Podcasts By Dr. Kirk Adams

Dr. Kirk Adams, PhD

Podcasts By Dr. Kirk Adams is a compelling podcast series that brings listeners into the world of accessibility, leadership, and social change through the lens of one of the most influential voices in blindness advocacy. Dr. Kirk Adams, former President and CEO of the American Foundation for the Blind and a lifelong champion for the rights of people with visual impairments, hosts this insightful and inspiring program.

  1. Aug 11

    Podcasts By Dr. Kirk Adams: Interview with Jeremy Grandstaff, Executive Director, The Inspiration Foundation

    🎙️ Podcasts By Dr. Kirk Adams: Interview with Jeremy Grandstaff, Executive Director, The Inspiration Foundation https://drkirkadams.com/podcasts-by-dr-kirk-adams-08-11-2026/ In this candid episode of Podcasts by Dr. Kirk Adams, Kirk welcomes Jeremy Grandstaff, six months into a newly created role as executive director of the Inspiration Foundation, the nonprofit founded by Cleanlogic co-CEO Isaac Shapiro in honour of his blind mother, Bea. Kirk, who introduced the two, traces their friendship from a bench at a National Federation of the Blind conference through Jeremy's consulting work at the American Foundation for the Blind. Jeremy tells his own story: a county assessor who advised institutionalising him at age two and the father who gave the man two minutes to leave the property; school for the blind through fifth grade; a 12-year-old cold-calling publishers for accessible books in 1988; Bowling Green State University, IBM, and a master's in organization development. He is frank about two employers who told him he would never be as competent as a sighted person, and that he could always "just go on disability", the moment that made him say yes to this job. The conversation then turns practical. Jeremy lays out the Foundation's two-sided strategy, grants that strengthen the pipeline of candidates, and the emerging Inspiration Seal that builds a pipeline of employers ready to hire and promote them, alongside a goal of raising the disability employment rate by 10% in five years. Kirk raises the contested ground of disability simulation, recalling the "hand grenade" a proposed dining-in-the-dark event threw into an AFB staff meeting and the research that resolved it, and Jeremy explains how the Foundation has rebuilt the format as a Dining in the Dark and Executive Roundtable with education on both sides of the meal. They close on executive presence, Jeremy insisting on walking to the podium with his cane rather than being escorted, because the walk is the argument. TRANSCRIPT: Podcast Commentator: Welcome to Podcasts by Dr. Kirk Adams, where we bring you powerful conversations with leading voices in disability rights, employment, and inclusion. Our guests share their expertise, experiences, and strategies to inspire action and create a more inclusive world. If you're passionate about social justice or want to make a difference, you're in the right place. Let's dive in with your host, Dr. Kirk Adams. Dr. Kirk Adams: And welcome, everybody, to another episode of the cleverly titled Podcasts by Dr. Kirk Adams. I am Dr. Kirk Adams, talking to you from my home office in sunny, breezy Seattle, Washington, on a beautiful summer's day. And today my guest is a dear — I'll say a dear friend, and becoming a long-time colleague. Jeremy Grandstaff. Hi, Jeremy. Jeremy Grandstaff: Well, hi, Kirk. That was a beautiful introduction. I hope that you're having better weather in Seattle than the melting pot that is D.C., where I live, with humidity. But thank you so much for having me on. It's really good to be with you. And I absolutely would consider you a long-time friend and colleague as well. So I'm honored by that. Dr. Kirk Adams: Wonderful. Well, Jeremy stepped into a new and exciting role about six months ago. He is executive director of the Inspiration Foundation. And Jeremy, when we did most of our work together, it was in that sticky melting pot of Arlington, Virginia. And it is August, and I do not miss living there one single bit. I bet it's 76, no humidity, and a breeze here in Seattle today. So in any case, I met Jeremy at a National Federation of the Blind conference when I was fairly new in my role as president and CEO of the American Foundation for the Blind — my great honor to have an opportunity to lead that fine organization, Helen Keller's organization. And Jeremy and I sat on a bench together, and he talked to me about the consulting work he did, the organizational development work that he greatly enjoyed. Asked me to consider bringing him on as a resource should I need [unclear 00:02:32] strategic planning, executive coaching help. And I did engage Jeremy, and we accomplished some wonderful things together. And fast-forwarding, four years ago I left the American Foundation for the Blind. Jeremy and I have kept in good cadence of contact. And I had the opportunity to introduce him to a gentleman named Isaac Shapiro. Isaac is a partner in a company called Cleanlogic, which Jeremy can tell us more about. But Isaac's an excited dude. His mom is blind. He grew up with a blind mother, and he is an entrepreneurial cat. He started a company importing body care products with a distribution center near Philadelphia. And last I knew, he employed over 30 blind individuals in that warehouse and distribution setting. He's onshoring his manufacturing from China, has a goal of hiring 90 more people with disabilities. So he is one of those people who is out there doing things and not just talking about supercharging your bottom line through disability inclusion, but actually doing it — hiring people with disabilities and changing lives. And in honor and inspiration from his mother, he created the Inspiration Foundation. And I've been involved for several years with the foundation, in that they give grants to nonprofits in the blindness field who traditionally have been members of an organization called VisionServe Alliance. But in any case, they're nonprofits serving people who are blind. And Isaac and I share a passion for creating employment opportunities for people who are blind. So his grantmaking has focused around supporting the use of technology by these nonprofits in supporting their employment-driven programs. So we have lots of intersections in life. Isaac came to see me maybe in the first month or two when I was at the American Foundation for the Blind, came to the New York offices. He'd had a history with AFB previously, introduced himself, gave me some of his products with Braille labeling, which of course warmed my heart toward Isaac. Anyone who hands me a consumer product with Braille on it gets a star in their chart with me. And then we've also kept in touch, as I said. I've been a little bit involved in supporting the foundation by being on the grant review committee. And then when I see where two and two can make five or more, I love to make those connections. So when Isaac was seeking an executive director, I was pleased to suggest that he talk to Jeremy Grandstaff and consider him for that role. And so here we are. I'm pretty much done talking now. I would like, Jeremy, if you could talk to us a little bit about your lived experience with blindness, why this work is so meaningful to you, where the organization was at when you stepped into your leadership role. And it's a newly created role, too, so you have a wonderful lifetime opportunity to shape your own role, which is cool. And where — as our mutual dear friend Sean Callagy would say, from UNBLINDED — he would say: where have you been? Where are you now? Where are you going? What's working for you? What are your challenges? So there you have it. Jeremy Grandstaff: Well, what a tee-up. First of all, thank you for that, Kirk. As I said before, it's really an honor to be with you. I have admired your work. Actually, you didn't know this, but back when you worked for the Lighthouses, I was kind of following you there. And then you went into AFB, and I thought, here's my chance, right, to build a relationship with you. So it's been really exciting. I think we've known each other for maybe seven or eight years now. So, yeah, very good to know you. I'll start with me, right, and kind of talking about some of my lived experience. I grew up in a little town called Marengo, Ohio. I was the first of four kids. Three of us cannot see; the other, my sister, can. And when I was first born — I think I was like two years old — my parents were told they needed someone from the county to come out and assess me. And so that person came out, Kirk, at the age of two, and told my parents that I would probably be best served by being put into an institution. And I'm so fortunate that my father — God rest his soul, he just died four months ago — the way the story was told to me, he basically gave them two minutes to get off his property and never come back. Right? You gotta kind of love that. And so there was this attitude that my parents had that was: nothing is off limits. You're going to have to figure out how to do it. No is never an answer that is acceptable, and we'll give you feedback, but you're going to have to solve your own problems. And what I find fascinating about that is that's exactly what we want to see from our workforce, right? Is that they are problem solving and that they are bringing ingenuity and creative problem solving into any teams that we develop. And so I didn't know that at the time, right, that I was being taught those skills. I remember getting very frustrated one time and slamming down a pitchfork because I didn't — you know, like my dad telling me, figure it out. And I distinctly remember him saying, well, you can keep slamming that pitchfork down and make me have to buy another one, or you can figure out how to solve the problem. Right? And so I was the first to come back to my school. At the time they called it mainstreaming; I think they call it integrated schooling now. Dr. Kirk Adams: So did you go to school for blind children or not? Jeremy Grandstaff: So I went to the school for the blind until I was in fifth grade. Dr. Kirk Adams: Fifth. Okay. Jeremy Grandstaff: Yep. I even had a teacher — never forget you, Mrs. Murphy — who said I'd never make it in a public school. Sent her a graduation card, by the way, when I graduated. But I came back up to public school, and I remember being in sixth grade and coming home from school on the bus and calling up the publishing companies because I d

