin:    https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X:                http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org

    13 min
  5. Finding Words: AI and Aphasia

    Feb 9

    Finding Words: AI and Aphasia

    Send us Fan Mail In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons with guest Dr. Abi Roper explore how artificial intelligence can assist people with Aphasia in finding their voices again. The discussion covers the ways AI aids in simplifying text, improving written communication, and developing speech recognition technologies. The episode features Jez Hodgkinson, who created an AI-driven app to help with word-finding and introduces Robert Baldcock, a musician using AI-based personalized voice technology. The conversation highlights both the promise and pitfalls of AI in this field, addressing issues such as AI's limitations in real-time conversations and the need for co-designing tools that are genuinely empowering for users with Aphasia. 00:00 Introduction to the Podcast 00:21 Understanding Aphasia and AI's Potential 01:03 Dr. Abi Roper on AI and Aphasia 01:42 AI's Role in Simplifying Text 02:39 Speech Recognition Challenges and Advances 04:48 Jez Hodgkinson's AI App for Word Finding 07:26 Chatbots and Human Conversation 10:41 AI's Limitations and Hallucinations 12:33 Visual Support and Multimodal Communication 14:09 Robert Baldock Personalized Synthetic Voice 17:03 Co-Designing AI Tools with People with Aphasia Support the show Support the show:  Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film:  https://tipofmytonguefilm.com YouTube:    https://www.youtube.com/@tipofmytonguefilm Linkedin:    https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X:                http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org

    19 min
  6. Bridging the Gap: AI and Aphasia with Dr. Abi Roper

    12/29/2025

    Bridging the Gap: AI and Aphasia with Dr. Abi Roper

    Send us Fan Mail In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the world of AI and its applications in treating Aphasia, a debilitating condition affecting language abilities, following brain injuries like strokes. Joining them is Dr. Abi Roper from City, St. George's University, London. Dr. Roper discusses how AI tools, like speech recognition technologies and AI-driven text simplification, benefit individuals with Aphasia by aiding communication and daily tasks. She also addresses the limitations of AI, such as its inability to fully replicate human conversational skills and the importance of verifying AI-generated information. The episode highlights ongoing research and projects aimed at harnessing AI in therapy, underscoring AI's potential to support but not replace human therapists. 00:00 Introduction to AI and Aphasia 01:18 Meet Dr. Abby Roper 01:43 AI's Role in Assisting Aphasia 03:13 Speech Recognition and Practical Uses 05:25 Challenges and Limitations of AI 27:07 The Future of AI in Therapy 30:35 Conclusion and Resources Support the show Support the show:  Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film:  https://tipofmytonguefilm.com YouTube:    https://www.youtube.com/@tipofmytonguefilm Linkedin:    https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X:                http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org

    31 min
  7. Understanding Aphasia: Personal Stories and Community Support

    12/09/2025

    Understanding Aphasia: Personal Stories and Community Support

    Send us Fan Mail In this episode, Rob Edwards and Jonathan Hirons host Chris Greenhough, a stroke survivor with aphasia who leads support groups, and Lisa Thomas, a senior speech and language therapist with the NHS. They discuss the impact of aphasia, a condition affecting the brain's language capabilities, and the importance of community support and therapy. Chris shares his journey of recovery and involvement in running aphasia support groups, while Lisa talks about the challenges and successes in creating community communication groups. They also touch on the difficulties of raising awareness about aphasia and the need for better support from businesses and transport facilities to help individuals access group sessions. 00:00 Introduction to the Podcast 00:38 Understanding Aphasia 01:16 Chris's Journey with Aphasia 01:42 Lisa's Role and Contributions 02:06 Chris's Aphasia Groups 04:58 Lisa's Connection to Say Aphasia 06:56 Challenges and Solutions in Aphasia Care 10:36 Group Activities and Social Impact 14:52 Transport Issues and Community Support 22:06 Raising Awareness and Future Goals 24:49 Conclusion and Resource https://www.sayaphasia.org/worcester Support the show Support the show:  Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film:  https://tipofmytonguefilm.com YouTube:    https://www.youtube.com/@tipofmytonguefilm Linkedin:    https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X:                http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org

