The Value Brief

The Center for Innovation and Value Research
  • 5.0 (3)
  • MEDICINE
  • UPDATED MONTHLY
The Value Brief

Dedicated to advancing patient-centered outcomes, healthcare equity, and transparency in value-based care. Through conversations with healthcare leaders, researchers, and patient advocates, we explore how innovative strategies and collaborative efforts can drive meaningful change in healthcare decision-making. Each episode tackles issues like ensuring fair access to care, improving transparency in healthcare research, and amplifying patient voices. By sharing expert insights and real-world applications, The Value Brief fosters critical discussions that shape the future of healthcare.

Episodes

  1. 1 DAY AGO

    Breaking Barriers: Transforming Rare Disease Patient Engagement (Part 2) – Trust, Transparency, and Technology

    In this second part of our conversation with Adrian Kielhorn (Alexion, AstraZeneca Rare Disease) and Charlene Son Rigby (CEO of Global Genes), we continue exploring the challenges and opportunities in rare disease patient engagement. This episode examines the role of pharmaceutical companies and healthcare providers in building trust, the importance of transparency, and the impact of real-world evidence, AI, and emerging technology on patient outcomes.  Register for the Center for Innovation & Value Research's 6th Annual Methods Summit, March 19, 2025:  On-Site Registration: https://ow.ly/T59550UUorWLive-Stream Registration: https://ow.ly/CAMH50UUorU

    20 min

  2. FEB 22

    Breaking Barriers: Transforming Rare Disease Patient Engagement

    This is Part 1 of a 2-part series exploring the challenges rare disease patients face in accessing care, influencing policy, and making their voices heard. In this episode, we explore how healthcare leaders, researchers, and advocates are working to break down barriers and build meaningful engagement strategies. Featuring insights from Adrian Kielhorn, a leader in economic research at Alexion, AstraZeneca Rare Disease, and Charlene Son Rigby, CEO of Global Genes, we discuss the financial burdens rare disease patients face, the role of industry collaboration, and how trust and transparency can drive better patient outcomes. Tune in to discover innovative approaches that empower patients and shape the future of rare disease care. Join the Center on Wednesday, March 19, 2025 for the 6th Annual Methods Summit for a deep dive into patient-centered value research. Register now:On-Site: https://ow.ly/sUoE50UGr3cLive-Stream: https://ow.ly/xCuy50UGr3a

    21 min
  • 2 Episodes

Ratings & Reviews

5
out of 5
3 Ratings

About

Dedicated to advancing patient-centered outcomes, healthcare equity, and transparency in value-based care. Through conversations with healthcare leaders, researchers, and patient advocates, we explore how innovative strategies and collaborative efforts can drive meaningful change in healthcare decision-making. Each episode tackles issues like ensuring fair access to care, improving transparency in healthcare research, and amplifying patient voices. By sharing expert insights and real-world applications, The Value Brief fosters critical discussions that shape the future of healthcare.

Information

  • Creator
    The Center for Innovation and Value Research
  • Years Active
    2K
  • Episodes
    2
  • Rating
    Clean
  • Copyright
    © The Center for Innovation and Value Research
  • Show Website
    The Value Brief

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