  2. Aug 6

    Podcasts By Dr. Kirk Adams: Interview with Mindy Kolin, Director of Development & Industry Partnerships at Teach Access, and Kate Sonka, Executive Director

    🎙️ Podcasts By Dr. Kirk Adams: Interview with Mindy Kolin, Director of Development & Industry Partnerships at Teach Access, and Kate Sonka, Executive Director https://drkirkadams.com/podcasts-by-dr-kirk-adams-08-06-2026/ In this warm anniversary episode of Podcasts by Dr. Kirk Adams, Kirk opens from a smoke-covered Seattle with wishes for friends in eastern Washington, then welcomes Kate Sonka, executive director of Teach Access, and Mindy Kolin, who leads its fundraising, partnerships and communications. Kirk traces his own first encounter with the organization: a visit to Yahoo's accessibility team early in his AFB tenure, where Darren Burton and Mike Shebanek showed him a whiteboard tally of how many incoming computer science graduates had ever heard of accessibility, a lopsided count that became the case for Teach Access. Kate, who grew up at the Wisconsin School for the Blind where both her parents taught, recounts the April 2016 kickoff at Yahoo with Shebanek, Larry Goldberg and Jeff Wieland; Mindy recalls starting her career at the New York employment agency Eleanor Roosevelt and Orin Lehman founded, and finding Teach Access on Indeed 25 years later. The heart of the conversation is strategy. Teach Access concentrates on educators rather than students directly, the multiplier being that one trained faculty member reaches 50 to 100 students a semester, and on "small teaching": folding accessibility into classes people already teach rather than fighting the years-long approval path for a new course. Kate walks through the Fellowship, the four-week Summer Institute, and the openly licensed Curriculum Repository; Mindy reports the headline result, a goal set in 2020 to reach 1 million students by 2030 that passed 1.5 million in 2025, five years early. They close on funding, on contract work with industry partners that keeps educator resources free, and on Teach Access Europe, where enforcement of the European Accessibility Act has made this a promising moment to expand. TRANSCRIPT: Podcast Commentator: Welcome to Podcasts by Dr. Kirk Adams, where we bring you powerful conversations with leading voices in disability rights, employment, and inclusion. Our guests share their expertise, experiences, and strategies to inspire action and create a more inclusive world. If you're passionate about social justice or want to make a difference, you're in the right place. Let's dive in with your host, Dr. Kirk Adams. Dr. Kirk Adams: Welcome, everybody, to another episode of Podcasts by Dr. Kirk Adams. I am that Dr. Kirk Adams, talking to you from smoky Seattle, Washington. Our heartfelt wishes for strength and safety go out to our friends east of the mountains in eastern Washington, the Spokane area particularly hit hard. I have spent a lot of time in Spokane, as we established the Inland Northwest Lighthouse for the Blind and [unclear 00:01:07] about 50 blind people in that community. So our thoughts and prayers to folks in eastern Washington. Today on the podcast, we have Kate Sonka and Mindy Kolin, and they are with a forward-thinking, impactful organization that I love called Teach Access. So hello, Kate. Hello, Mindy. Kate Sonka: Hi, Kirk. Good to be here. Mindy Kolin: Hi, Kirk. Thanks for having us. Dr. Kirk Adams: Yeah. So my little history with Teach Access — which Kate and Mindy will tell you more — but my understanding is that it encourages universities to include accessibility in their core curriculum for computer science programs. And when I first was hired to be president and CEO of the American Foundation for the Blind, when I stepped out of that same role here at the Lighthouse in Seattle to New York City, and after a couple of months getting oriented, turning over all the jigsaw puzzle pieces, took a trip to the Bay Area, because AFB had such great partnerships with the good people at Google and Apple and Genentech and Yahoo. And I went to visit Yahoo, and a former AFB employee, a blind gentleman named Darren Burton, was working there in our accessibility department. And I spent a couple hours with their team. And Mike Shebanek was there at that time. And they told me about a tally board. They had a whiteboard in their conference room. And when Yahoo was hiring new engineers, interviewing with the accessibility team was part of the interview process, and they kept a tally of how many of the young computer science graduates they were sent to interview — how many of them knew about accessibility and how many did not. And I can't quote the numbers exactly, but it was something like 764 had never heard of accessibility, didn't know what it was, and 27 at least knew what it was. So that's when Mike told me about Teach Access, and the long-term systems change model to bring accessibility into the mainstream of computer science curriculums, and to generate a whole new pipeline of people who would be working on technology for the good of all, who understood accessibility and could bake it in from the beginning. Shortly thereafter, I met Kate at one of the many, many blindness-related conferences where we crossed paths. And recently I was very pleased to receive an invitation in the mail to join Kate and some of her team at a dinner here in Seattle with some other leaders in accessibility and disability in the community. So we reconnected. She gave us some very exciting updates, said more people need to know about this. So how about come on the podcast? So here we are, and I am grateful for what Teach Access is doing. I'm very impressed with the intentional, very strategic way you're going about things. So I'd really love to hand it over to you, Kate, you, Mindy, to hear the story of how you got involved, the steps that have been taken so far, where the organization is at, where do you see things going? Kate Sonka: Yeah, this is Kate. Thank you so much, Kirk. I really actually really love that whiteboard story. I've never heard that specific story, so I'm excited to kind of add that to my repertoire of stories, to kind of talk about our origins, which I'll share in a moment. But just want to thank you, the team, for having us on the pod today, and being able to share about our work for your audience. So thank you to everyone who's listening in. So I'll do a really quick just who I am and where I've come from, and then Mindy as well, and then we'll get into the work that we do. So, my name again, Kate Sonka, I'm the executive director here at Teach Access. You know, I could spend a long time talking about my winding backstory, but I won't. I want to be able to talk about our organization. But one of the things — you know, sometimes the universe has a good sense of humor, right? And so growing up, my parents were both educators at the Wisconsin School for the Blind. And so as I grew up, that was the family business, right? So my mom was an orientation and mobility instructor, and my dad was a teacher for physical education, and he taught and coached all of the sports there. And I think, Kirk, you maybe crossed paths with some of the folks from that school too over the years. Is that right? Dr. Kirk Adams: Yes, absolutely. Kate Sonka: Yeah. So, you know, at the time it was wonderful. It gave me great insight into what is inclusive education, what does that look like, and what sorts of learning environments are we creating for students and teachers, and how do we do that? Of course, as a child I wasn't really thinking about it that way. It was more, yay, it's my birthday and my dad's going to let me have my birthday party, you know, in the gym or the swimming pool or something like that. But gave me a really good grounding in that work. And then over time, you know, my background is actually in linguistics and language acquisition, and for a time was really intentional, or thought I would be working with language learners in the classroom at the higher education level. And then through a series of things ended up working at a couple of different universities in the academic technology offices. And so really looking at, what is the tech that faculty are using for teaching? And of course, how is that accessible? Is the technology accessible? And more importantly, are the materials and some of the teaching practices or pedagogy accessible for disabled students in the class, and really thinking about what that looks like. So I didn't necessarily enter accessibility thinking, yes, this is what my parents did, this is what I'm going to do. It was sort of a windy path, and all of a sudden — I guess it's been more 12-ish years now — everything kind of came together and it made sense. I'm here for inclusive teaching and learning, whether that is about disability and accessibility, whether that's about language learners in our classrooms. And what is it that faculty and educators need to be able to create these environments? And so that's kind of the backstory. But ultimately, through my work at Michigan State University, working in the academic tech office in one of the colleges there, started to hear about Teach Access. And this was ten years ago, where it's now 2026, which is our 10th anniversary year. And I'll talk a little bit more about who we are and what that looks like, but I'll turn it to Mindy so she can introduce herself as well. Dr. Kirk Adams: Great. Mindy Kolin: Hi. Yeah. Thanks so much, Kate. This is Mindy speaking. So nice to be here, Kirk. I have been with Teach Access for four years now, and I've spent the better part of 30 years in the nonprofit sector. Well, my very first job out of college was working for an employment agency for people with disabilities that was based in New York City, that was founded by Eleanor Roosevelt, Orin Lehman, and a bunch of other really cool people. It no longer exists. But as Kate mentioned, the universe — you know, 25 years later, I was looking for a job, and on Indeed I saw this job description for an organization called Teach Access,

