Alzheimer's Thriver

Alzheimers Thriver
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Feeling Lost After an Alzheimer's Diagnosis? How Changing Your Story Can Change Your Life

  1. 1d ago

    Season 2, Episode 1 - Living Well with my "Buddy AL"

    Send us Fan Mail Alzheimer’s Thriver™ Season 2, Episode 1 Living Well with my "Buddy AL" SHOW NOTES About This EpisodeSeason 2 begins with Larry and Janna sharing the real story behind Alzheimer’s Thriver™ — not a polished version of life with Alzheimer’s, but what they have learned about continuing to live, adapt, laugh, love, and find purpose while “Buddy Al” is along for the ride. From the tennis-court accident that began their journey to Janna’s Alzheimer’s diagnosis, they talk candidly about grief, determination, and the decision to focus less on what has been lost and more on what can still be done today. In This Episode·       Why Janna calls Alzheimer’s “Buddy Al” — and how humor can take away some of its power. ·       Their decision to keep living rather than simply existing after the diagnosis. ·       The lifestyle choices they have made, including a very-low-carbohydrate approach, while emphasizing that they are sharing their personal experience rather than prescribing a diet for others. ·       Why movement still matters — from walking and exercise to Janna continuing to hit tennis balls with a ball machine. ·       Adapting brain games and word exercises to what Janna can still do instead of concentrating on what has become difficult. ·       The remarkable place music still holds in Janna’s life and in their 49 years of making music together. ·       Why meaningful activities do not have to impress anyone — they simply need to matter to the person. ·       A lesson Larry had to learn: sometimes “help isn’t help.” Giving someone time to find a word or complete a task can protect independence and dignity. ·       How changing words, tone, and the urge to correct every small mistake can make communication more positive. ·       Why they call themselves “Team Wagner” — Alzheimer’s affects one person differently, but the journey belongs to both of them. ·       Purpose, laughter, faith, and the reminder at the heart of Alzheimer’s Thriver™: having Alzheimer’s does not mean your life is over. A Thought to Carry With You“The person is still there.” Abilities may change and activities may need to be adapted, but connection, identity, enjoyment, purpose, and dignity still matter. Sometimes thriving means finding a new way to keep doing something you love. Helpful ResourcesThese independent resources provide additional information related to themes discussed in the episode. They are offered for education and support and are not a substitute for individualized medical advice. Movement & Exercise The Alzheimer’s Association explains how physical activity supports overall and brain health, while the National Institute on Aging discusses adapting exercise for people living with Alzheimer’s and related dementias. ·       Alzheimer’s Association — Get Moving ·       National Institute on Aging — Exercising With Chronic Conditions Nutrition & Brain Health The episode describes Larry and Janna’s personal low-carb/keto approach. Current major Alzheimer’s organizations do not recommend one specific diet as a treatment for Alzheimer’s. The Alzheimer’s Association discusses balanced, heart-healthy eating patterns and the evidence being studied around nutrition and brain health. ·       Alzheimer’s Association — Brain Health ·       Alzheimer’s Association — Can Alzheimer’s Be Prevented? Keeping the Mind Engaged Brain games are not proven to stop or reverse Alzheimer’s, but enjoyable cognitive engagement, learning, hobbies, and adapted activities can provide stimulation and connection. ·       National Institute on Aging — Cognitive Health and Older Adults ·       Alzheimer’s Association — Activities Music, Familiar Activities & Connection Music and familiar activities can provide opportunities for expression, enjoyment, connection, and engagement even as dementia progresses. ·       Alzheimer’s Association — Art and Music ·       National Institute on Aging — Adapting Activities for People With Alzheimer’s Disease Living Well With a Diagnosis The Alzheimer’s Association offers practical guidance for maintaining physical health, independence, identity, routines, and meaningful activity after a diagnosis. ·       Alzheimer’s Association — Taking Care of Yourself The Message of Season 2Larry and Janna do not pretend Alzheimer’s is easy. Season 2 will continue sharing what they are learning, what works for them, what does not, and what life with Buddy Al looks like as the journey continues — one day at a time. Still here. Still Team Wagner. Still thriving.   Alzheimer’s Thriver™ Be sure to go to our website at alzheimersthriver.org to learn more about Larry and Janna's adventures.

