Admiral Nurse Dementia Support: Patients and Families What does an Admiral Nurse do, and how can specialist dementia support help patients, carers and families? In this episode of The Right Chamber, we explore Admiral Nurse dementia support with Lydia Price, an Admiral Nurse at The Dudley Group NHS Foundation Trust. Lydia explains why dementia care involves much more than responding to a diagnosis. Instead, understanding the individual, their history and the people around them can make a significant difference to their care. How Admiral Nurse dementia support helps families A hospital admission can feel overwhelming for someone living with dementia. Unfamiliar surroundings, different routines and new faces can all add to that experience. Lydia discusses the importance of looking beyond the diagnosis and seeing the person underneath. Knowing someone’s previous career, interests, relationships and routines can provide valuable clues about their behaviour. One memorable example involves a patient who repeatedly went underneath their hospital bed. Initially, staff struggled to understand why. However, after learning more about the patient’s life, Lydia discovered that they had previously worked as a car mechanic. From the patient’s perspective, they were simply getting underneath a vehicle to fix it. Consequently, behaviour that initially seemed confusing suddenly had context and meaning. Supporting carers as well as patients Dementia also affects the people surrounding the person with the diagnosis. Caring for a loved one can become a constant responsibility, often without the breaks associated with a conventional full-time job. During the conversation, Lydia discusses the emotional pressures that families can experience. She also explores anticipatory grief, which can begin long before a person reaches the end of their life. A diagnosis may provide answers after months or years of uncertainty. However, it can also leave families wondering what comes next. Therefore, providing information, guidance and emotional support forms an important part of specialist dementia care. Seeing the person behind the diagnosis Person-centred dementia care means understanding who somebody is, rather than defining them by their condition. Throughout the episode, Lydia explains how relatives and carers can provide valuable insight into a person’s life. Their knowledge can help healthcare professionals understand changes in behaviour, communication and individual needs. Importantly, this approach encourages staff to ask a different question. Rather than simply asking what a patient is doing, healthcare professionals can consider why they may be doing it. That change in perspective can support compassionate, individualised care. Dementia care during a hospital stay Around one in four patients in the hospital have a formal diagnosis of dementia, according to the figure Lydia discusses during the episode. As a result, dementia awareness has relevance across many areas of hospital care. Lydia explains how an Admiral Nurse can work alongside patients, relatives, carers and the wider multidisciplinary team. Support may include helping families understand what is happening, identifying unmet needs and providing practical guidance. Furthermore, that support does not necessarily end when someone leaves hospital. Families may still need reassurance, information and help navigating the next stage of their journey. “The journey — you’re not on your own” Ultimately, Lydia wants families to feel less fearful of dementia and more confident about seeking support. Dementia can bring uncertainty for patients and the people who care for them. Nevertheless, specialist advice, compassionate care and a better understanding of the individual can help families navigate what lies ahead. Her message is simple: you do not have to make that journey alone. Listen to this episode of The Right Chamber to discover more about Admiral Nurses, person-centred dementia care and the support available to patients, carers and families. Spotify: https://open.spotify.com/show/6BMxswWTqa82B27ZAxJZcj?si=f773c28d0b3a4a8c Apple Podcasts: https://podcasts.apple.com/gb/podcast/the-right-chamber/id1754140706 Amazon Music: https://music.amazon.co.uk/podcasts/cfabe121-fc4c-4cc4-a4cd-423750cb1a85/the-right-chamber If you enjoyed this episode, please like, comment, share, and subscribe for more real stories from inside the NHS. Follow us: Instagram: https://www.instagram.com/rgucms/ TikTok: https://www.tiktok.com/@rgucms Also subscribe for exclusive content and updates. https://www.youtube.com/@TheRightChamberPodcast —————— Produced by the RGUC Digital Media Team – https://iclinical.co.uk/digital-media-links Music credit: Kalte Ohren (septahelix remix) by septahelix (c) copyright 2019 Licensed under a Creative Commons Attribution (3.0) license. http://dig.ccmixter.org/files/septahelix/59527 Ft: starfrosch