HemoLife Podcast

L.A. Aguayo
  • 5.0 (4)
  • Education

Welcome to the HemoLife Podcast, where we explore how to live an elite life while managing a bleeding disorder or other rare conditions. Dive into educational, entertaining content with stories of high achievers, expert advice on mental health, nutrition, and exercise, and the latest relevant news to elevate your mind, body, and soul.

  1. 5d ago

    Who am I beyond Hemophilia?

    Send us Fan Mail We talk candidly about identity, hemophilia, and the rock-bottom questions that can rebuild a life with purpose. We connect faith, mentorship, and practical skill-building so you can move from feeling stuck to taking the next step with confidence.  • auditing your life to find the real roots of your mindset  • asking the five identity questions that clarify purpose and direction  • turning bullying, setbacks, and misunderstanding into motivation  • breaking limiting beliefs through accountability and discomfort  • learning from mentors and modeling behaviors that work  • re-centering identity through faith and daily prayer  • replacing anxiety with trust and an expectant attitude  • choosing better rooms and leveling up to earn a seat  • building momentum with small daily habits and simple goals  • reframing sales as communication and life skills for career growth  Make sure to subscribe and stay connected with the group of extraordinary achievers and pioneers  Thanks for tuning into the HemoLife Podcast. Be sure to subscribe, leave a review, and share this episode with someone who needs a spark of hope or encouragement. Follow us on Instagram @HemoLife_Podcast and YouTube for updates, guest highlights, and behind-the-scenes content. New episodes drop regularly—your story matters, and this is just the beginning.

  2. Sep 17

    Choosing The Right Hemophilia Prophylaxis Takes Testing And Honesty

    Send us Fan Mail We read real posts from the hemophilia community and respond to what people are struggling with right now, from relationship stigma to medication side effects and breakthrough bleeds. We share our own experiences with Hemlibra, Alhemo, Altuvvio, and factor prophylaxis so you can think more clearly about what “the right treatment” really means for your body and your life. • relationship pressure and stigma around dating someone with severe hemophilia • how newer hemophilia medications change daily life but do not erase risk • LA’s experience with Alhemo convenience versus joint pain and major bleeds • community reports on Hemlibra including soreness, micro bleeds, and missed warning signs • why prophylaxis is personal with labs, dosing, training goals, and side effects • switching treatments over time and considerations like inhibitors and changing effectiveness • value of clinical trials, surveys, and market research to improve future hemophilia care • building a Discord support community with stories, insurance questions, and monthly Zoom calls So if you are someone you know has has been on Hemlibra and switched out to Altuvvio, we're gonna put a link below. And if you guys click that link, you'll you'll get $180 if you qualify. It's only 45 minutes long. https://surveys.global-perspectives.com/wix/p406695472734.aspx?respSource=7 Thanks for tuning into the HemoLife Podcast. Be sure to subscribe, leave a review, and share this episode with someone who needs a spark of hope or encouragement. Follow us on Instagram @HemoLife_Podcast and YouTube for updates, guest highlights, and behind-the-scenes content. New episodes drop regularly—your story matters, and this is just the beginning.

  3. Sep 16

    Special Event Announcement!

    Send us Fan Mail 🚨 THE SECRET IS OUT. HEMOLIFE IS COMING TO CHICAGO. On this episode of the HemoLife Podcast, we’re officially revealing a special event created for the hemophilia community. This is more than another podcast episode. It’s a chance to bring the conversations, the stories, the education, and the people behind this community together in real life. 📍 Chicago 🩸 Built for the hemophilia community 🎟️ Limited access Space will be limited, and sign-ups are coming soon. If you want to be part of this experience, stay locked in to HemoLife and be on the lookout for registration details. This is just the beginning. 🎙️ Watch the full episode now and hear what we’re building. #HemoLifePodcast #Hemophilia #HemophiliaCommunity #BleedingDisorders #Chicago Thanks for tuning into the HemoLife Podcast. Be sure to subscribe, leave a review, and share this episode with someone who needs a spark of hope or encouragement. Follow us on Instagram @HemoLife_Podcast and YouTube for updates, guest highlights, and behind-the-scenes content. New episodes drop regularly—your story matters, and this is just the beginning.

