Still Here: A Podcast From The Sick Times

The Sick Times
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  • UPDATED WEEKLY

Every week, co-hosts Miles Griffis and Betsy Ladyzhets talk with podcast producer James Salanga about the latest COVID-19 numbers, and Long COVID news, commentary, and research. No pandemic minimizing, gaslighting, or denial here! Still Here is an abridged version of The Sick Times’ newsletter, which publishes weekly. The Sick Times is a nonprofit newsroom chronicling the ongoing Long COVID crisis.

  1. 09/18/2025

    9/18/25: Recap of 2025 NIH RECOVER-Treating Long COVID workshop

    In this episode of Still Here, the finale of our season 1 ends the way it started, with a recap of the latest RECOVER-TLC workshop. The transcript for this episode can be ⁠⁠⁠⁠found on our website⁠⁠⁠⁠, or jump to a specific part of the podcast below: (00:00:00) ⁠⁠Intro⁠⁠ (00:01:30) ⁠⁠Recap of 2025 RECOVER-TLC workshop (00:28:00) ⁠Outro⁠ - Mentioned in this episode (in order of appearance): The Sick Times: Live blog: RECOVER-TLC workshop on new Long COVID clinical trialsRECOVER-TLC announces new Long COVID clinical trials, receives mixed reactions from patient communityLive blog: Following the RECOVER-Treating Long COVID kickoff eventWhy are there almost no clinical trials for kids with Long COVID?Additional audio in this episode:  Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece)

    29 min

  2. 09/18/2025

    Interview: Epidemiologist Caitlin Rivers on interpreting COVID-19, other disease data

    In this 2-way episode of Still Here: Co-host Betsy Ladyzhets interviews Caitlin Rivers, an epidemiologist at Johns Hopkins University’s Bloomberg School of Public Health and author of the popular newsletter, Force of Infection, as well as the book Crisis Averted: The Hidden Science of Fighting Outbreaks. Rivers discussed which data sources she relies on for her trend updates, interpreting data for day-to-day decisions, questions she still has about COVID-19 patterns, how the Centers for Disease Control and Prevention (CDC)’s data pages could better acknowledge Long COVID, ongoing bird flu concerns, and more. The transcript of this Q&A is available ⁠⁠⁠on The Sick Times' website⁠⁠⁠. - Mentioned in this episode (in order of appearance): The Sick Times: Q&A: Caitlin RiversAdditional audio in this episode:  Rude Mechanical Orchestra: ⁠⁠Which Side Are You On?⁠⁠ (orig. Florence Reece)

    23 min

  3. 09/06/2025

    Interview: Salvatore Mattera on the Help for Long COVID review site, a "community Yelp" for Long COVID care

    In this 2-way episode of Still Here: In spring 2025, Salvatore and Stephanie Mattera launched the new site Help for Long COVID, inspired by Salvatore’s challenges finding healthcare after he developed the disease. Salvatore talks with podcast co-host Betsy Ladyzhets about how the project — which he describes as a community Wikipedia-type database — came about, feedback they’ve received so far, his advice for people with Long COVID seeking healthcare, and more. The transcript of this Q&A is available ⁠⁠on The Sick Times' website⁠⁠. - Mentioned in this episode (in order of appearance): Help for Long COVIDThe Sick Times: Priced out: Some Long COVID and ME specialists charge high prices for concierge careAdditional audio in this episode:  Rude Mechanical Orchestra: ⁠Which Side Are You On?⁠ (orig. Florence Reece)

    19 min

  4. 08/22/2025

    8/22/25: Recapping the 2nd Keystone Symposia on Long COVID

    In this episode of Still Here: A two-way between Miles Griffis and Betsy Ladyzhets comparing and contrasting Long COVID and ME clinical trial designs for drugs targeting immune dysregulation and viral persistence. The transcript for this episode can be ⁠⁠⁠found on our website⁠⁠⁠, or jump to a specific part of the podcast below: (00:00:00) ⁠Intro⁠ (00:01:36) ⁠Recap of 2nd Keystone Symposia on Long COVID⁠ (00:20:33) Research (00:22:48) Outro - Mentioned in this episode: The Sick Times: “The field is coming of age”: Long COVID researchers gather in Santa Fe to foster collaborationThe Sick Times: “A morale boost”: Looking ahead to the 2025 Keystone Symposia Long COVID conference with Hannah DavisThe Sick Times: No “easy home runs”: Early Long COVID trials of Paxlovid and monoclonal antibodies failed, but the treatments still have potentialThe Sick Times: Three clinical trials for Long COVID are testing JAK inhibitors to treat immune dysregulationThe Sick Times: Research updates, August 19The Sick Times: Covid-19 reinfections are further disabling people with Long CovidAdditional audio in this episode:  Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece) Youtube: Keystone Symposia 2025 closing remarks

    24 min

  5. 08/19/2025

    8/19/25: Long COVID clinical trials addressing viral persistence, immune dysfunction