  3. Jul 8

    Podcasts By Dr. Kirk Adams: Interview with Daria Marmer, Founder, Cookie Voice Recipes

    🎙️ Podcasts By Dr. Kirk Adams: Interview with Daria Marmer, Founder, Cookie Voice Recipes https://drkirkadams.com/podcasts-by-dr-kirk-adams-07-08-2026/ In this warm episode of Podcasts by Dr. Kirk Adams, Kirk, a lifelong, enthusiastic blind cook, talks with Daria Marmer, founder of Cookie Voice Recipes, a hands-free, voice-first cooking app built with blind and low-vision cooks in mind. A product manager and Cordon Bleu-trained cook, Daria explains how the app began as a fix for her own annoyance, dirty hands, no way to check the recipe, and, after she showed a prototype to the Carroll Center for the Blind in Newton, Massachusetts, became something far bigger. She built it herself using AI coding tools (Codex and Claude). Users pull any recipe into a clean, ad-free view and simply ask "Cookie" questions out loud, how much sugar, read the ingredients, what's step three, even "I ran out of sour cream, what can I use instead?", with AI answers grounded in the actual recipe. Kirk, who brailles out recipes on a Perkins Brailler and clips Braille pages from Cook's Illustrated, connects the app to two audiences: older people losing vision to conditions like diabetic retinopathy, and young blind people setting up their first kitchens. Daria shares favorite feedback (a woman who no longer has to eat Stouffer's every night), the roadmap (Android next; partner-provided recipes for people brand-new to blind cooking, via the Carroll Center), pricing (a free tier plus a $3.99/month or $30/year AI tier), and where to find it, the App Store (iOS), chef@cookievoicerecipes.com, and @cookievoiceapp on Instagram. Kirk asks her back in six months. TRANSCRIPT: Podcast Commentator: Welcome to Podcasts by Dr. Kirk Adams, where we bring you powerful conversations with leading voices in disability rights, employment, and inclusion. Our guests share their expertise, experiences, and strategies to inspire action and create a more inclusive world. If you're passionate about social justice or want to make a difference, you're in the right place. Let's dive in with your host, Dr. Kirk Adams. Dr. Kirk Adams: Hello, everybody, and welcome to another episode of Podcasts by Dr. Kirk Adams. I am that Dr. Kirk Adams, talking to you from my home office in Seattle, Washington. And today I have a guest that I share a passion with, and that is for cooking and eating. And today I have Daria Marmer, who is founder of Cookie Voice Recipes. Hi, Daria. Daria Marmer: Hi. How are you? Dr. Kirk Adams: I'm very, very well. I'm very excited to talk about your project — the app that helps people who are blind and visually impaired cook efficiently and happily and seamlessly in their kitchens. I cook a lot. I'm a Braille reader. I have a notebook full of recipes that I brailled out on a Perkins Brailler. I have Braille pages cut out of Cook's Illustrated and Better Homes and Gardens magazines, which I get in Braille free from the National Library Service. And it's a big, untidy mess. And as I search through recipes and don't have them well organized, the favorites are all covered with remnants of cooking. So I'm very excited to start using the app. For those of you who don't know me, I am a blind person. My retina is detached. When I was five years old, I went to a school for blind children for second and third grade — learned my Braille skills, blindness skills: reading, writing Braille, using the long white cane, typing on a typewriter, so I could go to public school when I was ready, which was fourth grade, when I was nine. I'm the oldest of three siblings. When we turned ten, my mom told us we were responsible for making dinner for the family one night per week, and she would help us understand what we wanted to cook, and get the ingredients, and help us cook it. So I've been in the kitchen as a totally blind person for a long time. I will throw my brother under the bus to say that he made hot dogs and baked beans out of the can every week — he did not vary his menus. I was much more adventurous, and I cook a lot. My wife and I love, love to enjoy good food together. And I met Daria, and when I found out about your project — just so exciting. Want to share it with everybody who either loves to be in the kitchen as a blind person, or would like to be. And, Daria, I'm just going to turn it over to you and just ask you: where did the idea come from? What was the genesis? How have you developed it? Where is the app at today? And where do you see things going? So I'll hand you the talking stick. I'll reserve the right as host to pop in with random questions as they occur to me. So, it's all you. Daria Marmer: Thanks, Kirk. So, I come at this from the cooking and tech side of things. I went to culinary school a long, long, long time ago, and then have had a really wonderful career in technology. And a couple months ago I had this problem, which is: I would hate reaching for my cell phone when I was cooking, because my hands were all dirty. And so I would ask my family in the kitchen just to tell me what the next step was in the recipe, or how much of a certain ingredient I needed. Because the way recipes are written, they say 'add the sugar,' 'add the flour,' 'add the salt.' And then you're like, well, can you remind me how much sugar was that? So I used to ask my family those questions when I was cooking in the kitchen, and I realized, hey, why don't I solve this problem for myself? I prototyped a quick app on my laptop, and that was kind of going to be the end of it, until I had this thought, and I said, wait — not looking at my phone, that's kind of an annoyance for me. I am sighted. But for people who are blind and visually impaired, this could be a real game-changer. And so then I started doing a lot of research. I partnered with the Carroll Center in Newton, Massachusetts, and kind of showed them the prototype, and I said, hey, is this— would this be interesting? Should I go forward with this? And they were like, oh my gosh, yes, absolutely. And it was born. Dr. Kirk Adams: So, I was the president and CEO of the American Foundation for the Blind, which was Helen Keller's organization. It was an honor to have the opportunity to lead the organization. But we're pretty publicly known, so I got contacted so often by big-hearted, lovely, well-intended sighted people who thought they had come up with a great solution to make the lives of blind people easier, without ever talking to a blind person, getting any feedback. And oftentimes it was, 'That's already a free app,' 'That's already taken care of,' or, 'We don't really need that.' So I just wanted to highlight the fact that you contacted a very reputable organization — the Carroll Center for the Blind, named for Father Carroll, in Newton, Massachusetts — and you got feedback, you got input. So, hats off to you on that. Daria Marmer: Yeah. I mean, it was so interesting. In my life, I've gone to hundreds of cooking classes now. And, as part of developing this app, I went to a cooking class that was specifically for people who had lost their vision. And I had never done a blind cooking class before. And it was really interesting and fascinating — just, I got to see firsthand some of the challenges that were involved in that. Because, you know, you have a Braille recipe next to you, you're completely dirty, you're going to completely mess that page up, it's going to become hard to read. So, for all of the reasons, I thought, this is really interesting. And then, yes, the teacher of that class saw the prototype, and she said, 'Yes, we should definitely— this app should exist.' And then that's when I said, okay, cool, I'll build it. Dr. Kirk Adams: Nice, nice. So, do you have the technical skills? Did you develop it yourself, or did you bring in app developers? Or what is the process of having an idea and doing something on your laptop, and then now it's an app that we can download on our phones? Daria Marmer: Yeah. So, I am a product manager by training. And so that means that I've been building software with the help of engineers for many years now. But I didn't really do a lot by myself — I didn't code a lot by myself. And recently, in the whole universe, this idea of vibe coding and AI agentic coding has come up, and I decided that I was going to do it myself and really use those tools to get this product out the door. And I've been proudly using both Codex and Claude to make this a reality. And I have done it myself. Dr. Kirk Adams: Amazing. And so, tell us about the app. What's the user experience like? What can I accomplish in the kitchen using it? Daria Marmer: Sure. So, the first thing that I have to dispel — people are like, 'I don't want to just cook cookies.' Yes, I know. This is not an app— just a cookbook. This is not a bunch of cookie recipes. Okay? So the idea is, you can pull basically any recipe that you have into the app. You can do that through our share extension, you can do that through copy-pasting the text, you can do that by finding the URL and then putting in the URL, or using the baked-in search that is in the app already — selecting the recipe that you want, and then it'll pull it into a really nice recipe view. And in this recipe view, you've gotten rid of all of the ads and junk that often clutter recipe pages. So it's really, really simple. So that's just the first thing that is amazing about it. And then, once you have that, then you can start asking any questions that you want, out loud. And you can say, 'Cookie, how much sugar do I need?' 'Cookie, read me all of the ingredients.' Or, 'Cookie, what's step three?' And it will give you answers based on everything that's in the recipe. And one of the things that I think is really cool is, you can actually stretch it further, and you can say, 'Cookie, I just ran out of sour cream. What can I use instead?' And it will send that to AI and get an answer that is based on the recipe that you

  4. Jul 7

    Podcasts By Dr. Kirk Adams: Interview with Brandy Schantz, Author, Living Chronic