  2. Jul 24

    Episode 21: Handling Brain Fog - "From the Horse's Mouth"

    Send us Fan Mail Introduction In this special episode, Janna speaks directly to those living with Alzheimer's disease. Larry sits this one out as Janna shares her personal experience with disorientation—what it feels like, why it can be frightening, and what she hopes caregivers and loved ones will understand.        [Flute - Janna Plays Beethoven with the string trio during the Intro] Topics Discussed ·       Disorientation is one of the most challenging and  misunderstood symptoms of Alzheimer's disease. ·       It is far more than simply getting lost—it changes  how a person experiences the world around them. ·       The goal of this episode is to help caregivers  understand disorientation so they can respond with  greater patience, confidence, and compassion. What Is Disorientation? ·       Place – 'Where am I?'·       Time – 'What day, month, or year is it?'·       Person – Difficulty recognizing familiar people or relationships.·       Situation – Not understanding why they are somewhere or what is happening. Why It Happens ·       Alzheimer's damages areas involved in memory, spatial navigation, visual processing, and sensory integration.·       As a result, familiar surroundings may suddenly feel unfamiliar. Common Examples Confusing morning with evening.Not recognizing a familiar room.Believing it's time to go to work after retirement.Feeling frightened in public places.Mistaking reflections or TV images for real people.Helpful Links Alzheimer's Association – Wandering and Getting Lost https://www.alz.org/help-support/caregiving/stages-behaviors/wandering National Institute on Aging – Alzheimer's Changes in Behavior and Communication https://www.nia.nih.gov/health/alzheimers-changes-behavior-and-communication National Institute on Aging – Communicating With Someone Who Has Alzheimer's Disease https://www.nia.nih.gov/health/alzheimers-changes-behavior-and-communication/communicating-someone-who-has-alzheimers Rare Dementia Support – Posterior Cortical Atrophy (PCA) https://www.raredementiasupport.org/pca/ Be sure to go to our website at alzheimersthriver.org to learn more about Larry and Janna's adventures.

  3. May 2

    Episode 20 Dignity and Alzheimer's

    Send us Fan Mail "Words From the Horse's Mouth" What does dignity really feel like for someone living with Alzheimer’s? In this episode, Janna and Larry share real-life moments where dignity can either be preserved—or unintentionally taken away. From being interrupted or rushed, to the power of eye contact and inclusion, this conversation offers practical, compassionate ways to protect the person behind the disease. In this deeply personal and practical episode, we explore how dignity is not something Alzheimer’s can take—it’s something that must be actively protected. As memory fades and communication becomes more difficult, the way we respond becomes everything. This episode walks through real-life situations where dignity can quietly slip away—and how small shifts in language, tone, and approach can restore it. Whether you're a spouse, family member, or support person, or you yourself have the disease, you’ll come away with a clearer understanding of how to go beyond just managing situation. Key Takeaways• Dignity is inherent and not dependent on memory • Small habits like interrupting can reduce dignity • Eye contact and acknowledgment restore connection • Inclusion in tasks builds purpose • People with Alzheimer’s are still aware ResourcesAlzheimer’s Association – Communication Tips Teepa Snow UCLA Dementia Care National Institute on Aging Family Caregiver Alliance Be sure to go to our website at alzheimersthriver.org to learn more about Larry and Janna's adventures.

  4. Jan 23

    Episode 19 Acceptance and Adjustments

    Send us Fan Mail EPISODE 19 SHOW NOTES “Acceptance & Adjustments” Living with Alzheimer’s means facing changes you didn’t choose — and figuring out how to keep living well anyway. In this episode, Janna and Larry talk honestly (and with humor) about what it feels like to accept what’s changing and how small adjustments can make daily life calmer, safer, and more joyful. They explore how things like recognizing faces, finding words, moving through the house, or staying engaged can require new strategies — and how companionship, music, routine, and creativity can make a big difference without taking away dignity. If you’re living with Alzheimer’s, loving someone with it, or both, this episode offers a realistic but hopeful look at how acceptance and adaptation can protect the things that matter most. You’ll hear about: ·       what acceptance feels like from the inside ·       why adjustments aren’t surrender — they’re tools ·       how companionship and support help keep purpose alive ·       the surprising value of music, reading, and humor ·       and what it means to “decide to thrive” even as the brain changes   Helpful Resources  Alzheimer’s Association — “I Have Alzheimer’s: Resources for Support” This main page is written for people living with Alzheimer’s. It gathers simple, practical information on what to expect, how to live well, and where to find support without drowning you in medical language.    Alzheimer’s Association — Tips for Daily Life Offers down-to-earth ideas to make everyday life a bit easier when you’re living with memory and thinking changes — things you can try at home, at your own pace.    Alzheimer’s Association — Taking Care of Yourself Focuses on the person with Alzheimer’s: your health, stress, rest, and emotional well-being, with suggestions for staying as strong and independent as possible. Alzheimer’s Society (UK) — Coping with Memory Loss A friendly guide for people who are noticing memory problems, with practical ideas for routines, organizing things at home, and handling the feelings that come with it. Forward With Dementia — Getting Support & Adjusting to a Diagnosis Written in plain language for people with dementia, this page talks about the emotional side of getting the diagnosis and how support, counseling, and peer groups can help you adjust.   “Acceptance doesn’t mean giving up — it means making room for what’s still possible.” Be sure to go to our website at alzheimersthriver.org to learn more about Larry and Janna's adventures.

