Autism Dadcast

Gaz and Andrew

An unfiltered, unflinching, and occasionally inappropriate deep dive into the world of autism parenting-from a dad's perspective.

  1. 2d ago

    #44 | Stem Cells & Autism: Hope, Science, or a Very Expensive Gamble?

    Across the world, parents of autistic children are being offered something that sounds almost miraculous. Clinics promise better speech, better eye contact, calmer behaviour, and in some cases claim to repair or reverse autism. The price runs from £10,000 to £40,000, and often more than once. Over the last few months we've been approached by clinic after clinic wanting to come on the show and sell it to you. We said no. Instead we went and read the studies. This one isn't about having a go at parents. Every parent looking at this is acting out of love, and we've both been desperate enough to try anything. But love doesn't mean a clinic gets to make huge claims without evidence. Stem cell therapy is a legitimate area of research. It is not currently a proven treatment for autism, and there's a difference between something being researched and something being proven. We also get into the ITV whistleblower, and the GB News piece asking whether "those people" should have access to children. Timestamps 00:00 Hope, science, or a very expensive gamble 02:21 We are not attacking parents 10:15 What autism actually is 13:18 What stem cells actually are 15:56 The 2017 Duke study, 25 kids and no placebo 18:47 The 2020 Duke study, and what it found 24:38 Claim: a 95% success rate 29:08 Why you'd swear blind it worked 31:45 Thomas and Lydia progressed. Neither had stem cells 35:37 Claim: it repairs the autistic brain 38:12 Claim: most children improve 40:45 Claim: our treatment is evidence based 43:02 The risks nobody puts in the brochure 48:00 What that money could buy instead 50:45 The influencer taking commission 54:02 Have a word with yourself 66:45 "Have you missed the treatment window?" 72:32 Myths and facts 82:55 The ITV whistleblower 86:50 GB News and "those people" Latest episode in the link tree in bio.

  2. Jul 9

    #43 | "Where Will They Be When They're 30?" | Jolanta Lasota, Ambitious about Autism

    This week Gaz and Andy sit down with Jolanta Lasota, Chief Executive of Ambitious about Autism, at their college in Isleworth. 16 years leading the charity and mum to a 21-year-old autistic son, Jolanta has seen the whole picture, from the early years right through to adulthood and employment. We talk about why purpose matters more than exams, the young man who is non-speaking and holds down two jobs, the boy who was allowed to come to school in his pyjamas, and naming the grief nobody warns you about. Jolanta describes raising an autistic child as walking through woods with no path and no torch, and says the job is to be the one who carries the light. Honest, hopeful, and one of our favourite conversations yet. Timestamps - 00:00 Welcome, and where we are today - 00:27 [GUEST]'s journey, 16 years at Ambitious about Autism - 01:07 What's really changed in how we understand autism - 05:57 The sensory pod that blew us away - 06:58 The schools, the age groups, and post-19 provision - 10:36 Why "purpose" matters more than a curriculum - 12:20 "Walking through woods with no torch": what family life feels like - 13:27 The non-speaking young man with two jobs - 15:03 Are employers actually changing? - 15:49 Policy, the white paper, and autism as a political football - 20:06 Being the "happy helper", never enemy-ising people - 22:14 What school looks like at four to seven - 24:40 Focus on strengths, don't drill them on what they can't do - 27:09 Gaz's own school story: six D's and learning differently - 33:03 The weight of GCSEs and "lost leaders" - 38:02 Don't underestimate them: the iPad "daddy" moment - 40:28 Parents' guilt, and why it won't always be okay - 43:47 Grief without a death - 45:06 What's next for Ambitious about Autism - 49:13 Thanks and close

  3. Jun 26

    #42 | "I Wouldn't Pay A Penny To Change Him" | Paul Mullin On Albi, Autism & Being A Dad

    Paul Mullin has scored goals in front of millions and become a household name through Welcome to Wrexham. But this one is about the part of his life the cameras rarely catch: being dad to Albi, his autistic son. Gaz and Andy sit down with Paul for an honest, Albi-centric conversation about the regression that stopped his little boy in his tracks, the guilt that kept him up at night, and why he wouldn't change a single thing about his son. Plus the moment Albi found a way to tell him 'you're my best friend' without saying a word. If you have ever felt like the only dad going through this, this one is for you. Timestamps 00:00 Welcome Paul Mullin 01:00 The first signs, and Albi after his 12-month jabs 02:00 Regression: like a click of the fingers 04:00 The guilt, and crying himself to sleep 04:30 I wouldn't pay a penny to change him 05:35 Denial, and getting the diagnosis 07:20 Speaking about it on Welcome to Wrexham 08:24 The hope that kills you 11:38 Why 'he'll be fine' doesn't help 13:00 Did he grieve? The problem-solver dad 16:14 Being a footballer dad: time away and routine 19:12 How Albi communicates now 22:15 Holidays: frozen meals, dry ice and the airport 25:40 Coming home: holidays, holidays, holidays 27:50 Razor-sharp awareness: he just knows 29:20 The crafty negotiator: jet skis and boats 33:40 The best friend clip 35:07 Macho on the pitch, in tears at home 35:48 Autism in Racing and giving back 38:26 Nobody ever asks the dad how he is 43:00 Advice to a dad just starting the journey New episodes of the Autism Dadcast every week. Real talk, real dads, real autism. Listen, follow and find everything in our link tree in bio.

