My Voice, My Way

Margaret Stoddart

Welcome to “My Voice, My Way” – the podcast that gives a voice to those living with voice disorders. I’m your host, Margaret Stoddart. I live with a complex voice condition – a combination of Muscle Tension Dysphonia and Spasmodic Dysphonia – and I’m also proud to serve as an Area Contact Leader for Dysphonia International, supporting others across the UK who are living with these often misunderstood conditions. I created this podcast to raise awareness and start honest conversations about what it really means to live with a voice disorder. Each episode, I speak with people who understand voice disorders from the inside – fellow sufferers, voice users, and expert clinicians, including ENT specialists, speech and language therapists, and clinical psychologists. Together, we explore the challenges, the treatments, the emotional impact – and the resilience it takes to reclaim our voices. Whether you’re living with a voice disorder yourself, supporting someone who is, or working in voice care – you’re in the right place. This is a space for shared stories, practical insights, and above all – connection. This is My Voice, My Way. Let’s get started. Contact email: mstoddart7@outlook.com

  1. APR 25

    My Voice, My Way with Leon Maciocia

    Send us Fan Mail This episode is a really powerful and thought-provoking conversation. It is a little different, but deeply connected to what we talk about here. Many of you will know Spasmodic Dysphonia as a voice disorder—but it actually sits within a wider neurological condition called dystonia. My guest lives with progressive axial dystonia, affecting his spine, posture, and movement. While our symptoms show up in different parts of the body, the underlying challenges are strikingly similar - unpredictable muscle patterns, the impact of stress, and the emotional and psychological toll of living with a long-term condition. His journey spans a successful career as a Clinical Scientist, years of chronic pain, and treatments that didn’t bring the hoped-for results. But what makes this conversation so compelling is the shift from trying to fix symptoms to learning how to live alongside them - particularly through Mindfulness-Based Cognitive Therapy. We explore identity, loss, and what it means to live with a progressive condition—but also acceptance, resilience, and finding a new sense of purpose. Leon Maciocia now works as both a piano teacher and a mindfulness teacher, supporting others with long-term conditions through Mindfulness-Based Cognitive Therapy. This episode isn’t just about dystonia—it’s about learning how to live differently, when life doesn’t go to plan. DBS - Deep Brain Stimulation MBCT - Mindfulness Based Cognitive Therapy. CBT - Cognitive Behavioural Therapy info@wellbeingclinic.com 01865 751111 - wellbeingclinic.com 07894 948869 - oxfordmbct.net

    48 min
  2. APR 8

    My Voice, My Way: When Your Voice Doesn't Behave: Understanding Voice Disorders

    Send us Fan Mail Have you ever tried to speak… and your voice just doesn’t do what you want it to do? Not because you’re nervous. Not because you don’t know what to say. But because something physically won’t let the sound come out the way it should. For a lot of people, voice disorders are invisible. People hear the voice—but they don’t understand what’s behind it. They might think you’re anxious. Or tired. Or unsure. But the reality is… it’s something much deeper. And that’s exactly why I’m making this episode today. First of all, I just want to say I’m really sorry for the big gap since my last episode. I know it’s been a while, and I actually had to postpone two episodes last week as my most recent treatment hasn’t quite kicked in yet—and you can probably hear in my voice today that I’m still struggling. But in a way, that makes today’s episode even more important. If you’re new here, this podcast is all about living with a voice disorder—raising awareness, sharing real experiences, and helping people understand what these conditions are actually like, beyond the medical terms. So I wanted to start Season 2 by going right back to basics. Today, I’m going to walk you through some of the most common voice disorders in a way that’s easy to understand—whether you’re someone living with one, supporting someone who is, or you’ve just come across this podcast and want to learn more. Before we begin, just a quick disclaimer: I’m not a medical professional. This episode is based on my personal experience, along with information from trusted organisations and hospitals. And I’d like to give credit to organisations like Dysphonia International, Dystonia UK; University College London Hospitals, British Voice Association; Royal Berkshire NHS Foundation Trust; Royal College of Speech & Language Therapists (RCSLT);  SLT UK and Oxford University Hospitals for the work they do in supporting people with voice disorders and providing reliable information.

    27 min

Ratings & Reviews

5
out of 5
2 Ratings

About

Welcome to “My Voice, My Way” – the podcast that gives a voice to those living with voice disorders. I’m your host, Margaret Stoddart. I live with a complex voice condition – a combination of Muscle Tension Dysphonia and Spasmodic Dysphonia – and I’m also proud to serve as an Area Contact Leader for Dysphonia International, supporting others across the UK who are living with these often misunderstood conditions. I created this podcast to raise awareness and start honest conversations about what it really means to live with a voice disorder. Each episode, I speak with people who understand voice disorders from the inside – fellow sufferers, voice users, and expert clinicians, including ENT specialists, speech and language therapists, and clinical psychologists. Together, we explore the challenges, the treatments, the emotional impact – and the resilience it takes to reclaim our voices. Whether you’re living with a voice disorder yourself, supporting someone who is, or working in voice care – you’re in the right place. This is a space for shared stories, practical insights, and above all – connection. This is My Voice, My Way. Let’s get started. Contact email: mstoddart7@outlook.com