    In this episode of Still Here: A two-way between Miles Griffis and Betsy Ladyzhets comparing and contrasting Long COVID and ME clinical trial designs for drugs targeting immune dysregulation and viral persistence. The transcript for this episode can be ⁠⁠⁠found on our website⁠⁠⁠, or jump to a specific part of the podcast below: (00:00:00) Intro (00:01:05) 2-way: Long COVID clinical trial design for JAK inhibitors, drugs targeting viral persistence (00:28:37) Outro - Mentioned in this episode (in order of appearance): The Sick Times: Three clinical trials for Long COVID are testing JAK inhibitors to treat immune dysregulationThe Sick Times: No “easy home runs”: Early Long COVID trials of Paxlovid and monoclonal antibodies failed, but the treatments still have potentialThe Sick Times: Research updates, July 8The Sick Times: Invivyd Chairman Marc Elia: The bureaucracy is killing people with Long COVIDStill Here: February 25: Links and transcriptAdditional audio in this episode:  Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece)

    29 min

  6. 08/12/2025

    8/11/25: Looking at the BC 007 and rapamycin Long COVID and ME clinical trials

    In this episode of Still Here: A two-way between Felicity Nelson and Betsy Ladyzhets comparing and contrasting the BC 007 and rapamycin Long COVID and ME clinical trial designs. The transcript for this episode can be ⁠⁠found on our website⁠⁠, or jump to a specific part of the podcast below: (00:00:00) Intro (00:01:15) 2-way: Long COVID clinical trial design, BC 007 and rapamycin (00:27:47) Outro - Mentioned in this episode (in order of appearance): The Sick Times: Clinical trials are testing cancer drug rapamycin for Long COVID and METhe Sick Times: Berlin Cures’ failed Long COVID clinical trial yields lessons on study designResearch Square: Simmaron preprint on low-dose rapamycin clinical trialmedRxiv: Erlangan preprint on BC 007 clinical trialThe Sick Times: How volunteering to be a lab rat paid offAdditional audio in this episode:  Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece)

    29 min

  7. 08/06/2025

    8/6/25: Recapping the Patient-Led Research Fund summer 2025 webinar

    In this episode of Still Here: The Sick Times' team recaps the Patient-Led Research Fund summer 2025 webinar. Plus, an update about the National Institutes of Health's RECOVER-Treating Long COVID initiative. The transcript for this episode can be ⁠found on our website⁠, or jump to a specific part of the podcast below: (00:00:00) Intro (00:01:25) Recapping the PLRF summer '25 webinar (00:19:17) Research: RECOVER-TLC announces hybrid workshop (00:21:41) Outro - Mentioned in this episode (in order of appearance): The Sick Times: Live blog: Following the Patient-Led Research Fund summer 2025 webinarThe Sick Times: Lisa McCorkell reflects on five years of Long COVID research, and leaving PLRCThe Sick Times: Live blog: Following the Spring 2025 PolyBio Symposium on Long COVID and related diseasesThe SIck Times: This surgery fuses people’s skulls to their spines to treat a condition overlapping with myalgic encephalomyelitisPatient-Led Research ScorecardsThe Sick Times: Research updates, July 15The Sick Times: Live blog: Following the RECOVER-Treating Long COVID kickoff eventAdditional audio in this episode:  Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece)

    22 min

  8. 07/24/2025

    7/24/25: New "concerning", "contradictory" Canadian Long COVID guidelines

    In this episode of Still Here: Contributing writer Simon Spichak discusses what experts say are Canada's "contradictory" and "concerning" latest guidelines for Long COVID, the CAN-PCC. Plus, in research, we talk about a new study group to test the monoclonal antibody Pemgarda for Long COVID and post-vaccine syndrome, as well as a new study from Taiwan that found 14% of children developed Long COVID after being infected with SARS-CoV-2. And we share updates on our summer fundraiser, too. The transcript for this episode can be found on our website, or jump to a specific part of the podcast below: (00:00:00) Intro (00:01:55) Top story: Behind the new "concerning", "contradictory" Canadian guidelines on Long COVID (00:19:38) Research (00:23:53) Updates on our summer fundraiser (00:26:44) Outro - Mentioned in this episode (in order of appearance): The Sick Times: Experts call new Canadian Long COVID guidelines “contradictory” and “deeply concerning”Canadian Guidelines for Post-COVID-19 Condition (CAN-PCC)The Sick Times: Research updates, July 8The Sick Times: Frustrations, Denials, Long Drives: Immunocompromised People Can’t Access a Lifesaving COVID-19 DrugThe Sick Times: Invivyd Chairman Marc Elia: The bureaucracy is killing people with Long COVIDThe Sick Times: Summer fundraiser: Help keep our essential work going into 2026Additional audio in this episode:  Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece)

    28 min
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Every week, co-hosts Miles Griffis and Betsy Ladyzhets talk with podcast producer James Salanga about the latest COVID-19 numbers, and Long COVID news, commentary, and research. No pandemic minimizing, gaslighting, or denial here! Still Here is an abridged version of The Sick Times’ newsletter, which publishes weekly. The Sick Times is a nonprofit newsroom chronicling the ongoing Long COVID crisis.

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