  5. 11/20/2025

    Episode 18: New Developments as Time Goes By

    Send us Fan Mail Alzheimer’s Thriver™  In this episode, Janna and Larry share recent changes in their Alzheimer’s journey — from slower mornings and occasional disorientation to accepting help with more peace and humor. They discuss how companionship, gentle support, post-surgery recovery, and small daily moments (like seeing children or laughing together) all shape their ongoing commitment to thrive rather than feel defeated. The episode encourages both patients and care partners to embrace patience, teamwork, and gratitude as the condition progresses.       Mornings now take longer, and Janna uses calm self-encouragement to get oriented.      Accepting help has become easier and strengthens their partnership.       Companions are now helping with flute practice — and learning flute themselves.      A recent surgery and medications temporarily affected mobility and cognition.      Palliative care is being introduced for additional support.       Humor, shared routines, and noticing small joys help them continue thriving.Helpful References & Studies 1.     Sleep problems & morning confusion – NIA ⁠https://www.nia.nih.gov/health/sleep/managing-sleep-problems-alzheimers-disease⁠ 2.     Companionship & meaningful activities – Alzheimer’s Society ⁠https://www.alzheimers.org.uk/get-support/daily-living/activities-dementia⁠ 3.     Dementia risk after surgery (peer-reviewed, Lancet EClinicalMedicine)⁠https://www.thelancet.com/journals/eclinm/article/PIIS2589-5370%2822%2900457-6/fulltext 4.     Sleep & behavioral symptoms in Alzheimer’s – Alzheimer’s Association ⁠https://www.alz.org/alzheimers-dementia/treatments/for-sleep-changes⁠  5.     Hospice & palliative care – NIA ⁠https://www.nia.nih.gov/health/hospice-and-palliative-care Be sure to go to our website at alzheimersthriver.org to learn more about Larry and Janna's adventures.

  6. 11/12/2025

    17 Embracing Inspiration and Optimism

    Send us Fan Mail “Each New Day, A New Page: Embracing Optimism While Living with Alzheimer’s” 📝 Show Notes for Episode 17: Embracing Inspiration and Optimism In this heartfelt episode, Janna, an Alzheimer's thriver, and her husband Larry share an intimate anniversary conversation that turns into something truly profound. Through reflections on memory, environment, and emotional overwhelm, Janna reveals a powerful epiphany she received in a dream: that each new day is a page in the continuing story of her life. No longer focused on what she has lost, Janna is choosing to embrace what she still can do—with joy, humor, and clarity. The episode touches on: - How sound and sensory overload affect Alzheimer's communication - A breakthrough with nighttime muscle cramps (thanks to a new salt supplement!) - The creative process of reframing daily life as an evolving story - The difference between passive acceptance and active embracing of one’s reality - Living with intention, purpose, and spiritual awareness in Alzheimer’s This episode is a celebration of resilience, love, and the human spirit’s ability to reframe challenge into creativity.   🔗 Resources & Related Studies - Sense of Purpose & Lower Dementia Risk – NIH/PMC:  - Purpose and Brain Health – Rush University:  - Fewer Behavioral Symptoms with Greater Life Purpose – Taylor & Francis:  - Positive Psychology in Cognitive Decline - Narrative Identity & Life Story Tools – Springer: - Reminiscence Therapy in Dementia – PMC Review:  - Daily Meaningful Activities for Alzheimer’s – Dementia UK:  - Art & Identity – “I Remember Better When I Paint” Documentary: https://www.irememberbetterwhenipaint.com/ 🌐 Visit Us For more stories and ways to stay connected, visit: https://www.alzheimersthriver.org Be sure to go to our website at alzheimersthriver.org to learn more about Larry and Janna's adventures.