  4. Jun 11

    #40 | Toilet training, Autism & Gut Health.

    Every parent of an autistic child has been told the same thing: just take the nappy off and sit them on the toilet. This week Gaz and Andy sit down with Charmaine, a learning disability nurse turned continence consultant with over 30 years of experience, and find out why that advice not only fails, it can make things worse.What starts as a chat about toilet training turns into something much bigger: gut health, the gut-brain connection, sleep, meltdowns, and the quiet toll this takes on a whole family. Charmaine explains why you have to start inside the body and not on the toilet, why it is learning and not training, and why no parent struggling with this has ever been failing.If you have ever felt judged, stuck, or completely on your own with this, this one is for you.Chapters00:00 Meet Charmaine, continence consultant02:45 Why toilet training is so hard for autistic kids03:34 Gut health and the gut biome05:43 The gut as a second brain10:07 Where to actually start (inside the body)11:59 The Bristol stool chart21:54 Nobody makes mistakes: parent blame and misinformation25:51 Learning, not training30:05 Why rewards do not work38:20 What the NHS offers, and the postcode lottery49:53 Why it works at home but not at school53:47 It was never lazy parenting57:42 Sleep, the brain and meltdowns1:08:50 Charmaine's support group and free resources1:13:18 The real cost: holidays, work and isolationFind CharmaineClear Steps Consultancy: https://www.clearstepsconsultancy.co.ukSupport group: How to Get the Wee and Poo in the Loo (videos, live sessions and free downloads)Socials: search "continence consultant and trainer" on Facebook, Instagram and LinkedInNew episodes of the Autism Dadcast every week. Real talk, real dads, real autism. Listen, follow and find everything in our link tree in bio.

  5. May 20

    #38 | "What If You Didn't Have to Fight So Hard?"

    You sit down with the paediatrician. You've got half an hour. You know the first 20 minutes will be you trying to prove your child is different to every other child in that waiting room - and you'll walk out no further forward. Orrin Benford knows that feeling. After a year of being fobbed off across GPs, neurologists and urologists for his daughter Indie, he stopped trying to remember everything off the top of his head and built something that did it for him. This episode is about what happens when parents stop fighting and start advocating - with the full picture, not a half-remembered one. In this episode: Orrin's journey from digital-nomad life to full-time parent carer in Australia, why so many parents feel gaslit by the system, the difference between fighting and effective advocacy, and how technology is finally letting parents drive change instead of waiting for the system to catch up. 🔑 Key moments: - 00:38 — Orrin's story: England, Australia, and an airport on Christmas Day - 04:29 — The seizure the day after Indie's first birthday - 12:15 — Healthcare in Australia vs the UK vs Dubai - 17:05 — Why parents hand over "dirty, incomplete data" - 19:22 — The two-page summary that changed everything - 25:16 — Why it's not gaslighting, but it feels like it - 37:35 — The handovers, the ring binders, and the things you forget - 46:19 — The things that break parents are the things that didn't need to happen If this episode helped, subscribe and leave a review - it helps other parents find us. Follow Orrin: @OrrinBenford | The app: @theindiapp #AutismDadcast #Autism #Parenting #Neurodiversity #ASD #SEND

  6. May 12

    #37 | "The Word That Broke Me in Popeye's"

    Adam Parkinson came on this week. One of the Two Mr. Ps. Teaching assistant. Podcaster. Dad of two — a 10-year-old daughter and a 7-year-old autistic son called Max. We talked about Max. We talked about the plane aisle moment his wife filmed without telling him, that went viral and started everything. We talked about siblings, and what it means to watch your daughter try not to look upset when her brother destroys her Barbie Dream House. We talked about online trolls, the dads' WhatsApp group, and the time a stranger told him celebrating his son's diagnosis was "like celebrating your kid having cancer." And we talked about the moment in Popeye's last weekend when Max tried a chicken tender for the first time, looked up, and said one word he'd never said before. Timestamps: 0:00 — SATs week, Popeye's, and a school uniform standoff 3:00 — Meet Adam and the family 4:00 — Spotting it during lockdown 5:18 — You're allowed to mourn the life you planned 6:23 — The plane aisle video that started everything 8:31 — Isla, sibling of the year 10:55 — When the Barbie Dream House got destroyed 11:53 — You can never relax 13:16 — What people don't understand until they live it 15:14 — The small wins nobody else sees 17:25 — Autism top trumps and 23 hours awake 18:30 — Handling violent moments differently after the community 20:07 — Verdict. Great. Outstanding. 21:25 — Are dads in the SEND world overlooked? 24:33 — Permission to talk 26:55 — The celebrating cancer comment 28:13 — Chubby Tommy Robinson and other DMs 31:51 — The dads' WhatsApp army 38:33 — Two Mr. Ps and how it started 49:17 — Pen licences and getting recognised in your swimming shorts 59:55 — Adam's advice to a dad at diagnosis

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An unfiltered, unflinching, and occasionally inappropriate deep dive into the world of autism parenting-from a dad's perspective.

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