  4. May 26

    Gene Therapy Is Here! Are You Ready?

    Send us Fan Mail We sit down with hematology nurse practitioner Maya Bloomberg to cut through the noise around hemophilia gene therapy, including what it can realistically change and what it cannot. We talk durability, safety, access, and the human side of decision-making so patients and families can walk into care feeling informed and empowered.  • what gene therapy aims to do in hemophilia and why “cure” can mislead  • how factor levels can rise, vary widely, and decline over time  • eligibility basics, including AAV antibody testing and why redosing is limited  • liver toxicity risk, frequent lab monitoring, and steroid protocols after infusion  • lifestyle constraints, including the recommendation for no alcohol  • family planning considerations, including viral shedding in semen and timing for conception  • why gene therapy does not stop hemophilia from being passed to children  • identity and belonging fears and how comprehensive HTCs support psychosocial needs  • access gaps in community hospitals and why establishing HTC care early matters  • telehealth options and decision tools, including WFH resources and Zebra for Care  • women carriers with real bleeding symptoms, delayed diagnosis, and the need to advocate  I would encourage everyone to complete the five-minute simple assessment at hematology.zebraforcare.com Make sure to subscribe and stay connected with the group of extraordinary achievers and pioneers. Thanks for tuning into the HemoLife Podcast. Be sure to subscribe, leave a review, and share this episode with someone who needs a spark of hope or encouragement. Follow us on Instagram @HemoLife_Podcast and YouTube for updates, guest highlights, and behind-the-scenes content. New episodes drop regularly—your story matters, and this is just the beginning.

  5. May 19

    Bleeders Have Dreams Too

    Send us Fan Mail We sit down with Rocco Weber to connect sprint car racing, hemophilia, and the mindset it takes to live with purpose instead of fear. We dig into community, access to care, and why peer support and better tools can change what’s possible for people with bleeding disorders.  • Rocco’s vision for a first annual hemophilia racing community event in Knoxville, Iowa  • Connecting “horsepower and awareness” as a practical mindset for hemophilia life  • Learning to stay dialed in daily and avoiding the bubble mentality  • The need for mentors and role models when you grow up feeling alone  • Rejecting the “plan B” narrative and building safer paths to big dreams  • Real talk on work, money, and consequences when health problems interrupt life  • Access to care challenges, long waits for HTC appointments, and gaps in general medical knowledge  • Why peer-to-peer insight is powerful and where it can also mislead without education  • Telehealth options and Zebra for Care as a faster route to hematology guidance and gene therapy education  Make sure to subscribe and stay connected with a group of extraordinary achievers and pioneers.  Thanks for tuning into the HemoLife Podcast. Be sure to subscribe, leave a review, and share this episode with someone who needs a spark of hope or encouragement. Follow us on Instagram @HemoLife_Podcast and YouTube for updates, guest highlights, and behind-the-scenes content. New episodes drop regularly—your story matters, and this is just the beginning.

  6. Apr 20

    Firefighter With Hemophilia Ft. Colby Spencer

    Send us Fan Mail We sit down with Colby Spencer, a young firefighter and EMT living with severe hemophilia B, to talk about what it takes to do a high-demand job without letting the disorder write the rules. We get real about compliance, mindset, mentorship, and why building a life matters as much as managing bleeds.  • deciding to pursue fire service after being told “no”  • being upfront about hemophilia at work and finding real support  • target joints, non-compliance lessons and keeping factor on shift  • learning to love EMS and pushing for advanced skills  • handling self-criticism after tough calls and tracking achievements  • dealing with people who misunderstand hemophilia in health care  • isolation in a small area and why community events matter  • self-infusion anxiety and the value of true mentorship  • purpose, providing for family and breaking the “safe job only” belief  • mental health, addiction and what PTSD awareness looks like on a crew  • training for fitness and a marathon while staying on prophylaxis  • fatherhood, genetics concerns and teaching a partner to infuse  Make sure to subscribe and stay connected with a group of extraordinary achievers and pioneers.  Thanks for tuning into the HemoLife Podcast. Be sure to subscribe, leave a review, and share this episode with someone who needs a spark of hope or encouragement. Follow us on Instagram @HemoLife_Podcast and YouTube for updates, guest highlights, and behind-the-scenes content. New episodes drop regularly—your story matters, and this is just the beginning.