    26 min
  8. AI and Aphasia: Overcoming Communication Barriers - S3 Ep 8 with Jez Hodgkinson

    10/22/2025

    AI and Aphasia: Overcoming Communication Barriers - S3 Ep 8 with Jez Hodgkinson

    Send us Fan Mail AI and Aphasia: Overcoming Communication Barriers In this episode of 'On the Tip of My Tongue' podcast, Jez shares his personal journey with Aphasia following a severe stroke in 2016. He discusses the challenges he faced in communicating and how he overcame them by starting a local Aphasia support group during the COVID-19 pandemic. Jez also delves into his long-standing interest in AI, dating back to the 1980s, and explains how AI has significantly advanced in recent years. He introduces an AI-powered app he developed to assist Aphasia sufferers in recalling words more easily. The conversation highlights the potential of AI to support individuals with communication difficulties while noting the broader implications of AI technology in society. 00:00 Introduction and Guest Background 00:15 Overcoming Aphasia: Personal Journey 01:28 Community Involvement and Support Groups 03:17 Introduction to AI and Early Experiences 05:14 Developing an AI App for Aphasia 15:41 Practical Uses of AI in Daily Life 22:27 Challenges and Future of AI 25:17 Conclusion and Final Thoughts Say Aphasia Group Winchester and Southampton  https://www.sayaphasia.org/winchester Support the show Support the show:  Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film:  https://tipofmytonguefilm.com YouTube:    https://www.youtube.com/@tipofmytonguefilm Linkedin:    https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X:                http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org

    27 min

About

Jonathan Hirons's journey following his stroke and diagnosis of aphasia is both inspiring and informative. Here’s a summary of his experience and insights about aphasia:   Jonathan's Experience with Aphasia  1. Initial Incident:  In January 2019, while in a business meeting, Jonathan began to feel strange and soon realized he could not communicate effectively. His colleagues quickly called for medical help.  2. Medical Emergency:  He was rushed to University College Hospital, where scans revealed he had suffered a stroke due to a bleed on the brain. He spent five nights in the hospital and was diagnosed with aphasia.   3. Impact on Daily Life:     - Jonathan struggled with basic tasks such as speaking, reading, and writing.    - He had memory issues, recalling only his postcode but not his full address or other personal information.    - He faced challenges in understanding spoken language but could still sign his name.  4. Support from Family:  His wife, Ann, played a crucial role in his recovery:    - She encouraged him to read aloud daily and used flashcards to aid in word recognition and writing.    - This early intervention was vital for his rehabilitation.   5. Progress Through Therapy:  With the help of speech therapy, Jonathan made significant improvements:    - He regained much of his ability to read and write, although he still experiences difficulties, especially when tired.   6. Advocacy and Awareness:     - Jonathan has turned his experiences into a creative outlet by producing films, including "On the Tip of My Tongue" and "What is Aphasia?" These films aim to educate others about aphasia and its challenges.    - He actively shares his story to raise awareness about aphasia as a hidden disability and the ongoing need for support beyond initial rehabilitation.   Understanding Aphasia  Aphasia is a language disorder that affects communication abilities, including: - Speaking: Difficulty in forming words or sentences. - Understanding: Challenges in comprehending spoken or written language. - Reading and Writing: Problems with reading text or writing coherently.   Key Takeaways  - Aphasia is often a result of brain damage, commonly from strokes, and can significantly impact daily life. - Early intervention and support are crucial for recovery. - Awareness and education about aphasia can help reduce stigma and improve support for those affected.  Jonathan's story highlights the resilience of individuals facing such challenges and the importance of community support in their recovery journey.  Copyright © 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved. This film/video/podcast is protected by copyright law. Unauthorized reproduction, distribution, or transmission of this material is prohibited.  For permissions or inquiries, please contact hello@buffalolounge.co.uk

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