SHOW NOTES: Watch 'In Plain Sight' documentary demo story here Support funding for 'In Plain Sight' here Learn more about United In Compassion here TRANSCRIPT: [00:00:00] Kel: I'm Kel Myers and this is Phoenix Sound. Today I'm joined by Lucy Haslam, retired nurse, health advocate, and co-founder of United in Compassion, the driving force behind medical cannabis reform in Australia. Lucy's journey is one of incredible determination, transforming personal loss into a movement that continues to change and sustain lives. But a decade on, significant challenges still remain in making this new class of medicine truly accessible to those who need it. So now, Lucy is leading the way to launch Australia's first public education campaign on medical cannabis through the documentary In Plain Sight. The film will explore the history, science, and politics of medical cannabis whilst exposing the barriers that still exist, from stigma to misinformation and flawed policies. Today we dive into Lucy's journey, the fight for change, and why this documentary is so urgent. Stay with us. You're joining us as I speak with Lucy about the incredible impact of her work and the change she's helped spark. Let's jump in. The change that you've helped spark is really remarkable. And I guess what began as a deeply personal journey has blossomed into now a national movement that continues to make such a meaningful impact on countless lives across the country. And I think it's one thing to face. Um, any kind of adversity but it's another to transform that Into something to help change other people's lives for the better and I think that's nothing short of a miracle to be honest and I just wanted to give you your flowers to be honest to start with because I did, because I just think it's really important that we remember the people that have paved the way. And yeah, I was, I'm just so, yeah, awestruck by everything that you do and continue to do. So, I'd love it if we could start with maybe you sharing with us how your personal experience led to founding United in Compassion. [00:01:59] Lucy: Okay, well thanks Kel for saying all that you've actually helped me just in hearing that to remember why I did this in the first place because I kind of lose sight, I suppose it's been a decade now and sometimes you lose sight and you become a bit frustrated and disillusioned, so thanks for saying that. So I guess my personal journey I never expected to be doing what I'm doing. But adversity, you know, sort of puts you in places where you have to change tack, I suppose. So for us it started in 2010 when our youngest son Dan was diagnosed with stage 4 bowel cancer. Dan was he was just 20 at the time and very much a kid. He was a beautiful person. He was going to uni. He was living the dream, excited about life, one of those people that wanted to do everything. He, you know, he was musical, he was adventurous, he wanted to travel, he just wanted, he was sporty, he just, he just loved life. And so when he was diagnosed, really out of the blue on the 5th of February in 2010. Our lives changed his certainly did, but our whole family's lives changed. And you don't expect that you're going to suddenly be facing a terminal illness in your youngest child when they've got You were thinking that they had so much to be looking forward to. So Dan obviously started on really rigorous cancer treatment immediately. He had five years of continuous chemotherapy. He had lots of major surgeries including bowel resections, liver resections. His body was basically riddled with cancer and it was always going to be a fight. But you keep hope front and center when that's your child and you try not to let yourself go down those pathways of thinking that you've got to be preparing for the end. But I think instinctively I knew that was, that was there based on my background in nursing. I certainly wasn't expecting to become a medicinal cannabis advocate, but by 2014 Dan was in such a bad way. Basically every side effect that you could have from chemotherapy he had, and then some, despite the doctors telling us that, you know, chemotherapy is so much more manageable these days, you know, don't expect that you'll get all these symptoms. Well, I think Dan pretty well got every one of them. And. By 2014, he really, he had no quality of life whatsoever, he, he literally was he was just hanging on for dear life. He was not able to maintain an appetite or his weight, he was extremely anxious, very worried about what was coming next, and very worried about us, and all of that. And, his, his he made good friends with another person in Tamworth who had bowel cancer. He was actually a local businessman and that businessman eventually said to Dan that he thought he should try cannabis because during his cancer journey it had helped him a lot and Dan said no, not going to do it. Mum and Dad won't ever agree. You know, at our, for our background, mine was in nursing and my husband's was in