    🎙️ Podcasts By Dr. Kirk Adams: Interview with Brandy Schantz, Author, Living Chronic https://drkirkadams.com/podcasts-by-dr-kirk-adams-07-07-2026/ In this candid episode of Podcasts by Dr. Kirk Adams, Kirk welcomes back Brandy Schantz, possibly the show's very first guest, to talk about her forthcoming book, Living Chronic: Conversations That Changed Me, Lessons That Saved Me (Koehler Books, out August 24, 2026). A former U.S. Army intelligence officer turned consultant, Brandy recounts how a severe case of Crohn's disease, and then drug-induced lupus from the Humira treating it, cascaded into generalized dysautonomia (small fiber neuropathy, POTS, orthostatic hypotension) that cost her the ability to walk and, for a time, her identity as a lifelong athlete. She describes years of self-advocacy, cold-calling studies, reading medical journals, learning that the medical system rarely delivers a quick diagnosis, and how launching her Living Chronic podcast turned her guests' hard-won lessons into a lifeline. The book distills those lessons, each chapter built around a podcast conversation: "there is no Superman," you have to be the architect of your own care, and you must grieve your former self. Kirk connects it to his own experience of disability and the "spoon theory," and the two discuss caregiving (Brandy devotes a chapter to what her husband gave up) and the surge in disability since COVID. Now running again, she did the 50th Marine Corps Marathon, Brandy points listeners to the book on Amazon, through Koehler Books, or via brandyschantz.com, and to her rebranded podcast, Living Chronic: Ability at Work. Kirk notes his own forthcoming book, The Disability Dividend. TRANSCRIPT: Podcast Commentator: Welcome to Podcasts by Dr. Kirk Adams, where we bring you powerful conversations with leading voices in disability rights, employment, and inclusion. Our guests share their expertise, experiences, and strategies to inspire action and create a more inclusive world. If you're passionate about social justice or want to make a difference, you're in the right place. Let's dive in with your host, Dr. Kirk Adams. Dr. Kirk Adams: Welcome, everybody, to another episode of Podcasts by Dr. Kirk Adams. I am that Dr. Kirk Adams, talking to you from my home office in Seattle, Washington. And today I have a repeat guest, Brandy. You may have been the first-ever guest on the podcast, so welcome back. Today we have Brandy Schantz. Brandy is author of a book that's coming out on August 24th. It's called Living Chronic: Conversations That Changed Me, Lessons That Saved Me. And it's available for pre-order now. And we're going to be digging into it, Brandy, and hearing all about the book. So, welcome. Brandy Schantz: Oh, thank you so much for having me again. I'm excited to learn. I might have been the first person on this podcast — I do remember when you were starting it. Dr. Kirk Adams: Yeah, I think that's right. And Brandy and I met via LinkedIn, where I spend some quality time every day, and have for 18 years or so. She's one of 30,000 fabulous connections on my LinkedIn who care about accessibility, disability inclusion, assistive technology, human rights, social justice, and all those good things. So, great to have Brandy here. As for me, if you don't know me, I'm the immediate past president and CEO of the American Foundation for the Blind. I currently have a couple of official hats. I'm the managing director of my consulting practice, which is called Innovative Impact, LLC. I am also executive director of the Institute for Sustainable Diversity and Inclusion, and we'll be launching our Community Coalition for Sustainable Diversity and Inclusion on August 3rd. So, a couple of big dates in August — one for each of us. And I have had a number of really in-depth conversations with Brandy since we've met, and I knew she was working on a book. She would mention it from time to time, but it's here, it's coming — so, available for pre-order. So, Brandy, I'd just like to hand it over to you, if you could, for the listeners who didn't tune in to that first episode: if you could tell us a little bit about your life journey and what brought you to the work that you do. And then we'll dig into hearing all about the book, Living Chronic. So, it's all you. All right? Brandy Schantz: Yeah, certainly. So, I came into this world, as it were, like so many of us do — quite suddenly. I was an Army officer. I served as an intelligence officer in the Army. And then, like most of us, I went on to work in consulting. And while I was working in consulting, I was suddenly diagnosed with a very severe form of Crohn's disease. And it really prevented me from getting to work. And, of course, the job I did was very classified — pretty much everything I did was top secret, most of it compartmented, and many other things. So there was nothing I could do from home. And this was before 2020, so we weren't really talking about work-from-home that often. And I was faced with a situation where I needed to figure out what I was supposed to do, because bills don't pay themselves, and I made a career change to accommodate my Crohn's disease. During that time frame, I started having some severe symptoms, and we just didn't know what it was. And over 19 months, I slowly deteriorated until I lost my ability to walk. Dr. Kirk Adams: What were some of the early manifestations? You said you started experiencing symptoms — can you talk a bit? Brandy Schantz: Well, for me, it was— I kept describing it at first as overtraining syndrome, because I was an athlete. I've always been an athlete, and I had been training for Ironman Chattanooga 70.3. So I thought, oh, here I am in overtraining syndrome again. I get myself in trouble a lot, I love to overdo things, I'm well known for that. So I wouldn't have been surprised, except that I was not getting any better. I still was having difficulty running. I wasn't recovering. I started getting a lot of shortness of breath, some chest pains. And at that point in time, when this started, it was 2020. So I kept going — you know, I got in that long car line that we all got into so I could get my nose swabbed for COVID, thinking, oh, maybe it's COVID, but I never tested positive. And I was doing what I was supposed to as a Crohn's patient. I was immunocompromised, so I stayed at home like I was supposed to, and just couldn't figure out why I kept getting shortness of breath, chest pains. I was also getting rashes, and couldn't run, which was unusual for me. I've been a runner my whole life. So this sudden inability to run, I couldn't quite understand. And in 2021, things just significantly got worse, and the rashes became worse. I couldn't go outside because the sun would give me a really terrible rash. I started getting severe mood swings and couldn't really think properly. At one point my husband said it felt as if my entire personality had changed. Dr. Kirk Adams: Oh, wow. Brandy Schantz: And as everything kept worsening— the not being able to run became not being able to walk. My ability to move, my mobility, was continually deteriorating, and my muscles and joints were so severely tight, inflamed, that I would try to go get a massage and they couldn't massage the knots out of my muscles at all. And my joints were just so inflamed, I could scream at any moment and cry. It was terrible. So I finally lost my ability to walk. And I had kept going to doctors and finally said, 'Hey, guys, this is just not normal. I can't walk, I'm laying on a couch here.' And a friend of mine recognized some of the symptoms and sent me to her neurologist. And he was nice enough to get me in very quickly. And that's where I learned I was suffering from drug-induced lupus, due to the Humira I was taking for my Crohn's disease. So once I got off of that, I did get my ability to walk back pretty quickly. Unfortunately, I wasn't able to get back to my athletics, which for me was a big problem, because it's something I love. It's how I deal with stress and anxiety and just everyday life. It's what makes me happy. In addition, I was having trouble with fatigue, and I couldn't think clearly — a lot of brain fog. Doctors kept telling me it would just take a while for the Humira to get all out of my system: give it six months. But I gave it six months. I was patient, and I just was not getting better. And I kept dealing with the same symptoms: shortness of breath, a lot of dizziness. I was getting vertigo. I couldn't run. It made no sense to me. And I worked very hard over that time period, constantly. I was cold-calling different studies that were looking at people who had similar symptoms to my own. I was calling doctors all over, asking for different tests. I was reading medical journal articles, which is not my favorite. I did not study science, I studied business. So, unless you're talking exercise science, I typically don't really care. But at that moment in time, I cared a lot. And as I was going through it, I was just so depressed. I didn't know how to get out of bed in the morning, because I'd lost my entire life as I once knew it, and I just couldn't recognize my life. And I just couldn't seem to find anybody to help me and pick me up. And I thought, well, maybe what I should do now is start a podcast, and see if maybe I can help some people just like me. And maybe that'll help me to better understand how I can get up in the morning and keep pushing forward. You know, at that time— Dr. Kirk Adams: When did you start your podcast, Brandy? Brandy Schantz: I think I started that in— I think late 2022. Dr. Kirk Adams: Okay. And it's called Living— Living Chronic? Brandy Schantz: And I learned so much from my guests. As I was going through this journey, it kept pushing me, and I'm learning, and I kept figuring out how to really advocate for myself at the doctor — who to call, what to do. And I did finally g

