Vitafriends Voices

Vitafriends Voices

Welcome to Vitafriends Voices - A Vitaflo Podcast! Join us as we chat about everything from managing diets to living well and overcoming challenges. Each episode, we will bring you engaging interviews with inspiring individuals and family members of those living with disorders of protein metabolism, as well as experts who are at the forefront of the field. Whether you are seeking practical tips, personal stories, or expert insights, this podcast has something for everyone!

  1. PKU Realities: Richard Farquhar & Kevin Alexander on Mental Health, Advocacy & Taking Control

    2d ago ·  Bonus

    PKU Realities: Richard Farquhar & Kevin Alexander on Mental Health, Advocacy & Taking Control

    What does it really mean to live well with PKU? In this deeply personal episode, two of the most passionate voices in the PKU community, Richard Farquhar and Kevin Alexander, come together for a rare, face to face conversation that spans continents, challenges, and everything in between. Despite living on opposite sides of the world, Richard and Kevin have built a close friendship rooted in shared experience, mutual understanding, and an unwavering commitment to advocacy. Subsribe for more community stories and practical tips for living with a metabolic disorder. Follow our Instagram @Vitafriends_Voices to be the first to hear about future episodes! Want to dive deeper into Kevin's advocacy journey? This conversation builds on two pieces he has shared previously; In 'The Emotional Toll of Rare Disease Advocacy', Kevin opens up for the first time about the hidden burdens advocates carry, available as both a podcast episode and article: https://pkujournal.com/the-emotional-toll-of-rare-disease-advocacy/ And in 'Self Care is Advocacy', written following a candid exchange between Kevin and Richard on social media, he explores the emotional weight of holding other people's stories and why self care isn't optional for advocates: https://pkujournal.com/self-care-is-advocacy-advice-to-rare-disease-advocates/ All products and medications referred to in the podcast must be used under medical supervision. For more information, please speak to your healthcare professional.

    54 min
  2. PKU & the Holidays Made Easy: Lorraine (@GrowingUpWithPKU) Shares Her Festive Tips

    12/17/2025 ·  Bonus

    PKU & the Holidays Made Easy: Lorraine (@GrowingUpWithPKU) Shares Her Festive Tips

    Join us for a special festive bonus episode of VitaFriends Voices featuring Lorraine, the inspiring voice behind the popular Instagram account @GrowingUpWithPKU. Lorraine shares her personal experience of managing her teenage daughter Hannah’s PKU during the holiday season, including navigating festive meals and ensuring Hannah never misses out on the joy of Christmas. Subscribe for more community stories and practical tips for living with a metabolic disorder. Follow our Instagram @Vitafriends_Voices to be the first to hear about future episodes! All products and medications referred to in the podcast must be used under medical supervision. For more information, please speak to your healthcare professional. #PKU #Phenylketonuria #DisordersOfProteinMetabolism #RareDisease #LowProteinDiet #Vitaflo #VitafriendsVoices #Holidays #FestiveSeason

    29 min
  3. The Role of Patient Organisations: Dietitian Suzanne Ford's Take on Season 2

    11/26/2025

    The Role of Patient Organisations: Dietitian Suzanne Ford's Take on Season 2

    Dietitian & Advisor to the NSPKU, Suzanne Ford, wraps up season 2 and explores how patient organisations can support individuals and families living with a metabolic disorder. In this episode, we discuss challenges, education, peer connection, and how individuals can get involved in ways that genuinely help. This conversation will resonate with newly diagnosed and long time community members alike. Subscribe for more community stories and practical tips for living with a metabolic disorder. Follow our Instagram @Vitafriends_Voices to be the first to hear about future episodes! All products and medications referred to in the podcast must be used under medical supervision. For more information, please speak to your healthcare professional. #PKU #Phenylketonuria #TYR #Tyrosinaemia #HCU #Homocystinuria #DisordersOfProteinMetabolism #RareDisease #LowProteinDiet #Vitaflo #VitafriendsVoices

    36 min
  4. A Rare Diagnosis of Tyrosinaemia: Lorraine & Harry Spillane on Family Life & Empowerment

    11/19/2025

    A Rare Diagnosis of Tyrosinaemia: Lorraine & Harry Spillane on Family Life & Empowerment

