Fighting Dementia Podcast

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Hosted by Fran & Tom who live with Dementia, we’re a podcast & community for those impacted in the early to middle stages – offering expert insights, honest stories & support. For those diagnosed, carers & families who need to feel seen, informed & less alone 🤝 **New Episodes Weekly On Mondays!** We want to take viewers on a journey to see what behaviours can be adapted, changed or moulded to support good brain health, and fight the progression of Dementia 🥊

  1. 1D AGO

    Diet, Water, Purpose, and Sundowning | Fighting Dementia Episode 29

    In this episode, the host catches up with Fran about behaviour change months after focusing on habits like drinking more water, improving sleep, and learning new skills. Fran shares that a type 2 diabetes diagnosis pushed her to take diet and hydration more seriously, cutting back on high carbs, sugar, processed foods, and snacks like chocolate and crisps, while aiming for an “80/20” balance and using an app that rates how processed foods (and cosmetics) are. She describes feeling better, losing weight, walking more, and noticing improved sleep when eating less “rubbish.” The conversation also covers the importance of purpose and staying mentally active with dementia, and Fran explains recent sundowning symptoms, how she recognizes them, and how she retrains herself to keep going rather than stop. https://play.google.com/store/apps/details?id=io.yuka.android Chapters: 00:00 Welcome and catch-up 00:50 Diabetes wake-up call 02:12 Diet swaps and treats 04:22 Using an app to shop smarter 06:04 Support at home and hydration 08:30 Sleep, sugar, and slip-ups 11:34 Why purpose keeps you going 13:24 Understanding sundowning 16:05 Coping strategies and pacing 18:23 Final thoughts and disclaimer

    19 min

  2. MAR 9

    Live-In Support and Keeping People at Home Longer with Dave Bellis | Fighting Dementia Episode 28

    Dave Bellis of Radfield Home Care, a domiciliary home care franchise in northwest England, explains how his company supports around 80 people at home across areas including Waterloo, Crosby, Sefton, Southport and Formby, and how clients find them through word of mouth, advertising, and local authority links rather than dementia-specific referrals. He shares why he left a 30-year corporate accounting career after redundancy and his parents’ dementia experience, and describes the challenges of setting up a regulated service and building staffing capacity. The discussion covers benefits of staying at home with dementia, including familiarity and avoiding separation, plus live-in care as an option for couples. They outline tailored services (medication, meals, personal care, community outings), the importance of continuity and dementia training, advice to start small and build care, and the impact of caregiver burnout, loneliness, denial, and the need for early family conversations and diagnosis. Chapters: 00:00 Meet Dave 00:44 Referrals and Access 05:38 Starting a Care Business 07:34 Why Home Helps Dementia 16:16 Choosing Care Advice 20:14 Diagnosis Barriers 23:22 Family Support Strain 26:20 Independence Matters 30:42 Training And Communication 35:30 Acceptance Beats Stigma 37:12 Final Thanks And Outro

    38 min

  3. FEB 23

    Routines: The Backbone of Thriving with Dementia | Fighting Dementia Episode 26

    In this episode, we continue the discussion from last week about the importance of routines, especially for those living with dementia. Hosts Tom, Fran, and their partners Mary and Frank share personal experiences on how maintaining a routine helps them manage daily life and cognitive function. We talk about the disruptive impact of festive seasons like Christmas on their routines and how they adapt to changes. The episode also explores practical tips like using diaries for planning, engaging in activities to stay mentally active, and the significance of having a supportive community. Whether dealing with dementia or supporting someone who is, this episode offers valuable insights for all. Resources & Further Reading: Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/ Alzheimer’s Society: https://www.alzheimers.org.uk/ Carers UK: https://www.carersuk.org/ Reddit Dementia Communities: https://www.reddit.com/r/dementia/ Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney Chapters: 00:00 Introduction 00:55 Christmas and Routine Disruptions 02:17 Managing Daily Routines 04:24 Work and Routine Structure 06:30 Living in the Moment 10:26 Energy Management 13:27 Exploring New Hobbies and Skills 14:01 The Joy of Painting by Numbers 15:12 Engaging in Creative Activities 16:33 The Importance of Routine 18:40 Staying Active with Dementia 19:41 Final Thoughts and Reflections