  5. Jul 2

    Podcasts By Dr. Kirk Adams: Interview with Joel Snyder, Founder & President, Audio Description Associates, LLC and Founding Director Emeritus, ACB's Audio Description Project

    🎙️ Podcasts By Dr. Kirk Adams: Interview with Joel Snyder, Founder & President, Audio Description Associates, LLC and Founding Director Emeritus, ACB's Audio Description Project https://drkirkadams.com/podcasts-by-dr-kirk-adams-07-02-2026/ In this wide-ranging episode of Podcasts by Dr. Kirk Adams, Kirk welcomes Joel Snyder, founder and president of Audio Description Associates, LLC, and founding director emeritus of the ACB's Audio Description Project, for a history and status check on audio description. Snyder traces the field from its 1980 origins at Washington, D.C.'s Arena Stage (where he helped Dr. Margaret Pfanstiehl and Chet Avery invent the technique, premiering it in 1981 with George Bernard Shaw's Major Barbara) through WGBH's Descriptive Video Service, the Secondary Audio Program, VHS and DVD, and the 2010 21st Century Communications and Video Accessibility Act, up to today's streaming era. He demonstrates description live with a segment from the Iranian film The Color of Paradise and walks through the ACB Audio Description Project's resources, its annual conference, training institutes, the BADIE youth contest, and the nearly 15,000-title database at https://adp.acb.org. The conversation then turns to AI, where Snyder argues that while AI text-to-speech narration has its place, nothing matches a trained, often blind, human voice talent for dramas and feature films. He proves it by playing two versions of a Call of Duty: Black Ops 6 description he wrote, one voiced by ElevenLabs, one voiced by himself, and Kirk immediately prefers the human take. Snyder closes on the economics (~$5,000 to describe a film that cost $50 million to make) and points listeners to https://audiodescribe.com and https://adp.acb.org. TRANSCRIPT: Podcast Commentator: Welcome to Podcasts by Dr. Kirk Adams, where we bring you powerful conversations with leading voices in disability rights, employment, and inclusion. Our guests share their expertise, experiences, and strategies to inspire action and create a more inclusive world. If you're passionate about social justice or want to make a difference, you're in the right place. Let's dive in with your host, Dr. Kirk Adams. Dr. Kirk Adams: Welcome, everybody, to another episode of Podcasts by Dr. Kirk Adams. I am that Dr. Kirk Adams, talking to you from my home office in Seattle, Washington. And today, a guest I've known for quite some time. Today we have Joel Snyder with us. He's founder and president of Audio Description Associates, LLC, and he is founding director emeritus of ACB's — the American Council of the Blind's — Audio Description Project. So, hello, Joel. Joel Snyder: Hello, Kirk. It's great to be with you. Dr. Kirk Adams: So, so glad you're here. So it was interesting, because the ACB's Audio Description Project came up about two hours ago. Oh, my. I was interviewing David Grabias, who's the producer of a documentary called Braille [Brailled It], about the Braille Challenge. Joel Snyder: Wonderful. Dr. Kirk Adams: And one of the participants and directors is a Braille Challenge winner named Christopher Morgan. And we were talking about the documentary and where it's showing, and they said, 'We'll be doing a special showing at the upcoming ACB conference, in conjunction with their Audio Description Project.' Joel Snyder: There you go. Sure. Dr. Kirk Adams: There you go. So I've known about Joel for about as long as I've known about audio description, and I can't remember when I first experienced it, but I remember being really excited about the whole concept. And I know, for many years, it was kind of hard to find recorded materials — films, television programs, documentaries — that had audio description. Becoming more common now, which is a wonderful thing. I was across the lake here on the Microsoft Redmond campus last fall with a group called the Pacific Northwest Accessibility Professionals. And we went to the Microsoft disability lab, and they were showing a short film piece about Microsoft's disability efforts. And I heard a voice doing audio description. My wife and I— Ros said, 'That's Joel.' So everywhere I go, there you are. Joel Snyder: There you are. You can't get away from me. Dr. Kirk Adams: That's right. So, so pleased that you gave us some time today. You've been involved in audio description since the very beginning, so we'd love to hear a little bit of a history lesson about how it's developed and evolved and, of course, your personal journey. And then, really, where we're at today. What are the opportunities to expand and enhance access for people who are blind and visually impaired to media and entertainment? Of course, the dynamics around artificial intelligence and how that fits into the picture. And then, where do you see things going? So I'm just going to hand it over to you. I will reserve the right as host to jump in with the random questions as they pop into my mind. Joel Snyder: Of course. Dr. Kirk Adams: It's all yours. Joel Snyder: It's your show, Kirk. Well, it's great to be with you, and I'm glad you mentioned being out on the Microsoft campus, because Microsoft — and VITAC, owned now by a company called Verbit — are really one of my largest clients. I mentioned that to offer a tip of the hat to Satya Nadella and Microsoft, because they, as an obviously major, huge corporation, have a real commitment to accessibility. People may not know that they produce thousands of short videos every year — promotional videos, educational videos for their staff, commercials, that sort of thing. And they are committed to making every piece of media that they produce accessible. Captioned. They're all audio described. And that's— not too many corporations make that commitment — but it's increasing. We're seeing more description in the private sector like that. And that's a good thing. Dr. Kirk Adams: For those listening who may not be familiar with audio description, could you give just a brief explanation of what it is, and maybe some examples of it — or people can hear it, or do a little demonstration? Yeah, let's do that. Joel Snyder: Audio description. My tagline, my own company, is The Visual Made Verbal, really. And that's the title of my book ACB published in 2014: The Visual Made Verbal, a comprehensive training manual and guide to the history and applications of audio description. And I'm pleased to mention that it's in Braille. It's available for free on BARD. It is in two different audiobook versions, and printed now in seven languages. So it's gotten out and about. And it all kind of stems from work that I did in the '70s. I've always been involved in theater and acting and voice work. And in the early '70s, I remember reading textbooks for a blind student at the University of Maryland. And that went very well. I enjoyed that a lot. That led to recording talking books for the Library of Congress here in Washington, D.C. And that led to my finding out about a radio station here — the Metropolitan Washington Ear. And there's — oh, golly, Kirk, you know better than I do — perhaps two dozen of these closed-circuit radio stations that broadcast on a subcarrier of a public radio, perhaps. And they provide readings of the daily newspaper, of novels, short stories, magazine articles. And I thought that was a wonderful way to use my voice and get some good experience. So I auditioned to be a voice talent volunteer for the Washington Ear. And they must have had a weak moment or something, and they— Dr. Kirk Adams: That I didn't know about you. So I was involved with the Washington Talking Book and Braille Library here. They had the Evergreen Radio Reading Service. There you— Joel Snyder: Go. Exactly. And so I did that for a good ten years. I was the voice of the Washington Post on Sundays on the Washington Ear. And even in the '70s, I remember wondering about — gee, there are all kinds of images in a newspaper. There are graphics, there are illustrations, there are photos. What do we do when we get to those? Sometimes there's a caption, sometimes not. We could certainly read the caption, but what is it? How is the photo really put together? What's it look like? And we just sort of — we kind of ad-libbed a little something about it. But there was no such thing as audio description until 1980, when the founder of the Ear, Dr. Margaret Pfanstiehl, a blind woman, and a good friend of mine, Chet Avery, a blind man who had worked at the Department of Education — they were on a committee, an access committee for Arena Stage here in Washington, a very well-known regional theater. And if you think about that: 1980, having an accessibility committee — nobody was doing that. More common now, perhaps. And they were at a meeting, and Arena was all excited because they had just installed an assisted listening system. And again, that's ubiquitous — everybody has a system that boosts sound for folks with hearing loss, and you wear a headset and you hear the movie or the production a little more clearly, a little more loudly. And of course, Chet and Margaret are on the committee, and they thought, this is wonderful — but what have you got for us? We're blind. We can hear. And they figured, if it's just a microphone on the stage, couldn't you have a second channel? Someone holding a microphone offstage, letting us know what's going on — maybe using the pauses between bits and pieces of dialogue, or critical sound elements. And Arena said, gee, we've never heard of that before. And Margaret said, yeah, we've never heard of it before either. It didn't exist. But they knew that Margaret had access to a studio. And, well — Margaret, why don't you think about it, and we'll give it a go if you can figure out how we would do such a thing. And so she came back to the Ear. She grabbed me — I was an actor and voice talent and an English teacher — and we had a couple of others. And we sat down an

  6. Jul 1

    Podcasts By Dr. Kirk Adams: Interview with David Grabias, Documentary Filmmaker, Writer / Director & Producer of Brailled It and Christopher Morgan, Braille Challenge Champion and Co-Director of Brailled It