policing and most of his career had been in the drug squad. So we were at that time very anti cannabis, I've got to say. very, very much the way we found the rest of the community. But luckily for me, his friend contacted me and said, Look, Lucy, Dan said no to this, but I want to, I want to put it by you. Would you be interested in me giving you some cannabis for Dan to try? And I said without hesitation, absolutely, yes, please, please bring it round. And we then had to convince Dan that he needed to use cannabis just at least to give it a try. And I will never forget the day that he tried it when he had his next round of chemotherapy which was fortnightly at that stage. My husband rolled in the joint and Dan had a couple of puffs on that joint at a time when he was normally throwing up, the colour came back into his face, and he asked for something to eat. And that was just so incredibly different to what we had been going through for years. And it, it really did give us some hope that he would get some quality of life back. He began to eat better, he stopped vomiting, he began to sleep better. He eventually wanted to start to make the oil because we started to do some exploration on the internet and saw that many people were using it in oil form to try and treat their cancer, so he did that making his own oil from cannabis that I would buy. And, you know, things like his mouth ulcers cleared up which, you know, it doesn't sound like a big thing, but when you've got a mouth full of cavernous mouth ulcers that rarely heal between between rounds of chemotherapy, you know, that's a, that's a big deal. And, [00:07:11] Kel: yeah, absolutely. [00:07:13] Lucy: But, you know, this was very challenging for us because this challenged everything I, I really thought or believed or had been taught about medical cannabis. And so I just, I just thought I've just got to know more. I've got to, I've got to understand why this is working. And at that time, there'd been a recent Senate inquiry in New South Wales. The year before there'd been a Senate inquiry and a couple of my local politicians had been involved on that Senate inquiry. And I reached out to them, one of whom was been our solicitor and they came and saw me and they said, look, we, we unanimously recommended that cannabis be reintroduced, but the health minister had thrown cold water on it and said kind of basically over her dead body. And so, you know, another opportunity had been missed. And I reached out to people like Alex Wodak, who was an addiction specialist with St. Vincent's Hospital and said, Look, my son's using cannabis now. Is he going to come to any harm? You know, what should I do? We, we, we're sort of searching the internet trying to find answers and he was wonderful. He contacted me and he said, look, Lucy, firstly, he won't come to any harm. I mean, how stupid, what a silly question. Dan was dying anyway. But that's kind of where my head was at. I just didn't want him to come to any harm from using this. And he said, look, you know, I've been banging on about cannabis for so long now, you know, the politicians just think I'm an idiot. But you know, maybe they'll listen to you as a mother. And, and I just thought, well, this is the right thing to do. And it just began from there, I guess. I didn't make a big decision. I'm going to run a. medical cannabis campaign or anything like that. I just wanted to help my son. So it was, it was pretty clear and simple. And, you know, the best thing that I thought that I could really do because I found it was so challenging personally, I thought, well, people are either going to love us or they're going to loath us, loath us. And It was really hard, it was important to me that, that people knew what we were doing and why we were doing it, and so I decided to go public about it, and we lived in a conservative country community in Tamworth in New South Wales, and I went to my local members and I told them, like the state and federal member. They were kind of shocked and horrified at first, you know, and I went to the local newspaper and spoke to the editor and told him what I wanted to do and, and he said, look, I will support you any way I can. A lot of people knew us in the town, they knew the kind of people that we were, they knew Dan, he'd been the school captain at one of the largest high schools there. And so, you know, I, I thought it was risky, but I thought I just wanted to, I wanted people to know that we were doing what we were doing for the reasons we were doing it and that perhaps we all needed to think twice about medicinal cannabis. And I guess just luckily for us, they they supported us. overwhelmingly. It was quite incredible to be part of it. The local community ran a campaign called Doing It For Dan. They, they made it very public and they really supported us. Local councillors supported us. The local police supported us. And it took away a lot of that fear because we really were expecti