    26 min

  4. FEB 16

    Importance of Routine and Self-Care | Fighting Dementia Episode 25

    In this episode of the Fighting Dementia Podcast, we are joined by Frank and Marion, partners of Tom and Fran, as we discuss the significance of maintaining routines for those living with dementia. With the aftermath of the Christmas holiday season as a backdrop, our guests share their experiences and challenges in managing daily routines. We dive into how disruptions during holiday periods can lead to increased agitation and exhaustion, emphasising the need for structure and predictability. Additionally, we touch on the importance of self-care for those supporting people with dementia, discussing the balance between caregiving duties and personal well-being. Frank and Marion provide valuable insights from their years of experience, highlighting the benefits of acceptance, the role of community, and the everyday strategies that support both the caregivers and those living with dementia. Join us for this heartfelt conversation as we explore practical ways to foster a balanced life amidst the complexities of dementia care. Resources & Further Reading: Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/ Alzheimer’s Society: https://www.alzheimers.org.uk/ Carers UK: https://www.carersuk.org/ Reddit Dementia Communities: https://www.reddit.com/r/dementia/ Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney Chapters: 00:00 Introduction to the Podcast 00:24 Discussing the Importance of Routines 01:47 Challenges of Maintaining Routines 03:57 Personal Routines and Self-Care 06:25 Balancing Caregiving and Personal Time 13:03 Managing Schedules and Routine Changes 15:03 Managing Energy Levels in Dementia Care 16:48 Understanding the Disconnect Between Mind and Body 18:25 Words of Wisdom for Dementia Caregivers 22:13 Changing Perceptions: From Carer to Supporter 27:58 Concluding Thoughts and Podcast Outro

    29 min

  5. FEB 9

    The Power of Learning New Skills and Hobbies | Fighting Dementia Episode 24

    Welcome to the latest episode of the Fighting Dementia Podcast, where hosts Leon, Tom, and Fran share their personal experiences and insights into living with dementia. Joined by Tom's wife Marion, they discuss the significance of adopting new skills and hobbies for brain health and emotional well-being. Hear inspiring stories of painting, polygraphy, golf, and even candle making, and learn how these activities can bring moments of joy and fulfillment. This episode emphasises living in the moment, tackling the challenges of dementia head-on, and the importance of staying mentally active. Tune in for an uplifting conversation on managing dementia, from diagnosis to daily life, filled with practical advice and heartfelt moments. Resources & Further Reading: Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/ Alzheimer’s Society: https://www.alzheimers.org.uk/ Carers UK: https://www.carersuk.org/ Reddit Dementia Communities: https://www.reddit.com/r/dementia/ Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney Chapters: 00:00 Introduction to the Fighting Dementia Podcast 00:35 The Importance of Learning New Skills 00:55 Tom's Experience with Polygraphy and Painting 01:30 Fran's Artistic Journey 05:02 Marian's Hobbies and Interests 07:09 Tom and Fran on Trying New Things 12:22 The Value of Trying New Activities 13:16 Reminiscence Corner 13:40 Embracing the Moment 14:05 Living in the Present 15:06 Coping with Diagnosis 15:55 Challenges and Acceptance 16:46 Support and Understanding 18:04 Planning for the Future 19:23 Raising Awareness 20:19 The Importance of Early Diagnosis 25:40 Final Thoughts and Reflections

    27 min

  6. FEB 2

    Painting, New Skills & Living in the Moment with Dementia | Fighting Dementia Episode 27