    🎙️ Podcasts By Dr. Kirk Adams: Interview with David Grabias, Documentary Filmmaker, Writer / Director & Producer of Brailled It, Founder of Artifact, LA and Christopher Morgan, Braille Challenge Champion and Co-Director of Brailled It, USA National-Team Goalball Athlete https://drkirkadams.com/podcasts-by-dr-kirk-adams-07-01-2026/ In this energizing episode of Podcasts by Dr. Kirk Adams, Kirk, fresh from the Braille Challenge gala at Braille Institute in Los Angeles, talks with documentary filmmaker David Grabias and 18-year-old Christopher Morgan about Brailled It, a film about the Braille Challenge made largely by the blind kids who compete in it. Grabias recounts how, on a whim, he wandered into the Braille Institute near his LA office, discovered the Braille Challenge, and realized the participants themselves should be the filmmakers; his company, Artifact, handed small chest-mounted action cameras to about nine kids, and the footage from three of them, Christopher, Salome, and Isaiah, became the film. Christopher describes forgetting the camera was even on, the rarity and joy of being in a room full of blind peers, and how the young directors shaped what made the cut. The conversation ranges into Christopher's athletic journey, from an 11-year-old who told Kirk he'd be the first blind NBA player to a member of the USA men's national goalball prospect pool, and he gives a vivid primer on goalball, the only sport designed specifically for blind athletes. Grabias then lays out where Brailled It is headed: a Slamdance world premiere behind it, upcoming screenings at the NFB and ACB conventions and the Cincinnati Art Museum, a fall festival run and a multi-city accessible theatrical tour, and a still-secret collaboration with the Library of Congress and NLS. Details live at brailledit.com. They close on the film's motto, "Three, two, one, we brailled it." TRANSCRIPT: Podcast Commentator: Welcome to Podcasts by Dr. Kirk Adams, where we bring you powerful conversations with leading voices in disability rights, employment, and inclusion. Our guests share their expertise, experiences, and strategies to inspire action and create a more inclusive world. If you're passionate about social justice or want to make a difference, you're in the right place. Let's dive in with your host, Dr. Kirk Adams. Dr. Kirk Adams: Hello everybody, and welcome to another episode of Podcasts by Dr. Kirk Adams. I am that Dr. Kirk Adams, talking to you from my home office in Seattle, Washington. We just slid from a gloomy, cloudy June to a gloomy, cloudy July here in Seattle. But we're not complaining, because we know many of our friends on the other side of the country are experiencing some serious heat issues, so we wish everyone the best. So, today, super excited. There's a documentary film made by blind kids called Brailled It, and it is about the Braille Challenge. And I was just at the Braille Challenge gala dinner at Braille Institute on the USC campus, Los Angeles, Saturday night. So the Braille Challenge is fresh — the energy is coursing through my veins from the evening. And we have with us right now David Grabias, who's one of the producers of the documentary Brailled It. Say hey, David. David Grabias: Hi, Kirk. It's so nice to be here. Thanks for having me. Dr. Kirk Adams: And we hope to be joined by Christopher Morgan, who is a Braille Challenge winner. He won a first-place award on Saturday. He is on the men's national goalball team. I met him when I had the privilege of keynoting the Braille Challenge in 2019, so I haven't talked to Christopher for seven years, so I hope he joins us. I'd love to catch up. And there he is. Christopher, I was just talking about you. This is Kirk Adams. We've started the podcast. I just mentioned that you would be joining us. I mentioned that you are a Braille Challenge champion. I was actually in the room Saturday night when you received your award. You're a director of the documentary film Brailled It. Yes. You are a member of the men's national goalball team. And I met you and your mom seven years ago, in 2019, the last time I was at the Braille Challenge. So, looking forward to catching up with you. So, just a couple of minutes: the Braille Challenge is 26 years old now. It is a program of Braille Institute of America, which is based in Los Angeles. And it is now an international competition — the US, Canada, Ireland, Australia, and now Kenya. And it allows blind kids, K-12, to embrace Braille, sharpen and hone their Braille skills, stay excited about Braille. My retina is detached. When I was five years old, I went to a school for blind kids, the Oregon State School, for first, second, and third grade. Thank you, Mrs. Summers — may you rest in peace. You taught me how to read and write Braille. I have an 80-character Braille display in front of me, a refreshable Braille tablet on my lap, a Perkins brailler to my left, slate and stylus in my drawer. So I'm all about Braille, and the Braille Challenge is super cool. Kids get to go to regional competitions and be scored on their reading comprehension and spelling and their reading and writing. And then those who advance beyond the regionals all gather together on the University of Southern California campus in Los Angeles and have further competitions and skill-building. And it's all capped off with a gala banquet that my wife and daughter and I attended Saturday night. As I mentioned earlier, Christopher received an award, and I love the Braille Challenge. And other people love it too. And I guess six months ago, I learned about a documentary film that was created by some of the blind kids who were in the competition. And they did the filming and editing and created this thing with the guidance of some experienced filmmakers, like David, and Christopher, who's one of the more experienced Braille Challenge participants, helped to shape the documentary as a director. They showed a clip at the beginning of the banquet featuring an enthusiastic young blind hockey player from Canada named Isaiah. I was seated at the table with his family. There was another young lady we met right when we entered the banquet on Saturday, named Salome. And she told me, all I care about is the food and winning. And, of course, she did win again. So it was a joyful, joyous time. And I just want to turn the microphone over to you, David, and you, Chris, and let you talk about the project — how it began, how the journey has gone so far, where you're at with it. And I know you have some really impactful visions for the future. So I'm going to turn it over to you. I will reserve the right as host to pop in with the random questions as they occur to me. So, it's all yours. David Grabias: Awesome. Yeah. And if you want, Christopher, I'll start off and then I'll throw to you as we get to the actual filming process, so you can talk about that. But yeah — obviously the Braille Challenge is an incredible event, and I've had the privilege of going and just observing and being there, gosh, about five or six years ago, I think, as you mentioned. And I walked away just so impressed with the event, with the kids who were competing, with the energy, with the community that was formed there, where people were reconnected. It goes without saying that one of the more powerful aspects of it is the opportunity for all these kids to be in a room with each other, and to meet each other, and to socialize, to network, to be in a group of their peers — which, for many folks, and Christopher, I'm sure, is no exception, is a real rarity and a pleasure. So, I'm a filmmaker by trade, a documentary filmmaker. I'm based here in Los Angeles. And so I observed, and I was so taken aback, and so I reached out to the organizers and proposed that we make a film. And over the course of about a year or so, we— Dr. Kirk Adams: Can I ask — what took you initially to the Braille Challenge? David Grabias: It's a funny story. I used to have an office around the corner here in Los Angeles, on Melrose — literally around the corner from where the Braille Institute offices are. And I would walk to lunch nearby on Vermont, which, again, is where the Braille Institute offices are. And they have this incredible— their buildings are these 1970s cement, kind of— it almost looks like a temple, or, I don't know. And I was just really curious: what goes on inside this incredible building? I see the sign — and I'm sighted, just for full disclosure — and, Braille Institute, gosh, I don't know much about Braille. And so, on a whim, just out of curiosity, I wandered into the lobby one day and started chatting with a staff person at the desk. And they were just talking about what they do and some of the activities. And they said, 'Oh yeah, and we've got this thing called Braille Challenge, which is happening in a month. You should come check it out.' Dr. Kirk Adams: Okay. David Grabias: And again, kind of on a whim and out of curiosity — and, again, I'm sure the filmmaker part of me sensed that there might be some opportunity there. I reached out to the staff, and they were kind enough to get me a pass and get me invited. And so I spent two days just hanging out and watching and interacting and meeting the kids and the families, the TVIs and the organizers. And it was really — and I say this with all humility — it was a life-changing experience, to see the community come together, and to witness the energy, the enthusiasm, the excitement, the drama, you know? Dr. Kirk Adams: Yeah, yeah, yeah. David Grabias: All of it. Dr. Kirk Adams: Hurray for appreciative inquiry. So glad — glad you walked into the lobby. David Grabias: Exactly. It was just chance — really, fate. Having the office nearby, and having the curiosity to wander in. And, anyways, long story short: two years ago, it was the 25th anniversary of the Braille Challenge, and the folks at the Braille Institut

  7. Jun 24

    Podcasts By Dr. Kirk Adams: Interview with Lauren DeVillier, CEO, Exceptional Minds