  7. 10/31/2025

    Episode 16: When to Let the Cat Out of the Bag

    Send us Fan Mail “Afraid to Share the Diagnosis? How Janna Told Her Family and Took Back Her Voice”    Not sure when or how to tell loved ones about an Alzheimer’s diagnosis? You’re not alone. The early stage is often filled with confusion, self-doubt, and fear of being treated differently. But hiding it only makes things harder. In this powerful episode, Janna shares how she broke the news to her sons and grandkids, and the surprising freedom that came with naming the diagnosis out loud. You’ll also hear the simple communication shift that helps her stay present and engaged in fast-paced conversations, even with memory challenges.    You’ll discover:  Why telling others isn’t just about informing ...it’s about reclaiming power.     What to consider before speaking with children or grandchildren  The gentle language Janna uses when she doesn’t want to say “Alzheimer’s” A unique “echoing” technique that keeps her focused during conversations How to advocate for your needs without shame or apology If you or someone you love is wrestling with how much to say—and when—this episode offers real-life wisdom from someone walking the journey with courage, humor, and grace.  1. European Geriatric Medicine (2021)  “Family members’ attitudes towards telling the patient with Alzheimer’s disease their diagnosis: a 20year repeat study”  In Ireland, family members surveyed in 2021 were over 4× more likely to favor disclosing the diagnosis compared to two decades earlier Mayo Clinic Press+4SpringerLink+4PubMed+4. The shift reflects broader recognition of patient autonomy, with disclosing seen as facilitating proactive planning rather than evoking negative reactions SpringerLink.   2. Physicians Postgraduate Press (2019)  “Disclosure of Alzheimer’s Disease and Dementia: Patient and Care PartnerCentric DecisionMaking and Communication”  This evidence-based consensus emphasizes that early and timely disclosure, paired with psychoeducation and care planning, improves quality of life, allows shared decision-making, and reduces harm by enabling earlier intervention PubMed.   3. Alzheimer’s & Dementia Translational Research & Clinical Interventions (2024)  “Personal value of Alzheimer’s disease biomarker testing and result disclosure from the patient and care partner perspective”  Disclosure of biomarker results (e.g. CSF/amyloid tests) provided diagnostic clarity, reduced anxiety, and motivated lifestyle changes and future planning, both for patients and care partners Verywell Health+12Alzheimer's Journals+12PubMed+12. Some noted that patients hesitated to share to avoid burdening others, but families often appreciated the information and wanted to support planning PMC+3Alzheimer's Journals+3PMC+3. Be sure to go to our website at alzheimersthriver.org to learn more about Larry and Janna's adventures.

  8. 09/23/2025

    Episode 15 - Important Interruptions

    Send us Fan Mail Episode 15: Important InterruptionsIn this heartfelt episode, Janna and Larry explore the challenges and realities of conversational flow when memory loss and slower speech patterns are present. They discuss the tension and humor of being interrupted, how interruptions can feel both frustrating and necessary, and the ways they’ve learned to “embrace the lag” to stay connected in family and group conversations. Highlights from this episode: ·       How interruptions can both hurt and help when navigating memory changes. ·       Why “embracing the lag” opens up space for deeper connection. ·       Practical tools Janna uses—like signaling and echoing—to stay engaged. ·       What families can do to create patience and respect in conversations. Listeners will walk away with fresh insight into the importance of slowing down, giving grace, and making room for every voice at the table—especially for those navigating Alzheimer’s or other memory challenges.  Further Reading & Studies on Patience in Conversations with Alzheimer’s Collins et al., 2022 – Methods and approaches for enhancing communication in dementia. Published in PMC/NCBI. Shows that slower, patient communication and simplified methods help people with dementia be better understood. https://pmc.ncbi.nlm.nih.gov/articles/PMC9109550 Tappen et al., 2002 – Conversation Intervention with Alzheimer’s Patients. Published in PMC/NCBI. Found that giving patients more time to respond and avoiding interruptions improved communication abilities. https://pmc.ncbi.nlm.nih.gov/articles/PMC2239260 Sunjaya et al., 2025 – Communication strategies for delivering personalized dementia care. Published in Ageing (Oxford Academic). Highlights patience, pauses, and individualized pace as essential in dementia care conversations. https://academic.oup.com/ageing/article/54/5/afaf120/8131738 Additional Authoritative Resources: National Institute on Aging – Communicating With Someone Who Has Alzheimer’s Disease: https://www.nia.nih.gov/health/alzheimers-changes-behavior-and-communication/communicating-someone-who-has-alzheimers Alzheimer’s Association – Communication tips: https://www.alz.org/help-support/caregiving/daily-care/communications Harvard Health – Bridging the Gap: Dementia Communication Strategies https://www.health.harvard.edu/mind-and-mood/bridging-the-gap-dementia-communication-strategies Be sure to go to our website at alzheimersthriver.org to learn more about Larry and Janna's adventures.

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About

Feeling Lost After an Alzheimer's Diagnosis? How Changing Your Story Can Change Your Life

Information

  • Creator
    Alzheimers Thriver
  • Years Active
    2025 - 2026
  • Episodes
    21
  • Rating
    Clean
  • Copyright
    © 2026 Alzheimer's Thriver
  • Show Website
    Alzheimer's Thriver