From Care to Cure

MGH FTD Unit

The MGH Frontotemporal Disorders Unit hosts From Care to Cure, a podcast about frontotemporal disorders also known as FTD. Our first season will feature Dr. Brad Dickerson, renowned neuroscientist and the director of the MGH FTD Unit, introducing our clinical research program, explaining what FTD is and examining the process of diagnosis. Our podcast will feature the voices of our clinical research team and community experts as they discuss key topics such as care planning, symptom management and available treatments. For more information about the MGH FTD Unit, go to www.FTDBoston.org.

  1. Sep 20

    FTD Care Team Spotlight: The Association for Fronototemporal Degeneration

    Welcome to From Care to Cure, a podcast from the Massachusetts General Hospital Frontotemporal Disorders Unit.  Our seventh episode of season 2 presents a discussion between our host, Katie Brandt, the Director of Caregiver Support Services and Public Relations at the MGH FTD Unit, and Ann Schoonover, HelpLine Specialist at the Association for Frontotemporal Degeneration, about everything the Association for Frontotemporal Degeneration offers to people living with FTD and their families. AFTD’s website is TheAFTD.org. Learn more about AFTD’s Comstock Grant program at https://www.theaftd.org/living-with-ftd/resources/comstock-grants/. Find a support group near you at https://www.theaftd.org/find-support/. The MGH FTD Unit clinical research program is committed to providing the highest quality of care while we work tirelessly for a cure for FTD, atypical and young-onset forms of Alzheimer’s Disease and related neurological disorders. You can learn more about the MGH FTD Unit at www.FTDBoston.org. We would like to thank Bernie Metzger for our beautiful music, an excerpt from Bernie’s composition Ramblings An FTD Journey, inspired by his wife Karen Zander’s journey with FTD. Amy Almeida is our producer. From Care to Cure is made possible by generous contributions from donors to the MGH FTD Unit. If you would like to support our work, visit www.FTDBoston.org/Donate.  Please follow, like and share From Care to Cure so that we can raise awareness of the impact of FTD on families living with these and related conditions.

  2. Jul 28

    FTD Care Team Spotlight: Legal Planning

    Welcome to From Care to Cure, a podcast from the Massachusetts General Hospital Frontotemporal Disorders Unit.  Our sixth episode of season 2 presents a discussion between our host, Katie Brandt, the Director of Caregiver Support Services and Public Relations at the MGH FTD Unit, and attorney Pam Greenfield, Partner and Co-Founder at Birchgrove Law Collaborative, about legal planning after a diagnosis of FTD, Alzheimer’s disease and related conditions, what documents families should put in place and the gift such advanced planning is to families living alongside these conditions. You can find an elder law attorney at the National Academy of Elder Law Attorneys website: NAELA.org. The MGH FTD Unit clinical research program is committed to providing the highest quality of care while we work tirelessly for a cure for FTD, atypical and young-onset forms of Alzheimer’s Disease and related neurological disorders. You can learn more about the MGH FTD Unit at www.FTDBoston.org. We would like to thank Bernie Metzger for our beautiful music, an excerpt from Bernie’s composition Ramblings An FTD Journey, inspired by his wife Karen Zander’s journey with FTD. Amy Almeida is our producer. From Care to Cure is made possible by generous contributions from donors to the MGH FTD Unit.  If you would like to support our work, visit www.FTDBoston.org/Donate.  Please follow, like and share From Care to Cure so that we can raise awareness of the impact of FTD on families living with these and related conditions.

  3. May 20

    FTD Care Team Spotlight: Nursing

    Welcome to From Care to Cure, a podcast from the Massachusetts General Hospital Frontotemporal Disorders Unit.  Our fourth episode of season 2 presents a discussion between our host, Katie Brandt, the Director of Caregiver Support Services and Public Relations at the MGH FTD Unit, and Matthew Walsh, CNP, a nurse practitioner with the MGH FTD Unit, about the role that nurse practitioners can play on an FTD care team, the importance of advanced care discussions in FTD and related conditions and what a holistic view of care can look like. You can watch the Care Plan Trifecta webinar series, a framework for care planning incorporating the medical, home and advocacy communities, on the MGH FTD Unit’s YouTube channel: https://www.youtube.com/watch?v=lyOht4481y8&list=PLVKGfYzi1DDoAK9q4oQizYhLizn1CX2yo&pp=gAQB.   Learn more about MOLST/POLST forms at the National POLST Collaborative: https://polst.org/for-patients/. The MGH FTD Unit clinical research program is committed to providing the highest quality of care while we work tirelessly for a cure for FTD, atypical and young-onset forms of Alzheimer’s Disease and related neurological disorders. You can learn more about the MGH FTD Unit at www.FTDBoston.org. We would like to thank Bernie Metzger for our beautiful music, an excerpt from Bernie’s composition Ramblings An FTD Journey, inspired by his wife Karen Zander’s journey with FTD. Amy Almeida is our producer. From Care to Cure is made possible by generous contributions from donors to the MGH FTD Unit.  If you would like to support our work, visit www.FTDBoston.org/Donate.  Please follow, like and share From Care to Cure so that we can raise awareness, funds and hope that the cure of tomorrow is not so far from the care of today.

  4. Feb 20

    FTD Care Team Spotlight: Speech Language Pathology

    Welcome to From Care to Cure, a podcast from the Massachusetts General Hospital Frontotemporal Disorders Unit.  Our first episode of season 2 features a conversation between our host, Katie Brandt, the Director of Caregiver Support Services and Public Relations at the MGH FTD Unit, and Nneka Watson, a staff speech language pathologist within the Unit, about the role that speech language pathologists can play on an FTD care team. Learn more about primary progressive aphasia (PPA) by listening to From Care to Cure, season 1 episode 7 titled “Managing Symptoms: Communication.” Learn more about the MGH FTD Unit’s PPA program at https://ftdboston.org/diagnosis/primary-progressive-aphasia/. Learn more about AFTD’s resources for people living with PPAand FTD at https://www.theaftd.org/living-with-ftd/support-for-people-with-ftd/. Learn more about aphasia from the National AphasiaAssociation at https://aphasia.org/. The MGH FTD Unit clinical research program is committed toproviding the highest quality of care while we work tirelessly for a cure for FTD, atypical and young-onset forms of Alzheimer’s Disease and related neurological disorders. You can learn more about the MGH FTD Unit at ww.FTDBoston.org. Amy Almeida is our producer. From Care to Cure is made possible by generous contributions from donors to the MGH FTD Unit.  If you would like to support our work, visit www.FTDBoston.org/Donate.  Please follow, like and share From Care to Cure so that we can raise awareness about the impact of FTD for families.

Ratings & Reviews

5
out of 5
11 Ratings

About

The MGH Frontotemporal Disorders Unit hosts From Care to Cure, a podcast about frontotemporal disorders also known as FTD. Our first season will feature Dr. Brad Dickerson, renowned neuroscientist and the director of the MGH FTD Unit, introducing our clinical research program, explaining what FTD is and examining the process of diagnosis. Our podcast will feature the voices of our clinical research team and community experts as they discuss key topics such as care planning, symptom management and available treatments. For more information about the MGH FTD Unit, go to www.FTDBoston.org.

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