Fighting Dementia Podcast

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Hosted by Fran & Tom who live with Dementia, we’re a podcast & community for those impacted in the early to middle stages – offering expert insights, honest stories & support. For those diagnosed, carers & families who need to feel seen, informed & less alone 🤝 **New Episodes Weekly On Mondays!** We want to take viewers on a journey to see what behaviours can be adapted, changed or moulded to support good brain health, and fight the progression of Dementia 🥊

  1. 2D AGO

    Importance of Routine and Self-Care | Fighting Dementia Episode 25

    In this episode of the Fighting Dementia Podcast, we are joined by Frank and Marion, partners of Tom and Fran, as we discuss the significance of maintaining routines for those living with dementia. With the aftermath of the Christmas holiday season as a backdrop, our guests share their experiences and challenges in managing daily routines. We dive into how disruptions during holiday periods can lead to increased agitation and exhaustion, emphasising the need for structure and predictability. Additionally, we touch on the importance of self-care for those supporting people with dementia, discussing the balance between caregiving duties and personal well-being. Frank and Marion provide valuable insights from their years of experience, highlighting the benefits of acceptance, the role of community, and the everyday strategies that support both the caregivers and those living with dementia. Join us for this heartfelt conversation as we explore practical ways to foster a balanced life amidst the complexities of dementia care. Resources & Further Reading: Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/ Alzheimer’s Society: https://www.alzheimers.org.uk/ Carers UK: https://www.carersuk.org/ Reddit Dementia Communities: https://www.reddit.com/r/dementia/ Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney Chapters: 00:00 Introduction to the Podcast 00:24 Discussing the Importance of Routines 01:47 Challenges of Maintaining Routines 03:57 Personal Routines and Self-Care 06:25 Balancing Caregiving and Personal Time 13:03 Managing Schedules and Routine Changes 15:03 Managing Energy Levels in Dementia Care 16:48 Understanding the Disconnect Between Mind and Body 18:25 Words of Wisdom for Dementia Caregivers 22:13 Changing Perceptions: From Carer to Supporter 27:58 Concluding Thoughts and Podcast Outro

    29 min

  2. FEB 9

    The Power of Learning New Skills and Hobbies | Fighting Dementia Episode 24

    Welcome to the latest episode of the Fighting Dementia Podcast, where hosts Leon, Tom, and Fran share their personal experiences and insights into living with dementia. Joined by Tom's wife Marion, they discuss the significance of adopting new skills and hobbies for brain health and emotional well-being. Hear inspiring stories of painting, polygraphy, golf, and even candle making, and learn how these activities can bring moments of joy and fulfillment. This episode emphasises living in the moment, tackling the challenges of dementia head-on, and the importance of staying mentally active. Tune in for an uplifting conversation on managing dementia, from diagnosis to daily life, filled with practical advice and heartfelt moments. Resources & Further Reading: Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/ Alzheimer’s Society: https://www.alzheimers.org.uk/ Carers UK: https://www.carersuk.org/ Reddit Dementia Communities: https://www.reddit.com/r/dementia/ Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney Chapters: 00:00 Introduction to the Fighting Dementia Podcast 00:35 The Importance of Learning New Skills 00:55 Tom's Experience with Polygraphy and Painting 01:30 Fran's Artistic Journey 05:02 Marian's Hobbies and Interests 07:09 Tom and Fran on Trying New Things 12:22 The Value of Trying New Activities 13:16 Reminiscence Corner 13:40 Embracing the Moment 14:05 Living in the Present 15:06 Coping with Diagnosis 15:55 Challenges and Acceptance 16:46 Support and Understanding 18:04 Planning for the Future 19:23 Raising Awareness 20:19 The Importance of Early Diagnosis 25:40 Final Thoughts and Reflections

    27 min

  3. FEB 2

    Unleashing the Power of Music Therapy in Dementia Care | Fighting Dementia Episode 23