    Tyrosinaemia (TYR) is incredibly rare, and when your child receives a diagnosis, everything changes. Lorraine and Harry Spillane reflect on their experiences in the early days, building routines that work and staying positive as a family. Subscribe for more community stories and practical tips for living with a metabolic disorder. Follow our Instagram @Vitafriends_Voices to be the first to hear about future episodes! All products and medications referred to in the podcast must be used under medical supervision. For more information, please speak to your healthcare professional. #Tyrosinaemia #Tyrosinemia #TYR #DisordersOfProteinMetabolism #RareDisease #LowProteinDiet #Vitaflo #VitafriendsVoices

    42 min
  5. PKU Diet for Life Study: Max and Harald Share a Doctor and Patient's Perspective

    11/12/2025

    PKU Diet for Life Study: Max and Harald Share a Doctor and Patient's Perspective

    Dr Maximilian Pichler and Harald Schossmann, an adult with PKU, discuss the Austrian 'Back to Clinic' study and initiative. This episode covers Harald's lived experience of returning to the PKU diet, as well as a healthcare professional’s evidence based view and explanation of the study's findings. Subscribe for more community stories and practical tips for living with a metabolic disorder. Follow our Instagram @Vitafriends_Voices to be the first to hear about future episodes! All products and medications referred to in the podcast must be used under medical supervision. For more information, please speak to your healthcare professional. #PKU #Phenylketonuria #DisordersOfProteinMetabolism #PKUDiet #ReturnToDiet #RareDisease #LowProteinDiet #Vitaflo #VitafriendsVoices

    41 min
  6. PKU and Travel: Nicole Weber on Life as a Travel Nurse and Low Protein Living

    11/05/2025

    PKU and Travel: Nicole Weber on Life as a Travel Nurse and Low Protein Living

    Travel and PKU definitely can coexist. In this episode, Nicole Weber shares practical strategies for flying, eating out and staying on plan, all while building confidence and community on the road. Perfect for anyone managing phenylketonuria (PKU) or any other metabolic disorder who wants unique tips that actually work. Subscribe for more community stories and practical tips for living with a metabolic disorder. Follow our Instagram @Vitafriends_Voices to be the first to hear about future episodes! All products and medications referred to in the podcast must be used under medical supervision. For more information, please speak to your healthcare professional. #PKU #Phenylketonuria #DisordersOfProteinMetabolism #RareDisease #LowProteinDiet #Vitaflo #VitafriendsVoices

    24 min
  7. HCU Acceptance & Advocacy: Éimear McGlynn's Ambassador Journey

    10/29/2025

    HCU Acceptance & Advocacy: Éimear McGlynn's Ambassador Journey

    Living with homocystinuria (HCU) has been a journey for Éimear. In this inspiring episode, she talks openly about acceptance, community, and turning personal experience into effective advocacy. Subscribe for more community stories and practical tips for living with a metabolic disorder. Follow our Instagram @Vitafriends_Voices to be the first to hear about future episodes! All products and medications referred to in the podcast must be used under medical supervision. For more information, please speak to your healthcare professional. #HCU #Homocystinuria #DisordersOfProteinMetabolism #RareDisease #LowProteinDiet #Vitaflo #VitafriendsVoices

    43 min
  8. Maternal PKU and Partner Support: Helen & Steve Holt on Their Pregnancy Journey

    10/21/2025

    Maternal PKU and Partner Support: Helen & Steve Holt on Their Pregnancy Journey

    A candid conversation on maternal PKU: from pre conception planning to daily management, and the often overlooked role of partner support. Helen and Steve share what helped, what didn’t, and how love and teamwork made all the difference. Subscribe for more community stories and practical tips for living with a metabolic disorder. Follow our Instagram @Vitafriends_Voices to be the first to hear about future episodes! All products and medications referred to in the podcast must be used under medical supervision. For more information, please speak to your healthcare professional. #MaternalPKU #PKU #Phenylketonuria #DisordersOfProteinMetabolism #RareDisease #LowProteinDiet #Vitaflo #VitafriendsVoices

    41 min
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About

Welcome to Vitafriends Voices - A Vitaflo Podcast! Join us as we chat about everything from managing diets to living well and overcoming challenges. Each episode, we will bring you engaging interviews with inspiring individuals and family members of those living with disorders of protein metabolism, as well as experts who are at the forefront of the field. Whether you are seeking practical tips, personal stories, or expert insights, this podcast has something for everyone!

Information

  • Creator
    Vitafriends Voices
  • Years Active
    2025 - 2026
  • Episodes
    17
  • Rating
    Clean
  • Copyright
    © Vitafriends Voices
  • Show Website
    Vitafriends Voices