    🎙️ Podcasts By Dr. Kirk Adams: Interview with Lauren DeVillier, CEO, Exceptional Minds https://drkirkadams.com/podcasts-by-dr-kirk-adams-06-24-2026/ In this warm and practical episode of Podcasts by Dr. Kirk Adams, Kirk welcomes Lauren DeVillier, Chief Executive Officer of Exceptional Minds, the Los Angeles nonprofit academy and working studios that train young adults on the autism spectrum for careers in animation, visual effects, and a newly launching game-arts program. DeVillier traces her path from property manager on Bill Nye the Science Guy through Microsoft, Yahoo, and Disney to her first year leading Exceptional Minds, and lays out how the organization works: a three-to-four-year vocational academy (mirrored online nationwide), two revenue-generating studios doing VFX and animation for major studios like Marvel, Sony, Disney, and Blumhouse, and a blended funding model of tuition, California self-determination/regional-center funds, earned studio income, and $1.5–2M a year in fundraising. The conversation's through-line is DeVillier's strategic pivot from developing talent to developing workplaces, employer training and a new career-and-student-services center to place graduates into neuro-inclusive jobs, framed by her conviction that accommodations are "low-hanging fruit" that benefit everyone, not a "nice-to-have." She shares the PATH Water Autism Acceptance Month bottle designed by Exceptional Minds artist Benny, reflects on how the work has deepened her relationship with her own neurodivergent daughter, and points listeners to https://exceptional-minds.org. Kirk closes by half-jokingly recruiting Starbucks for a design partnership and promising to "break bread" with DeVillier in Southern California soon. TRANSCRIPT: Podcast Commentator: Welcome to Podcasts by Dr. Kirk Adams, where we bring you powerful conversations with leading voices in disability rights, employment, and inclusion. Our guests share their expertise, experiences, and strategies to inspire action and create a more inclusive world. If you're passionate about social justice or want to make a difference, you're in the right place. Let's dive in with your host, Dr. Kirk Adams. Dr. Kirk Adams: Welcome, everybody, to another episode of Podcasts by Dr. Kirk Adams. I am that Dr. Kirk Adams, speaking to you from my home office in Seattle, Washington. And today my special, wonderful guest is Lauren DeVillier. Lauren is the Chief Executive Officer of Exceptional Minds. Say hey, Lauren. Lauren DeVillier: Hey there. Hello. So happy to be here. Dr. Kirk Adams: Good. Well, we'll be back to you momentarily. So for those of you who don't know me, just super briefly: I am Dr. Kirk Adams, immediate past president and CEO of the American Foundation for the Blind, Helen Keller's organization. I had the honor of serving in those same leadership roles at the Lighthouse for the Blind here in Seattle. I am a blind person. My retina is detached. When I was in kindergarten, I went to a wonderful school, the Oregon State School for the Blind, for first, second, and third grade. Thank you, Mrs. Summers, for teaching me how to read Braille. And thank you, Mr. Pearson, for teaching me how to use the long white cane. And off into public school after that. College, career in banking and finance, moved into the nonprofit sector. First nonprofit job was development officer for the Seattle Public Library Foundation, raising money for the statewide Talking Book and Braille Library. Later pursued and earned a master's degree in nonprofit leadership, and later on a PhD in Leadership and Change from Antioch. So I guess I go back to school every 15 years or so. And I met Lauren because a classmate of mine from Whitman College, who was also an econ major, named Vivian Ho, and I reconnected. Vivian lives in the Bay Area. She is a trustee of the University of Washington Board of Regents. And she reached out to me, said, 'I met this really interesting person named Lauren, and she's working on a fantastic project that involves young artists with disabilities, and I think you two should know one another.' So Lauren and I talked about the project she was working on with the Kennedy Center, and we touched base every once in a while. And then, fast forward — I don't know, six, nine months since we connected — and lo and behold, she is the executive director of a nonprofit called Exceptional Minds, doing some fabulous things. I know it started in Southern California, but it's really a national and growing scope. And rather than try to tell you about Exceptional Minds myself, I will let Lauren do that. We'd love to have you talk to us, Lauren, about some of your background, some of your experiences, what led you to be involved with Exceptional Minds, the history of the organization, and where are you now and where are you taking things? Lauren DeVillier: Sounds fantastic. I would love to. So thank you so much again for having me on your podcast. I'm so excited to be here with you today. And my career actually started in Seattle. I worked on Bill Nye the Science Guy at the very beginning of that show. And I— Dr. Kirk Adams: Okay, here's where I jump in to say: when my children were little, we'd watch Bill Nye the Science Guy on channel nine, KCTS, our public broadcasting station. We remember one wonderful day where he showed an experiment where you could take a plastic garbage bag and put a hairdryer underneath it and fill it with hot air, and it would rise up to the ceiling. So we did that. And science — that's Bill Nye. Lauren DeVillier: Science. Science rules. Yes. I want to say that was the Lift episode. That was one of our very first episodes. I was the property manager, so I found all the props for the show, all the background for his experiments, all of those things. It was an incredible experience and really started my career in TV for kids. And so I was with the show for four of the five years. And then I would freelance at Microsoft when we would go on hiatus. I was working on a lot of projects for Microsoft that were kids-related. And then, after the show ended, I ended up joining Microsoft. I was at Microsoft for about five years, and then was recruited to Yahoo, which was the thing that brought me to LA. Because I did love Seattle, but as soon as I got down to the sunny weather of LA, I was like, 'I'm sold.' And so, joined Yahoo, was there for a couple of years. And then I worked on the lifestyles portfolio, and one of them was overseeing the kids group. And so I was out trying to do deals with some of the studios while I was in LA. And I ended up talking to Disney a lot. And they offered me a position to oversee digital strategy for the three kids networks. So it was Disney Channel, Disney XD, and Disney Junior. And that was a phenomenal experience for me, because I had worked on a TV show, then I went into technology, and then I went to Disney. And Disney really taught me about IP and branding, and really how to meld together digital with storytelling. And so, I was at Disney for quite some time, and then went off to Discovery, went back to Disney, had a startup, and then I was consulting. And my daughter went to a school, a local school here for 2e kids — and 2e is twice exceptional. So the child identifies as gifted, but they have a learning difference. And so somebody from this school reached out to me and said, 'There is this opportunity, and you sound like you'd be a perfect fit for it.' And they sent me the overview, the job description, for Exceptional Minds. And I read the job description, I was like, 'This is a perfect fit for me.' It is in the entertainment industry — kind of a little adjacent to it, not right in a studio. And I have a daughter who is neurodivergent. And I thought, well, not only can I do the business side of this job and the passion side of this job, but as a parent, I understand how you have to navigate with a child who is on the autism spectrum or is neurodivergent. And so I wrote a very passionate letter and said, 'This is why you need to hire me.' And I got hired. And so here I am at Exceptional Minds. And yesterday was actually my one-year anniversary. Dr. Kirk Adams: Congratulations. Lauren DeVillier: Thank you very much. And now I'll tell you a little bit about Exceptional Minds. Dr. Kirk Adams: Yeah. Tell us about how kids and young people and neurodiversity and entertainment all come together with Exceptional Minds. Lauren DeVillier: So Exceptional Minds was started in 2009, so we're in our 15th, almost 16th year. It was started in 2009 by a handful of parents who were in the entertainment industry, who had young adults who were on the autism spectrum that wanted to also get into the entertainment industry. And so they started this nonprofit. And in 2011, they opened their first academy. So we are a three-year vocational academy teaching young adults on the spectrum. So you have to be 18 and over and have a high school diploma or GED and a diagnosis of autism. We teach young adults animation, VFX. We're just launching a game arts program. So both of those programs are three-year programs. Our game arts program is a four-year program. And then we have two working studios. So we have an animation studio and a VFX studio, and those were launched in 2014, and in 2016 our VFX studio was launched. Dr. Kirk Adams: Just to make sure — I assume VFX is virtual effects. Lauren DeVillier: No, visual. Visual. Dr. Kirk Adams: Okay, yes. Lauren DeVillier: When you see — let's say there's a glare in Brad Pitt's glasses — we remove that glare. Dr. Kirk Adams: Or if there's somebody— Lauren DeVillier: —with a boom mic standing there, we remove the boom mic. Dr. Kirk Adams: Okay. Lauren DeVillier: So yeah, we started doing work for most of the major studios, because the founders had a lot of connections. And so we started doing work for Marvel and Sony and Disney — pretty much all. We still, to