    In this episode of the Fighting Dementia Podcast, hosts Leon, Fran, Tom, and Lizzie welcome music therapist Lizzie for an enlightening discussion on the benefits of music therapy for those living with dementia. Lizzie shares her journey into music therapy, highlights the personalised approach she adopts to engage patients of all ages, and recounts heartwarming stories of how music has helped individuals connect and communicate. The conversation also delves into practical advice for integrating music into daily life to enhance emotional well-being. Tune in to discover the transformative effects of music and learn practical tips for incorporating music therapy into dementia care. Resources & Further Reading: Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/ Alzheimer’s Society: https://www.alzheimers.org.uk/ Carers UK: https://www.carersuk.org/ Reddit Dementia Communities: https://www.reddit.com/r/dementia/ Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney Chapters: 00:00 Introduction to the Podcast 00:09 Meet the Presenters 00:31 What is Music Therapy? 02:14 Lizzie's Journey into Music Therapy 05:33 Working with Different Groups 08:21 Impact of Music on Dementia 15:43 Memorable Moments in Music Therapy 19:09 Reflecting on Personal Experiences 19:33 The Power of Music in Dementia Care 20:26 Choosing the Right Music 21:26 Practical Tips for Using Music at Home 21:46 The Role of Music Therapists 26:01 Improvisation and Personalized Music 31:32 Music's Emotional Impact 35:58 Concluding Thoughts and Advice

    37 min

  4. JAN 19

    Music Therapy, Routine, and Daily Challenges | Fighting Dementia Episode 22

    Welcome to the Fighting Dementia Podcast! In this episode, hosts Leon and Tom, who was diagnosed with dementia eight years ago, are joined by Meryl and Dawn. Dawn shares her experience of living with posterior cortical atrophy, a rare form of dementia, while Meryl discusses her role as a supportive partner. The group converses about their daily routines, the challenges of maintaining independence, and the significance of music therapy in Dawn's life. The episode also delves into the importance of routine, dealing with new symptoms, and future plans for support. Tune in for an insightful conversation about living with dementia and the supports that make a difference. Chapters: 00:00 Welcome to the Fighting Dementia Podcast 00:20 Meet Meryl and Dawn 01:08 Music Therapy and Learning New Skills 02:49 Kitchen Adventures and Daily Challenges 05:33 The Importance of Routine 10:12 Community Groups and Social Connections 11:42 Traveling and Managing Fatigue 14:32 Independence and Daily Life Adjustments 21:32 Perception of Time and Planning 27:16 Daily Life with Dementia 27:33 Using Alexa for Reminders 29:44 Maintaining Independence 31:02 Support and Caregiving 34:55 Reflecting on the Past 42:31 Music Therapy Benefits 48:13 Therapy and Cognitive Issues 52:59 Concluding Thoughts

    54 min

  5. JAN 5

    The Power of Intentions and Brain Health | Fighting Dementia Episode 22

    Welcome to this episode of the Fightin g Dementia Podcast where hosts Leon, Fran, and Tom discuss their intentions for 2026 in the context of living with dementia. They stress the importance of focusing on intentions rather than goals for a kinder approach to managing expectations. The conversation touches on brain health, early detection, and the importance of public awareness and support for dementia. Fran and Tom share their own journeys and challenges while advocating for better resources and support networks. The team also shares exciting plans for their care home management software and a new app aimed at helping people with dementia live better lives. They wrap up with a call to action, encouraging listeners to like, subscribe, and share the podcast to help spread awareness. Resources & Further Reading: Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/ Alzheimer’s Society: https://www.alzheimers.org.uk/ Carers UK: https://www.carersuk.org/ Reddit Dementia Communities: https://www.reddit.com/r/dementia/ Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney Chapters: 00:00 Welcome to the Fighting Dementia Podcast 00:07 Meet the Hosts: Personal Stories 00:52 Understanding Dementia: Intentions vs. Goals 01:05 Brain Health and Dementia Prevention 02:44 Living Well with Dementia 04:13 Challenges and Advocacy 07:09 Future Plans and Innovations 14:03 Raising Awareness and Fighting Stigma 17:57 Final Thoughts

    19 min

  6. 12/29/2025

    Highlights from a Year of Fighting Dementia | Fighting Dementia Episode 21

    Welcome to the Fighting Dementia Podcast! In this special episode, we reminisce about our journey over the past year, discussing with experts, those living with dementia, and their supporters. Hear highlights of our many heartwarming and inspiring conversations, including guest appearances from individuals who continue to live full lives despite their diagnoses. Join us as we reflect on the insights shared, the laughter, and the important lessons learned about person-centered care and community support. We also discuss behavioral changes, the impact of community, and how small efforts can lead to significant positive impacts on those living with dementia. Tune in and help us build a supportive and informative community for all those affected by cognitive issues. Resources & Further Reading: Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging SURF (Service Users Reference Forum): https://surfdementia.org/ Alzheimer’s Society: https://www.alzheimers.org.uk/ Carers UK: https://www.carersuk.org/ Reddit Dementia Communities: https://www.reddit.com/r/dementia/ Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney Chapters: 00:00 Welcome to the Fighting Dementia Podcast 00:20 Reflecting on the Year: Highlights and Memories 01:01 Challenges and Perspectives on Dementia 03:05 Inspiring Stories and Personal Triumphs 05:00 Behavioral Changes and Support Systems 06:26 Engaging Conversations and Personal Growth 10:47 Behavior Change and Water Intake 11:28 The Impact of Diet and Routine 12:59 Vitamin D Deficiency Discussion 15:03 Reflecting on the Year 17:22 Building a Supportive Community 19:45 Concluding Thoughts and Reminders

