The Butterflies: A Turner Syndrome Podcast

The TS Group
  • 5.0 (2)
  • MEDICINE
  • UPDATED WEEKLY

Welcome to the butterfly podcast! We talk all about Turners Syndrome ( a genetic disorder where someone is missing part or all of the X chromosome) each week. We want to grow awareness and representation for girls with Turner Syndrome. Each week we choose a different topic that can rage from a wide variety of topics. We hope you enjoy listening to our rants!

  1. 06/08/2025

    How TS patients manage their health

    This week we are discussing the things we do the manage our health and make having TS easier. Contact us/website: linktr.ee/TheButterfliesPodcast

    19 min

  2. 05/18/2025

    How to support TS patients PT 2

    Welcome back! This week, have a part 2 to our little mini series with Ava about her AP research project. In this episode, we talk about her findings and what doctors can do to improve patient care. Website/Contact us : https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share

    20 min

  3. 04/27/2025

    Health & Sickness

    Welcome back! On todays episode we talk about the various ways TS can affect health. Ranging from pneumonia to anemia, all the way to the heart . We hope this episode helps you learn something new! Website/Contact Info https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share<sid=ed7f5d6e-a86b-4823-a99e-00a49c29602d

    31 min

  4. 04/13/2025

    Misconseptions

    Welcome back! This week we’re diving into misconceptions about TS. From outdated stereotypes to misinformation circulating online, we’re breaking down the myths and getting to the facts. Whether you’re new to learning about Turner Syndrome or looking to deepen your understanding, we hope this helps! Website & Contact info: https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share<sid=002d0022-594f-4412-9d8d-3e157dd3c25f

    19 min

  5. 03/30/2025

    Driving

    This episode of the Butterflies Podcast is going to explore a topic that is often ignored but a real struggle for people with TS: driving. Driving can be a struggle for someone with Turner Syndrome, and that's what we will be going over throughout this episode. We will share ways that you can make the learning as well as the regular driving process- better for you! Contact info and website: https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share<sid=31eb0c97-f007-4946-b0a3-038d13ce07ba

    20 min

  6. 03/23/2025

    TS & Community

    Welcome back! In this weeks episode we discuss on the importance of community for people with Turners Syndrome. Grab a snack and get cozy, we hope you enjoy! Website & Contact info https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share<sid=274e50cc-b075-482b-8f5a-21afc6ff0ddd

    19 min

  7. 03/16/2025

    How TS affects daily life

    This week's podcast will discuss TS and its impact on someone’s life, and the various ways it affects everyone differently. We discuss the physical and mental toll that TS can have. While also highlighting the ways TS can make someone s more resilient. Tune in, and we hope to see you back next week! Website and contact info:https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share<sid=4b8a993d-ce70-40ec-b144-52f514bbbbc9

    9 min

  8. 03/09/2025

    Long Distance Friendships

    Welcome back! For this week's episode we discuss how we stay connected even while being so far away. Grab a snack and get comfy. We hope you enjoy! Socials & Contact info: https://linktr.ee/TheButterfliesPodcast?utm_source=linktree_profile_share<sid=275afa92-be78-4dc9-a34c-b307c9b1df89

    17 min
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Trailer

Ratings & Reviews

5
out of 5
2 Ratings

About

Welcome to the butterfly podcast! We talk all about Turners Syndrome ( a genetic disorder where someone is missing part or all of the X chromosome) each week. We want to grow awareness and representation for girls with Turner Syndrome. Each week we choose a different topic that can rage from a wide variety of topics. We hope you enjoy listening to our rants!

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