  8. Jun 23

    Podcasts By Dr. Kirk Adams: Interview with Jerred Mace, Founder and CEO, OneCourt

    🎙️ Podcasts By Dr. Kirk Adams: Interview with Jerred Mace, Founder and CEO, OneCourt https://drkirkadams.com/podcasts-by-dr-kirk-adams-06-23-2026/ In this energized episode of Podcasts by Dr. Kirk Adams, his first-ever return guest, Kirk reunites with Jerred Mace, founder and CEO of Seattle assistive-tech startup OneCourt, fresh off attending a FIFA US–Australia match in Seattle where he used OneCourt's tactile broadcast at a live sold-out stadium for the first time. Kirk narrates the experience in vivid detail: feeling the ball travel across the pitch under his hands, sensing shots go wide, and syncing to the crowd's roar while seated beside a blind high-school student also using the device. Mace recaps OneCourt's origin story, inspired as a UW industrial-design junior by videos of blind fans following matches through a companion's tactile signing, and explains how the tablet-sized device translates official league tracking data into trackable vibrations on interchangeable silicone overlays, about a half-second behind live play. The conversation covers how the technology works (a shift from in-ball sensors toward optical, computer-vision tracking with millimeter accuracy), OneCourt's growing in-venue footprint (ten NBA teams last season, the Arizona Diamondbacks in MLB, plus soccer activations), and the new at-home preorder that lets fans stream NBA, NFL, and MLB games to their own OneCourt tablet. Mace looks ahead to OneCourt becoming a "need-to-have" accommodation at every venue, plus future use cases in gaming and blind-athlete training, and points listeners to onecourt.io/preorder. Kirk, now formally a OneCourt advisor, even pitches a strap so standing soccer fans can hold the device vertically. TRANSCRIPT: Podcast Commentator: Welcome to Podcasts by Dr. Kirk Adams, where we bring you powerful conversations with leading voices in disability rights, employment, and inclusion. Our guests share their expertise, experiences, and strategies to inspire action and create a more inclusive world. If you're passionate about social justice or want to make a difference, you're in the right place. Let's dive in with your host, Dr. Kirk Adams. Dr. Kirk Adams: Welcome, everybody, to another episode of Podcasts by Dr. Kirk Adams. This is that Dr. Kirk Adams, talking to you from my home office in Seattle, Washington. And I think this is my first return-guest podcast. So today we welcome again Jerred Mace, founder and CEO of OneCourt. Hey, Jerred. Jerred Mace: Hey, Dr. Kirk. Thanks again for having me back. Super excited to be here. Dr. Kirk Adams: Absolutely. And I am on fire about OneCourt. Because last week, on Wednesday, I got a text from Jerred that said, 'Hey, did you see the invitation to the World Cup match?' And I had not seen that, but I quickly searched my email, and there it was — an opportunity from FIFA to go see the US play Australia here in Seattle, and to experience OneCourt firsthand at a live sporting event. Now, I first met Jerred at an event at Microsoft — oh gosh, almost two years ago — called Seattle Disability Connect. And I had an opportunity to put my hands on OneCourt and experience tactilely a baseball game on the radio, the Mariners and Tampa. But I had not attended a live sporting event before. So I grabbed my wife, and I grabbed the Uber down to the Pioneer Square area of Seattle, and enjoyed walking through the very jovial, excited, enthusiastic crowd — quite a few Australian accents. And then we went to the guest services desk, where I encountered a blind friend named Jacob who works for both the sports stadiums here. And we checked out a OneCourt device. We were seated next to a blind high school student named Ethan. He was there with his mother, and Ethan and I sat shoulder to shoulder, both with our hands on the OneCourt devices. Of course, being several generations separated, I did have to ask Ethan for a little technical support — he showed me where the volume button was for the audio. But it was truly amazing to sit there and be so synced up with the energy of the crowd, in particular as my hands were on the device and I could feel the ball travel from one end of the pitch to the other. And as it neared the Australian goal, as the US was attempting to score — the increasing volume and excitement of the crowd as they cheered and yelled, and then the shot, and the collective groan as I could feel the ball go wide of the goal. In one particularly rousing scene, there was a shot on goal that went right over the net. The crowd moaned in despair, and I could feel the ball skip right over the goal and out of bounds. And then, of course, when the US scored our two goals, the excitement of that — the change in tone and tempo of the chanting of the crowd as the ball would change hands, as Australia might be driving toward a scoring opportunity, and then the ball would turn over and the US would be moving down the field the opposite way. And just to feel that ebb and flow under my hands while listening to the crowd and feeling the energy. And there was lots of energy in that sold-out, 66,925-capacity crowd at the Seattle Stadium. So I want to express my gratitude toward you, Jerred, and your team for giving me that opportunity. I call that a once-in-a-lifetime. And just really glad to have you back. I know the company has taken great strides since last time we talked. I put in my preorder for my device to use here at home. But for those who didn't listen to episode one of our conversation, if you could give a little recap on the origin story of OneCourt, the path you've traveled so far, where you're at now with OneCourt — where are you going? Jerred Mace: Absolutely. And thank you for that kind introduction, and also breakdown of your experience. I can't wait to talk more. I mean, this is the first time I'm hearing those notes from your experience last week. And it was an electric atmosphere, I think, all over Seattle, but none more impressive than in that venue. So I can't imagine how special that was for everybody. And to be engaging with it in a new way is all the more interesting and fun. So yeah, I definitely have all my questions for you, to hear more about that. But for listeners that haven't heard of OneCourt before, I'd love to just share and preview that. So OneCourt is a sports technology startup here in Seattle. We invented a tactile broadcast that allows fans who are blind or have low vision to experience and watch sports through their fingertips, as Dr. Kirk described in his experience. And what's powerful about this is that it works both in venue and at home. So no matter where you are, you can always access the game. And the origin story dates back a few years now. I was a junior at the University of Washington. I was studying industrial design, and I came across a video of a blind person at a soccer match, and he was sitting in the stands with a woman who was watching the game, and at the same time moving his hands across a game board to represent the action. So it was tactile signing. It was experiencing the game in a totally different format than the ones, I think, that are popularly described. And in doing some research, we kind of found, oh my gosh, these instances of accessibility are popping up around the world, where people are just helping other people experience the game. There was another similar video out of Brazil — same thing, but this one was at a cafe where fans were cheering, and two fans were sitting across from each other and helping watch the game through tactile signing. And I think the insight from that was really, how do we scale that experience to everyone using this emerging data and haptic technology? And that's what our company has been focused on since then. So we banded together as a group of students from the UW and formed this company called OneCourt. So we've been on a major journey, I would say, of development and community building. And now we're getting to this interesting part of scaling the work that we've built. So yeah, I would love to talk more about any and all of that. Dr. Kirk Adams: Well, let's talk about the actual device itself. It was so fascinating to me to spend that much time at it. You've definitely made changes, improvements since the last time I had my hands on OneCourt, which was well over a year ago. But it seemed lighter. Jerred Mace: Yeah. Dr. Kirk Adams: I had never had my hands on the rubber overlay that depicts the pitch of the soccer field. But I did notice that the goal itself was very, very small, but then there was a larger representation of the space representing the goal. So I could tell where the shot went in. Good score. Jerred Mace: Yeah, exactly. We have been playing around with what we call multi-view concepts, where we're able to show different views of the game, not just a single plane or top-down view of the action. And to give a brief description of the device — it's about the size of a laptop. And to your point, it has actually gotten a lot lighter, which is good. It's also getting thinner, which I'm excited about. You can think of it like a thicker laptop that you place on your lap or on a tabletop in front of you. And on the surface, there's a silicone mat that features the tactile graphic of whatever court or field you might be interested in. So in the case of soccer, of course, it features the goal line and the enlarged goal and the center line and the penalty box — everything. You can imagine that for different sports as well. And then what you're feeling underneath actually are vibrations that correspond to the gameplay that's happening live. So we work with the teams and leagues who are collecting this data around where the players are, where the ball is, and we translate that data in real time into trackable vibrations. So you can literally feel the ball stream across the field. Dr. Kirk Adams: Right. Jerred Mace: About a half second after it's happ

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Podcasts By Dr. Kirk Adams is a compelling podcast series that brings listeners into the world of accessibility, leadership, and social change through the lens of one of the most influential voices in blindness advocacy. Dr. Kirk Adams, former President and CEO of the American Foundation for the Blind and a lifelong champion for the rights of people with visual impairments, hosts this insightful and inspiring program.

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