    21 min

  7. 12/22/2025

    Understanding Dementia: Coping Strategies and Personal Histories | Fighting Dementia Episode 20

    In this episode of the Fighting Dementia podcast, host Leon and co-host Tom discuss living with dementia and the challenges they face. Tom shares his personal experience battling mood changes before and after his diagnosis. They introduce guest expert Tami Anastasia, who discusses her work in dementia care, the importance of understanding personal histories in dementia, and her new book, 'Dementia, Caregiving, and Personal History: How to Help Cope, Connect, and Heal.' They also dive into the challenges of seeking help as a caregiver, the significance of physical exercise for brain health, and how dementia can sometimes unearth deep-seated emotional issues. The episode wraps up with a reflection on the personal symptoms of dementia experienced by Tom and how both he and his wife navigate life with the condition.Chapters:00:00 Introduction to the Podcast01:03 Discussing Mood Changes02:50 Physical Activity and Dementia03:13 The Importance of Support Groups04:13 Reflecting on Christmas and Singing05:43 Reintroducing Physical Activity10:57 Guest Introduction: Tami Anastasia15:11 Challenges of Asking for Help21:56 Planning for Future Care Needs22:30 Discussing Emotional Challenges24:21 Understanding Dementia and Personal History26:10 Healing Through the Dementia Journey30:08 Tom's Personal Reflections33:09 The Importance of Knowing the Person40:05 Living with Mixed Dementia41:42 Tom's Unique Perspective on Emotions44:19 Concluding Thoughts and Future Plans

    45 min

  8. 12/15/2025

    Discussing Dementia, Recipes and Support with the Alzheimer's Society | Fighting Dementia Episode 19

    Join us in this special Christmas podcast episode where we discuss the challenges of using cookbooks designed for people with dementia. The conversation touches on the need for more practical and visually engaging recipes. Later, Tim, the head of knowledge from the Alzheimer's Society, joins the discussion to talk about the latest research in dementia, the importance of support networks, and how lifestyle changes can impact dementia progression. The episode also highlights the societal stigma around dementia and the invaluable role of caregivers. Tune in for an insightful exploration into living well with dementia and the strides being made in research and support.Christmas is traditionally a time for joy, laughter and creating memories. But for many of the one million people in the UK living with dementia, the festive season can be a painful reminder of how once familiar traditions become harder to hold onto.Dementia is the UK’s biggest killer, with one in three people born today expected to develop the condition. This Christmas, with your donation, Alzheimer’s Society can be here for more people affected by dementia through our lifechanging support services.It will take a society to defeat dementia. To donate or find out more, visit alzheimers.org.uk/Christmas or call Alzheimer’s Society’s Dementia Support Line on 0333 150 3456.Chapters:00:00 Welcome to the Christmas Podcast00:15 Critiquing Cookbooks for Dementia04:11 The Goat Curry Story05:07 Introducing Tim from Alzheimer's Society07:23 Tim's Journey with Alzheimer's Society10:21 Discussing Dementia Stigma16:09 Research and Treatments for Dementia24:07 Exploring the Cost and Benefits of Dementia Treatments24:49 The Individual Nature of Dementia25:35 Challenges and Changes in IV Therapy27:54 Encouraging Participation in Research Trials29:00 Preventing Dementia: Lifestyle Factors31:11 The Impact of Sports on Dementia Risk34:03 Advice for Early Stages of Dementia39:54 Supporting Carers and Emotional Well-being46:45 Concluding Thoughts and Resources

    49 min
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About

Hosted by Fran & Tom who live with Dementia, we’re a podcast & community for those impacted in the early to middle stages – offering expert insights, honest stories & support. For those diagnosed, carers & families who need to feel seen, informed & less alone 🤝 **New Episodes Weekly On Mondays!** We want to take viewers on a journey to see what behaviours can be adapted, changed or moulded to support good brain health, and fight the progression of Dementia 🥊

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