  7. Apr 11

    Building A Support Network For Women With Bleeding Disorders

    Send us Fan Mail We sit down with Tracy Hamler, founder of Free Bleeders Inc., to talk about what happens when women with bleeding disorders get dismissed, then decide to build the resources they needed all along. We dig into diagnosis, motherhood, community support, and the daily mindset shifts that help caregivers and leaders keep going when the tank is empty.  • Tracy’s path to a hemophilia diagnosis at 30  • why “symptomatic carrier” language can hide real symptoms  • building Free Bleeders Inc. to empower women with bleeding disorders  • retreats, monthly events, and creating sisterhood and accountability  • practical help like education, copay assistance, premium assistance, and emergency support  • supporting moms by supporting their whole family  • filling your cup so your kids see you healthy  • pressure cooker moments, leadership, and needing affirmations too  • small daily steps that build momentum over time  Follow me on all social media platforms at Tracy Hamler, that’s T-R-A-C-Y-E, H A M L E R. Also follow Free Bleeders Inc. on all platforms as well. Or you can go to freebleeders.org for more information. Just sign up for our email listing. Thanks for tuning into the HemoLife Podcast. Be sure to subscribe, leave a review, and share this episode with someone who needs a spark of hope or encouragement. Follow us on Instagram @HemoLife_Podcast and YouTube for updates, guest highlights, and behind-the-scenes content. New episodes drop regularly—your story matters, and this is just the beginning.

  8. Apr 4

    You Can Build A Big Life With Hemophilia

    Send us Fan Mail We sit down with Johnny Hawkins to talk about surviving a life-threatening brain bleed as a toddler and growing into a confident adult with severe Hemophilia A. We get real about bullying, treatment discipline, staying active, and why your bleeding disorder can shape you without limiting you. • Johnny’s origin story as the first known case in his family • A childhood intracranial bleed and craniotomy plus how his dad’s CPR training saved his life • Parents and friends who treat him as capable not fragile • Bullying and the emotional cost of looking “fine” one day and injured the next • Prophylaxis infusions, ports, target joints and learning to feel a bleed coming • Training and sports with hemophilia plus smart risk taking without “bubble wrap” • Building a hands-on custom automotive business and rejecting limiting career advice • New hemophilia treatments, reactions, and what aging with hemophilia changes • Consistency, mentorship and community as the difference between inspiration and lasting change Make sure to subscribe and stay connected with a group of extraordinary achievers and pioneers. Thanks for tuning into the HemoLife Podcast. Be sure to subscribe, leave a review, and share this episode with someone who needs a spark of hope or encouragement. Follow us on Instagram @HemoLife_Podcast and YouTube for updates, guest highlights, and behind-the-scenes content. New episodes drop regularly—your story matters, and this is just the beginning.

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Ratings & Reviews

5
out of 5
4 Ratings

About

Welcome to the HemoLife Podcast, where we explore how to live an elite life while managing a bleeding disorder or other rare conditions. Dive into educational, entertaining content with stories of high achievers, expert advice on mental health, nutrition, and exercise, and the latest relevant news to elevate your mind, body, and soul.

Information

  • Creator
    L.A. Aguayo
  • Years Active
    2025 - 2026
  • Episodes
    35
  • Rating
    Explicit
  • Copyright
    © 2026 HemoLife Podcast
  • Show Website
    HemoLife Podcast