    Leon hosts Tom and Fran - both living well with dementia (Tom diagnosed 8 years ago, Fran 6 years ago) - alongside guest Grahame Smith, Associate Professor in Mental Health Innovation, to discuss brain health, neurodegeneration, and practical ways to live positively with dementia. The episode highlights Tom’s detailed painting of a ship in a cove (completed over three weeks) and how learning new skills like painting, carving wood, dancing, or joining a choir can support brain health by building new neural connections rather than relying on old pathways. Fran shares starting paint-by-numbers, how it sparked childhood memories, and a humorous near shoplifting incident while buying art supplies. Resources & Further Reading: Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/ Alzheimer’s Society: https://www.alzheimers.org.uk/ Carers UK: https://www.carersuk.org/ Reddit Dementia Communities: https://www.reddit.com/r/dementia/ Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney Chapters: 00:00 Welcome to the Podcast 03:21 Fran Tries Paint-by-Numbers: Memories, Laughter, and Getting Started 06:06 Hands, Movement & Touch: Motor Skills, Dancing, and Staying Active 10:12 Living Well With Dementia: Changing Behaviours, Social Connection, and Support Networks 15:36 Identity, Grief, and the ‘Self’: A Zen/Buddhist Lens + Tech, AI, and Memory 18:20 Subscribe & Community Mission + Living for the Moment (Peter’s Story) 20:01 Mindfulness Myths vs Being Present: Breaking Out of the ‘Box’ at Any Age 23:06 Diagnosis as a Wake‑Up Call: Changing Attitudes & Behavior 24:56 “Is Dementia You?” Identity, Labels, and Redefining Your Life 29:29 Routines for Brain Health: Cognitive Rehearsal (and When to Break the Routine) 32:50 Social Connection vs Sedentary Habits: TV, Tech, and Staying Engaged 36:42 Reminiscence Corner: Overstimulation in Crowds & How to Cope 45:43 Wrap‑Up, Thanks, and Listener Reminder to Do Your Own Research

    47 min

  7. FEB 2

    Unleashing the Power of Music Therapy in Dementia Care | Fighting Dementia Episode 23

    In this episode of the Fighting Dementia Podcast, hosts Leon, Fran, Tom, and Lizzie welcome music therapist Lizzie for an enlightening discussion on the benefits of music therapy for those living with dementia. Lizzie shares her journey into music therapy, highlights the personalised approach she adopts to engage patients of all ages, and recounts heartwarming stories of how music has helped individuals connect and communicate. The conversation also delves into practical advice for integrating music into daily life to enhance emotional well-being. Tune in to discover the transformative effects of music and learn practical tips for incorporating music therapy into dementia care. Resources & Further Reading: Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/ Alzheimer’s Society: https://www.alzheimers.org.uk/ Carers UK: https://www.carersuk.org/ Reddit Dementia Communities: https://www.reddit.com/r/dementia/ Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney Chapters: 00:00 Introduction to the Podcast 00:09 Meet the Presenters 00:31 What is Music Therapy? 02:14 Lizzie's Journey into Music Therapy 05:33 Working with Different Groups 08:21 Impact of Music on Dementia 15:43 Memorable Moments in Music Therapy 19:09 Reflecting on Personal Experiences 19:33 The Power of Music in Dementia Care 20:26 Choosing the Right Music 21:26 Practical Tips for Using Music at Home 21:46 The Role of Music Therapists 26:01 Improvisation and Personalized Music 31:32 Music's Emotional Impact 35:58 Concluding Thoughts and Advice

    37 min

  8. JAN 19

    Music Therapy, Routine, and Daily Challenges | Fighting Dementia Episode 22

    Welcome to the Fighting Dementia Podcast! In this episode, hosts Leon and Tom, who was diagnosed with dementia eight years ago, are joined by Meryl and Dawn. Dawn shares her experience of living with posterior cortical atrophy, a rare form of dementia, while Meryl discusses her role as a supportive partner. The group converses about their daily routines, the challenges of maintaining independence, and the significance of music therapy in Dawn's life. The episode also delves into the importance of routine, dealing with new symptoms, and future plans for support. Tune in for an insightful conversation about living with dementia and the supports that make a difference. Chapters: 00:00 Welcome to the Fighting Dementia Podcast 00:20 Meet Meryl and Dawn 01:08 Music Therapy and Learning New Skills 02:49 Kitchen Adventures and Daily Challenges 05:33 The Importance of Routine 10:12 Community Groups and Social Connections 11:42 Traveling and Managing Fatigue 14:32 Independence and Daily Life Adjustments 21:32 Perception of Time and Planning 27:16 Daily Life with Dementia 27:33 Using Alexa for Reminders 29:44 Maintaining Independence 31:02 Support and Caregiving 34:55 Reflecting on the Past 42:31 Music Therapy Benefits 48:13 Therapy and Cognitive Issues 52:59 Concluding Thoughts

    54 min
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About

Hosted by Fran & Tom who live with Dementia, we’re a podcast & community for those impacted in the early to middle stages – offering expert insights, honest stories & support. For those diagnosed, carers & families who need to feel seen, informed & less alone 🤝 **New Episodes Weekly On Mondays!** We want to take viewers on a journey to see what behaviours can be adapted, changed or moulded to support good brain health, and fight the progression of Dementia 🥊

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